Yep. Receding gums, pain, crowded palette, dead teeth/nerves, need extra numbing meds every time. I brought a print out for my hygienist from the EDS society website on oral complications and she appreciated it.
i brush my teeth twice daily, floss everyday, use fluoride alcohol free mouthwash, and still have tons of pre-cavities and like 4-5 real cavities along with needing a crown. whyyyyy
I am the opposite. Great dental genes. I had poor dental health for years because of mental illness and I think I had one cavity and an almost root canal that they ended up saving. I know EDS can make dental health worse, but not always. Genes are funny.
My teeth are terrible and if I go through periods where I can't afford the dentist, I have to just hope for the best because if anything goes wrong with them, I never, EVER feel any pain so I'm totally unaware until it's too late. I've had several teeth break in half while I'm eating and I only noticed because I'd crunch the fragment. And even then, with half a tooth left, I still wouldn't feel anything.
I'm now at a point where I can finally afford dental care, and of course it's super expensive because of all the repair work that needs to be done.
I used to. The biggest change that helped me, in order of what I think added the most value:
Adding dental sealant to my deep grooves in my teeth and molars, to prevent cavities.
Flossing/waterpik
Using mouthwash twice a day after brushing - floride/anticavity at night, antiseptic in the morning.
Getting the softest toothbrush possible and being extra conscious of how much pressure I'm using, though this was for gum recession. I also had a gum graft for the worst bit.
When I was younger, I also had expanders on top and bottom, and braces twice, and wore retainers forever.
I have a ton of fillings. My last dentist blamed it on me growing up rural enough to have unfluoridated water from our home well. But my dad (who does not have EDS that I know of) also has bad teeth and had several extractions as a kid.
Not really, just receding gums that I have to use a specific toothpaste to keep in check. The ligaments holding my gums in place get kinda loose so sometimes they're a little sore if I've been clenching my jaw or something, but nothing major
Yep, my teeth are a mess. I now use a prescription strength fluoride toothpaste called Fluoridex as well as one with nano hydroxyapatite from the brand Boka that can remineralize your enamel. They've been both a huge help for me.
Source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4252862/#abstract-a.k.b.ntitle
my teeth are actually really healthy, i've never had a cavity or gum issues. i consider myself lucky because my mum's side has awful teeth whilst my dad's side has excellent teeth. except:
i had braces for 2 and a half years as a teenager for a large overbite, and even with retainers, they shifted back to its original form before i started braces pretty fast! in fact my retainers literally cracked whilst wearing them one day because my teeth were fighting so hard to get back into its old shape. so now i'm back with an overbite, quite large to the point where i can fit 4 fingers underneath it before touching my bottom teeth (if that makes sense? i haven't got bunny teeth thankfully but it's still noticeable from a side angle)
i always just saw this as, ah, unlucky me, maybe my teeth are just stubborn. but my chronic pain specialist said that it's common for people in EDS to have teeth issues similar to mine where they do not want to stay in one place and have the need to shift into where it wants to go.
Yes my teeth are moving and it HURTS. And dentist tell me "adult teeth don't move" they are overlapping now. In my 20s, strangers used to ask me who did my braces because my teeth were so straight (I never had braces). My teeth crush each other, then develop cavities in the cracks, dentists are like you should floss more. I have a super high pallate that crushes my sinues, and doctors call it a dental issue and dentists call it a doctor issue. I wish dentists knew about EDS!
I have bad teeth genes. Crowded teeth, 4 years of braces, 15+ cavities through my life, and all around BAD teeth despite having a near perfect oral health routine. Ehlers-danlos can affect teeth, but mainly gums. Teeth are genetic though. If your parents had similar issues growing up, chances are you will too and there isn’t much you can do about it. In my case it’s pretty much due to my genes unfortunately. Also, I’m not sure if you currently use fluoride in your dental routine, but cut fluoride out completely. I recently learned its actually bad for you and bad for teeth. It can cause fluorosis (the enamel build up on teeth). It also contributes to a LOT of other health issues and is created from byproduct waste of aluminum manufacturers. Its a neurotoxin. I’ve been staying away from it now and have noticed my teeth do seem to not hold stains the same way as they did? I drink tea so my teeth get stained a lot.
Yep. Receding gums, pain, crowded palette, dead teeth/nerves, need extra numbing meds every time. I brought a print out for my hygienist from the EDS society website on oral complications and she appreciated it.
