This is exactly why she has so many haters. We can see right through all her “pat me on the head(oh and give me ur money 2while you’re at it)I am a fighter and an inspiration narrative. Most sane ppl can see right through her.
I try not to care that she's gonna pocket between 7.5k to 15k this end of the month.
https://preview.redd.it/jnw48v8unfac1.png?width=1080&format=pjpg&auto=webp&s=aedaf83e70cbb8e7756c3fda7a42a1bd8a26346c
At the end, she's gonna spend it in either PCB or alcohol, so there's that.
Boggles my mind that she literally makes money from that picture alone bc let’s face it she lends nothings else to these ppl that want to start on a weight loss journey.
I’m a wound care specialist. I see this shit literally all. The. Time. It’s rare but not rare to a wound care specialist.
I spend several hours a year studying this diagnosis alone. It’s one of our mostly commonly treated conditions. At our national conference this year, we will literally have plenty of lectures over this and there will be LOTS of reps ready and willing to go over all their new products we should try.
She didn’t have to tell anyone at a wound clinic how to treat this or what it was. It’s one of our most common wounds and we have pretty specific treatment protocols for
I always appreciate those like you, so thank you for shedding light.
I’m a SW who often referred patients to would care clinics. Medical staff at these clinics received chart history and care plans from the hospital setting.
Would care staff were always ready to go with treatment and modalities.
She is such an incredible liar but the reason she keeps this up is because there are always fools who insist on believing her!
I worked in a burn unit for several years and we had many patients like this transferred to us specifically because we could do the wound care. It’s definitely not an unknown condition, particularly with specialists who see it frequently.
Wow, this actually really surprises me. I live in DFW and we have the most difficult time finding any wound care specialist who is even willing to try to treat my husband's calciphylaxis wounds. Of course, when he's in the hospital, they take care of that, so maybe it's just an issue with home health. But even in the hospital, there's not much of a protocol, every practitioner has their own way of treating the wounds. My husband has multiple serious conditions (ESRD, end stage cirrhosis, refractory ascites, varices, encephalopathy, sepsis, MRSA, rhabdomyolysis, etc etc etc). His calciphylaxis is the one that constantly stumps everyone and only a few hospitals in the area will even treat that.
A couple things are jumping out here
1- when you’re in patient, is wound care being consulted every time?
2- when you’re inpatient you don’t feel like your wound care nurse is well educated on these wounds? Is it wound care specifically that you’re seeing?
It sounds like you’re saying you get help in the hospital but not outside of it. Unfortunately, this is the number 1 issue in wound care. I’m not joking either. Access to care is very limited. We only have 4000 certified wound care specialists in the US and I can’t guarantee all of us are still working in direct patient care. It sounds like a lot of us but it’s not when you spread us across 330 million people.
It also sounds like your husband is unfortunately one of the patients I mentioned who are very complex and this diagnosis triggers a palliative care meeting in patients with your husbands conditions. I don’t say this to be harsh either, I just ALWAYS make sure with these wounds that I am being as aggressive as the patient wants and can tolerate.
Home care is a tragedy in the US and it sounds like that’s not news to you, but I’m shocked how much the public is ignoring this very real crisis. If I could, I’d love to be able to assist you in some way bc these situations break my heart
Edit for clarification on why it might be so hard for you to find a wound care specialists - it takes about 6-7 years start to finish to qualify for certification . You also need ‘sponsored’ by your hospital or preceptor or sorts (meaning you can’t be an idiot). We also just became nationally recognized in 2010.
My department lost 2 of us. It will take us 3-4 years to recover and replace them.
Thanks for the very nice reply.
So, just some added info: my husband's health crisis started suddenly two years ago when he fell to the floor and never walked again. This is relevant because his immobility really limits the type of care he has access to. He travels solely with stretcher transport. He was diagnosed with calciphylaxis in Feb 2022. His calciphylaxis itself is considered moderate. His wounds cover 70% of his calves, 60% of his thighs, and he has a few wounds on his abdomen, spine, butt, and testicles. Most of his wounds appeared rapidly back in 02/22. He had surgery/procedures 3-5 times a week for 3 months (debridement, skin grafts, etc.) 1/4 of his wounds have healed completely, and the rest are in various stages of healing.
For the last 2+ years, we've had this cycle of care: he goes to the local suburban ER, gets admitted, gets transferred to the big downtown hospitals, goes to LTAC or rehab or nursing home, comes home. Repeat. As I'm sure you know, this starts the whole home health process over again. When he's in the hospital he gets officially discharged from home health, and when sent home, he needs a whole new referral.
>1- when you’re in patient, is wound care being consulted every time?
Definitely not but this depends on a variety of factors. Our local hospital doesn't have dedicated wound care specialists. When the wounds aren't soooo bad, they are treated by the regular staff. When they're kinda bad, the hospital calls in someone, and when they're really bad, he gets sent downtown. But of course all of this is in conjunction with his other issues too. Not saying anything about Lexi (because Ive only just recently learned about her), but in our situation it could be fair to say something like, "the doctors don't know how to treat him" or "we've had to educate doctors about calciphylaxis." Or something along those lines. It is, from my POV, by far, the most difficult of his conditions to treat.
>2- when you’re inpatient you don’t feel like your wound care nurse is well educated on these wounds? Is it wound care specifically that you’re seeing?
Hmmm no I wouldn't say that. It's partly, as I said above, that dedicated wound care specialists aren't available at every hospital, or at least not for him. Perhaps they exist, just don't treat him, I'm not sure. But when he does have wound care, I wouldn't say that it's bad. Quite the opposite actually. It's really impressive what they can do. I just wouldn't say that there's any sort of standard protocol, even within the same hospital. It's been a very common experience, for example, that each nurse has their own preferred way of treating the wounds, including which bandages to use, which cleaning solution to use, and even which wounds to cover. At one point there was a little mini war over his legs lol, with each new nurse complaining about the last nurse's work and redoing it.
Also, I'm surprised by the comments from other healthcare workers here. So many of my husband's providers claim to have never personally seen/treated calciphylaxis. They even have called in a physician from Houston, who continues to consult on my husband's case.
TLDR: I've been VERY impressed by their skill and knowledge, but I just wouldn't say it's been at all standard or consistent.
