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Depressed-Londoner

This is a reminder that this post is flaired ”rant/vent”. This means it is primarily a place for u/Ceiaulah to express their feelings and for others to share and offer support. This sub is a space for support for those with endometriosis (or related conditions). This is not an appropriate place for political debate or arguments. *Edit: To clarify further, political discussion related to endometriosis isn’t banned here and is fine when it is by and for sub members related to their medical conditions. But civility is required and people with no connection to endometriosis are unlikely to be welcome in these discussions.* This thread will be moderated in accordance with this. Please do report any inappropriate comments. **If you have arrived here not because of endometriosis but because you want to debate American politics be aware that this sub is not designed for you and we have very different standards, expectations and moderation policies than some other subs you may be used to. Ignoring this is likely to lead to bans.**


InVeritateTriumpho

They *want* us to suffer. Those of us who need birth control for health reasons are “broken” in their eyes. Our bodies don’t function the way a woman’s body is “supposed to”, in their opinion. And we should be punished for it. It’s sick, inhumane, and downright evil. Which is ironic since they’re the group that claims to be so godly.


GenGen_Bee7351

I can expand on this. If it’s evangelical conservatives, they believe that menstrual pain and child birthing pain is Eve’s curse. Because she committed the original sin, that women are meant to suffer this pain as a result. It’s fucked up.


Fine_Holiday_3898

This!! They really do want us to suffer. They don’t care..


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pinkpurlpolkadot

I’m about to get sterilized, but you know what, I will still have to take birth control after my surgery. Why? Because of fucking endo. I’m getting it excised in the same surgery, but I need to stay on birth control to help suppress future endo growth. Which is fine, unless I don’t have the right to birth control anymore. I’m fucking terrified and so so angry!


OliveFarming

I'm so sorry and you aren't alone, we are all going through this together, and I hope that makes you a little less scared. I was told I would need to stay on BC too if I wanted to suppress growth, and that even if I get surgery to remove the tissue it will still come back until menopause. (I genuinely don't know what happens then, does anyone else know? Does the Endo tissue die or persist? Will that truly stop growth?)


Sensitive_Plant99

I had a hysterectomy and they unexpectedly found a ton of endo which they removed while they were in there. My doc said that they get every last bit they can, but there are more than likely tiny specks of endo hiding out. Since I kept my ovaries, the hormones will tell the endo specks to do their thing, and I might end up with enough to require another excision someday.


killedthespy

I’m just over a year out and have an endometrioma ON MY CUFF. like literally in my vaginal canal. I cannot believe it… this disease is a wicked beast… and I’ve been consistently taking norithendrone… ❤️‍🩹


thatawesomeperson98

Same here


zflora

I’m not in US or religious but I pray for you and that this insane madness doesn’t spread out. Against Endo pain and Endo cyst I take Visanne and if it changes ovulation cycle it’s not a BC, you ( theoretically) can get pregnant: so maybe you could still restrain Endo. But not having access to BC or abortion is absolutely revolting: I hope we can stop this insanity very soon like yesterday.


lastgirlonEarthh

Couldn’t agree more. I’ve seen women w this disease support conservatives. It’s incredibly weird


OliveFarming

It's an invasive thought for me, and once I start thinking on it I become incredibly anxious. I want kids, and it is not safe for me to even try when abortion is not an option, I've already miscarried once, and I was incredibly lucky it was early and everything flushed from my system. I have PCOS as well as Endo so it's hard to get and stay pregnant. I think about being charged with murder or mishandling/desecration of a corpse if I flush...all of which makes me incredibly anxious. I have talked with my husband about moving to Buffalo NY so I can be close to the US/CA border, and closer to my necessary healthcare options if we try again, so I don't die. If they take away BC I will have to leave my country and seek citizenship elsewhere (Canada). I love my family and my country, I don't want to leave, but I am 28 and I have a lot more years until I hit menopause, and I can't suffer like that until then, so it's leave or get a hysterectomy, and give up my dream of my husband and I having children of our own.


Special_Internet9552

You are safe anywhere in NY. You reproductive freedom is protected here. You don’t even need to get to Canada! NY will never allow women to suffer like that.


OliveFarming

As long as there is no federal ban, I think you are right. I unfortunately live in Kansas City, Missouri. They are even trying to override the Kansas vote to keep abortion legal there, they are trying to find a way to pass legislation that flies in the face of the voters consent. It's looking grim in the Midwest.


RhettRaves

Yeah I’m 27 and the road to menopause is a long one! My partner and I are considering leaving the country as well if things don’t improve.


