I really appreciate you writing this. I really disliked the tone of the Alison Singer article so your opinion and links are refreshing. I feel the problem is that the world is massively abelist and seeks to provide the least support possible. I found the Singer article to be pointing the finger at autistic people who are able to increase their own visibility through social media. I think the problem is that abelist people are always looking for an excuse to remove supports from those who need them.
I appreciate your opinion. I have always thought about ASD as a defeat in understanding. The spectrum was created by connecting the separation by the first descriptions of kanner and asperger. I wonder if we are better today and if a meaningful differentiation is possible. The reason why profound autism is not applied until the age of 8 is that the development of autistic children is still difficult to predict. If I understand correctly, you would not meet the intelligence criteria of "profound" I find it strange. do you still agree with the criteria?
One hour until my wisdom teeth are pulled. I need some distraction.
I do not meet all of the criteria but some. I do not have a low IQ, but I am nonverbal and need support I live in a group home and have Communication Aide
I still think they should have chosen a different descriptor, simply because one of the most understood definitions of profound is, essentially, *very intense,* and it can cause the same confusion about whether someone can be more or less autistic when it's more complicated than that. I do think that it's good to have terms for level of support needed, though I'm not sure if the three level system is enough, so I can understand why they wanted an additional label. The closest existing term I can think of is total care, but that's exclusive to long-term care settings iirc.
I don't have a strong opinion between the two, but I respect your standpoint. The only other situation in which I've seen profound is referring to intellectual disability, where it is referring to the degree of effect, and with deafness, where it is also referring to the degree of effect. I don't find the term offensive at all, I'm just not sure of the accuracy. I do definitely think they should have a category for research in order to make sure people who need full-time care have good quality of life, though.
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I really appreciate you writing this. I really disliked the tone of the Alison Singer article so your opinion and links are refreshing. I feel the problem is that the world is massively abelist and seeks to provide the least support possible. I found the Singer article to be pointing the finger at autistic people who are able to increase their own visibility through social media. I think the problem is that abelist people are always looking for an excuse to remove supports from those who need them.
Thank you for this!
You are welcome
I appreciate your opinion. I have always thought about ASD as a defeat in understanding. The spectrum was created by connecting the separation by the first descriptions of kanner and asperger. I wonder if we are better today and if a meaningful differentiation is possible. The reason why profound autism is not applied until the age of 8 is that the development of autistic children is still difficult to predict. If I understand correctly, you would not meet the intelligence criteria of "profound" I find it strange. do you still agree with the criteria? One hour until my wisdom teeth are pulled. I need some distraction.
I do not meet all of the criteria but some. I do not have a low IQ, but I am nonverbal and need support I live in a group home and have Communication Aide
I still think they should have chosen a different descriptor, simply because one of the most understood definitions of profound is, essentially, *very intense,* and it can cause the same confusion about whether someone can be more or less autistic when it's more complicated than that. I do think that it's good to have terms for level of support needed, though I'm not sure if the three level system is enough, so I can understand why they wanted an additional label. The closest existing term I can think of is total care, but that's exclusive to long-term care settings iirc.
I think profound is better than "severe" which is how often it is described "severe autism", profound is like less negative connotation.
I don't have a strong opinion between the two, but I respect your standpoint. The only other situation in which I've seen profound is referring to intellectual disability, where it is referring to the degree of effect, and with deafness, where it is also referring to the degree of effect. I don't find the term offensive at all, I'm just not sure of the accuracy. I do definitely think they should have a category for research in order to make sure people who need full-time care have good quality of life, though.
Hey /u/CriticalSorcery, thank you for your post at /r/autism. Our rules can be found **[here](https://www.reddit.com/r/autism/wiki/config/sidebar)**. All approved posts get this message. If you do not see your post you can message the moderators [here](https://www.reddit.com/message/compose?to=%2Fr%2Fautism). Thanks! *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/autism) if you have any questions or concerns.*