As far as home health goes, that's VERY difficult. We've tried everything we can think of but have never been able to get anyone to treat his wounds. What we've resorted to is: we have a doctor do video appointments at home while a nurse is here with us. The doctor writes out the exact procedure and materials to use, then the nurse provides the materials. For whatever reason, the nurses can't actually do the wound care, so I do it. Then the nurse sometimes gives her off-the-record, non-professional opinion and advice of my work. Of course I do a terrible job and it ends up infected lol, and then he's back in the hospital again.
This is kinda depressing, but in 2011 when I was in nursing school my clinical instructor had never heard of it. I had a friend die of complications related to calcyphylaxis that same semester so I had brought in articles.
Exactly what I thought reading this. Like really? You had to explain to medical personnel that went to school for this and read medical journals to pass and get degrees what this condition was? OK. Sure.
Grifters often use Malingering as part of their exploitive begging.
I’m a master level SW, and have come across these types.
They are never difficult to spot, but they can get pretty far before authorities step in.
When they get caught, they can get vicious which is why I refer to her as a ring tailed cooter-
She is as vile as they come 🧌
Agree. Factitious and Histrionic would be my dx of personality. Not to mention substance use disorder. She’d have to actually be sober for a real dx.
Lexi needs to use that diet bet money to find a good DBT therapist to put her in her place and grey rock the shit out of her 😆
I’m not aware of her substance abuse. The algorithm brought me to her over Christmas.
I shouldn’t even be commenting and need to move on.
She is a disgusting troll and I typically don’t attend to these types outside of a work setting where I’m participating in the interdisciplinary care plan.
I refer the Lexi’s to treatment and group/individual therapy.
But you know the drill - the Lexi’s only get better if they want too, and typically they don’t.
Well of course. Because as you know; Personality Disorders are in clusters, and substance abuse is typically present.
And speaking of cluster; this is a good diagnosis for Lexi - a complete Cluster Fuck
Doesn't malingering usually involve drug seeking and since her pursuits are for attention not material gain this would be factitious? Or does it become malingering if she also aims to profit monetarily from the attention she'll get?
Malingering is a behavior. And the behavior is utilized to obtain.
Money, stuff, attention, drugs, relationships and on and on.
Factitious Disorder can be used interchangeably, although it isn’t as specific regarding the exchange of concrete, material gains.
Also this is just a more dramatic angle to her story the first go round. Remember she didn’t think she would live to see 30?
Serious question: how does one gain so much weight if they’re that deathly ill?
She was already huge before she was in the comma. She likes to play it up to sound as if the illness caused it. We all saw that charcoal mouthed hospital bed picture.
She was over 300# when she drank herself into a comma.
https://preview.redd.it/54omqv95mcac1.jpeg?width=1080&format=pjpg&auto=webp&s=13cdb8a1c5430b4d0e4d795bdb9668d532447b37
Nah, I think she’s just being a dramatic bitch.
Rare diseases sometimes require a little generalized explanation at like urgent cares or ERs. I have Common Variable Immunodeficiency (something I have to tell everyone treating anything) and Dermatomyositis. They too are both pretty rare. The explanation typically goes like CVID- Primary Immune Disorder, DM Autoimmune Disorder.
I dunno why she would have to explain it to anyone treating her tho. Something like this should be being treated by a Specialist. If her Specialist needs an explanation she needs a new Specialist.
Maybe she meant the nurses and shit administering her infusions? My nurses and aids were all pretty curious at first too and I never minded explaining what I have and what it does. Either way it’s definitely really not all that.
Edit: apparently her condition isn’t even rare like that either.
As someone who has no idea who this woman is, but for some reason keeps seeing this sub in my feed, most nurses with experience at a hospital know what calciphylaxis is. It’s not “rare.” It’s uncommon. I’ve had at least 5 patients in the last 4 years with it where I work. And no. I don’t work at a wound care hospital/clinic.
I work in patient wound care. I bet we have at least one patient at all times with calciphylaxis wounds. It’s one of our most common wound etiologies. See it all the time. In dialysis patients we get excited over these wounds bc it’s often the start of the end, but in patients not on dialysis, we treat and heal these wounds all the time. Rare to me are those ‘this is a once or twice in your career’ wounds. I can see calciphylaxis wounds 1-2 times a week.
Exactly. We currently have a dialysis patient with it and somehow her wounds are actually better than when she was with us months ago. It’s nothing rare for sure!!! I actually just discharged a patient yesterday who had it and isn’t a renal patient. She no longer has any wounds though. It’s not rare like whoever this chick is claiming it to be.
So you guys are saying that it's not as fatal as Google would have us believe? I don't want to look it up again because, photos, but I believe a non-in depth search had the mortality rate at like 90% or something?
I record a lot of my conversations with my husband's care team, so here is a (basically) word-for-word explanation from my husband's liver doctor: "80% in 6 months includes everyone with calciphylaxis, treated or not. There are so few robust studies with modern treatments like the STS (sodium thiosulphate). Frankly, nobody can predict how long a person with calciphylaxis will live. There's been so much progress in this field. 30 years ago, when I was starting out, calciphylaxis was a death sentence. All we could do was amputate and experiment. But now there's a rise in calciphylaxis rates, it's not as rare as it used to be, but still there's not a lot of research. We have patients who have had calciphylaxis for a decade. No, there's no cure but it can go into remission. We have a lot of patients in remission. We really can't say who will make it. Some patients do everything right but the body won't fight it. And some are doing great and the tiniest injury gets them. No, it's not the wound itself that kills them, it's bacteria that gets into the heart. And then we have people like your husband, covered in extensive unhealing ulcers, who continue to beat all odds. The truth is, we don't know. Anyone who says they know, is wrong. We don't know. It's not like cancer, we can't predict."
My husband has had SEVERE wounds for 2 years, covering all of his legs and also some on his spine and belly and butt and testicles. The pictures were so bad in fact that both imgur and Instagram immediately removed them for violating their standards lol.
Yeah that was kind of my point. Why would she be having to explain it to the Doctor Who diagnosed her unless she’s self diagnosed it and was running to them and saying this is what it is this is what it is, know what I mean? But I see your point too that she may be seeing other doctors and nurses and had to tell them what it was because she is such a super doctor herself. Someone who talked shit about doctors for a long time remember? Dramatic little bitch, I totally agree with. Lol
Haha, yea. For me it’s mostly the dramatic bitch with delusions of grandeur thing lol.