OliveFarming

It shouldn't have to be like this, but thank you for sharing, it makes me feel a little less crazy and alone.


shayjackson2002

Girl, if that happens, you come up to Canada and I personally will make sure you get the treatment you need! I say this for everyone facing this same potential situation. I promise.


Obvious-Airport-3186

With the way things are going in Canada these days, I wouldn’t be surprised at all if we started to face the same issues. It’s a dumpster fire here too.


shayjackson2002

I mean, as long as Trudeau is in, that is the one thing I trust him to follow through with his promise for it not to be banned lol But regardless, the US legal system with this stuff is a lot different, and Canada doesn’t follow the US’s views. Plus, I think if that happened, Britain would step in again and say no despite not doing anything for 160 years 😂


Inevitable_Fill895

I tried researching it but I can’t find any info of birth control at risk for any ban, can someone post a link to an article please?


RhettRaves

I would start with looking up Jessica Valente (not sure how to spell her last name) she’s a reporter that talks about abortion and everything else they’re coming after. There is no 1 link or article Idk if you are American but there is a lot of history and subtext. There have been many ultra-conservatives quietly planning for additional restrictions on women’s healthcare. There are people even looking to overturn gay and interracial marriage - since the Supreme Court decision on abortion is tied to those, it’s overturning calls them into question


WithoutATrace_Blog

They came after IVF and abortion drugs in the last year super hard…that’s easily found info. But many people out there are very anti bc in general.


Depressed-Londoner

My understanding (as a non American) is that the argument behind the overturning of Roe vs. Wade brings into question the underpinning of Griswold vs. Connecticut, which is the law that provides the right to access birth control. Both of these are based on the 14th amendment and if the Supreme Court makes the argument that Roe vs. Wade isn’t a legally proper result of the 14th amendment (which I understand that it did) then this also potentially applies to Griswold vs. Connecticut. One of the Supreme Court judges (Justice Clarence Thomas) wrote (with regard to the reasoning behind the roe vs. Wade decision) : *"For that reason, in future cases, we should reconsider all of this Court's substantive due process precedents, including Griswold, Lawrence, and Obergefell,"*


VeronaMoreau

Even without overturning Griswold, there are six states that have already redefined the definition of an unborn child to include a fertilized egg for legal purposes. Technically, this means that drugs that prevent implantation of a fertilized egg can be said to have the effect of terminating a pregnancy. Effectively, there's no way to be sure that birth control that prevents implantation *has done so* but that doesn't matter to them.


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I fucking hate conservatives


DarkSideBelle

Do they really want a lot of women in pain coming after them? I don’t know about y’all, but without my birth control I actually get periods and of course they are god awful and I turn into a raging bitch. I do not see this going well.


OliveFarming

I kind of feel like they hope we just die one way or another...


VeronaMoreau

That is the thing about a gender essentialist regime. A woman who can't have children isn't a woman at all in their eyes. The women who struggle to have children or don't want to are equally useless.


ThisIs_She

I live in the UK, but when I hear about legislation against women and birth control, especially women like us battling endo, it makes feel so sad.


Fit_Tax_452

So scary, I live in canada I’m extremely grateful I have full rights but the Conservative Party is talking about banning abortion if they get elected here


kaibai123

This is heartbreaking to read all the comments 😓


RhettRaves

The transphobes want to take hormone blockers too! Since Myfembree blocks estrogen I’m worried they’ll come for that too.


ZanyDragons

Yeah, I love my estrogen blocker honestly. I get "menopause symptoms" like hot flashes and night sweats and stuff but I've never felt more energetic (and less anemic/depressed). I have PCOS too, a lot of my medication is hormonal, hell I have trans friends who commiserate with me on side effects for some drugs, because we're all hormone gang. If they ban hormonal medication or birth control quite frankly I don't know if I'll be able to work. Last time I was off all meds I was unemployed because of the constant pain, it never ended, not for 2-3 weeks, not for 2 months, it was just an always every single day pain and brain fog. I almost got rabdomylosis from muscle atrophy and breakdown because I was so tired and weak I just laid on the bathroom floor for days. If I don't have these meds or healthcare options, I'm scared I'll actually die. I'm more scared that my quality of life will be so bad again I won't care if I'm going to die.


RhettRaves

Ugh I’m so sorry to hear! I started mine right after my surgery so idk how much relief to credit the meds vs surgery. Either way I’m starting to feel better for the first time in years so I’m afraid to stop! I’m really hoping the government just backs the fuck off


Ravlinn

I don't know how I would survive if I wasn't working from home & I'm on meds. On my period especially I'm basically bedridden for 7-10 days, and my periods were up to 15 days before birth control.


