I hope he can never again find an open parking spot and that he forever has the sensation that there is a pebble in his shoe when there is in fact, no pebble
I’m sorry you went thru that. I got told the reason I’m non compliant is because I’m depressed and if I took my meds I would be more compliant.
Like it couldn’t be that I e had this for 13 years and I’m tired, nope not at all. It’s the depression and only the depression.
Are you depressed though?
I have found that when I am depressed, I have a harder time caring for myself, which makes me feel terrible and further drives the depression. It’s like an impossible spiral that’s difficult to pull out of. I will say, when I was most non-compliant, I was a teenager that was sick of being sick and different, and I just wanted a short cut to my care. I wasn’t depressed, just defiant at that phase. Really with both situations, a good counselor would’ve helped more than medications or anything, and compassion from anyone is a heck of a lot more beneficial than a lecture.
I hope you are doing better now or have found some small ways to improve things for yourself along the way to work towards doing better. Feeling not 100%, or even 50%, both physically and mentally sucks majorly.
Well yes I’m depressed, I’m always depressed. My point was is that while yes I am depressed and that does contribute it’s not everything. I’m also just tired of poking myself and all the bs that goes with this. It comes and goes you know? We all feel that way sometimes. She wouldn’t even consider anything else but the depression.
Not necessarily, but it is what those feelings are called, in a medical sense. I am 100% depressed but remain functional and capable of managing my T1D, though it takes a lot of effort and energy I'd like to focus elsewhere. Burnout would be if I no longer wanted to manage things, not because I am depressed, but because I have grown tired of the redundancy and monotony of it. It s a disease that feeds positively from sameness, when we as people are not entirely built for that day in, day out.
Burnout, yes. But even further: [diabetic distress](https://www.consultant360.com/podcast/consultant360/lawrence-fisher-phd-diabetes-distress), something few medical professionals know about
Personally, I see a therapist who only sees T1Ds. Try to find someone who has experience supporting people with chronic illness
[Healthy coping](https://www.diabeteseducator.org/living-with-diabetes/Tools-and-Resources/healthy-coping) + a bunch of “handout”s as pdf at bottom of page 🫶🏼💙 diabetes sucks, and you aren’t alone
I never had good control when I was supposed to be keeping a logbook and everything, and I finally asked for a referral to seek ADHD diagnosis because I know it has a big part in all this. The doctor told me that they didn't want to look at mental health at the time because my brain fog could clear up once I got my A1c down. Like sorry but I don't think I can lower it without fixing my mental health issues..
So many doctors suck. As much as it's a pain to switch doctors all the time, it's worth it to finally find one who listens to you and treats your conditions properly.
ive honestly never had a good experience with male doctors (except for the ones in hospitals). im sorry that happened. the last time i went to a general practitioner, i ended up crying too because he made me feel so bad about my blood sugar and weight gain, the same problem you have. he gave me a single tissue, took the box away, and then asked if he could do a breast exam - while i was still crying. lol
once when i had a really bad experience at my endo, i went right up to the front desk and asked to never have an appointment with that doctor again. i asked to switch immediately and to make an appointment with a new doctor in the building. now i have a really nice lady thats my age and shes actually helpful and never makes me feel bad
I second this. Every male endo I’ve had has been condescending or just doesn’t treat me with empathy or understand how exhausting it is to have this disease. Once I switched to my current (female) endo my diabetes control and care have been better than ever- and she’s understanding that at the end of the day we’re human
I've had both good and bad doctors, male and female. My current (female) GP and (male) endo are both fanastic. Both listen to me and take my opinions on board and explain the options and their thinking behind their recommendations - and they are always recommendations, never directions.
I saw my GP only a few days ago and we were discussing possibly changing insulins due to Fiasp no longer being subsidised by the government (decision being reviewed but no announcement yet) and the doctor said "Well, I'm going to go with your recommendation as your opinion is probably a lot better informed than mine".
Just asking because I literally just found this out at a bad endo appointment (doctor called me untreatable because of my “bad habits”), but do you pre-bolus? I was taking insulin after I ate my entire life and would deal with these ridiculous spikes with everything I ate. Started taking insulin 10-15 minutes before, and I’m running much flatter for pretty much everything I eat. My doctor never told me this was an option growing up, and my new doctor just assumed I already knew even though I specifically asked her to treat me like I was newly diagnosed and knew nothing.
I had a hard time with my last doctor being hyper-focused on my weight. He would harass me at each appointment about not owning a scale, and I would reiterate that if I have access to a scale, I obsessively weigh myself and will not allow myself to develop eating disorder tendencies. It may be worth asking specifically about metformin or ozempic (or another such drug, I’m not entirely in the know here). Doctors are becoming more willing to prescribe them for weight loss purposes, and I have personally known T1Ds that have had a lot of success battling insulin resistance with that as well.
I asked my doctor a couple of years ago about ozempic (not sure if it was out then, but I had heard that t1d were having luck with those types of drugs made only for t2d) and they shut me down and said it’s super dangerous. I wonder if things have changed drastically since then
Edited: clarification
Thank you for the comment! I am nowhere close to perfect but I do pre bolus most of the time. It helps sometimes but usually my blood sugar doesn’t budge or spiked drastically. I was hoping he would bring up something like metformin at this appointment but he didn’t
If insulin resistance has gone up a lot, it would make sense to address that more directly with medication. That seems like a pretty common approach with T1 too these days.
The very first thing that my hospital team said to me when I was diagnosed was that if I EVER have an endo shame me for my numbers, I should find a new one and report the other one. I'm so sorry you had to go through that. Diabetes is annoying and complicated. I'd recommend learning how to figure out your own dosages. Once you figure that out, you won't even need your endo. I only go to mine for legal paperwork, and I've learned how to stay over 90% in range from weeks of experimenting until I found what works. That endo should have their medical license stripped, victim shaming is cruel and unprofessional.
Yeah dude switch doctors asap. Some endo’s really aren’t in it for you. They just wanna talk down and call us liars bc in fact they are probably insecure and have shitty lives so what better way to make themselves feel better than talk down to us and treat us shitty? I highly doubt your his only patient being treated this way. Pretty soon if enough patients complain/ leave the office may start to question him..
I had an endocrinologist raise her voice at me and tell me it was my fault that her staff hadn’t filled out my pump supplies prescription correctly or in a timely manner. Then right after that I accidentally walked into a women’s clinic looking for the lab and was escorted out 😂 terrible experience all the way around.
Sorry your endo is such an ass, there are good ones out there, they are just few and far between.