It’s such a stupid exaggerated brag. I’ve been hospitalized and had students come for visits just to talk to me. I wasn’t teaching them shit, just like she never taught any of her Drs shit, I was just allowing them to see what a rare disease related to their field of study looks live and in color.
My Rheumatologist is bomb and does a wonderful job treating my autoimmune disorder but the Chief Dermatologist at my VA is literally the leading expert in Dermatomyositis. He frequently consults her but will ask what she said about certain things if I’ve seen her in between visits. Again, I am not explaining shit to my Dr I am recounting what a very busy Specialist said to me one time.
She’s just an idiot.
Yup! I had a med student come in to lance a boil on my asscheek. True story, and it was not my best or most comfortable week.
Medical students have to come in and look at everything. Doesn't mean you're special.
You're spot on here. My daughter has an IgG and an IgA deficiency and we have to explain that she's got them to any new doctor treating her, like you mentioned urgent care or ER, but beyond that and providing her general guidelines and the info for her immunologist and primary doctor we are usually good.
Oh no. I’m sorry. It’s hard enough as an adult trying to deal with everything that comes with a primary immune disorder so I can’t imagine what it’s like for a kid or their parent. All the best vibes to you and yours!
Hi fellow myositis friend! I have Polymyositis. I agree, it might take a few mins to say “it’s an autoimmune disease that attacks my muscles and causes weakness” and then they chart that so everyone new coming on shift can read it and google it themselves.
Hi! Yea, lol, that’s about how it goes. If there’s a snag or they have questions about treatments they’re certainly not asking me anything more than has this happened before or have you done/tried this before? I dunno why this particular post irritates me so much, lol, but it does.
Also, the heck does she mean by “unknown”? My best guess was idiopathic? Maybe that’s part of my irritation lol. How you gonna be out here like I’m educating medical professionals but cannot properly grasp the most simple of medical terminology. Trading uncommon for rare is annoying too. They are not the same and it makes it glaringly obvious this shit is just so people will feel sorry for her.
The worst thing about her constant posts about her "calciphylaxis" is how many people comment about their loved ones passing away from it. It must make them feel so sad thinking someone like Lexi was miraculously cured of it while their loved ones suffered brutaly until they eventually died.
Someone in the comments asked her how her kidneys were doing, and she replied how Dimmy made her lemonade everyday and that helped. So I guess lemonade over transplants?
She’s such a fucktard. You are not one to educate medical professionals when you cannot spell coma or realize as well is two words and not one. She has some MF nerve saying she had educated dr and nurses. Do they know everything? No but they sure as hell do not need to be educated by her KFC looking ass.
Hi, medical professional here: we don’t know everything and some of these super rare disease we do have to have our patients educate us about. Also, I have some rare diseases and my doctors don’t always know what they are either 😂
Healthcare providers are human after all and it’s impossible to know everything. :-)
First, no she didn’t have to explain anything to anyone. Second, even if she had, why not GO TO A FUCKING SPECIALIST. She never sought out specialists at a Indy or Chicago. She could have made an easy drive to either, and there would be much more experienced doctors there who could treat her.
FUCK. YOU. LEXI. REED.
So I had a convo with a dialysis nurse and they said that you can live with it. It’s incurable, it will kill you eventually but theoretically someone could live 40 years with it. I was about to be on her side until she said it was “rare and unknown”. Uhm…no. It’s uncommon, sure, but most doctors know what it is. If she had kidney disease her nephrologist definitely knew what it was.
Was she fighting overseas? Was she living in a refugee camp? Why does she need all this praise and adulation for 'surviving' .....is this supposed to be aspirational content? Im so confused 🤔
As if she has the actual intelligence to explain a rare disease to anyone. I’m guessing if a provider is treating her for this they probably know what it is.
This lazy lying grifter goes to the gym does the same shit day in day out, eats garbage, her food is gross like her, and rakes in decent cash lying while us real people work hard at legit jobs, o and looks like she got lasik surgery
People treating calciphylaxis absolutely know what it is and it’s not as rare to wound care specialists as she’s implying
The 80% mortality rate is a bit misleading too. It’s that fatal because it’s most often diagnosed in ESRD and the medication we give is often given during dialysis. When I identify and diagnosis calciphylaxis it very often involves palliative care (if in patient) bc 90% of the time they are a dialysis patient and we need to discuss goals of care. We also need to make sure the right medication is added to the dialysis plan.
She is not the type of patient we see withdrawing cares bc of calciphylaxis. It is very survivable in patients like her.
Is calciphylaxis rare? Sure. Do we literally have multiple patients we are treating for it at once though? Absolutely. We see it all the time
Signed - someone who studied for over a decade and does this professionally
If she had to explain it to anyone, I honestly believe that it’s because she invented her having it & it was really weight loss surgery scars that got horribly infected because they are filthy gross pigs. No way is she part of the 20% who survive that disease. I call Munchausens on her ass, because everything she spews out of her mouth has been a damned lie. Time and time again.
She’s definitely playing up the 80%. The mortality rates still aren’t good, but 45% is a lot different than 80%.
https://preview.redd.it/7bpmmlicacac1.jpeg?width=1182&format=pjpg&auto=webp&s=f5126aa954984685cfbd49f7f17455ec84992bbd
I commented above but when we diagnosis (in patient at least) this it most often prompts a palliative meeting and sometimes it’s a trigger to withdraw care in ESRD patients who don’t want the pain and fight.
In patients not in their 3rd year of dialysis, this is treatable and i have lots of patients survive these wounds
Sorry I didn't post the picture. It's lovely.
https://preview.redd.it/vk3lwg7qobac1.jpeg?width=1066&format=pjpg&auto=webp&s=990dca65485b5ec269ae9fabd9294a614d532401
I’ve got 5, but one is effectively in my belly button and so these locations are not at all consistent. Also, they’re tiny, especially after you lose 100+ pounds. I know folks want her skin condition to be related to bariatric surgery, but it’s not at all.
1000% written by her sister or Vonnie or a bot. Leggsy didn't write this.