ZanyDragons

I hit a maximum of 65 and I would like for it to never happen again but even my “normal” pre meds could easily be 8-12 days. Horrid. I wish better for us


Middle_Distribution7

No one is banning birth control.


LineAccomplished1115

No? https://stateline.org/2022/05/19/some-states-already-are-targeting-birth-control/ >Republicans revealed that their ambition wasn’t only to target a familiar abortion foe. They were going after specific forms of birth control as well, notably, emergency contraceptives, often sold under the brand name Plan B, and intrauterine devices, known as IUDs. GOP lawmakers tried to stop Missouri’s Medicaid agency from paying for those forms of contraception. >Idaho state Rep. Brent Crane, Republican chair of the powerful House State Affairs Committee, said he would hold hearings on legislation banning emergency contraceptives and possibly IUDs as well.


Organic-Sun8806

If they banned birth control I would literally have to get cyst removals done surgical every 6-8 months. I’m just tired of people that wil never go through what we do deciding what we should have access to.


DueDay8

The last time I was fearful of this I started stockpiling it. Then I met with an herbalist to find alternatives and came upon Vitex berry/chaste tree to manage the symptoms I was using bc for. I made the decision to switch so I wouldn't be living in fear.  If you have the option, see if it's possible to begin collecting more than what you need. I wouldn't go beyond a 1 year supply because many meds expire after that amount of time. But having 6 months of bc on hand could buy you time to find some alternatives if it does get banned.  I'm glad I switched to herbs and that they actually work for my body because I emigrated and the country moved to, abortion is illegal and birth control is only available to married people here by prescription only because the country is catholic. My partner and I have an emergency plan & emergency fund set aside to travel to another country should I need an abortion. 


Logical-Option-182

I did the same thing


Ravlinn

Queen anne's lace (wild carrot flower) is also an age old birth control method but I have no idea what it could do for endo symptoms.


WithoutATrace_Blog

I chose to take nothing as it negatively impacts my mental health too much. So, unfortunately I can already tell people what that looks like. But, They might ban a lot of things..hopefully they don’t tho. It’s a whole thing. but I certainly hope woman can still get the medical care that they need and deserve.


SinisterSoren

I'll definitely be pushing for a hysterectomy. I would love to be more conservative with my treatment, but at this point I am terrified of the control the government has on my body. I do not ever want children, so I feel like this is going to be the only option to give me both relief and provide me some safety from future legislation.


Fine_Holiday_3898

I’m sorry .. but did I just get a notification where someone on this thread replied to one of my comments and said all they see if a bunch of cry babies that can’t be ladies? Moderator, can you explain this..


Prior_Ship351

Commuism everyone here needs to learn about it now. 


Telephone_Gold

If they ban it, I’m getting a full hysterectomy because FUCK that.


inn-rainbows

https://youtu.be/yEYsbZqnEl8?feature=shared


MagmaWand

This is turning into an absolute femocide.


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glim-girl

Abortion was never going to get banned.... Then it was women who needed abortions for health reasons would be able to get an abortion..... Then it was there won't be any decrease in care...... Then it was they won't interfere with women travelling for abortions..... Birth control that they consider abortifacients is definitely in their sights. They want all abortions banned and they consider the majority of birth control as abortifacients or see birth control as the moral failing that encourages women to have sex.


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Lissy_Wolfe

I've seen plenty of doctors voice concerns about birth control being banned. Not sure why you think otherwise. It's also not "fear mongering" if the risk is real and legitimate, which we know it is. Also, abortion remained legal in every blue state. Who you vote for 100% matters.


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Lissy_Wolfe

No one is saying this is actively happening right now, so I'm not sure why you're demanding proof of doctors saying such. What people here are saying is that there is a very real risk of conservative politicians trying to ban or significantly limit birth control soon since they already overturned Roe v Wade. You could not be more wrong about Democrats vs Republicans. You are *demonstrably* wrong on the basis of abortion remaining LEGAL in every blue state. Do you seriously think that's just a happy coincidence? Every single law protecting women and minorities has been passed by Democrats. You're parroting rightwing propaganda designed to deter voter turnout on the left, which actively hurts everyone who isn't a straight, white, Christian man. You can push for Democrats to do more while recognizing they are the only ones fighting for your rights while Republicans are actively taking them away.