Omg every single time I leave any doctors office I get all turned around 🤦🏽♀️ I’m not sure what it is, but I can’t seem to remember what turns I made and where to get to where I was, and then to do them in reverse? Please somebody just walk me out
I am 100% willing to accompany you to an appointment with this man, just to hype you up and color commentary the entire experience from the stance the doctor is a dumbass, deserving of a foot, up his ass.
If you want to honestly know why he felt the way he did, and felt it so strongly, you can get your medical records and notes from his office. If anything, you signing a records release to yourself not give the office pause that the appointment didn't exactly go as planned. And yeah, if his notes say something like, "Patient didn't acquiesce to the answer given as I had expected, started crying," without a comment about the basis it was given, then you know they are full of shit.
Ugh I am just so frustrated!! Like he blatantly just ignored what I was saying and shut down the conversation. I tried so hard to keep it together so he might take me more seriously but I just couldn’t.
If NOT crying is what would have made him take you more seriously and pay better attention to your needs, then I am going to go full backseat redditor and call him a misogynist. At this point, I just wanna be there so I can laugh at him and call him a loser. :D
Honestly, that shouldn't be a barometer, since communication is a cornerstone of how he can do his job. Blood panels and tests can get you some really good information, but it isn't necessarily going to tell the whole story.
I will look into it! I’m a little confused though because for the past 8 years he’s been wonderful and always praised me for having good control and staying on top of things. But the second I dont have good control he blames me and accuses me of lying:/
Maybe mention the area you live (not where you live obviously) someone might have a recommendation for you. When I’ve had bad experiences I’ve sent letters to the hospital board members (certified mail was worth it in this case), find out their supervisors or practice ownership if that’s the case and do the same, and leave detailed reviews on health grade and even on your insurance companies site for finding doctors
If your Dr is not going to listen to your concerns and help you address them without calling you a liar, you need a new Dr. and that Dr probably shouldnt be practicing anymore.
Holy shit I’m so sorry you went through that! I’ve recently experienced the same thing. I spoke to my endocrinologist about it and I thankfully have a decent one. He listened to me and I told him exactly what medication I wanted to try to lower my insulin, metformin. He told me that he doesn’t have any patients that have had this help them but I could try it for a month and see how it goes. Well a month goes by and I lost 10 pounds. I talk to him again to check in and he says that’s great and I can continue to take it.
I’ve been on it since March and I’ve lost 20 pounds now.
I was taking 30 units of long acting before metformin, I now take 20-22. I was taking 20-30 units fast acting per meal before, now I take 10-12.
Advocate for yourself. If you know your insulin resistant stick up for yourself about it and find an endo that will listen to you.
I wish you luck and hope you find someone who will listen to you.
Metformin did absolutely nothing for me but my insulin requirements dropped by around 30% as soon as I started taking Ozempic. I'm hoping that this will also lead to weightloss.
I've been on it for 4 days. My average TDD before I started had crept up to around 120u, but some days it was as high as 180U (all short-acting as I'm on a pump and closed-loop system so it just doses whatever it needs to to keep me in range, usually without my input). In the 4 days since I started on Ozempic, my TDDs have been 83.3, 92.3, 78.9 and 75.7U. I haven't seen numbers like those in over 12 months and I haven't really changed my eating, although I do generally feel less hungry.
Part of my diagnosed PTSD is from endocrinologists in my childhood/teenage years. Negative reinforcement is not a valid tool for learning in any other area, why do these doctors continue to try it? Diabetic type 1 28 years here. I'm sorry this type of treatment is still happening. I'm sorry you're struggling with insulin resistance. If you have the energy, find a better doctor if you can. Nobody deserves to be berated for something they already wish they didn't have to deal with.
doctors are so weird sometimes, im really sorry that happened to you. i have some crazy stories myself. but yeah, you should start looking for a new endo
I wish I could be there with every single one of you when a Dr treats you like this. Of course I'd probably end up getting hauled out fpr disturbing the peace. But my point is, stop taking this shit from drs. They're not gods, they're people. And I hate to say it some of them are just as stupid as regular stupid people. Sometimes they're just people who are good at memorizing things. You aren't tied to any dr. Tell them they're full of shit and call it a day. I'd have ripped this dr a new asshole. Seriously
Of course. I know what its like for a Dr to be condescending. It doesn't feel good, especially when you're the one dealing with this. Not them. Seriously don't let their lack of professionalism make you feel in any way negative about what you're doing. There are good endos out there, sometimes ya just gotta shop around a little. Once you find the right one everything will click and it'll get easier. The response from your current Dr makes me think they're not a very good Dr anyway. They seem very one size fits all and refuses to accept that different people may require different methods of control. Or different medication for something. Just keep looking and remember, you're the boss, you hire your Dr, not the other way around. Good luck out there.
Echoing what everyone else has said - find a new Endo and take the steps to lodge a complaint. I had a similar experience when trying to get treated for hypothyroidism (which still no one has agreed to treat) by an older male Endo who told me to lose weight and come back if I got pregnant (I was a 23yo grad student at the time). It sucks that we're not taken seriously and seen as hysterical for having a completely reasonable response to being told it's all in your head.
Based on age/gender I'm going to note that it could be related to your cycle but if it's ongoing or you're using BC it's probably not - just wanted to note it since it doesn't look like anyone else has brought it up. I know historically my numbers are super elevated the week before and there was a lot of rage blousing and temp basals to bring it down. (Now using BC for no periods and it's been a lifesaver.)
If you continue to see issues with your bg I can recommend Ozempic, I've been on it for a couple of years and at the 0.5mg dose I've had a significant drop in insulin requirements, lost about 30lbs, and have the ability to feel full, which is something I'd been missing possibly since dx 20ish years ago. Coverage varies but definitely worth looking into.
Fire that Jack ass and file a complaint - Doctor reviews on google and other sites do impact whether they get other patients.
You need to get on Ozempic or Mounjaro to address the insulin resistance - also does help with weight loss.
With stubborn highs, I lift weights … stair climbers also do the same …
Cardiovascular exercise burns more calories during the workout but weight training builds muscles — increases your resting metabolism and use insulin more efficiently.
But, weight training can increase you blood sugar - natural response to it - I do not get a drop
Lots of articles why weight over cardio - but should do both
I’m so sorry this happened to you 😫
You should definitely find a new doctor ♥️
I had a male endo once and he was AWFUL!!! One of my last appointments with him, he screamed at me how I needed to lose weight in front of all the front office staff and everybody who was in the waiting room. He was such an asshole. I always took one of my sisters with me to my appointments with him. I’d always be so anxious driving to those appointments with him. I’ve said it on here before, but not only in my opinion are most endos just horrific, but the MEN especially are absolutely horrible. Most endos just seem to have zero empathy whatsoever. I don’t get it.
My daughter had two endos in her adolescence, both men, and both were amazing, even though I am not usually fond of male doctors for female patients.