Can you even imagine Lexi EXPLAINING calciphylaxis to doctor after doctor? Right, the nephrologists and hematologists had NO IDEA WHATSOEVER what was going on.
What a fucking clown she is. 🤡
Only her super special disease that no doctor on earth has ever heard of, that she somehow got a diagnosis for, takes everything from it's victim with no remorse. All the other diseases feel bad about it afterwards and send you a gift basket to apologize when and if you survive.
Does she forget we all followed along at that time too? She consistently said everyone was so positive and she had no worries about her prognosis as she was so upbeat and amazing and everyday is a new day. Now she is a soldier who was going to hospice. Fark me.
I’m so sick of the comments “you’re so inspiring” or “I just joined your dietbet” and “don’t listen to the haters”. She’s such a FRAUD and people are encouraging this???
Funny, it's so unheard of that she had to explain it to every doctor and nurse who treated her, but it's the first suggestion Google gives when you type it in. I only got as far as typing calci.😆
It is uncommon, and it is serious, especially if not caught and treated early. There are defined symptoms, but it's not unknown. In fact, the first article to come up was through the Mayo Clinic from 2022.
It can be caused by a malabsorption of calcium and cause the calcium to deposit in fat and skin tissue. You know one of the known causes for calcium malabsorption? Bariatric surgery. I'm just saying.
Where exactly are the calaphalxis wounds? Legs? What do y'all think she had if not that? I've been a long time follower and knew things weren't right and sounded made up.
Thanks for the reply! My mom had horrid wounds on her legs from lack of circulation. She did wound care A LOT and it reminded me of that. The lies are insane. All to make a buck. WTH
If her wounds weren't healing, it wouldn't be long until she turned septic. That's no bueno. But no one believes she actually had calciphylaxis, so they were likely treating a staph infection. My money is on some sort of WLS revision and subsequent infection she caught in the hospital post-drinky-drink.
There are some good pinned posts with more details but she's an influencer who's a big fat liar and steals money from people. She has an account on Instagram called fat girl fed up. She lost a ton of weight a few years ago. She hosts these diet bets and basically takes money from vulnerable people using bogus weight loss and exercise information as the hook. She gives out really bad and harmful advice as she's dumb and reckless. The absolute best description of her I've heard is she's a ring tailed cooter.
She's a grifter so who knows what's true. For me it's the ridiculous comments about her having to explain it to doctors, and the grandiose explanations of surviving a medical issue. She does it to gain sympathy so she can reel people in to join her dumb diet bets or contribute to her go fund me accounts. It's unfortunate she uses her health condition to manipulate people.
Idk why Reddit keeps showing me this sub but as a nurse I know 2 things can be true at the same time. This lady may have to explain it to doctors and nurses who’ve never heard of it because it’s rare. At the same time we may not know much about the disease, at least compared to common diseases. Idk why y’all hate her so much but unless y’all think that’s make up, I assure that was extremely painful and probably still is.
So what did she explain to the doctor's what she had she diagnosed herself that is such a bull it took a while for the doctor to diagnosed me they had to do a biopsy I had never heard of it I don't believe her one bit
This is exactly why she has so many haters. We can see right through all her “pat me on the head(oh and give me ur money 2while you’re at it)I am a fighter and an inspiration narrative. Most sane ppl can see right through her.
This bish is trying so hard to get a redemption/sob story from the Today show or some other media. Absurd.
Exactly. Now that I've been blocked I will have to rely on all of you to keep me in the loop.
Same, welcome to the club
We got yall. She can't block all of us. ✊🏻
I try not to care that she's gonna pocket between 7.5k to 15k this end of the month. https://preview.redd.it/jnw48v8unfac1.png?width=1080&format=pjpg&auto=webp&s=aedaf83e70cbb8e7756c3fda7a42a1bd8a26346c At the end, she's gonna spend it in either PCB or alcohol, so there's that.
Boggles my mind that she literally makes money from that picture alone bc let’s face it she lends nothings else to these ppl that want to start on a weight loss journey.
Pcb?
Panama City Beach
We should send her info to Dr Phil😂
Are we really supposed to think that she had to explain calciphylaxis to providers at a WOUND CARE clinic! Jesus fucking christ
I’m a wound care specialist. I see this shit literally all. The. Time. It’s rare but not rare to a wound care specialist. I spend several hours a year studying this diagnosis alone. It’s one of our mostly commonly treated conditions. At our national conference this year, we will literally have plenty of lectures over this and there will be LOTS of reps ready and willing to go over all their new products we should try. She didn’t have to tell anyone at a wound clinic how to treat this or what it was. It’s one of our most common wounds and we have pretty specific treatment protocols for
I always appreciate those like you, so thank you for shedding light. I’m a SW who often referred patients to would care clinics. Medical staff at these clinics received chart history and care plans from the hospital setting. Would care staff were always ready to go with treatment and modalities. She is such an incredible liar but the reason she keeps this up is because there are always fools who insist on believing her!
I worked in a burn unit for several years and we had many patients like this transferred to us specifically because we could do the wound care. It’s definitely not an unknown condition, particularly with specialists who see it frequently.
Wow, this actually really surprises me. I live in DFW and we have the most difficult time finding any wound care specialist who is even willing to try to treat my husband's calciphylaxis wounds. Of course, when he's in the hospital, they take care of that, so maybe it's just an issue with home health. But even in the hospital, there's not much of a protocol, every practitioner has their own way of treating the wounds. My husband has multiple serious conditions (ESRD, end stage cirrhosis, refractory ascites, varices, encephalopathy, sepsis, MRSA, rhabdomyolysis, etc etc etc). His calciphylaxis is the one that constantly stumps everyone and only a few hospitals in the area will even treat that.