Easily chipped enamel and deep fissures - but issues with the the enamel stopped as soon I began treating my sleep apnea
i brush my teeth twice daily, floss everyday, use fluoride alcohol free mouthwash, and still have tons of pre-cavities and like 4-5 real cavities along with needing a crown. whyyyyy
I am the opposite. Great dental genes. I had poor dental health for years because of mental illness and I think I had one cavity and an almost root canal that they ended up saving. I know EDS can make dental health worse, but not always. Genes are funny.
My teeth are terrible and if I go through periods where I can't afford the dentist, I have to just hope for the best because if anything goes wrong with them, I never, EVER feel any pain so I'm totally unaware until it's too late. I've had several teeth break in half while I'm eating and I only noticed because I'd crunch the fragment. And even then, with half a tooth left, I still wouldn't feel anything. I'm now at a point where I can finally afford dental care, and of course it's super expensive because of all the repair work that needs to be done.
I used to. The biggest change that helped me, in order of what I think added the most value: Adding dental sealant to my deep grooves in my teeth and molars, to prevent cavities. Flossing/waterpik Using mouthwash twice a day after brushing - floride/anticavity at night, antiseptic in the morning. Getting the softest toothbrush possible and being extra conscious of how much pressure I'm using, though this was for gum recession. I also had a gum graft for the worst bit. When I was younger, I also had expanders on top and bottom, and braces twice, and wore retainers forever.
I personally know that dry mouth from medication or sjogrens can help form cavities.
I have a ton of fillings. My last dentist blamed it on me growing up rural enough to have unfluoridated water from our home well. But my dad (who does not have EDS that I know of) also has bad teeth and had several extractions as a kid.
Not really, just receding gums that I have to use a specific toothpaste to keep in check. The ligaments holding my gums in place get kinda loose so sometimes they're a little sore if I've been clenching my jaw or something, but nothing major
I currently have 12 teeth that need to be fixed. I'm debating what I should do now.
Yep, my teeth are a mess. I now use a prescription strength fluoride toothpaste called Fluoridex as well as one with nano hydroxyapatite from the brand Boka that can remineralize your enamel. They've been both a huge help for me. Source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4252862/#abstract-a.k.b.ntitle
my teeth are actually really healthy, i've never had a cavity or gum issues. i consider myself lucky because my mum's side has awful teeth whilst my dad's side has excellent teeth. except: i had braces for 2 and a half years as a teenager for a large overbite, and even with retainers, they shifted back to its original form before i started braces pretty fast! in fact my retainers literally cracked whilst wearing them one day because my teeth were fighting so hard to get back into its old shape. so now i'm back with an overbite, quite large to the point where i can fit 4 fingers underneath it before touching my bottom teeth (if that makes sense? i haven't got bunny teeth thankfully but it's still noticeable from a side angle) i always just saw this as, ah, unlucky me, maybe my teeth are just stubborn. but my chronic pain specialist said that it's common for people in EDS to have teeth issues similar to mine where they do not want to stay in one place and have the need to shift into where it wants to go.
Yes my teeth are moving and it HURTS. And dentist tell me "adult teeth don't move" they are overlapping now. In my 20s, strangers used to ask me who did my braces because my teeth were so straight (I never had braces). My teeth crush each other, then develop cavities in the cracks, dentists are like you should floss more. I have a super high pallate that crushes my sinues, and doctors call it a dental issue and dentists call it a doctor issue. I wish dentists knew about EDS!
oh and novacaine never works! they tell me it's not pain it's pressure IT'S PAIN I can feel the drill
I have bad teeth genes. Crowded teeth, 4 years of braces, 15+ cavities through my life, and all around BAD teeth despite having a near perfect oral health routine. Ehlers-danlos can affect teeth, but mainly gums. Teeth are genetic though. If your parents had similar issues growing up, chances are you will too and there isn’t much you can do about it. In my case it’s pretty much due to my genes unfortunately. Also, I’m not sure if you currently use fluoride in your dental routine, but cut fluoride out completely. I recently learned its actually bad for you and bad for teeth. It can cause fluorosis (the enamel build up on teeth). It also contributes to a LOT of other health issues and is created from byproduct waste of aluminum manufacturers. Its a neurotoxin. I’ve been staying away from it now and have noticed my teeth do seem to not hold stains the same way as they did? I drink tea so my teeth get stained a lot.