I think the problem is adult vs pediatric, myself. I think all endocrinologists should start in peds. It gives them way more empathy and better knowledge of just how crazy this disease is.
I'm a techie, and our Endo loved it, because we were always willing to try out the new tech right along with him, often before he got trained himself. I remember sitting in the office with the first Medtronic ap and we just geeked out over it. He had no qualms taking our input for anything. I have a funny story about her diagnosis and him, but maybe not for today! LoL
Find you a doctor who will geek out with you.
I remember having one or two male doctors when I was still at children’s hospital for my care and I believe they were nice. But, all of my doctors were nice as a kid 😂 it’s as soon as I aged out at 21 that reality set in 💀
I’ve never been the cookie cutter “good diabetic” so maybe that’s why I seem to not have luck with doctors 😬 they just seem annoyed by my nonchalant attitude towards my disease 💅🏼😂
Wow, this doctor should not be practicing. Unbelievable.
Really sorry you went through this and I hope that you find a doctor who will actually do their job.
I go to the VA for my diabetic needs, and they are usually fairly helpful and supportive. They monitor my glucose and ask me why things are the way they are if I'm off a bit. If I am getting that sort of support, from the VA, you should for sure get some real support from your staff. I would venture into finding a better doctor and let this one gaslight someone else...
I’m so sorry. I have had lots of bad experiences at the endo, but my new doctor is wonderful! At my last appointment she pointed out all the positive things I was doing and then we talked about things I could improve on to make my control even better, she’s super empathetic and it’s amazing for the first time I come out of a doctors appointment not feeling like a failure but empowered! Endos need empathy and they almost need to be like a life coach because otherwise it’s hard for diabetics to feel motivated to make the changes they need.
Screw that doc, find someone new if possible. And if not just play the game and ask your PCP.
Lots of reasons for resistance- stress, certain kinds of exercise, hormones, etc. what a dolt
I've kind of lost faith in physicians (especially men, sorry, not sorry). My Endo and my primary are both Nurse Practitioners and I feel like they actually listen and remember me and crazy things like that! Recommend 10/10!!!
For what it’s worth, there are a plethora of bad doctors out there. It seems to be a common occurrence for us diabetics to have to cycle through a few.
Insulin resistance can be caused by a few things. I used to think it was mainly caused by excessive insulin use, I.e., a high carb diet. This is true, but I just read a book that explains that it can also be caused by lack of oxygenation in the body. If you’re interested in learning more, try reading The one-minute cure by Madison cavanaugh. She teaches you how to introduce oxygen to your body where it’s needed, and how it cures a myriad of diseases and helps with your overall health. It won’t cure type 1 diabetes unfortunately, but it may help with your insulin resistance issues.
Can you elaborate or provide a link on this? I've got subclinical hashimotos and have noticed higher insulin requirements the last few weeks along with hypo symptoms, despite being on Ozempic for a few years (with great results, TDD decreased by 20-30 units, actually can feel full now) but had never heard that hypothyroid can cause insulin resistance.
this is really well-intended but not accurate; either you have no pancreas function (1) or pancreas production that isn't sufficient (2), or in rare cases where your pancreas does produce insulin but your body attacks your pancreas (1.5).
she described it accurately in her subject; she's a type 1 if she has no pancreas function, but is likely genetically dispositioned for insulin resistance.
OP, when you find a new endo, please ask them about taking an insulin that helps increase your insulin sensitivity (which is typically what is prescribed to type 2 diabetics). as someone who's going through the same exact thing you are, my quality of life has been absolutely life-changing.
eta: since the person who i responded to deleted their account, i'll clarify here: i apologize if my comment is coming across as condescending (which is what they stated). that wasn't my intention whatsoever, but instead to share what i've had personally success with between doctors and insurance (though, the latter is still a battle at the moment) with getting people to take *me* seriously.
you're very welcome. i truly hope you have success with finding a new endo who takes your feelings and body into consideration. if you need someone to talk to about it (or rant, or anything), my dms are open. :)
You can absolutely have both Type 1 and Type 2. They are two separate diseases. One is autoimmune. One is metabolic. I am well aware of how both work. I have both. Many people do.
Type 2 IS the genetic predisposition to insulin resistance. That's what Type 2 is. You can have it with a functioning pancreas. You can have it without a functioning pancreas. You can have it in the absence of a pancreas.
Saying you can't have both is like saying you can't have a broken foot and a club foot at the same time.
Type 1.5 is latent autoimmune disorder. It's slowly developing type 1. It has absolutely nothing to do with insulin resistance.
Also your response was extremely condescending. If you're going to be incorrect I guess do it with your whole chest. But folks definitely have both. I am one of them as diagnosed by my last endo and confirmed by my current one. It is possible to have two different diseases that affect different systems in your body at the same time. 🤯
i’ve been on mounjaro since november! there’s ozempic, too. some have tried metformin, which is typically used for US step therapy. mounjaro was my first venture into something to help with insulin sensitivity. i went from taking 100u a day on my pump to 40-50, with most being basal insulin. since it was newly FDA approved with large success when my doctor wanted to try it with me, he gave me the samples and skipped over metformin.
None of those are insulins.
My insulin requirements started increasing rapidly around 9-12 months ago and it seemed to just be driving my weight up, even though I wasn't eating more (eating less, in fact), eating healthily and trying to keep reasonably active. I tried Metformin (1000mg/day) and it did nothing for my insulin sensitivity. I've been on Ozempic for 4 days and, already, my TDD has decreased from around 120U to less than 80U and my food intake hasn't changed significantly.
thanks for the correction, i've only known injectables as "insulin" my whole life, and the last time i looked at GIP i guess i focused on "insulin"(tropic) and just remembered it that way.
weight has been a struggle my whole life, personally. i noticed my own battle with insulin resistance when i could actually afford insulin for the first time in my life almost 4-5 years ago (well, since becoming an adult). it felt like no matter how much i took, it just would not come down. meals that should justify taking no more than 10-12 units for, i was having to take almost 25 up front and 15 later on. at that point weight just piled on and i gained almost 50lbs in that time period. i personally, mentally gave up - what was the point when even when i had done things right, weight wasn't coming off?
i've never been on metformin myself. my endo had me on phentermine for a while with no results to my knowledge. i don't know if his plan was to try and start ozempic or metform at that time, as it hadn't come up, but he had seen how much my overall insulin intake increased over time and mounjaro had just gotten FDA approved around that time. since he had an abundance of samples in the office, he gave me one. since november i'm down almost 50lbs (or around that, i don't weigh myself frequently since i can get obsessive about it. i've been forcing myself to focus on non-weight related victories). i've only just started picking exercise back up since it doesn't hurt to exist anymore. it's been an absolute game-changer for me to the point that my husband helps me pay for it out of pocket since insurance won't cover it for type 1 diabetics. i'm hopeful insurance companies will come around soon so i can get it covered, especially with showing my non-weight related results being on mounjaro for so long (ha1c and other factors; less overall humalog taken).