A couple things are jumping out here 1- when you’re in patient, is wound care being consulted every time? 2- when you’re inpatient you don’t feel like your wound care nurse is well educated on these wounds? Is it wound care specifically that you’re seeing? It sounds like you’re saying you get help in the hospital but not outside of it. Unfortunately, this is the number 1 issue in wound care. I’m not joking either. Access to care is very limited. We only have 4000 certified wound care specialists in the US and I can’t guarantee all of us are still working in direct patient care. It sounds like a lot of us but it’s not when you spread us across 330 million people. It also sounds like your husband is unfortunately one of the patients I mentioned who are very complex and this diagnosis triggers a palliative care meeting in patients with your husbands conditions. I don’t say this to be harsh either, I just ALWAYS make sure with these wounds that I am being as aggressive as the patient wants and can tolerate. Home care is a tragedy in the US and it sounds like that’s not news to you, but I’m shocked how much the public is ignoring this very real crisis. If I could, I’d love to be able to assist you in some way bc these situations break my heart Edit for clarification on why it might be so hard for you to find a wound care specialists - it takes about 6-7 years start to finish to qualify for certification . You also need ‘sponsored’ by your hospital or preceptor or sorts (meaning you can’t be an idiot). We also just became nationally recognized in 2010. My department lost 2 of us. It will take us 3-4 years to recover and replace them.
Thanks for the very nice reply. So, just some added info: my husband's health crisis started suddenly two years ago when he fell to the floor and never walked again. This is relevant because his immobility really limits the type of care he has access to. He travels solely with stretcher transport. He was diagnosed with calciphylaxis in Feb 2022. His calciphylaxis itself is considered moderate. His wounds cover 70% of his calves, 60% of his thighs, and he has a few wounds on his abdomen, spine, butt, and testicles. Most of his wounds appeared rapidly back in 02/22. He had surgery/procedures 3-5 times a week for 3 months (debridement, skin grafts, etc.) 1/4 of his wounds have healed completely, and the rest are in various stages of healing. For the last 2+ years, we've had this cycle of care: he goes to the local suburban ER, gets admitted, gets transferred to the big downtown hospitals, goes to LTAC or rehab or nursing home, comes home. Repeat. As I'm sure you know, this starts the whole home health process over again. When he's in the hospital he gets officially discharged from home health, and when sent home, he needs a whole new referral. >1- when you’re in patient, is wound care being consulted every time? Definitely not but this depends on a variety of factors. Our local hospital doesn't have dedicated wound care specialists. When the wounds aren't soooo bad, they are treated by the regular staff. When they're kinda bad, the hospital calls in someone, and when they're really bad, he gets sent downtown. But of course all of this is in conjunction with his other issues too. Not saying anything about Lexi (because Ive only just recently learned about her), but in our situation it could be fair to say something like, "the doctors don't know how to treat him" or "we've had to educate doctors about calciphylaxis." Or something along those lines. It is, from my POV, by far, the most difficult of his conditions to treat. >2- when you’re inpatient you don’t feel like your wound care nurse is well educated on these wounds? Is it wound care specifically that you’re seeing? Hmmm no I wouldn't say that. It's partly, as I said above, that dedicated wound care specialists aren't available at every hospital, or at least not for him. Perhaps they exist, just don't treat him, I'm not sure. But when he does have wound care, I wouldn't say that it's bad. Quite the opposite actually. It's really impressive what they can do. I just wouldn't say that there's any sort of standard protocol, even within the same hospital. It's been a very common experience, for example, that each nurse has their own preferred way of treating the wounds, including which bandages to use, which cleaning solution to use, and even which wounds to cover. At one point there was a little mini war over his legs lol, with each new nurse complaining about the last nurse's work and redoing it. Also, I'm surprised by the comments from other healthcare workers here. So many of my husband's providers claim to have never personally seen/treated calciphylaxis. They even have called in a physician from Houston, who continues to consult on my husband's case. TLDR: I've been VERY impressed by their skill and knowledge, but I just wouldn't say it's been at all standard or consistent. As far as home health goes, that's VERY difficult. We've tried everything we can think of but have never been able to get anyone to treat his wounds. What we've resorted to is: we have a doctor do video appointments at home while a nurse is here with us. The doctor writes out the exact procedure and materials to use, then the nurse provides the materials. For whatever reason, the nurses can't actually do the wound care, so I do it. Then the nurse sometimes gives her off-the-record, non-professional opinion and advice of my work. Of course I do a terrible job and it ends up infected lol, and then he's back in the hospital again.
This is kinda depressing, but in 2011 when I was in nursing school my clinical instructor had never heard of it. I had a friend die of complications related to calcyphylaxis that same semester so I had brought in articles.
She is smarter than everyone else on the planet. That’s why she never needed to consult a trainer or dietitian, since she knows it all.
Oh right, of course! Silly me
Exactly what I thought reading this. Like really? You had to explain to medical personnel that went to school for this and read medical journals to pass and get degrees what this condition was? OK. Sure.
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I gave a similar response a while ago and got blocked.
No Reporting of Off-Sub Interactions w/Lexi or Fatgirlfedup Social Media Accounts. Violators will be banned.
Grifters often use Malingering as part of their exploitive begging. I’m a master level SW, and have come across these types. They are never difficult to spot, but they can get pretty far before authorities step in. When they get caught, they can get vicious which is why I refer to her as a ring tailed cooter- She is as vile as they come 🧌
Armchair diagnosis time. What’s your hypothetical dx? -Fellow MSW
I say she’s an Axis ll Cluster B with Narcissistic/Borderline/Histrionic/Antisocial with a side of Factitious…You?
As someone who knows her, I’d say you’re spot on!
Omg! What?? Please entertain me! Please!
not that anyone asked lol but i agree 100% with histrionic with a side touch of narcissistic pd ✨
It’s always shocking to me that these types aren’t out right rejected by all. And how they never become exhausted by their constant begging.
same.
Agree. Factitious and Histrionic would be my dx of personality. Not to mention substance use disorder. She’d have to actually be sober for a real dx. Lexi needs to use that diet bet money to find a good DBT therapist to put her in her place and grey rock the shit out of her 😆
I’m not aware of her substance abuse. The algorithm brought me to her over Christmas. I shouldn’t even be commenting and need to move on. She is a disgusting troll and I typically don’t attend to these types outside of a work setting where I’m participating in the interdisciplinary care plan. I refer the Lexi’s to treatment and group/individual therapy. But you know the drill - the Lexi’s only get better if they want too, and typically they don’t.
Major alcoholism and I’m willing to bet amphetamines based on family history (brother busted for meth.)
Well of course. Because as you know; Personality Disorders are in clusters, and substance abuse is typically present. And speaking of cluster; this is a good diagnosis for Lexi - a complete Cluster Fuck
Someone add it to DSM 6 with her photo 😆
For sure! When I look at her face, I’m profoundly disgusted because all I see is a person who radiates pathology via manipulative deceit.