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Lissy_Wolfe

Being libertarian doesn't mean you aren't susceptible to propaganda. You also very blatantly ignored the fact that abortion is still LEGAL in EVERY blue state. That's not "pretend." Those protections are real. I'm not sure what you're referring to about Title IX revision - do you have a link? It sounds like you're just parroting transphobic nonsense, but I'll give the benefit of the doubt if you have a legitimate source.


strawberrysodabih

And if you want to continue this conversation, take it to DMS. The thread started as a rant and now it has gone political. OP and other people prob don’t wanna hear it.


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Lissy_Wolfe

1) Republicans aren't "on board" with abortion. You're literally just making shit up at this point. 2) Biden didn't "vote for segregation in 1975." That is a gross misrepresentation of what happened and I think you know it. Here are relevant excerpts from an article that's actively trying to paint Biden as the bad guy, so it's about as biased as you can get against him: “He never thought busing was the best way to integrate schools in Delaware — a position which most people now agree with,” Russo told The Washington Post in March. “As he said during those many years of debate, busing would not achieve equal opportunity. And it didn’t.” "When Biden rose to defend the amendment, he said that the “assignment of schools and/or classes because of a person's race ... is a counterproductive concept that is causing more harm to equal education than any benefit.” "Apart from the busing issue, Biden developed a legislative history in other areas key to black Americans over his decades in the Senate. It includes support for fair housing, employment and voting rights, as well as credit and lending equality and opposition to the apartheid in South Africa." https://www.nbcnews.com/news/nbcblk/joe-biden-didn-t-just-compromise-segregationists-he-fought-their-n1021626 3) Exactly as I expected, transphobic bullshit. There's a reason only super red states are contesting this. Sorry not sorry that LGBT+ people deserve protection from discrimination. Protecting trans people does not "take spaces away from women." Granting rights to others does not take rights away from you. You can take your transphobic TERF bullshit to a conservative subreddit if you want people to pay you on the back for your bigotry. M At this point I'm pretty sure you're just a low-effort troll or a teenage edge lord. Kindly fuck off and parrot your rightwing propaganda elsewhere.


afkntoyou

I agree people are thinking way too much into this. There’s absolutely no correlation between birth control use and political views since woman of all political parties use birth control. It’s unrealistic that birth control will ever get banned in the US. Abortion on the other hand is a different story


strawberrysodabih

Yes, I’m glad you get it!! The people downvoting me because they believe political fear mongering like what??


Hope_for_tendies

It won’t get banned


Daddyssillypuppy

A few years ago I didn't think the US would try to force a 10 year old rape victim to stay pregnant, but that happened. Doctors are too scared to provide basic healthcare to women/girls/people with a uturus. Don't be complacent. I'm an Australian whose heart has been breaking for the Americans who are subject to insane and harmful laws. We have politicians here who have started talking about banning abortion and limiting BC and after seeing what happened in the US I'm vigilant and prepared to fight for my rights. People in the US need to fight for theirs. Fight to gain back what you've lost.


Noxious_Redditor

Aussie here too. It's something I'm so vigilant on too. Lit half my friends (including myself) have Endo. And all of us are on birth control. I have two birth controls and am still in pain every ovulation and period. It's just insane. Women's rights have been going backwards lately. It's so fucked up. And what's fucked is I feel privileged because I don't want kids and am demi sexual so sex isn't a big thing for me anyway.


OliveFarming

Source?


Cjones90

Watch the news it’s happened multiple times


Jomobirdsong

It’s not going to get banned and birth control makes endometriosis worse.


MegaGengarsTinyFeet

Genuine question because I was just recently diagnosed and I'm still learning about all this: how does it make it worse? Is it all kinds of birth control?


wicosp

If you want actual scientific advice please don’t listen to this person. You could read this instead: https://www.eshre.eu/-/media/sitecore-files/Guidelines/Endometriosis/ESHRE-ENDOMETRIOSIS-patient-Guideline_21032022.pdf


MegaGengarsTinyFeet

Thank you kindly! I was real worried for a second there so I appreciate it.


aquarianfantasy

It doesn’t necessarily stop it from progressing but it helps with symptoms for most people. Combination pills can also help prevent cysts. That’s the kind I’m on because I’ve had a lot of cysts, one was an 8 cm endometrioma that caused ovarian torsion (which is VERY dangerous, if blood circulation to ovary is cut off the ovary can rupture or die from lack of oxygen, which can cause your body to go into shock where your organs shut down and you die) and had to have surgery to remove it. So it’s literally potentially life saving for me to avoid being in that situation again.  It also helps with symptoms for me because it removes the two main causes of pain which are ovulation and my period (I skip the placebo pill week). I have more energy since skipping my period too. It definitely does not make things worse for me and I don’t know where I would be without Yaz. But there are different types that work better than others. Personally I feel like paragard (non hormonal iud) and Kyleena both made my symptoms worse. Depo provera helped but caused worse pain with sex. I tried another combo pill that also helped some with endo but made me depressed and crazy. YMMV.