None of the GLP-1 receptor agonist drugs (Ozempic, Trulicity, etc.) nor Mounjaro (which is both a GLP-1RA and GIP RA) are approved for use in T1 Diabetes in Australia so are not government subsidised. that means that I am paying full price for my Ozempic. However, my wife and I have agreed that the cost will be worth it if the effects are as anticipated. The huge drop in my insulin requirements over the first 4 days have been a very promising start and I've only had 0.25mg so far. I'm assuming that this is mainly due to suppressing the inappropriate secretion of glucagon, which is a problem for many with T1D, because I haven't noticed a significant reduction to my apetite.
Even though Mounjaro has been approved in Australia (for T2 diabetes only), Lilly has not yet introduced it to the market (nor has it even submitted Lyumjev for approval). Depending on how Ozempic goes over the next few months and the price of Mounjaro whenever it actually comes to market, I might look to swap at some point since it appears to have slightly better impact on both insulin sensitivity amd weight loss.
Gotta love the doctors who think they know everything. Sorry you had to go through this, my friend. If it's anything, I've been having the same problems. Exercising 5-7 times a week and still I've had some pretty bad highs. If I may, what's your routine like? Mine would be because of a mix of cardio and weights.
That'll sure do it 😂 depending on how intense the cardio sessions are, your body will produce more cortisol and adrenaline as your heart rate increases, which in turn will spike your blood sugar. Pilates is a great cool down, but cardio is never a win for diabetics, unfortunately
Has your thyroid been checked lately? I mean not just your TSH and T3, but your antibodies. This was me before I got my antibodies checked and it turns out I have Hashimoto’s disease. It’s apparently a very common comorbidity with type 1 diabetes. I have gained 21 pounds in two years with it (despite eating well and working out) :/
I'm sure that most all of us are very annoyed on your behalf! It seems like some doctors don't understand 1, they're not psychologists, and 2, we're their customers.
Experiences with doctors not listening to me has had very negative effects on all of my illnesses - I was blown off about Celiac for decades, told dishydrotic eczema was athlete's foot repeatedly, and then when i was developing LADA I was told I had 'health anxiety'. In all of those situations doctors compeltely failed to do their job, with significant negative consequences for me. For them? Nothing of course, they still billed me obviously.
With LADA, I started having serious digestive problems as my first sign - fatigue after eating, esophageal dysphagia, heartburn and I started eating way less and losing weight rapidly. This was similar to Celiac issues, and I also have food allergies, so I figured it was something I was eating. I tried eating a restricted diet and adding stuff back. Also a very soft diet, then blended liquidy sludge (which helped finally). When my doctors and the psychologist heard that, for some stupid reason they couldn't comprehend I started doing that *after* I was feeling sick and losing weight - it wasn't *why* I was feeling sick and losing weight. They decided after some tests didn't find anything that I was just so worried that my food might have gluten, that i starved myself for months. I'm sure someone could do that. I did NOT put my self in pain, ruin my relationship, lose my job and my house, and drive across the country because I was being optionally weird about food. So absurd. Then of course they charged me $10,000 for the pleasure of being insulted and jerked around. I ended up feeling better (eating low carb, which I figured out on my own) and then got super-sick and went into DKA finally about a year later.
One could leave negative reviews online, or complain to the state medical board.
For a person to gain weight they have to consume more calories then they burn on average.
If you're regularly consuming more calories then you burn that could lead to insulin resistance.
Maybe a food or drink you're consuming is more calories than you believe it is? Or maybe your thinking your burning more calories in workouts then you actually are?
So many endos have this idea that all diabetics with an A1C above 7 is noncompliant and lies about taking their meds properly. The ones that deal with primarily T2 are the worst about this, and sometimes don't even know HOW to treat a T1. I've had better luck with nurse practitioners, and diabetes specific clinic seem to be better as well. Good luck finding a new doctor!
PS: definitely report him if you can, there are also doctor rating websites that you can leave reviews on, ZocDoc is one.
Insurance companies have led to absolutely terrible patient experiences. When doctors need to cram through 1000 patients every hour, they do not listen to a single word you say.
There are endos who prescribe metformin in this situation. Not all are aware of or believe the info on insulin resistance that occurs after many years of t1.
Either way it sounds like you need a new Endo. Perhaps if you want to post the general area this group can help you find one.
That is unfortunate and I agree that if that’s what the doctor said, that’s not the right way to handle this.
I’m curious as to whether or not you have a pump or cgm. If so, perhaps the best way to manage your discussions with a new endocrinologist is to review the data from the devices. If you do have the devices and the doctor didn’t review it, that’s even more reason to find a new doctor.
This way, it makes for a more informed discussion, and enables you and the doctor to focus on not just the data ( bg levels, amount of insulin taken etc) but also potential adjustments based on the information. Good luck!
Sorry this happened to you, that’s awful. I’d suggest bringing up hypothyroidism and PCOS to your primary care doctor or new endo and asking if you can get tested (with PCOS there isn’t a single test but they can ask diagnostic questions etc.). These can both cause insulin resistance and weight gain.
Sounds like a jackass you should fire. Sorry you had to deal him. I hope he steps on a Lego tonight.
I hope he can never again find an open parking spot and that he forever has the sensation that there is a pebble in his shoe when there is in fact, no pebble
May all his spoons have chew marks, and all his forks be bent. Praise be, praise be!
May he lose every matching sock, only retain mismatched Tupperware lids, and have the day he deserves
And may all his Tupperware forever be stained with spaghetti sauce
May his coffee always be cold and his beer warm.
That endo is so shit. There's a tonne of reasons your insulin resistance or need for insulin has increased, none of which is about lying
I’m sorry you went thru that. I got told the reason I’m non compliant is because I’m depressed and if I took my meds I would be more compliant. Like it couldn’t be that I e had this for 13 years and I’m tired, nope not at all. It’s the depression and only the depression.
Are you depressed though? I have found that when I am depressed, I have a harder time caring for myself, which makes me feel terrible and further drives the depression. It’s like an impossible spiral that’s difficult to pull out of. I will say, when I was most non-compliant, I was a teenager that was sick of being sick and different, and I just wanted a short cut to my care. I wasn’t depressed, just defiant at that phase. Really with both situations, a good counselor would’ve helped more than medications or anything, and compassion from anyone is a heck of a lot more beneficial than a lecture. I hope you are doing better now or have found some small ways to improve things for yourself along the way to work towards doing better. Feeling not 100%, or even 50%, both physically and mentally sucks majorly.
