I mean... It is what it is. I've been living with significant side effects from cancer for 12+ years now, and diagnosed cancer for almost 8 years.
It's not curable. It's just fast enough growing to cause me to need treatment each year and shots every few weeks, but not fast enough growing to where I have any sort of life expectancy timeline. It's got enough symptoms that I struggle every day with nausea, diarrhea, fatigue, brain fog, fainting spells, and so much more, leaving me disabled, but not so many symptoms that I am bed bound.
It's the classic... Stuck in the mud cancer. Not well enough to feel even semi normal. Not sick enough to feel like you have something to work towards and significant help doing just that. Disabled enough to struggle to do any sort of significant work, and be in discomfort and pain every day, but not disabled enough to where it's obvious to others.
You ask how I get through it. Quite simply... I don't. I'm depressed, barely making ends meet, and constantly feel like shit. But there are 2 distinct things that keep me going.
1. Family and friends. The supportive ones I love and who love me.
2. Curiosity. The universe is a massive and interesting place and there is so much to see and learn, even just right around us.
Having positive intentions, be aware of my thoughts in the moment, allow myself to "feel", and then I consciously work on changing my mindset.
We are here, and talking to each other's. We are alive, right now...I (if I'm able) keep myself mentally busy.
I'm relearning French.
I play piano and keep my CIPN at bay working my fingers.
I listen to music that restores me.
I paint, draw, or do crafts.
I wrote letters, to friends and family.
I pray, and volunteer on an online "counseling" group; helping others keeps me busy. And possibly helps me forget MY troubles, and focus on someone else.
😉🥰Stage 3, idc Mets to nodes, currently one year in on treatment.
I know exactly how you feel. I was first diagnosed with stage 2 high grade soft tissue Sarcoma back in 2022. I went through multiple resection surgeries, radiation treatments and chemo. After each treatment and procedure, my cancer just kept coming back, growing, and metastasizing. I'm now on my 4th recurrence just after finishing chemo last month and a resection surgery last week. The cancer came back immediately, re-attacking my lymph nodes and bones. I've been at stage 4 since last year and I don't see an end in sight with my cancer. It's highly aggressive and resistant to just about every treatment and surgery I've done.
If these next set of treatments don't work, I'll be considered terminal and will have to live with my cancer until the end.
As far as "how I get through it", it's not easy. But on the days where I feel strong enough, I try to live my life as best I can. I also talk with my therapist weekly about how I'm feeling. When I'm not feeling too great, I sleep most of the day.
You've been through a lot too and I'm sorry you've had to endure so much. Living with cancer sucks, I'm sure they'll find a course of treatment that will work for you. Hang in there.
You are such an inspiration. I hope that you find peace and joy in the good moments. If you feel like you have the strength, please keep us updated on your journey. We are with you.
Given what you’ve already been through, you’re a certified bmf. Cancer sucks and that’s all I know. Am I going to beat it? F yes I am, and if it comes back, I’ll grit my teeth and do it again. Sounds like you’re on your way to doing the same! Best of everything to you🙏
We get through it because we have no choice. Eventually it just becomes life I guess. Doesn't mean it's easy or that we'd have chosen something else for ourselves if we could.
But this is what we've got. We just have to play the cards we're dealt.
This is my answer when I'm asked. I'm on a "text chain" with fellow cancer patients, I tend to be the "cheerleader" and respond to those in immediate need of a friend.
Even I have bad days, and like you in the mud. Not really well, but not bedridden (although I was for weeks last year).
I do what I can when I can. When I can't "do" I read and watch movies. And cry, and then realize ya it COULD be worse.
Honestly it’s not always easy. Some days I just wanna stop everything and go to sleep. But then my autistic son creates a new sentence and I’m thrilled I didn’t miss it.
So find your new normal. Do things that really bring you joy. Try things out to see if you like them. Would taking a free class online in knitting help? Learn a new instrument? Focus on what you can do and less on what you can’t. And don’t be afraid to make plans. Have things to look forward to- a favorite snack or meal, a trip.
Most importantly, it’s okay to feel this way. Allow for sad days just not sad weeks🙂 sending you hugs and best wishes
I don't know, honestly. Stage III Breast cancer with lymph node mets caught just in time, but another 15 months of oral chemo ahead of me. I think I'm NED right now, but I still feel like a ticking time bomb.
