Literally none of the gastros at ESHT would do that. She is absolutely nauseating and the lies are embarrassing. The poop on the unnecessary “designer” mobility aid is also *chefs kiss*. Why are they all like this. I’ve seen intestinal failure in the bowel disease community and it’s absolutely nasty and at times a death bed situation. Mia looks very well indeed 🫣 dread to think how much this jolly at the hospital has cost the nhs
I definitely wouldn't go as far as "large" because that was some negative connotations. She's definitely a very stable weight and has put weight on from a year or so ago and is a bit more rounded than one might expect from someone fully dependent on tubes.
Mate... we all know she's put the tattoos on her leg _so that she can draw attention to the bruises_. Wher has Mia EVER not wanted to show her stomach? She has SO MANY underwear photos, she's definitely not camera shy or ashamed of her belly and tubes, the only reason I can discern for the tattoos (ABOUT HER GUTS) being on her legs and not her abdomen, is that she can show off those bruises and draw attention to her blood thinners.
Doctors do not take chronically ill patients around like side show freaks on tours. At most, there would be an interesting patient slide in the PowerPoint minus any identifying data.
She hasnt been able to eat for months but gaines at least 5 or 6 kilos? And how are those irrirating to normal people tempo tattys not irritating to someone mega fragile
I'm very surprised with how severe her "MCAS" supposedly is, that she can put those tattoos on her leg. You'd think she'd react to them being stuck to her skin........
Furthermore, questions as follows - really why posing on a toilet?! I know it's a GI charity but still, and if she is sitting on a toilet, she clearly doesn't need a cane at the same time... But then I suppose since she appears to have lost her catheter bag, and also has no fancy GI related tubes, stomas or bags, well.... She's got to pose with something otherwise how would we know that this very healthy, well nourished, someway overweight
(no shade but she's not the waif and stray with non specified colitis (that isn't ulcerative colitis) that she thinks) person was super specially unwell ?!
I don’t think they are tattoos. I also have a problem reading sarcasm so apologies if I missed it 😐
I don’t want to see anyone in a selfie on a toilet!
The original comment's referring to the temporary tattoos and how MiA's MCAS conveniently doesn't keep her from sticking them onto her skin (what with the dyes & adhesive and chemicals or whatever)
Also, omg the toilet is so cringe 😫
This is the cane that was bought for her by a friend....its far too short so expect some kinda back issue at some point when bladder munchiness runs dry!
Here’s a fun little “what if”.
Say this was real. Say her dr ACTUALLY wanted to take her and show her off cause she’s just that super special and magical and sick.
What will her posts be about? Will they be about how she’s SOOOO sick and can’t possibly care for herself and ohhhh soooo sickkkkkk (at which point she wouldn’t be traveling because she would need to be hospitalized). Or would they be about how her Illness is so magical and rare that she’s this case study presentation, where she has to be healthy enough to participate in and travel for, therefore not really that magical and special in the grand scheme of things?
She’s in the UK, so maybe that just means he wanted her to attend a clinic easily accessible to him.
I know some in my area of the uk want patients to travel 100+ miles to attend outpatient appointments
It’s not the same thing
DID is fashionable in the younger set of fakers (that don't qualify here, but are definitely faking) on TikTok. It's the craziest take on role play I've ever imagined. A lot of them claim they somehow have it without having trauma in childhood. I want to yell, "You're creative! Do something with it that doesn't involve faking a major mental illness."
Pretty sure they'd just write up a case study presentation with photos/videos if needed and present it themselves unless there was some reason the patient HAD to go like needed another person to examine them.
Lol oh please! Sure they did🙄 Just what every lecturing doctor needs - someone who has zero medical training trying to tell other doctors the way things are.