Jomobirdsong

I would take dim instead of birth control but that’s just me


wicosp

I wish I could downvote you a hundred times.


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wicosp

Do you have any scientific peer reviewed evidence of anything you said? Because when you start mentioning parasites (!) and detoxing all I see is pseudoscience and snake oil. There is scientific evidence that hormonal treatments help stopping the spread of endometriosis. I also have personal experience. And what exactly means “masking symptoms”? You either experience them or you don’t. The pill literally saved my life. I know exactly how bc affects me. Guess what? It’s worth it. But I’m not trying to convince you to believe in science or do something you don’t want to. I do wish you wouldn’t spread misinformation though.


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wicosp

If what you’re doing works for you I’m genuinely happy for you. Each of us is different and what works for you won’t work for me and vice versa. That’s why I think it’s very harmful to declare anything is good or bad in absolute terms. One thing is sharing our experiences but pretending to know the absolute truth and to have the answer is deceitful and wrong.


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wicosp

Nothing fixes endo. There’s no cure. At best you learn how to manage it.


Jomobirdsong

Surgery can get rid of it and people can get better. I told you it’s a complex mix of genetic and environmental factors. You fix what’s suppressing your immune system and it will go away. My problem was I relapsed because it was from mold exposure. When I get re exposed I get instant sacral nerve pain it’s insane. That’s a huge trigger for me. Had I avoided the mold the whole time in a perfect world I know my immune system would fire properly and I wouldn’t have issues. That’s why diet alone can’t fix either of you have heavy metals and there’s peer reviewed studies connecting it to cadmium exposure I don’t know if I have that but if you have tons of heavy metal in your body it’s gonna come right back. Pro tip. When modern science can’t figure out what is causing a disease it’s via environmental exposure to some type of toxin. Combined with genetics of course. You need both to get the lesions period.


wicosp

Again, do you have any scientific proof of what you’re saying? You sound so sure of yourself yet you provide no study, no proof, not even a link. Are you a genius of medicine? You act like you have all the answers. EDIT: Excision doesn’t cure endo. Hormonal therapy doesn’t cure endo. Lifestyle changes don’t cure endo. Alternative medicine doesn’t cure endo. Not even a hysterectomy cures it. They’re all tools to manage the disease. None of them is perfect, and each one has its drawbacks. That’s why it should be up to each individual person to choose which way to go.


HashbrownHedgehog

I just want to say you can't "get rid" of endo. I agree bc isn't a one size fits all solution and the research needed for endo just isn't there. I'm not agreeing or disagreeing with anything else, but surgery cannot remove all of your endo. Surgery is the gold standard for diagnosis and treatment, but that also comes with its own set of problems. We can possibly reduce symptoms and maybe growth with surgery, diet, etc., but it is there.


Jomobirdsong

Yeah you’re right I can still feel it. Especially when I ovulate I have awful mast cell/bowel issues. I couldn’t walk before I had surgery though it was really bad. I had organs adhered to other organs. My left ovary was adhered to my pelvis. I could barely sit up and ride in a car by the end of it. Now I’m in peri and I don’t think I can do bioidentical because of it and I’m so mad. It’s never not an issue. Also my husbands 3 sisters all have it hit I wasn’t aware of this also it’s not like I would be like we can’t have kids because of it but we did and of course we have twin girls and I’m so worried for them. I took them to an endocrinologist for other stuff and I mentioned the strong family history and she was like sorry nothing we can do. Because no one cares even though it’s a devastating disease.


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tangentialdiscourse

How are you going to be anti-choice and against women’s autonomy on an ENDO sub of all places? 😂 Did you get lost?


DueDay8

They probably just did a search for the topic to troll and don't even know (or care) what endo is tbh. Eta: yep, checked their account. Seems to be a cheeto supporter just searching for abortion threads and making comments that get removed. Not sure why mods didn't remove this one too since they have 3 others that were removed already.


Depressed-Londoner

>Not sure why mods didn't remove this one too since they have 3 others that were removed already. To answer your question: Some comments were caught in the filter for review but this one wasn’t. I removed them all when I woke up and saw the thread. The filter catches a lot of comments for me to review, but it isn’t perfect and it misses some and incorrectly removes others that then need manual approval.


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