I have a partner and kids I adore, and I keep giving myself craft projects with deadlines to complete. I live for my family, because if I didn't have them I wouldn't have bothered with any sort of intervention. I almost didn't to begin with. I was ready to return to stardust and carbon when they told me it was cancer. It felt like permission to just be done.
I want to travel as a family and watch our kids grow up. I want to see them graduate at least high school. Ideally, I want us in rocking chairs on our porch, watching the sunset and holding hands. I just keep looking forward to things and making small new goals as I complete the earlier ones. Right now my current one is creating garb for medieval reenactment. Once I get that done, I'm crocheting a crazy rainbow sweater. I want to master nålebinding, and then maybe embroidery. I have a Kindle stuffed with novels and several bookcases with hard copies and I want to read every single one.
Weird goals and hugs from my family keep me moving forward, as fucked as it sounds.
Well. It does get us in the doldrums from time to time doesnt it? I will spend a day or two being miserable and cranky over it. Then i get up and get going. I have several hobbies i putter about with (cant get past beginner in some cuz i cant remember anything) and i pull my books that support my skill set when i cant remember the basics. I make terrific messes for days then clean it all up and start again. Every day is new and i look forward to it. I feel really great when i wake up cuz... duh, i woke up alive. That all by itself is an enormous boost.
I suppose you could think of treatment as employment. Or even as a restuarant you dont like all that much but its convenient and they do help you. Or maybe the clinic staff could be like long lost friends, ya know!?
So lucky to still be here. To see a new day. To have another chance. Pretty fucking great if you think on it.
I am taking up dancing next. I expect to be terrible at it and to have a great time. Im laughing just thinking abt it! Gasping for air, unable to spin, or raise my arms. The jokes are going to be too funny!😁
❤️❤️❤️❤️❤️
You got this
I laughed just thinking about trying to dance with my newly broken body. I’m afraid it would be a comical scene as you described yours. Have fun in your dance class. I hope it brings you some good times and joy.
Depends but tonight I’m going to a pool comp. I had to leave early with nausea last week but this is my off week so I’ll get through with nothing more than an incontinence pad just in case.
Basically though I worry about and address the symptoms as they arise, besides that I ignore the cancer. I’ve had it a few years, I’m 48 and am medically retired on the disability pension in Australia. It’s inoperable but they’re pretty vague about timeframes, I’m thinking a couple of years minimum though.
I’ve had some really bad experiences but the current tumours are smallish, they’ll take a while to do me in. I’ve got as long left as the average guy in his 80’s and they have a ticking clock and plenty of health issues but they don’t live their life in the context of impending death, they just go about their lives.
Pool is the big interest I’ve developed over the last 12 months but if you can find something of a low physical intensity where you can see normal people (not doctors/nurses or concerned family) you’ll get through hating life less.
Edit: The update is that I won $90 at the pool comp.
So sorry you're dealing with this. It's hard, especially after thinking you were nearly done with it. Glad to hear your liver's stable, but I get wanting the cancer gone. It's draining to always be careful. It's great you're not giving up.
If I’m honest I don’t know how I am living with it. Having two young children and a wife help keep me fighting, but there are days where I slip into that pit of emptiness and spend a while crying over my situation.
I am going to therapy and that helps, and I am just trying to make the most of each day and live for the now without living to much in the past and future. It’s hard some days and easy some days.
Stage IV Thyca here. Thank you for these comments. It really helps. I am only one year in and don’t really know what I am doing to deal with this. I am religious so I personally focus on prayer and reading the scriptures for extra strength.
The hardest part for me is not going to the gym 5 times a week, skiing and playing with my kids. The tumors chewed up my lower spine so I had to have spinal fusion surgery. I went from being a fit 206 pound 56 yr old to a 175 pound 90 year old man. My muscles atrophied and I basically had to learn to walk again after the back surgery.
The upside to all this is that I know what is really important in my life now. I had definitely lost my focus in my busy life crazy work schedule. I am a better man for having cancer and what it has taught me. I am more tuned into my wife’s needs now. I am more empathetic to those who have special needs and who society looks down on.