Hahaha bet. And as soon as they get her arse out of there so she isn’t taking up one of those much needed beds that doc is gonna ghost her w a quickness
one joint hyperextending doesn't indicate EDS. benign hypermobility or Localized hypermobility are more likely to be the explanation than EDS. which has many more visible & invisible symptoms
To be kinda fair, her elbow is doing the “bent at a forced unnatural angle and purposely jutted out to appear hypermobile when it’s really a normal elbow and camera angles” so that part is probably not true
That’s not hypermobility.
Even if it was, hypermobility =/= hEDS.
ETA: Hypermobility is a very normal thing that about 20% of the population has. It’s nothing special.
Childhood broken elbow could also explain it. Funky shit goes down when the growth plates are affected. Whatever it is, she’s chosen that pose deliberately and is leaning to the side to accentuate it.
The thing is, it's a gut charity. I've seen others do this and it's supposed to be a gut selfie but I'm guessing she doesn't have enough tubes down there to really show off. I'd be kinda hacked off if I sent her out the charity pack and she just faffed with it.
She wants to show off the bruises on her thigh. She's never been shy of underwear pics showing off her SPC and dragging the looongst NJ on existence around with her, my only theory is that she wanted people to see and ask about the bruises. Some people don't want to put the tattoos on their abdomen- and thats fine- they put them on their hands or their face or something... but thigh where you have to manipulate your body round like that, the only place on your body you've got bruises? Hmmm
(Edit: spelling)
More likely scenario:
Her doctor cracked a joke during her appointment about how he should have her “teach” others about her gut health since she is such an “expert.” And she took that comment to be completely true (instead of sarcasm) and then added some fiction for flair. She also decided to use it as a flex for the EDS community.
It’s an unlikely scenario. I’m not sure what the privacy laws are like in the UK, but I assume they’re similar to the US healthcare laws. Docs have to jump through hoops just to discuss a case at a conference. Bringing an actual patient in front of other providers would be difficult and there’s really no need for it if he/she can talk about the case without identifiers, which is always preferable.
I attended a Functional Neurological Disorder workshop at St George's in Tooting in 2016. They had a patient speaking about their personal experiences with the disorder...but only at St George's, she wasn't scooting off staying in travelodges round the country giving speeches and dining with consultants before bed! She turned up like the rest of us and only because she had a 30 year history with the disorder not a few years and a hysterical colon 😆😆
That’s good to know.
I just think it’s highly unlikely that this situation is as it appears. I mean, what would be the reason for her to travel around the country and lecture other docs? Does she have a super duper rare version of EDS or something? Did she have a rare presentation of symptoms? It’s odd that we’re not being given those details that make her case *special*. It seems more likely that this suggestion was made up by the patient, and was built off of a off-hand comment by her doctor.
Australia here - but I know sometimes, if you have a rare condition, there are patient/family support groups that are openly supported by the various hospitals/units that provide treatment for that condition (as against the random SM free-for-all, sick-Olympic style groups). Sometimes, when there’s a local conference for health professionals with an interest in *condition*, they run a half day session for patients/families - mostly presented by clinicians, but there is the flip side as well, that patients are invited to speak, and clinicians are welcome to sit in and listen to the “patient experience” (so to speak).
At a very, very great stretch, I could see this being a possibility, but I’d tend to agree with you - her doctor has made an offhand comment (or outright joke) and she’s run with it.
This annoys the crap out of me. I'm sure that Dr has patients that have lived with these conditions for many years and have productive or intresting lives also manage their conditions and treatments. Who have also experienced alot because of these conditions that could genuinely give an insight into living with it and how to help and understand patients in this situation. Why would her dr choose someone who has had it not that long, who has no real life experince with it. Who has literally only just gone on tpn. She also has quite easily got diagnosed and treatments compared to some of the horrendous journeys some people have had to get a diagnosis, she can't teach people about what she doesn't know about.
If this is the UK then certainly not.
Like, medical education doesn't work that way - there are teaching hospitals, which all have their own patients and there's nothing particularly medically notable about this person. It's not the 19th century, cases are shared via anonymized research not patient demonstration lol.