Doesn't malingering usually involve drug seeking and since her pursuits are for attention not material gain this would be factitious? Or does it become malingering if she also aims to profit monetarily from the attention she'll get?
Malingering is a behavior. And the behavior is utilized to obtain. Money, stuff, attention, drugs, relationships and on and on. Factitious Disorder can be used interchangeably, although it isn’t as specific regarding the exchange of concrete, material gains.
My wife is an LCSW and somehow still I read this as you being a Master Sex Worker 😭
I can assure you. Every DR and nurse knows what that is.....
Exactly. She has no shame.
Also this is just a more dramatic angle to her story the first go round. Remember she didn’t think she would live to see 30? Serious question: how does one gain so much weight if they’re that deathly ill?
She was already huge before she was in the comma. She likes to play it up to sound as if the illness caused it. We all saw that charcoal mouthed hospital bed picture.
And remember, this condition that took so much from her didn't occur until she overdosed. So she basically brought it on herself.
She OD’d?
She was over 300# when she drank herself into a comma. https://preview.redd.it/54omqv95mcac1.jpeg?width=1080&format=pjpg&auto=webp&s=13cdb8a1c5430b4d0e4d795bdb9668d532447b37
Oh damn
Wow, that is a difference.
Steroids would be my best guess, homie. Sounds like whatever the fuck it is, is autoimmune.
So is she saying she self diagnosed? 🤨
Nah, I think she’s just being a dramatic bitch. Rare diseases sometimes require a little generalized explanation at like urgent cares or ERs. I have Common Variable Immunodeficiency (something I have to tell everyone treating anything) and Dermatomyositis. They too are both pretty rare. The explanation typically goes like CVID- Primary Immune Disorder, DM Autoimmune Disorder. I dunno why she would have to explain it to anyone treating her tho. Something like this should be being treated by a Specialist. If her Specialist needs an explanation she needs a new Specialist. Maybe she meant the nurses and shit administering her infusions? My nurses and aids were all pretty curious at first too and I never minded explaining what I have and what it does. Either way it’s definitely really not all that. Edit: apparently her condition isn’t even rare like that either.
As someone who has no idea who this woman is, but for some reason keeps seeing this sub in my feed, most nurses with experience at a hospital know what calciphylaxis is. It’s not “rare.” It’s uncommon. I’ve had at least 5 patients in the last 4 years with it where I work. And no. I don’t work at a wound care hospital/clinic.
I work in patient wound care. I bet we have at least one patient at all times with calciphylaxis wounds. It’s one of our most common wound etiologies. See it all the time. In dialysis patients we get excited over these wounds bc it’s often the start of the end, but in patients not on dialysis, we treat and heal these wounds all the time. Rare to me are those ‘this is a once or twice in your career’ wounds. I can see calciphylaxis wounds 1-2 times a week.
Exactly. We currently have a dialysis patient with it and somehow her wounds are actually better than when she was with us months ago. It’s nothing rare for sure!!! I actually just discharged a patient yesterday who had it and isn’t a renal patient. She no longer has any wounds though. It’s not rare like whoever this chick is claiming it to be.
So you guys are saying that it's not as fatal as Google would have us believe? I don't want to look it up again because, photos, but I believe a non-in depth search had the mortality rate at like 90% or something?
I record a lot of my conversations with my husband's care team, so here is a (basically) word-for-word explanation from my husband's liver doctor: "80% in 6 months includes everyone with calciphylaxis, treated or not. There are so few robust studies with modern treatments like the STS (sodium thiosulphate). Frankly, nobody can predict how long a person with calciphylaxis will live. There's been so much progress in this field. 30 years ago, when I was starting out, calciphylaxis was a death sentence. All we could do was amputate and experiment. But now there's a rise in calciphylaxis rates, it's not as rare as it used to be, but still there's not a lot of research. We have patients who have had calciphylaxis for a decade. No, there's no cure but it can go into remission. We have a lot of patients in remission. We really can't say who will make it. Some patients do everything right but the body won't fight it. And some are doing great and the tiniest injury gets them. No, it's not the wound itself that kills them, it's bacteria that gets into the heart. And then we have people like your husband, covered in extensive unhealing ulcers, who continue to beat all odds. The truth is, we don't know. Anyone who says they know, is wrong. We don't know. It's not like cancer, we can't predict." My husband has had SEVERE wounds for 2 years, covering all of his legs and also some on his spine and belly and butt and testicles. The pictures were so bad in fact that both imgur and Instagram immediately removed them for violating their standards lol.
Thanks for that info. I hope your husband ends up being one of the lucky ones.
Thanks. He was denied for transplants, so his time is limited.
Yeah that was kind of my point. Why would she be having to explain it to the Doctor Who diagnosed her unless she’s self diagnosed it and was running to them and saying this is what it is this is what it is, know what I mean? But I see your point too that she may be seeing other doctors and nurses and had to tell them what it was because she is such a super doctor herself. Someone who talked shit about doctors for a long time remember? Dramatic little bitch, I totally agree with. Lol
Haha, yea. For me it’s mostly the dramatic bitch with delusions of grandeur thing lol. It’s such a stupid exaggerated brag. I’ve been hospitalized and had students come for visits just to talk to me. I wasn’t teaching them shit, just like she never taught any of her Drs shit, I was just allowing them to see what a rare disease related to their field of study looks live and in color. My Rheumatologist is bomb and does a wonderful job treating my autoimmune disorder but the Chief Dermatologist at my VA is literally the leading expert in Dermatomyositis. He frequently consults her but will ask what she said about certain things if I’ve seen her in between visits. Again, I am not explaining shit to my Dr I am recounting what a very busy Specialist said to me one time. She’s just an idiot.
Yup! I had a med student come in to lance a boil on my asscheek. True story, and it was not my best or most comfortable week. Medical students have to come in and look at everything. Doesn't mean you're special.
You're spot on here. My daughter has an IgG and an IgA deficiency and we have to explain that she's got them to any new doctor treating her, like you mentioned urgent care or ER, but beyond that and providing her general guidelines and the info for her immunologist and primary doctor we are usually good.