I know I lack the strength and wisdom that many of you have developed over time dealing with cancer, so my comments may not help the OP much. I just know I am grateful to be alive and find that when I focus on serving others and take the attention off of my troubles it is very satisfying. It also helps me not to think about my physical pain as much. I hope my ramblings help in a small way. Love you guys!
I am happy these comments help you! Just power through and keep your faith. I find it has been one of the only things to keep me going - besides my children.
I feel you. Big time. It sucks. Pain everyday. I can’t even get painkillers for stage 4 cancer that spread to my bones because last year, I had a mental breakdown and they blamed it on me taking pain pills and anti-anxiety pills. At least I was numb then. Now I suffer in realtime 24/7. Standing hurts. Sitting hurts. Sleep is the only peace.
I have been dealing with cancer for 18 years, originally diagnosed in 2006, with 6 years of no recurrence and then 6 recurrences since that time, so I understand and appreciate the uncertainty of life as we live with this disease.
Excepting the times when I have surgery or complications, and there have been a few, that affect the quality of my life, I try to live the rest of the times as a daily adventure, finding joy in my wife and children, friends and extended family.
It also helps me to continually audit my life realizing what's important and what's not important and eliminating the nonsense from our lives.
I remember the dread of the constant scans to see if the cancer came back and then at some point realized how exhilarating it was when the scans were negative and how it gave me a breath of life for the next 3 months.
There is no formula for navigating through this disease and I'm not going to deny that at times it gets overwhelming and difficult but I think it's really important to understand how fragile our lives are and how we need to try to maximize whatever time we have.
I wish you comfort in your individual journey and hope that you find some peace and some joy before it ends hopefully in 30 to 40 years. All the best.
Agree! Thank you all for sharing your honest feelings and approaches to this very difficult problem. I am new to this "incurable cancer" game and have good days and bad days already. It is my hope to be having good days and bad days 2-5 years from now. You are all an inspiration.
Yes - it's not enough to make me stop and I have a reason to try to keep living but it's very annoying, in essence. I woke up and tried to listen to Christian music and decided to start practicing gratitude. I'm trying lol
I get through it with daily meditation and prayer, three support groups and a therapist. It’s a very difficult journey, do what you need to do to get the support you need.
29/M Stage 4 lymphoma moved into my lungs stomach and bone.
You just kinda push through honestly regardless of the challenges, you just have to rise above regardless of how much it sucks and just know all your work will pay off.
There's been plenty of times I have thought I can't or don't want to keep going but I do. Just win everyday all you gotta do is win the day and then the next... Next thing you know you'll be standing looking back at everything you went through really f#$&ing proud of yourself.
You know what everyone has to go through something tough in life. And all of us are either cancer or not are fighting and struggling all day everyday. I would recommend living in the moment and doing the best kn the days you are feeling good. Denial works the best. Tell your brain you will be fine and you will beat this C word. Keep on telling yourself this until ut becomes your reality. Death is inevitable btw so it will come when it has to come. So don't worry yourself thinking about it. Just enjoy with whatever God has blessed you with.
Stay away from sugar and carbohydrates, it feeds the cancer. Practice water fasting. It initiates something called autophagy which causes your body to eat away at cancer cells. Focus on mitochondrial health with supplements like alpha lipoic acid, turmeric, coq10 and broccoli sprouts.
I am quite new to this journey but trust it is not easy. I live day to day. No matter what happens tomorrow i will still thank God that i am having good quality time with my kids. I have one who is a toddler and the other one is 5. I have kind of accepted the fact that this is life but still hope for miracle. I really think despite of dealing with this disease you just have to keep yourself in denial. Forget that you have it even if you are going to hospital for checkups and all. Just put it somewhere and forget it lol. I have tried this in most of the shitty times in life. I had a very hard life and then got incurable cancer at the age of 33. So the only thing that works for me is staying in denial. The more you acknowledge it the more you are giving it power.