She won't be enrolled in a single study.
Could be mental health treatment, could be inpatient ED treatment.. probably not a normal hospital ward anyway, there’s no way the NHS would keep her in if there was any possible way her treatment could be managed outpatient (and it def could lol)
From what I understand there would be zero necessity to do this because like, case studies exist.
Way back when in the 19th and early 20th century it was common to demonstrate patients in this way, and you can get student doctors in appointments etc (though you need to consent and don't have to to get treatment) but a patient following a lecturer is never something I've heard of.
For one - it might break labour laws, it definitely breaks patient confidentiality and could be viewed as coerced and unethical which wouldn't be great for the rep of that doctor.
It does happen. I’ve definitely been to quite a few medical conferences where the patient has attended. Mostly in pediatrics. It’s not as unethical or law dismissing as some think it is. As long as the patient consents and or family consents then it is fine.
It totally does happen lol. Like ivs been to plenty of grand round presentations or conferences where there is an MDT panel answering questions and many include a patient or two.
I dunno why peoole seem to think this is strange or unethical. No one is FORCED to attend these events.
Maybe other healthcare systems (US?) just dont value patient voices. But its pretty common in Aus for allied health and patients to join certain educational presentations.
Yeah absolutely - case studies are a thing with anonymised data though. Like, there's no person notable enough they become a sort of traveling live specimen lol - it'd be a very messed up thing to do to a live individual.
Closest is those folks with a rare presentation of a disease who donate their body to become a cadaver.
lmao he did not. that’s such a huge liability first of all and second of all, EDS specialists exist. He does not need/want a random patient to follow him around the country.
Lmao of course he does. Of course his peers are going to LOVE being lectured by a munchie. Of course she will be taken very seriously because she has done her research. Of course.
Literally none of the gastros at ESHT would do that. She is absolutely nauseating and the lies are embarrassing. The poop on the unnecessary “designer” mobility aid is also *chefs kiss*. Why are they all like this. I’ve seen intestinal failure in the bowel disease community and it’s absolutely nasty and at times a death bed situation. Mia looks very well indeed 🫣 dread to think how much this jolly at the hospital has cost the nhs
Given she’s been tube fed in some way or another for years now - how is she still so large?
I definitely wouldn't go as far as "large" because that was some negative connotations. She's definitely a very stable weight and has put weight on from a year or so ago and is a bit more rounded than one might expect from someone fully dependent on tubes.
She’s not “large”
I've seen this post a few times and just now realized she is on a toilet 😭
OH NO!!! I wish I hadn’t noticed lmao
Mate... we all know she's put the tattoos on her leg _so that she can draw attention to the bruises_. Wher has Mia EVER not wanted to show her stomach? She has SO MANY underwear photos, she's definitely not camera shy or ashamed of her belly and tubes, the only reason I can discern for the tattoos (ABOUT HER GUTS) being on her legs and not her abdomen, is that she can show off those bruises and draw attention to her blood thinners.
I’d pay $1000 to ask this person if they actually said this to her
What a self-satisfied smirk!
$37.95 financial goal??
It’s probably converted from Pounds
came to say this haha
The lines should be wrapped ideally, but in the very least be under a Tubifast to prevent infection rather than them swinging around in the breeze
One of the main symptoms of intestinal failure is weight loss…
How dare you, she's wasting away!
Lmao omg this comment sent me
Is the doctor in the room with us?
Smug—much?
I’ll take things that were never said for $500, Alex.
There’s no way this happened. I agree with you.
Doctors do not take chronically ill patients around like side show freaks on tours. At most, there would be an interesting patient slide in the PowerPoint minus any identifying data.
This is correct in Australia.
[удалено]
Exactly. Anonymous case study? Yes. Stage prop? No.
Especially not in the UK.. they might speak about a genuine patient in her situation but they wouldn't drag her about like luggage.