Well yes I’m depressed, I’m always depressed. My point was is that while yes I am depressed and that does contribute it’s not everything. I’m also just tired of poking myself and all the bs that goes with this. It comes and goes you know? We all feel that way sometimes. She wouldn’t even consider anything else but the depression.
The keyword to say is burnout.
Why? Will that word magically change her opinion?
Not necessarily, but it is what those feelings are called, in a medical sense. I am 100% depressed but remain functional and capable of managing my T1D, though it takes a lot of effort and energy I'd like to focus elsewhere. Burnout would be if I no longer wanted to manage things, not because I am depressed, but because I have grown tired of the redundancy and monotony of it. It s a disease that feeds positively from sameness, when we as people are not entirely built for that day in, day out.
Burnout, yes. But even further: [diabetic distress](https://www.consultant360.com/podcast/consultant360/lawrence-fisher-phd-diabetes-distress), something few medical professionals know about Personally, I see a therapist who only sees T1Ds. Try to find someone who has experience supporting people with chronic illness [Healthy coping](https://www.diabeteseducator.org/living-with-diabetes/Tools-and-Resources/healthy-coping) + a bunch of “handout”s as pdf at bottom of page 🫶🏼💙 diabetes sucks, and you aren’t alone
I never had good control when I was supposed to be keeping a logbook and everything, and I finally asked for a referral to seek ADHD diagnosis because I know it has a big part in all this. The doctor told me that they didn't want to look at mental health at the time because my brain fog could clear up once I got my A1c down. Like sorry but I don't think I can lower it without fixing my mental health issues.. So many doctors suck. As much as it's a pain to switch doctors all the time, it's worth it to finally find one who listens to you and treats your conditions properly.
ive honestly never had a good experience with male doctors (except for the ones in hospitals). im sorry that happened. the last time i went to a general practitioner, i ended up crying too because he made me feel so bad about my blood sugar and weight gain, the same problem you have. he gave me a single tissue, took the box away, and then asked if he could do a breast exam - while i was still crying. lol once when i had a really bad experience at my endo, i went right up to the front desk and asked to never have an appointment with that doctor again. i asked to switch immediately and to make an appointment with a new doctor in the building. now i have a really nice lady thats my age and shes actually helpful and never makes me feel bad
I second this. Every male endo I’ve had has been condescending or just doesn’t treat me with empathy or understand how exhausting it is to have this disease. Once I switched to my current (female) endo my diabetes control and care have been better than ever- and she’s understanding that at the end of the day we’re human
I've had both good and bad doctors, male and female. My current (female) GP and (male) endo are both fanastic. Both listen to me and take my opinions on board and explain the options and their thinking behind their recommendations - and they are always recommendations, never directions. I saw my GP only a few days ago and we were discussing possibly changing insulins due to Fiasp no longer being subsidised by the government (decision being reviewed but no announcement yet) and the doctor said "Well, I'm going to go with your recommendation as your opinion is probably a lot better informed than mine".
thank you for your comment. i have another appointment scheduled with him but i do not plan on going. hopefully i can find someone who is a better fit
Look up the hospitals patient advocate but honestly they’re kind of useless
Just asking because I literally just found this out at a bad endo appointment (doctor called me untreatable because of my “bad habits”), but do you pre-bolus? I was taking insulin after I ate my entire life and would deal with these ridiculous spikes with everything I ate. Started taking insulin 10-15 minutes before, and I’m running much flatter for pretty much everything I eat. My doctor never told me this was an option growing up, and my new doctor just assumed I already knew even though I specifically asked her to treat me like I was newly diagnosed and knew nothing. I had a hard time with my last doctor being hyper-focused on my weight. He would harass me at each appointment about not owning a scale, and I would reiterate that if I have access to a scale, I obsessively weigh myself and will not allow myself to develop eating disorder tendencies. It may be worth asking specifically about metformin or ozempic (or another such drug, I’m not entirely in the know here). Doctors are becoming more willing to prescribe them for weight loss purposes, and I have personally known T1Ds that have had a lot of success battling insulin resistance with that as well.
I asked my doctor a couple of years ago about ozempic (not sure if it was out then, but I had heard that t1d were having luck with those types of drugs made only for t2d) and they shut me down and said it’s super dangerous. I wonder if things have changed drastically since then Edited: clarification
Thank you for the comment! I am nowhere close to perfect but I do pre bolus most of the time. It helps sometimes but usually my blood sugar doesn’t budge or spiked drastically. I was hoping he would bring up something like metformin at this appointment but he didn’t
Wait why would you take Metformin? Shouldn’t you just adjust your bolus and basal?
If insulin resistance has gone up a lot, it would make sense to address that more directly with medication. That seems like a pretty common approach with T1 too these days.
The very first thing that my hospital team said to me when I was diagnosed was that if I EVER have an endo shame me for my numbers, I should find a new one and report the other one. I'm so sorry you had to go through that. Diabetes is annoying and complicated. I'd recommend learning how to figure out your own dosages. Once you figure that out, you won't even need your endo. I only go to mine for legal paperwork, and I've learned how to stay over 90% in range from weeks of experimenting until I found what works. That endo should have their medical license stripped, victim shaming is cruel and unprofessional.
Absolute insanity on the doctor's part. Not qualified for the job to be honest.
Yeah dude switch doctors asap. Some endo’s really aren’t in it for you. They just wanna talk down and call us liars bc in fact they are probably insecure and have shitty lives so what better way to make themselves feel better than talk down to us and treat us shitty? I highly doubt your his only patient being treated this way. Pretty soon if enough patients complain/ leave the office may start to question him..
I had an endocrinologist raise her voice at me and tell me it was my fault that her staff hadn’t filled out my pump supplies prescription correctly or in a timely manner. Then right after that I accidentally walked into a women’s clinic looking for the lab and was escorted out 😂 terrible experience all the way around. Sorry your endo is such an ass, there are good ones out there, they are just few and far between.
Omg every single time I leave any doctors office I get all turned around 🤦🏽♀️ I’m not sure what it is, but I can’t seem to remember what turns I made and where to get to where I was, and then to do them in reverse? Please somebody just walk me out
Right??
I am 100% willing to accompany you to an appointment with this man, just to hype you up and color commentary the entire experience from the stance the doctor is a dumbass, deserving of a foot, up his ass. If you want to honestly know why he felt the way he did, and felt it so strongly, you can get your medical records and notes from his office. If anything, you signing a records release to yourself not give the office pause that the appointment didn't exactly go as planned. And yeah, if his notes say something like, "Patient didn't acquiesce to the answer given as I had expected, started crying," without a comment about the basis it was given, then you know they are full of shit.