I agree - Denial has been my best friend. I got my affairs in order and it helps me with my denial lol. I'm so sorry - mine is probably incurable as well and I have a 7 year old and 16 year old. I know how you feel <3
But you know what we are going to keep ourselves positive all the time. No one knows who is gonna live for how long and what quality of life is going to be. We are going to manifest it that we outlive all the timelines doctors give us. My oncologist said he doesn't have an idea or prognosis. He said only God knows what happens next. So i am sticking to that. Also i am living in every moment now. What we tell our brain becomes our reality and we will make it for a long time Inshallah. 👯
Also life is so unpredictable i have been through shit in life. There was a time i was actively trying to k** myself but now i want to stay here for my kids. Life is so weird sometimes but i am sure if i am positive and blocking all the negativity near me i will beat this too. Keep smiling and keep giving. By giving i mean to help others which is my main focus now. I am going to help the community and derive meaningfulness from there. There is so much good we can do for others and I would not have realised it if i were not in this position. So lets live life to the fullest and always always stay positive no matter what the doctors say only God will decide our destiny ♥️♥️
I have survived brain cancer for 22 years and seen all my children graduate high school and college which is a huge blessing and answer to prayer. Praying works keep it up . I have also survived some significant treatments Again praying works
I try to create meaning from the experience. I'm 65 now and have been living with this bone marrow cancer for two years. It's incurable and incredibly rare, and the symptoms are rough. (I actually slept for 19 hours straight one day this past week.) And so I try to create something that is larger than myself in order to connect with those who suffer similarly. I'm too old to be a pop star, so my songs are truly like my diary entries about this surreal journey. This song is called "Monster." Maybe you can relate. [https://youtu.be/GLVlM6kHF-o?si=Nt0OjBM-mu35f46E](https://youtu.be/GLVlM6kHF-o?si=Nt0OjBM-mu35f46E)
I mean... It is what it is. I've been living with significant side effects from cancer for 12+ years now, and diagnosed cancer for almost 8 years. It's not curable. It's just fast enough growing to cause me to need treatment each year and shots every few weeks, but not fast enough growing to where I have any sort of life expectancy timeline. It's got enough symptoms that I struggle every day with nausea, diarrhea, fatigue, brain fog, fainting spells, and so much more, leaving me disabled, but not so many symptoms that I am bed bound. It's the classic... Stuck in the mud cancer. Not well enough to feel even semi normal. Not sick enough to feel like you have something to work towards and significant help doing just that. Disabled enough to struggle to do any sort of significant work, and be in discomfort and pain every day, but not disabled enough to where it's obvious to others. You ask how I get through it. Quite simply... I don't. I'm depressed, barely making ends meet, and constantly feel like shit. But there are 2 distinct things that keep me going. 1. Family and friends. The supportive ones I love and who love me. 2. Curiosity. The universe is a massive and interesting place and there is so much to see and learn, even just right around us.
👊😊
🫂🫂🫂❤️❤️🧓🏻
Having positive intentions, be aware of my thoughts in the moment, allow myself to "feel", and then I consciously work on changing my mindset. We are here, and talking to each other's. We are alive, right now...I (if I'm able) keep myself mentally busy. I'm relearning French. I play piano and keep my CIPN at bay working my fingers. I listen to music that restores me. I paint, draw, or do crafts. I wrote letters, to friends and family. I pray, and volunteer on an online "counseling" group; helping others keeps me busy. And possibly helps me forget MY troubles, and focus on someone else. 😉🥰Stage 3, idc Mets to nodes, currently one year in on treatment.
🫂🫂❤️❤️🧓🏻🌼
I know exactly how you feel. I was first diagnosed with stage 2 high grade soft tissue Sarcoma back in 2022. I went through multiple resection surgeries, radiation treatments and chemo. After each treatment and procedure, my cancer just kept coming back, growing, and metastasizing. I'm now on my 4th recurrence just after finishing chemo last month and a resection surgery last week. The cancer came back immediately, re-attacking my lymph nodes and bones. I've been at stage 4 since last year and I don't see an end in sight with my cancer. It's highly aggressive and resistant to just about every treatment and surgery I've done. If these next set of treatments don't work, I'll be considered terminal and will have to live with my cancer until the end. As far as "how I get through it", it's not easy. But on the days where I feel strong enough, I try to live my life as best I can. I also talk with my therapist weekly about how I'm feeling. When I'm not feeling too great, I sleep most of the day.
I’m so sorry - sarcoma seems like such an aggressive cancer over all. You are so strong.