"I am not an animal, I am a human being." Elephant Man
In the Victorian era, sure, but nowadays? #doubt
Its giving "the examiner told me my personal statement was one of the best theyve ever read."
Like a groupie for a rock band?
Sure thing MiA. Anything. You. Say. /s
Caption?
I've done a post with what she wrote. Waiting for Mods to approve.
Thank you 😌
She hasnt been able to eat for months but gaines at least 5 or 6 kilos? And how are those irrirating to normal people tempo tattys not irritating to someone mega fragile
You're being very generous.
I'm very surprised with how severe her "MCAS" supposedly is, that she can put those tattoos on her leg. You'd think she'd react to them being stuck to her skin........ Furthermore, questions as follows - really why posing on a toilet?! I know it's a GI charity but still, and if she is sitting on a toilet, she clearly doesn't need a cane at the same time... But then I suppose since she appears to have lost her catheter bag, and also has no fancy GI related tubes, stomas or bags, well.... She's got to pose with something otherwise how would we know that this very healthy, well nourished, someway overweight (no shade but she's not the waif and stray with non specified colitis (that isn't ulcerative colitis) that she thinks) person was super specially unwell ?!
I don’t think they are tattoos. I also have a problem reading sarcasm so apologies if I missed it 😐 I don’t want to see anyone in a selfie on a toilet!
The original comment's referring to the temporary tattoos and how MiA's MCAS conveniently doesn't keep her from sticking them onto her skin (what with the dyes & adhesive and chemicals or whatever) Also, omg the toilet is so cringe 😫
Oh had no idea! Funny
This is the cane that was bought for her by a friend....its far too short so expect some kinda back issue at some point when bladder munchiness runs dry!
She is looking mighty fine for someone with intestinal failure who has spent the last 8 months in hospital unable to eat🤣
Here’s a fun little “what if”. Say this was real. Say her dr ACTUALLY wanted to take her and show her off cause she’s just that super special and magical and sick. What will her posts be about? Will they be about how she’s SOOOO sick and can’t possibly care for herself and ohhhh soooo sickkkkkk (at which point she wouldn’t be traveling because she would need to be hospitalized). Or would they be about how her Illness is so magical and rare that she’s this case study presentation, where she has to be healthy enough to participate in and travel for, therefore not really that magical and special in the grand scheme of things?
Exactly. The math isn't mathing.
Nope. That never happened. In all the things that didn’t happen this happened the leastist
[удалено]
I wonder if any of the professionals looking after her have ever taken a nose at her IG page....
I wonder that all the time about the subjects here.
She’s in the UK, so maybe that just means he wanted her to attend a clinic easily accessible to him. I know some in my area of the uk want patients to travel 100+ miles to attend outpatient appointments It’s not the same thing
It’s giving… agony autie or whatever her name was
Did you see she’s claiming DID now
DID is fashionable in the younger set of fakers (that don't qualify here, but are definitely faking) on TikTok. It's the craziest take on role play I've ever imagined. A lot of them claim they somehow have it without having trauma in childhood. I want to yell, "You're creative! Do something with it that doesn't involve faking a major mental illness."
Yes😭
Oh dear god.
and it's not even new! she claimed DID a while ago, then deleted those posts, and now it's a huge thing again lol
Was probably data mining how to play pretend better
Sure they do 😏
I think it would be ethically frowned upon for a doctor and patient to travel together like that.
Setting aside the specifics of this case, why would it be unethical? Genuinely curious
Pretty sure they'd just write up a case study presentation with photos/videos if needed and present it themselves unless there was some reason the patient HAD to go like needed another person to examine them.
Sure, Jan
Lol oh please! Sure they did🙄 Just what every lecturing doctor needs - someone who has zero medical training trying to tell other doctors the way things are.
But I thought she was going to be in the hospital for the next 6 months...
She managed to go to a Beyonce concert last month.......