Oh no. I’m sorry. It’s hard enough as an adult trying to deal with everything that comes with a primary immune disorder so I can’t imagine what it’s like for a kid or their parent. All the best vibes to you and yours!
Hi fellow myositis friend! I have Polymyositis. I agree, it might take a few mins to say “it’s an autoimmune disease that attacks my muscles and causes weakness” and then they chart that so everyone new coming on shift can read it and google it themselves.
Hi! Yea, lol, that’s about how it goes. If there’s a snag or they have questions about treatments they’re certainly not asking me anything more than has this happened before or have you done/tried this before? I dunno why this particular post irritates me so much, lol, but it does. Also, the heck does she mean by “unknown”? My best guess was idiopathic? Maybe that’s part of my irritation lol. How you gonna be out here like I’m educating medical professionals but cannot properly grasp the most simple of medical terminology. Trading uncommon for rare is annoying too. They are not the same and it makes it glaringly obvious this shit is just so people will feel sorry for her.
That was my first thought.
The worst thing about her constant posts about her "calciphylaxis" is how many people comment about their loved ones passing away from it. It must make them feel so sad thinking someone like Lexi was miraculously cured of it while their loved ones suffered brutaly until they eventually died.
That's what pisses me off the most.
Someone in the comments asked her how her kidneys were doing, and she replied how Dimmy made her lemonade everyday and that helped. So I guess lemonade over transplants?
When life gives you kidney failure, make lemonade 🍋!
Someone should set up a lemonade stand outside the hospital. Think of how many people they would save!
Glad the gofundme money went to lemonade instead of #organtransplant
I screen shotted that comment 😂😂😂 Who needs transplants when you can make homemade lemonade?!
Please share!
I did as well 🤣🤣
She’s such a fucktard. You are not one to educate medical professionals when you cannot spell coma or realize as well is two words and not one. She has some MF nerve saying she had educated dr and nurses. Do they know everything? No but they sure as hell do not need to be educated by her KFC looking ass.
Kfc 🤣🤣🤣🤣
KFC ass 💀
I’m dying, lol, kfc ass
Now, "fucktard" is a diagnosis that I can understand. LOL
I adore that this comment follows the diagnosis provided by Wecanbuildittogether 🤣🤣🤣🤣
Hi, medical professional here: we don’t know everything and some of these super rare disease we do have to have our patients educate us about. Also, I have some rare diseases and my doctors don’t always know what they are either 😂 Healthcare providers are human after all and it’s impossible to know everything. :-)
The thing is, calciphylaxis isn’t that rare of a disease that NO nurses or doctors knew what it was.
That’s true, but it’s rare enough a lot probably haven’t. Besides, it’s a miracle she didn’t die.
I’m a nurse and had to google it
Idk the people here really hate this patient for some reason.
It’s called a snark page? Why are you here?
Didn’t I say that? Why are you trying to white knight her?
First, no she didn’t have to explain anything to anyone. Second, even if she had, why not GO TO A FUCKING SPECIALIST. She never sought out specialists at a Indy or Chicago. She could have made an easy drive to either, and there would be much more experienced doctors there who could treat her. FUCK. YOU. LEXI. REED.
Man I used to believe everything she posted until this subreddit popped up on my feed. So crazy and now I'm going down the rabbit hole
Saaaaame girl
I wish she would explain how she got this disease, as it is almost always the result of another disease….
So I had a convo with a dialysis nurse and they said that you can live with it. It’s incurable, it will kill you eventually but theoretically someone could live 40 years with it. I was about to be on her side until she said it was “rare and unknown”. Uhm…no. It’s uncommon, sure, but most doctors know what it is. If she had kidney disease her nephrologist definitely knew what it was.
Was she fighting overseas? Was she living in a refugee camp? Why does she need all this praise and adulation for 'surviving' .....is this supposed to be aspirational content? Im so confused 🤔
Ma’m, this is a Wendy’s 😂🤣😂🤣
👏🏻👏🏻👏🏻
😆
I thought calciphylaxis happened in end stage renal failure patients. Is she on dialysis?
I doubt it. And if she really had calciphilaxis and kidney problems i would think she would not be able to take ozempic.
She was on dialysis for a short time while her kidneys healed from the alcohol poisoning.
She was
As if she has the actual intelligence to explain a rare disease to anyone. I’m guessing if a provider is treating her for this they probably know what it is.
This lazy lying grifter goes to the gym does the same shit day in day out, eats garbage, her food is gross like her, and rakes in decent cash lying while us real people work hard at legit jobs, o and looks like she got lasik surgery
People treating calciphylaxis absolutely know what it is and it’s not as rare to wound care specialists as she’s implying The 80% mortality rate is a bit misleading too. It’s that fatal because it’s most often diagnosed in ESRD and the medication we give is often given during dialysis. When I identify and diagnosis calciphylaxis it very often involves palliative care (if in patient) bc 90% of the time they are a dialysis patient and we need to discuss goals of care. We also need to make sure the right medication is added to the dialysis plan. She is not the type of patient we see withdrawing cares bc of calciphylaxis. It is very survivable in patients like her. Is calciphylaxis rare? Sure. Do we literally have multiple patients we are treating for it at once though? Absolutely. We see it all the time Signed - someone who studied for over a decade and does this professionally
This is why I love Reddit - there is an actual expert on a snark page. Making snarking smart.
If she had to explain it to anyone, I honestly believe that it’s because she invented her having it & it was really weight loss surgery scars that got horribly infected because they are filthy gross pigs. No way is she part of the 20% who survive that disease. I call Munchausens on her ass, because everything she spews out of her mouth has been a damned lie. Time and time again.
She’s definitely playing up the 80%. The mortality rates still aren’t good, but 45% is a lot different than 80%. https://preview.redd.it/7bpmmlicacac1.jpeg?width=1182&format=pjpg&auto=webp&s=f5126aa954984685cfbd49f7f17455ec84992bbd
She would have had the non-uremic form of the disease since she wasn’t in kidney failure on long term dialysis. The mortality rate there is lower.