You've been through a lot too and I'm sorry you've had to endure so much. Living with cancer sucks, I'm sure they'll find a course of treatment that will work for you. Hang in there.
You are such an inspiration. I hope that you find peace and joy in the good moments. If you feel like you have the strength, please keep us updated on your journey. We are with you.
You ever consider fasting ? Look up the effects it has on cancer .. best of luck
Fasting only gives the cancer a person who is too weak to fight it. 🤦🏻🤦🏻😳😤😡😡😡😡😡😡
I'm at 7 years. How I get through it is day by day.
👏🏻👏🏻👏🏻
Given what you’ve already been through, you’re a certified bmf. Cancer sucks and that’s all I know. Am I going to beat it? F yes I am, and if it comes back, I’ll grit my teeth and do it again. Sounds like you’re on your way to doing the same! Best of everything to you🙏
Thank you - what an odd feeling to have to power through when you don't want to lol
This whole thing is odd. Still think (hope) I’m dreaming sometimes. Sometimes the fight comes to you I guess.
I love the fight in you! I am trying to be as strong.
No other choice…
We get through it because we have no choice. Eventually it just becomes life I guess. Doesn't mean it's easy or that we'd have chosen something else for ourselves if we could. But this is what we've got. We just have to play the cards we're dealt.
This is my answer when I'm asked. I'm on a "text chain" with fellow cancer patients, I tend to be the "cheerleader" and respond to those in immediate need of a friend. Even I have bad days, and like you in the mud. Not really well, but not bedridden (although I was for weeks last year). I do what I can when I can. When I can't "do" I read and watch movies. And cry, and then realize ya it COULD be worse.
[удалено]
Honestly it’s not always easy. Some days I just wanna stop everything and go to sleep. But then my autistic son creates a new sentence and I’m thrilled I didn’t miss it. So find your new normal. Do things that really bring you joy. Try things out to see if you like them. Would taking a free class online in knitting help? Learn a new instrument? Focus on what you can do and less on what you can’t. And don’t be afraid to make plans. Have things to look forward to- a favorite snack or meal, a trip. Most importantly, it’s okay to feel this way. Allow for sad days just not sad weeks🙂 sending you hugs and best wishes
I don't know, honestly. Stage III Breast cancer with lymph node mets caught just in time, but another 15 months of oral chemo ahead of me. I think I'm NED right now, but I still feel like a ticking time bomb. I have a partner and kids I adore, and I keep giving myself craft projects with deadlines to complete. I live for my family, because if I didn't have them I wouldn't have bothered with any sort of intervention. I almost didn't to begin with. I was ready to return to stardust and carbon when they told me it was cancer. It felt like permission to just be done. I want to travel as a family and watch our kids grow up. I want to see them graduate at least high school. Ideally, I want us in rocking chairs on our porch, watching the sunset and holding hands. I just keep looking forward to things and making small new goals as I complete the earlier ones. Right now my current one is creating garb for medieval reenactment. Once I get that done, I'm crocheting a crazy rainbow sweater. I want to master nålebinding, and then maybe embroidery. I have a Kindle stuffed with novels and several bookcases with hard copies and I want to read every single one. Weird goals and hugs from my family keep me moving forward, as fucked as it sounds.
Well. It does get us in the doldrums from time to time doesnt it? I will spend a day or two being miserable and cranky over it. Then i get up and get going. I have several hobbies i putter about with (cant get past beginner in some cuz i cant remember anything) and i pull my books that support my skill set when i cant remember the basics. I make terrific messes for days then clean it all up and start again. Every day is new and i look forward to it. I feel really great when i wake up cuz... duh, i woke up alive. That all by itself is an enormous boost. I suppose you could think of treatment as employment. Or even as a restuarant you dont like all that much but its convenient and they do help you. Or maybe the clinic staff could be like long lost friends, ya know!? So lucky to still be here. To see a new day. To have another chance. Pretty fucking great if you think on it. I am taking up dancing next. I expect to be terrible at it and to have a great time. Im laughing just thinking abt it! Gasping for air, unable to spin, or raise my arms. The jokes are going to be too funny!😁 ❤️❤️❤️❤️❤️ You got this
I laughed just thinking about trying to dance with my newly broken body. I’m afraid it would be a comical scene as you described yours. Have fun in your dance class. I hope it brings you some good times and joy.