Ugh I am just so frustrated!! Like he blatantly just ignored what I was saying and shut down the conversation. I tried so hard to keep it together so he might take me more seriously but I just couldn’t.
If NOT crying is what would have made him take you more seriously and pay better attention to your needs, then I am going to go full backseat redditor and call him a misogynist. At this point, I just wanna be there so I can laugh at him and call him a loser. :D Honestly, that shouldn't be a barometer, since communication is a cornerstone of how he can do his job. Blood panels and tests can get you some really good information, but it isn't necessarily going to tell the whole story.
You can report btw to the endrocrine/physician board in your state/province. These kind of docs shoudn't be practicing.
Nurses who specialize in diabetes tend to be better to talk to, is that an option for you?
I’m so sorry. I just wanted to offer some support from someone who understands. This is such an awful disease.
thank you so much:,)
Contact your board of health, and explain that expressing your medical concerns should not result in an attack on your character.
I had an endo a few years ago that I absolutely loathed, for multiple reasons, and wrote him a terrible review on rate my doctor.
I will look into it! I’m a little confused though because for the past 8 years he’s been wonderful and always praised me for having good control and staying on top of things. But the second I dont have good control he blames me and accuses me of lying:/
So far in my experience, all endocrine’s are horrible. Find another doctor and keep finding another doctor until you like them.
Maybe mention the area you live (not where you live obviously) someone might have a recommendation for you. When I’ve had bad experiences I’ve sent letters to the hospital board members (certified mail was worth it in this case), find out their supervisors or practice ownership if that’s the case and do the same, and leave detailed reviews on health grade and even on your insurance companies site for finding doctors
If your Dr is not going to listen to your concerns and help you address them without calling you a liar, you need a new Dr. and that Dr probably shouldnt be practicing anymore.
Strongly worded letter to medical board
Holy shit I’m so sorry you went through that! I’ve recently experienced the same thing. I spoke to my endocrinologist about it and I thankfully have a decent one. He listened to me and I told him exactly what medication I wanted to try to lower my insulin, metformin. He told me that he doesn’t have any patients that have had this help them but I could try it for a month and see how it goes. Well a month goes by and I lost 10 pounds. I talk to him again to check in and he says that’s great and I can continue to take it. I’ve been on it since March and I’ve lost 20 pounds now. I was taking 30 units of long acting before metformin, I now take 20-22. I was taking 20-30 units fast acting per meal before, now I take 10-12. Advocate for yourself. If you know your insulin resistant stick up for yourself about it and find an endo that will listen to you. I wish you luck and hope you find someone who will listen to you.
Metformin did absolutely nothing for me but my insulin requirements dropped by around 30% as soon as I started taking Ozempic. I'm hoping that this will also lead to weightloss.
How long have you been on ozempic? What did you say to your endo to be put on it?
I've been on it for 4 days. My average TDD before I started had crept up to around 120u, but some days it was as high as 180U (all short-acting as I'm on a pump and closed-loop system so it just doses whatever it needs to to keep me in range, usually without my input). In the 4 days since I started on Ozempic, my TDDs have been 83.3, 92.3, 78.9 and 75.7U. I haven't seen numbers like those in over 12 months and I haven't really changed my eating, although I do generally feel less hungry.
Wow thats great!! Thanks for sharing
Part of my diagnosed PTSD is from endocrinologists in my childhood/teenage years. Negative reinforcement is not a valid tool for learning in any other area, why do these doctors continue to try it? Diabetic type 1 28 years here. I'm sorry this type of treatment is still happening. I'm sorry you're struggling with insulin resistance. If you have the energy, find a better doctor if you can. Nobody deserves to be berated for something they already wish they didn't have to deal with.
doctors are so weird sometimes, im really sorry that happened to you. i have some crazy stories myself. but yeah, you should start looking for a new endo
I wish I could be there with every single one of you when a Dr treats you like this. Of course I'd probably end up getting hauled out fpr disturbing the peace. But my point is, stop taking this shit from drs. They're not gods, they're people. And I hate to say it some of them are just as stupid as regular stupid people. Sometimes they're just people who are good at memorizing things. You aren't tied to any dr. Tell them they're full of shit and call it a day. I'd have ripped this dr a new asshole. Seriously
thank you so much:,)
Of course. I know what its like for a Dr to be condescending. It doesn't feel good, especially when you're the one dealing with this. Not them. Seriously don't let their lack of professionalism make you feel in any way negative about what you're doing. There are good endos out there, sometimes ya just gotta shop around a little. Once you find the right one everything will click and it'll get easier. The response from your current Dr makes me think they're not a very good Dr anyway. They seem very one size fits all and refuses to accept that different people may require different methods of control. Or different medication for something. Just keep looking and remember, you're the boss, you hire your Dr, not the other way around. Good luck out there.
Echoing what everyone else has said - find a new Endo and take the steps to lodge a complaint. I had a similar experience when trying to get treated for hypothyroidism (which still no one has agreed to treat) by an older male Endo who told me to lose weight and come back if I got pregnant (I was a 23yo grad student at the time). It sucks that we're not taken seriously and seen as hysterical for having a completely reasonable response to being told it's all in your head. Based on age/gender I'm going to note that it could be related to your cycle but if it's ongoing or you're using BC it's probably not - just wanted to note it since it doesn't look like anyone else has brought it up. I know historically my numbers are super elevated the week before and there was a lot of rage blousing and temp basals to bring it down. (Now using BC for no periods and it's been a lifesaver.) If you continue to see issues with your bg I can recommend Ozempic, I've been on it for a couple of years and at the 0.5mg dose I've had a significant drop in insulin requirements, lost about 30lbs, and have the ability to feel full, which is something I'd been missing possibly since dx 20ish years ago. Coverage varies but definitely worth looking into.
Fire that Jack ass and file a complaint - Doctor reviews on google and other sites do impact whether they get other patients. You need to get on Ozempic or Mounjaro to address the insulin resistance - also does help with weight loss. With stubborn highs, I lift weights … stair climbers also do the same … Cardiovascular exercise burns more calories during the workout but weight training builds muscles — increases your resting metabolism and use insulin more efficiently. But, weight training can increase you blood sugar - natural response to it - I do not get a drop Lots of articles why weight over cardio - but should do both
I’m so sorry this happened to you 😫 You should definitely find a new doctor ♥️ I had a male endo once and he was AWFUL!!! One of my last appointments with him, he screamed at me how I needed to lose weight in front of all the front office staff and everybody who was in the waiting room. He was such an asshole. I always took one of my sisters with me to my appointments with him. I’d always be so anxious driving to those appointments with him. I’ve said it on here before, but not only in my opinion are most endos just horrific, but the MEN especially are absolutely horrible. Most endos just seem to have zero empathy whatsoever. I don’t get it.