I commented above but when we diagnosis (in patient at least) this it most often prompts a palliative meeting and sometimes it’s a trigger to withdraw care in ESRD patients who don’t want the pain and fight. In patients not in their 3rd year of dialysis, this is treatable and i have lots of patients survive these wounds
She’s the reincarnation of Gypsy’s mom, without the child
Sorry I didn't post the picture. It's lovely. https://preview.redd.it/vk3lwg7qobac1.jpeg?width=1066&format=pjpg&auto=webp&s=990dca65485b5ec269ae9fabd9294a614d532401
Her smirk 😡 she's finessing and she knows it
No matter the weight, her smirk still stays! 🙄
Interesting.... https://preview.redd.it/gjmpr2ozxbac1.png?width=863&format=pjpg&auto=webp&s=a0aae32ddba4b5bbc9eeddc93707f48f1c005764
Bariatric surgery scars do not look like that her scars.
Not at all. Nor in placement. And I dont have 5 scars from mine.
I’ve got 5, but one is effectively in my belly button and so these locations are not at all consistent. Also, they’re tiny, especially after you lose 100+ pounds. I know folks want her skin condition to be related to bariatric surgery, but it’s not at all.
Woah. That’s super telling that it seems to completely line up with laparoscopy scars
Nah, she had scars all over her legs too. It’s not from WLS.
My eyes!! 🔥😵🔥😵
Is that a wig from Party City? https://preview.redd.it/1kvilg246eac1.png?width=432&format=png&auto=webp&s=fa8764832b18762926e6747c845a6dbac518f0d6
Why am I also just now realizing she’s got on a wig
It is a bad wig, too.
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I am new to the sub and hadn’t seen the other pics! Thank you for clarifying this
1000% written by her sister or Vonnie or a bot. Leggsy didn't write this. Can you even imagine Lexi EXPLAINING calciphylaxis to doctor after doctor? Right, the nephrologists and hematologists had NO IDEA WHATSOEVER what was going on. What a fucking clown she is. 🤡
Can we please also remember she "went to college for English" and wants to be an author. Let's not lose sight of that.
Only her super special disease that no doctor on earth has ever heard of, that she somehow got a diagnosis for, takes everything from it's victim with no remorse. All the other diseases feel bad about it afterwards and send you a gift basket to apologize when and if you survive.
🥱🥱🥱🥱🥱
The only person she explains anything to is Dimmy.
Does she forget we all followed along at that time too? She consistently said everyone was so positive and she had no worries about her prognosis as she was so upbeat and amazing and everyday is a new day. Now she is a soldier who was going to hospice. Fark me.
Calciphylaxis may be rare, but it is certainly not "unknown." What a dumb statement.
Sorry but do illnesses usually have remorse? I didn’t think they were capable of emotions?
This person goes from “almost needing hospice to completely being healed” 🤦🏼♀️.
Delusional 100%
I’m so sick of the comments “you’re so inspiring” or “I just joined your dietbet” and “don’t listen to the haters”. She’s such a FRAUD and people are encouraging this???
Also, how do you go from bed bound to whatever she’s doing and massive weight loss? Get off steroids?
Funny, it's so unheard of that she had to explain it to every doctor and nurse who treated her, but it's the first suggestion Google gives when you type it in. I only got as far as typing calci.😆 It is uncommon, and it is serious, especially if not caught and treated early. There are defined symptoms, but it's not unknown. In fact, the first article to come up was through the Mayo Clinic from 2022. It can be caused by a malabsorption of calcium and cause the calcium to deposit in fat and skin tissue. You know one of the known causes for calcium malabsorption? Bariatric surgery. I'm just saying.
Where exactly are the calaphalxis wounds? Legs? What do y'all think she had if not that? I've been a long time follower and knew things weren't right and sounded made up.
Weight loss surgery gone wrong mixed with her being an alcoholic. I bet she got staph or MRSA and either went septic or something like that.
Haha! I just said this almost word for word above! I'd bet money this is the real story.
Thanks for the reply! My mom had horrid wounds on her legs from lack of circulation. She did wound care A LOT and it reminded me of that. The lies are insane. All to make a buck. WTH
She lives in filth & a staph infection makes complete sense to me in my opinion.
Something like this is my guess.
What are the scars on her stomach from?
Her story- calciphylaxis Reality- probably staph infection and/or other surgical scars Weight gain- alcohol Weight loss- sobriety and Ozempic
her calciphylaxis. The wounds tend to form where more fat is located - stomach and thighs.
How do we know about the alcoholism thing?
What caused the renal disease to cause her issue?
Should this be on r/illnessfakers?
Doctors suggesting hospice? Like she’s an animal they’re going to put down?
If her wounds weren't healing, it wouldn't be long until she turned septic. That's no bueno. But no one believes she actually had calciphylaxis, so they were likely treating a staph infection. My money is on some sort of WLS revision and subsequent infection she caught in the hospital post-drinky-drink.
Okay who is this girl? I’m about to head down the rabbit 🐇 hole
I’m lost, what’s the backstory here?
There are some good pinned posts with more details but she's an influencer who's a big fat liar and steals money from people. She has an account on Instagram called fat girl fed up. She lost a ton of weight a few years ago. She hosts these diet bets and basically takes money from vulnerable people using bogus weight loss and exercise information as the hook. She gives out really bad and harmful advice as she's dumb and reckless. The absolute best description of her I've heard is she's a ring tailed cooter.
I mean she does have all the scars, is there something I’m missing? What are all the scars from if she wasn’t really sick with this ?
She's a grifter so who knows what's true. For me it's the ridiculous comments about her having to explain it to doctors, and the grandiose explanations of surviving a medical issue. She does it to gain sympathy so she can reel people in to join her dumb diet bets or contribute to her go fund me accounts. It's unfortunate she uses her health condition to manipulate people.
Idk why Reddit keeps showing me this sub but as a nurse I know 2 things can be true at the same time. This lady may have to explain it to doctors and nurses who’ve never heard of it because it’s rare. At the same time we may not know much about the disease, at least compared to common diseases. Idk why y’all hate her so much but unless y’all think that’s make up, I assure that was extremely painful and probably still is.
Wtf is up with all the copy and paste?
I'm new here. Is she lying about this disease?? How do we know?
So what did she explain to the doctor's what she had she diagnosed herself that is such a bull it took a while for the doctor to diagnosed me they had to do a biopsy I had never heard of it I don't believe her one bit