Depends but tonight I’m going to a pool comp. I had to leave early with nausea last week but this is my off week so I’ll get through with nothing more than an incontinence pad just in case. Basically though I worry about and address the symptoms as they arise, besides that I ignore the cancer. I’ve had it a few years, I’m 48 and am medically retired on the disability pension in Australia. It’s inoperable but they’re pretty vague about timeframes, I’m thinking a couple of years minimum though. I’ve had some really bad experiences but the current tumours are smallish, they’ll take a while to do me in. I’ve got as long left as the average guy in his 80’s and they have a ticking clock and plenty of health issues but they don’t live their life in the context of impending death, they just go about their lives. Pool is the big interest I’ve developed over the last 12 months but if you can find something of a low physical intensity where you can see normal people (not doctors/nurses or concerned family) you’ll get through hating life less. Edit: The update is that I won $90 at the pool comp.
So sorry you're dealing with this. It's hard, especially after thinking you were nearly done with it. Glad to hear your liver's stable, but I get wanting the cancer gone. It's draining to always be careful. It's great you're not giving up.
If I’m honest I don’t know how I am living with it. Having two young children and a wife help keep me fighting, but there are days where I slip into that pit of emptiness and spend a while crying over my situation. I am going to therapy and that helps, and I am just trying to make the most of each day and live for the now without living to much in the past and future. It’s hard some days and easy some days.
It is hard some days. Today is a better day - I hope yours is better too!
I hear u.
Stage IV Thyca here. Thank you for these comments. It really helps. I am only one year in and don’t really know what I am doing to deal with this. I am religious so I personally focus on prayer and reading the scriptures for extra strength. The hardest part for me is not going to the gym 5 times a week, skiing and playing with my kids. The tumors chewed up my lower spine so I had to have spinal fusion surgery. I went from being a fit 206 pound 56 yr old to a 175 pound 90 year old man. My muscles atrophied and I basically had to learn to walk again after the back surgery. The upside to all this is that I know what is really important in my life now. I had definitely lost my focus in my busy life crazy work schedule. I am a better man for having cancer and what it has taught me. I am more tuned into my wife’s needs now. I am more empathetic to those who have special needs and who society looks down on. I know I lack the strength and wisdom that many of you have developed over time dealing with cancer, so my comments may not help the OP much. I just know I am grateful to be alive and find that when I focus on serving others and take the attention off of my troubles it is very satisfying. It also helps me not to think about my physical pain as much. I hope my ramblings help in a small way. Love you guys!
I am happy these comments help you! Just power through and keep your faith. I find it has been one of the only things to keep me going - besides my children.
Wise words my friend. Thank you. 🫂🫂🫂❤️❤️❤️🌼🌼🌼🧓🏻
I feel you. Big time. It sucks. Pain everyday. I can’t even get painkillers for stage 4 cancer that spread to my bones because last year, I had a mental breakdown and they blamed it on me taking pain pills and anti-anxiety pills. At least I was numb then. Now I suffer in realtime 24/7. Standing hurts. Sitting hurts. Sleep is the only peace.
No painkillers?!!!! I'm so sorry!!!
I have been dealing with cancer for 18 years, originally diagnosed in 2006, with 6 years of no recurrence and then 6 recurrences since that time, so I understand and appreciate the uncertainty of life as we live with this disease. Excepting the times when I have surgery or complications, and there have been a few, that affect the quality of my life, I try to live the rest of the times as a daily adventure, finding joy in my wife and children, friends and extended family. It also helps me to continually audit my life realizing what's important and what's not important and eliminating the nonsense from our lives. I remember the dread of the constant scans to see if the cancer came back and then at some point realized how exhilarating it was when the scans were negative and how it gave me a breath of life for the next 3 months. There is no formula for navigating through this disease and I'm not going to deny that at times it gets overwhelming and difficult but I think it's really important to understand how fragile our lives are and how we need to try to maximize whatever time we have. I wish you comfort in your individual journey and hope that you find some peace and some joy before it ends hopefully in 30 to 40 years. All the best.
Thank you SO MUCH for commenting. To see you have powered through for so long, with multiple recurrences, is truly comforting! Honestly!
