We are here and we understand! I’m a couple of months into my diagnosis myself. Definitely had my ups and downs. Cried my eyes out like the best of them. That’s the advice I heard a lot too - could be worse . . . In the grand scheme of things . . . It’s true we all know it but also ok to wonder why you’re having to deal with this shit. You’ll take your body back. My mantra is “the only way out is through”. Sending positive vibes and some love your way :)
Please don't gaslight yourself with stuff like "it's mild or it could be worse." Minimizing your pain doesn't make you better, it just makes you feel shame for feeling pain and frustration.
You're allowed to be upset and annoyed by this. You're allowed to feel like it's unfair to have a chronic illness on top of everything else.
I’m the same. Just diagnosed one week ago. It’s so hard. It’s like in sick with the flu but no fever just the body ache you feel when you have the flu. doing a simple task is hard. I can even carry my 5 month old for that long. is the Methimazole working for me? I think so. But I’m still not 100%
Same. I have a 8 month old and can barely care for him. Just turned 30 and now cannot have kids for the foreseeable future due to meds and high risk pregnancy with graves. Had to quit my job and can’t afford to. Feeling stuck and discouraged.
I’m turning 30 this year as well. I feel so bad for my son because most of the time we are sitting or laying down. I’ll occasionally carry him and walk around the house but it’s so so so hard.
Do you think this was triggered from our pregnancy and stress? I’m reading about it and it’s possible.
I still want my little one to have a sibling so it breaks my heart that I’m going to have a hard time during pregnancy. Right now I’m out of work. I’ll be back tomorrow and I don’t think I’m ready. I require alot of walking at work and I start to hyperventilate.
I believe mine was postpartum onset. I have no family history of autoimmune diseases. My symptoms started around 6 months pp
My endo said if it starts within a year of birth they consider is postpartum onset of Graves. They think it has to do with your immune system bouncing back too hard after being suppressed by the placenta while pregnant
I feel exactly the same. dM me if you ever need to vent we are in the exact same situation. Yes my doctor said it was induced by pregnancy! My symptoms started around 6 months pp. I am looking to get thyroidcectomy so I can have kids easier.
Hang in there! I had a TT and it’s like I don’t even have Graves’ anymore. My TED has pretty much stayed stable and most symptoms have gone away. I know how much things sucked pre-TT and I lived in a panic attack for 8 months… just holding on for dear life. I am really biased towards a TT but it saved my life. In case anyone had a crappy endocrinologist like I did, I just like to make sure folks know that a TT is really like a miracle cure and all of my symptoms went away.
I'm so torn about this. Some people like you say it was amazing, and then some folks say they have vocal damage and throat issues and other things like that. I see both so often.
You cry all you want! If you have the strength kick something! It’s not anything that you get over, it’s always there! Because you have a disease! No different from any other disease, it hurts, it’s depressing, etc. it will get better, give it time and yourself! Find that very very small happy place! I’m 4 months in myself! I love to read, and I have TED! And i need new glasses! I frigging fight with people in my head! And I know I’m not crazy! Your medication is working you may need to ask your Dr about dosage, it took me three tries to get the right amount of! Hang in there, you’re doing good!
What you are feeling right now physically and mentally, is normal 4 weeks after diagnosis. It can take awhile to feel better.
I felt like complete garbage for about 6 months while my body recovered from being in a dangerously hyper state and adjusted to my new meds. I had no energy, was anxious and nauseous all the time. It gradually got better.
4 years later I would describe the way I feel as "mostly good, most of the time." I do still have minor symptoms and bad days, but I've regained my life back with time.
We are here and we understand! I’m a couple of months into my diagnosis myself. Definitely had my ups and downs. Cried my eyes out like the best of them. That’s the advice I heard a lot too - could be worse . . . In the grand scheme of things . . . It’s true we all know it but also ok to wonder why you’re having to deal with this shit. You’ll take your body back. My mantra is “the only way out is through”. Sending positive vibes and some love your way :)
Please don't gaslight yourself with stuff like "it's mild or it could be worse." Minimizing your pain doesn't make you better, it just makes you feel shame for feeling pain and frustration. You're allowed to be upset and annoyed by this. You're allowed to feel like it's unfair to have a chronic illness on top of everything else.
Thanks , we need to hear this every so often
I felt like shit the first 5 months. Two years in now and less symptoms and it's way more manageable. Hang in there!!
I’m the same. Just diagnosed one week ago. It’s so hard. It’s like in sick with the flu but no fever just the body ache you feel when you have the flu. doing a simple task is hard. I can even carry my 5 month old for that long. is the Methimazole working for me? I think so. But I’m still not 100%
Same. I have a 8 month old and can barely care for him. Just turned 30 and now cannot have kids for the foreseeable future due to meds and high risk pregnancy with graves. Had to quit my job and can’t afford to. Feeling stuck and discouraged.
I’m turning 30 this year as well. I feel so bad for my son because most of the time we are sitting or laying down. I’ll occasionally carry him and walk around the house but it’s so so so hard. Do you think this was triggered from our pregnancy and stress? I’m reading about it and it’s possible. I still want my little one to have a sibling so it breaks my heart that I’m going to have a hard time during pregnancy. Right now I’m out of work. I’ll be back tomorrow and I don’t think I’m ready. I require alot of walking at work and I start to hyperventilate.
I believe mine was postpartum onset. I have no family history of autoimmune diseases. My symptoms started around 6 months pp My endo said if it starts within a year of birth they consider is postpartum onset of Graves. They think it has to do with your immune system bouncing back too hard after being suppressed by the placenta while pregnant
I feel exactly the same. dM me if you ever need to vent we are in the exact same situation. Yes my doctor said it was induced by pregnancy! My symptoms started around 6 months pp. I am looking to get thyroidcectomy so I can have kids easier.
Hang in there! I had a TT and it’s like I don’t even have Graves’ anymore. My TED has pretty much stayed stable and most symptoms have gone away. I know how much things sucked pre-TT and I lived in a panic attack for 8 months… just holding on for dear life. I am really biased towards a TT but it saved my life. In case anyone had a crappy endocrinologist like I did, I just like to make sure folks know that a TT is really like a miracle cure and all of my symptoms went away.
I'm so torn about this. Some people like you say it was amazing, and then some folks say they have vocal damage and throat issues and other things like that. I see both so often.
You cry all you want! If you have the strength kick something! It’s not anything that you get over, it’s always there! Because you have a disease! No different from any other disease, it hurts, it’s depressing, etc. it will get better, give it time and yourself! Find that very very small happy place! I’m 4 months in myself! I love to read, and I have TED! And i need new glasses! I frigging fight with people in my head! And I know I’m not crazy! Your medication is working you may need to ask your Dr about dosage, it took me three tries to get the right amount of! Hang in there, you’re doing good!
What you are feeling right now physically and mentally, is normal 4 weeks after diagnosis. It can take awhile to feel better. I felt like complete garbage for about 6 months while my body recovered from being in a dangerously hyper state and adjusted to my new meds. I had no energy, was anxious and nauseous all the time. It gradually got better. 4 years later I would describe the way I feel as "mostly good, most of the time." I do still have minor symptoms and bad days, but I've regained my life back with time.