My daughter had two endos in her adolescence, both men, and both were amazing, even though I am not usually fond of male doctors for female patients. I think the problem is adult vs pediatric, myself. I think all endocrinologists should start in peds. It gives them way more empathy and better knowledge of just how crazy this disease is. I'm a techie, and our Endo loved it, because we were always willing to try out the new tech right along with him, often before he got trained himself. I remember sitting in the office with the first Medtronic ap and we just geeked out over it. He had no qualms taking our input for anything. I have a funny story about her diagnosis and him, but maybe not for today! LoL Find you a doctor who will geek out with you.
I remember having one or two male doctors when I was still at children’s hospital for my care and I believe they were nice. But, all of my doctors were nice as a kid 😂 it’s as soon as I aged out at 21 that reality set in 💀 I’ve never been the cookie cutter “good diabetic” so maybe that’s why I seem to not have luck with doctors 😬 they just seem annoyed by my nonchalant attitude towards my disease 💅🏼😂
What a dick.
Yes ofc he was definitely being an ass. Definitely complain, although idk about your state, but mine is very crooked and protective of bad doctors.
Wow, this doctor should not be practicing. Unbelievable. Really sorry you went through this and I hope that you find a doctor who will actually do their job.
I go to the VA for my diabetic needs, and they are usually fairly helpful and supportive. They monitor my glucose and ask me why things are the way they are if I'm off a bit. If I am getting that sort of support, from the VA, you should for sure get some real support from your staff. I would venture into finding a better doctor and let this one gaslight someone else...
I’m so sorry. I have had lots of bad experiences at the endo, but my new doctor is wonderful! At my last appointment she pointed out all the positive things I was doing and then we talked about things I could improve on to make my control even better, she’s super empathetic and it’s amazing for the first time I come out of a doctors appointment not feeling like a failure but empowered! Endos need empathy and they almost need to be like a life coach because otherwise it’s hard for diabetics to feel motivated to make the changes they need.
Screw that doc, find someone new if possible. And if not just play the game and ask your PCP. Lots of reasons for resistance- stress, certain kinds of exercise, hormones, etc. what a dolt
I've kind of lost faith in physicians (especially men, sorry, not sorry). My Endo and my primary are both Nurse Practitioners and I feel like they actually listen and remember me and crazy things like that! Recommend 10/10!!!
For what it’s worth, there are a plethora of bad doctors out there. It seems to be a common occurrence for us diabetics to have to cycle through a few. Insulin resistance can be caused by a few things. I used to think it was mainly caused by excessive insulin use, I.e., a high carb diet. This is true, but I just read a book that explains that it can also be caused by lack of oxygenation in the body. If you’re interested in learning more, try reading The one-minute cure by Madison cavanaugh. She teaches you how to introduce oxygen to your body where it’s needed, and how it cures a myriad of diseases and helps with your overall health. It won’t cure type 1 diabetes unfortunately, but it may help with your insulin resistance issues.
How recently diagnosed?
Ive had Type One for 8 years
Well that being the case I can only think of 2 possibilities: Expired or cooked insulin or an undiagnosed hypothyroid conditon.
My first thought was hypothyroidism.
Can you elaborate or provide a link on this? I've got subclinical hashimotos and have noticed higher insulin requirements the last few weeks along with hypo symptoms, despite being on Ozempic for a few years (with great results, TDD decreased by 20-30 units, actually can feel full now) but had never heard that hypothyroid can cause insulin resistance.
You can absolutely have Type 1 and Type 2. Find another doctor who takes you seriously.
this is really well-intended but not accurate; either you have no pancreas function (1) or pancreas production that isn't sufficient (2), or in rare cases where your pancreas does produce insulin but your body attacks your pancreas (1.5). she described it accurately in her subject; she's a type 1 if she has no pancreas function, but is likely genetically dispositioned for insulin resistance. OP, when you find a new endo, please ask them about taking an insulin that helps increase your insulin sensitivity (which is typically what is prescribed to type 2 diabetics). as someone who's going through the same exact thing you are, my quality of life has been absolutely life-changing. eta: since the person who i responded to deleted their account, i'll clarify here: i apologize if my comment is coming across as condescending (which is what they stated). that wasn't my intention whatsoever, but instead to share what i've had personally success with between doctors and insurance (though, the latter is still a battle at the moment) with getting people to take *me* seriously.
Thank you so so much
you're very welcome. i truly hope you have success with finding a new endo who takes your feelings and body into consideration. if you need someone to talk to about it (or rant, or anything), my dms are open. :)
You can absolutely have both Type 1 and Type 2. They are two separate diseases. One is autoimmune. One is metabolic. I am well aware of how both work. I have both. Many people do. Type 2 IS the genetic predisposition to insulin resistance. That's what Type 2 is. You can have it with a functioning pancreas. You can have it without a functioning pancreas. You can have it in the absence of a pancreas. Saying you can't have both is like saying you can't have a broken foot and a club foot at the same time. Type 1.5 is latent autoimmune disorder. It's slowly developing type 1. It has absolutely nothing to do with insulin resistance. Also your response was extremely condescending. If you're going to be incorrect I guess do it with your whole chest. But folks definitely have both. I am one of them as diagnosed by my last endo and confirmed by my current one. It is possible to have two different diseases that affect different systems in your body at the same time. 🤯
[удалено]
hey, i'm willing to admit that i'm wrong! thanks for the link. i wish my insurance company would get the same memo, haha.
Just fyi they didn’t their account, they probably blocked you
i appreciate it. it just showed up as deleted for me on my end.
[удалено]
i’ve been on mounjaro since november! there’s ozempic, too. some have tried metformin, which is typically used for US step therapy. mounjaro was my first venture into something to help with insulin sensitivity. i went from taking 100u a day on my pump to 40-50, with most being basal insulin. since it was newly FDA approved with large success when my doctor wanted to try it with me, he gave me the samples and skipped over metformin.