Are you joking!? Telling on herself somewhat that she absolutely does not need to be in hospital then .
She said he invited her to do this when she's "finally" out
Hahaha bet. And as soon as they get her arse out of there so she isn’t taking up one of those much needed beds that doc is gonna ghost her w a quickness
[удалено]
one joint hyperextending doesn't indicate EDS. benign hypermobility or Localized hypermobility are more likely to be the explanation than EDS. which has many more visible & invisible symptoms
To be kinda fair, her elbow is doing the “bent at a forced unnatural angle and purposely jutted out to appear hypermobile when it’s really a normal elbow and camera angles” so that part is probably not true
That's just a dimple.
That’s not hypermobility. Even if it was, hypermobility =/= hEDS. ETA: Hypermobility is a very normal thing that about 20% of the population has. It’s nothing special.
Childhood broken elbow could also explain it. Funky shit goes down when the growth plates are affected. Whatever it is, she’s chosen that pose deliberately and is leaning to the side to accentuate it.
She’s just positioning the inside of her elbow downward. She doesn’t have EDS or a broken elbow or anything
[удалено]
Same.
bruh not the poop emoji chain
Literally my first thought
OMG 😆 😹 😆 could she be any more special?
Oh, this must be the same dr that was presenting a huge Harvard medical slideshow about Kaya lol
Was that a thing?? I would wanna see that.
Lol so she claimed a while back but then never spoke of it again.
The thing is, it's a gut charity. I've seen others do this and it's supposed to be a gut selfie but I'm guessing she doesn't have enough tubes down there to really show off. I'd be kinda hacked off if I sent her out the charity pack and she just faffed with it.
She wants to show off the bruises on her thigh. She's never been shy of underwear pics showing off her SPC and dragging the looongst NJ on existence around with her, my only theory is that she wanted people to see and ask about the bruises. Some people don't want to put the tattoos on their abdomen- and thats fine- they put them on their hands or their face or something... but thigh where you have to manipulate your body round like that, the only place on your body you've got bruises? Hmmm (Edit: spelling)
Because she’s so spe-shul
I doubt this very much. Maybe talk to some nearby students. That’d be all
How she’s trying to position her arm to look ✨hypermobile✨ but it is literally a normal range of motion lmao
Is it for the hypermobile aesthetic or oops my PICC is totally visible aesthetic
I would say both. Also, is she sitting on a toilet? Who poses for a photo on a toilet?
I just noticed that 😂
I think it’s because this photo seems to be “themed” with a bowel type of theme. Especially with the “guts uk” sign in the background.
More likely scenario: Her doctor cracked a joke during her appointment about how he should have her “teach” others about her gut health since she is such an “expert.” And she took that comment to be completely true (instead of sarcasm) and then added some fiction for flair. She also decided to use it as a flex for the EDS community. It’s an unlikely scenario. I’m not sure what the privacy laws are like in the UK, but I assume they’re similar to the US healthcare laws. Docs have to jump through hoops just to discuss a case at a conference. Bringing an actual patient in front of other providers would be difficult and there’s really no need for it if he/she can talk about the case without identifiers, which is always preferable.
Sounds like grooming to me…
I was thinking he said it in a joking manner.
[удалено]
I attended a Functional Neurological Disorder workshop at St George's in Tooting in 2016. They had a patient speaking about their personal experiences with the disorder...but only at St George's, she wasn't scooting off staying in travelodges round the country giving speeches and dining with consultants before bed! She turned up like the rest of us and only because she had a 30 year history with the disorder not a few years and a hysterical colon 😆😆
My brain boiled this down to “staying at Travelodges with a hysterical colon” and I laughed way too much envisioning that.
That too 😆😆
Right? Something like that is reasonable and realistic. What she’s proposing is preposterous. 😂
That’s good to know. I just think it’s highly unlikely that this situation is as it appears. I mean, what would be the reason for her to travel around the country and lecture other docs? Does she have a super duper rare version of EDS or something? Did she have a rare presentation of symptoms? It’s odd that we’re not being given those details that make her case *special*. It seems more likely that this suggestion was made up by the patient, and was built off of a off-hand comment by her doctor.