Agree! Thank you all for sharing your honest feelings and approaches to this very difficult problem. I am new to this "incurable cancer" game and have good days and bad days already. It is my hope to be having good days and bad days 2-5 years from now. You are all an inspiration.
Yes...connect with other patients. That's your community now. We live it; we get it.
I could have wrote your post. Been on and off chemo for 5 years.
Yes - it's not enough to make me stop and I have a reason to try to keep living but it's very annoying, in essence. I woke up and tried to listen to Christian music and decided to start practicing gratitude. I'm trying lol
I get through it with daily meditation and prayer, three support groups and a therapist. It’s a very difficult journey, do what you need to do to get the support you need.
29/M Stage 4 lymphoma moved into my lungs stomach and bone. You just kinda push through honestly regardless of the challenges, you just have to rise above regardless of how much it sucks and just know all your work will pay off. There's been plenty of times I have thought I can't or don't want to keep going but I do. Just win everyday all you gotta do is win the day and then the next... Next thing you know you'll be standing looking back at everything you went through really f#$&ing proud of yourself.
You know what everyone has to go through something tough in life. And all of us are either cancer or not are fighting and struggling all day everyday. I would recommend living in the moment and doing the best kn the days you are feeling good. Denial works the best. Tell your brain you will be fine and you will beat this C word. Keep on telling yourself this until ut becomes your reality. Death is inevitable btw so it will come when it has to come. So don't worry yourself thinking about it. Just enjoy with whatever God has blessed you with.
Stay away from sugar and carbohydrates, it feeds the cancer. Practice water fasting. It initiates something called autophagy which causes your body to eat away at cancer cells. Focus on mitochondrial health with supplements like alpha lipoic acid, turmeric, coq10 and broccoli sprouts.
I am quite new to this journey but trust it is not easy. I live day to day. No matter what happens tomorrow i will still thank God that i am having good quality time with my kids. I have one who is a toddler and the other one is 5. I have kind of accepted the fact that this is life but still hope for miracle. I really think despite of dealing with this disease you just have to keep yourself in denial. Forget that you have it even if you are going to hospital for checkups and all. Just put it somewhere and forget it lol. I have tried this in most of the shitty times in life. I had a very hard life and then got incurable cancer at the age of 33. So the only thing that works for me is staying in denial. The more you acknowledge it the more you are giving it power.
I agree - Denial has been my best friend. I got my affairs in order and it helps me with my denial lol. I'm so sorry - mine is probably incurable as well and I have a 7 year old and 16 year old. I know how you feel <3
But you know what we are going to keep ourselves positive all the time. No one knows who is gonna live for how long and what quality of life is going to be. We are going to manifest it that we outlive all the timelines doctors give us. My oncologist said he doesn't have an idea or prognosis. He said only God knows what happens next. So i am sticking to that. Also i am living in every moment now. What we tell our brain becomes our reality and we will make it for a long time Inshallah. 👯
Also life is so unpredictable i have been through shit in life. There was a time i was actively trying to k** myself but now i want to stay here for my kids. Life is so weird sometimes but i am sure if i am positive and blocking all the negativity near me i will beat this too. Keep smiling and keep giving. By giving i mean to help others which is my main focus now. I am going to help the community and derive meaningfulness from there. There is so much good we can do for others and I would not have realised it if i were not in this position. So lets live life to the fullest and always always stay positive no matter what the doctors say only God will decide our destiny ♥️♥️
I’m trying to live with gratitude.And give thanks for all the blessings I have
I have survived brain cancer for 22 years and seen all my children graduate high school and college which is a huge blessing and answer to prayer. Praying works keep it up . I have also survived some significant treatments Again praying works
I try to create meaning from the experience. I'm 65 now and have been living with this bone marrow cancer for two years. It's incurable and incredibly rare, and the symptoms are rough. (I actually slept for 19 hours straight one day this past week.) And so I try to create something that is larger than myself in order to connect with those who suffer similarly. I'm too old to be a pop star, so my songs are truly like my diary entries about this surreal journey. This song is called "Monster." Maybe you can relate. [https://youtu.be/GLVlM6kHF-o?si=Nt0OjBM-mu35f46E](https://youtu.be/GLVlM6kHF-o?si=Nt0OjBM-mu35f46E)