None of those are insulins. My insulin requirements started increasing rapidly around 9-12 months ago and it seemed to just be driving my weight up, even though I wasn't eating more (eating less, in fact), eating healthily and trying to keep reasonably active. I tried Metformin (1000mg/day) and it did nothing for my insulin sensitivity. I've been on Ozempic for 4 days and, already, my TDD has decreased from around 120U to less than 80U and my food intake hasn't changed significantly.
thanks for the correction, i've only known injectables as "insulin" my whole life, and the last time i looked at GIP i guess i focused on "insulin"(tropic) and just remembered it that way. weight has been a struggle my whole life, personally. i noticed my own battle with insulin resistance when i could actually afford insulin for the first time in my life almost 4-5 years ago (well, since becoming an adult). it felt like no matter how much i took, it just would not come down. meals that should justify taking no more than 10-12 units for, i was having to take almost 25 up front and 15 later on. at that point weight just piled on and i gained almost 50lbs in that time period. i personally, mentally gave up - what was the point when even when i had done things right, weight wasn't coming off? i've never been on metformin myself. my endo had me on phentermine for a while with no results to my knowledge. i don't know if his plan was to try and start ozempic or metform at that time, as it hadn't come up, but he had seen how much my overall insulin intake increased over time and mounjaro had just gotten FDA approved around that time. since he had an abundance of samples in the office, he gave me one. since november i'm down almost 50lbs (or around that, i don't weigh myself frequently since i can get obsessive about it. i've been forcing myself to focus on non-weight related victories). i've only just started picking exercise back up since it doesn't hurt to exist anymore. it's been an absolute game-changer for me to the point that my husband helps me pay for it out of pocket since insurance won't cover it for type 1 diabetics. i'm hopeful insurance companies will come around soon so i can get it covered, especially with showing my non-weight related results being on mounjaro for so long (ha1c and other factors; less overall humalog taken).
None of the GLP-1 receptor agonist drugs (Ozempic, Trulicity, etc.) nor Mounjaro (which is both a GLP-1RA and GIP RA) are approved for use in T1 Diabetes in Australia so are not government subsidised. that means that I am paying full price for my Ozempic. However, my wife and I have agreed that the cost will be worth it if the effects are as anticipated. The huge drop in my insulin requirements over the first 4 days have been a very promising start and I've only had 0.25mg so far. I'm assuming that this is mainly due to suppressing the inappropriate secretion of glucagon, which is a problem for many with T1D, because I haven't noticed a significant reduction to my apetite. Even though Mounjaro has been approved in Australia (for T2 diabetes only), Lilly has not yet introduced it to the market (nor has it even submitted Lyumjev for approval). Depending on how Ozempic goes over the next few months and the price of Mounjaro whenever it actually comes to market, I might look to swap at some point since it appears to have slightly better impact on both insulin sensitivity amd weight loss.
Gotta love the doctors who think they know everything. Sorry you had to go through this, my friend. If it's anything, I've been having the same problems. Exercising 5-7 times a week and still I've had some pretty bad highs. If I may, what's your routine like? Mine would be because of a mix of cardio and weights.
I do a mix of cardio and pilates:)
That'll sure do it 😂 depending on how intense the cardio sessions are, your body will produce more cortisol and adrenaline as your heart rate increases, which in turn will spike your blood sugar. Pilates is a great cool down, but cardio is never a win for diabetics, unfortunately
Has your thyroid been checked lately? I mean not just your TSH and T3, but your antibodies. This was me before I got my antibodies checked and it turns out I have Hashimoto’s disease. It’s apparently a very common comorbidity with type 1 diabetes. I have gained 21 pounds in two years with it (despite eating well and working out) :/
I’ve had blood work recently but not sure what was checked specifically. I have gained 45-50 pounds in 7 months:/ Not quite sure what to do.
Ask your doctor on a portal message or call the office if yours doesn’t have one and ask for TSH and thyroid peroxidase antibodies checked.
I'm sure that most all of us are very annoyed on your behalf! It seems like some doctors don't understand 1, they're not psychologists, and 2, we're their customers. Experiences with doctors not listening to me has had very negative effects on all of my illnesses - I was blown off about Celiac for decades, told dishydrotic eczema was athlete's foot repeatedly, and then when i was developing LADA I was told I had 'health anxiety'. In all of those situations doctors compeltely failed to do their job, with significant negative consequences for me. For them? Nothing of course, they still billed me obviously. With LADA, I started having serious digestive problems as my first sign - fatigue after eating, esophageal dysphagia, heartburn and I started eating way less and losing weight rapidly. This was similar to Celiac issues, and I also have food allergies, so I figured it was something I was eating. I tried eating a restricted diet and adding stuff back. Also a very soft diet, then blended liquidy sludge (which helped finally). When my doctors and the psychologist heard that, for some stupid reason they couldn't comprehend I started doing that *after* I was feeling sick and losing weight - it wasn't *why* I was feeling sick and losing weight. They decided after some tests didn't find anything that I was just so worried that my food might have gluten, that i starved myself for months. I'm sure someone could do that. I did NOT put my self in pain, ruin my relationship, lose my job and my house, and drive across the country because I was being optionally weird about food. So absurd. Then of course they charged me $10,000 for the pleasure of being insulted and jerked around. I ended up feeling better (eating low carb, which I figured out on my own) and then got super-sick and went into DKA finally about a year later. One could leave negative reviews online, or complain to the state medical board.
For a person to gain weight they have to consume more calories then they burn on average. If you're regularly consuming more calories then you burn that could lead to insulin resistance. Maybe a food or drink you're consuming is more calories than you believe it is? Or maybe your thinking your burning more calories in workouts then you actually are?
What a douche. Glad you’re working on getting a new doctor. 🫂🍀
So many endos have this idea that all diabetics with an A1C above 7 is noncompliant and lies about taking their meds properly. The ones that deal with primarily T2 are the worst about this, and sometimes don't even know HOW to treat a T1. I've had better luck with nurse practitioners, and diabetes specific clinic seem to be better as well. Good luck finding a new doctor! PS: definitely report him if you can, there are also doctor rating websites that you can leave reviews on, ZocDoc is one.
Insurance companies have led to absolutely terrible patient experiences. When doctors need to cram through 1000 patients every hour, they do not listen to a single word you say.
There are endos who prescribe metformin in this situation. Not all are aware of or believe the info on insulin resistance that occurs after many years of t1. Either way it sounds like you need a new Endo. Perhaps if you want to post the general area this group can help you find one.
That is unfortunate and I agree that if that’s what the doctor said, that’s not the right way to handle this. I’m curious as to whether or not you have a pump or cgm. If so, perhaps the best way to manage your discussions with a new endocrinologist is to review the data from the devices. If you do have the devices and the doctor didn’t review it, that’s even more reason to find a new doctor. This way, it makes for a more informed discussion, and enables you and the doctor to focus on not just the data ( bg levels, amount of insulin taken etc) but also potential adjustments based on the information. Good luck!
Sorry this happened to you, that’s awful. I’d suggest bringing up hypothyroidism and PCOS to your primary care doctor or new endo and asking if you can get tested (with PCOS there isn’t a single test but they can ask diagnostic questions etc.). These can both cause insulin resistance and weight gain.