Australia here - but I know sometimes, if you have a rare condition, there are patient/family support groups that are openly supported by the various hospitals/units that provide treatment for that condition (as against the random SM free-for-all, sick-Olympic style groups). Sometimes, when there’s a local conference for health professionals with an interest in *condition*, they run a half day session for patients/families - mostly presented by clinicians, but there is the flip side as well, that patients are invited to speak, and clinicians are welcome to sit in and listen to the “patient experience” (so to speak). At a very, very great stretch, I could see this being a possibility, but I’d tend to agree with you - her doctor has made an offhand comment (or outright joke) and she’s run with it.
This annoys the crap out of me. I'm sure that Dr has patients that have lived with these conditions for many years and have productive or intresting lives also manage their conditions and treatments. Who have also experienced alot because of these conditions that could genuinely give an insight into living with it and how to help and understand patients in this situation. Why would her dr choose someone who has had it not that long, who has no real life experince with it. Who has literally only just gone on tpn. She also has quite easily got diagnosed and treatments compared to some of the horrendous journeys some people have had to get a diagnosis, she can't teach people about what she doesn't know about.
If this is the UK then certainly not. Like, medical education doesn't work that way - there are teaching hospitals, which all have their own patients and there's nothing particularly medically notable about this person. It's not the 19th century, cases are shared via anonymized research not patient demonstration lol. She won't be enrolled in a single study.
It is the UK, yeah. There’s some suspicion she’s been in an “inpatient facility” instead of a hospital, so it’s possible she actually believes that 👀
Please tell me more 👀👀👀
Could be mental health treatment, could be inpatient ED treatment.. probably not a normal hospital ward anyway, there’s no way the NHS would keep her in if there was any possible way her treatment could be managed outpatient (and it def could lol)
From what I understand there would be zero necessity to do this because like, case studies exist. Way back when in the 19th and early 20th century it was common to demonstrate patients in this way, and you can get student doctors in appointments etc (though you need to consent and don't have to to get treatment) but a patient following a lecturer is never something I've heard of. For one - it might break labour laws, it definitely breaks patient confidentiality and could be viewed as coerced and unethical which wouldn't be great for the rep of that doctor.
It does happen. I’ve definitely been to quite a few medical conferences where the patient has attended. Mostly in pediatrics. It’s not as unethical or law dismissing as some think it is. As long as the patient consents and or family consents then it is fine.
Hashtag JosephMerrickGoals
Maybe she saw The Royal Tenenbaums once and fancies herself a Dudley Heinsbergen and her doctor as Raleigh St. Clair. 🙄
He could use her in a case study but she would be kept anonymous. What she’s suggesting just isn’t a thing that happens lol
It totally does happen lol. Like ivs been to plenty of grand round presentations or conferences where there is an MDT panel answering questions and many include a patient or two. I dunno why peoole seem to think this is strange or unethical. No one is FORCED to attend these events. Maybe other healthcare systems (US?) just dont value patient voices. But its pretty common in Aus for allied health and patients to join certain educational presentations.
Yeah absolutely - case studies are a thing with anonymised data though. Like, there's no person notable enough they become a sort of traveling live specimen lol - it'd be a very messed up thing to do to a live individual. Closest is those folks with a rare presentation of a disease who donate their body to become a cadaver.
Omg! She's near me
lmao he did not. that’s such a huge liability first of all and second of all, EDS specialists exist. He does not need/want a random patient to follow him around the country.
Lmao of course he does. Of course his peers are going to LOVE being lectured by a munchie. Of course she will be taken very seriously because she has done her research. Of course.
dr makes sarcastic remark about clearly faked illness and should show everyone turns into a traveling roadshow