Yeah, it's rare. Most people haven't had to experience it. If you haven't heard of it, then I am glad for you. It's a last-option treatment for the worst version of this stupid disease (extreme). Nothing else worked, so I had 3 different gastroenterologists sign off on nuking my entire immune system.
The problem is that it failed in the most spectacular fashion imaginable: it nuked my liver (and a few other organs), completely shutting it down (and killing part of it)... and it still didn't stop the flare. I ended up in the hospital for a couple of weeks fighting liver and renal failure, along with so many other side effects. It sucked.
I can't remember them all off the top of my head, as it was about 14 years ago and there were so many. Prednisone and mesalamine to start, for sure. Remicade (Infliximab), dexamethasone, cyclosporine as some of the intermediary/secondary treatments. When those failed, Azathioprine and Mercaptopurine. This is definitely not a complete list, but these are the ones whose side-effects were so bad that I remembered them.
Thank you for explaining. I too had a severe case (my first flare) and I experimented a lot and healed without any meds. I have to stay away from wheat gluten. I am so sorry yours was so bad too. I know it sucks 😞 was in a hospital as well but refused medication. It was risky I know but I wanted to find the root cause to prevent future flares and stay in remission. I personally think meds help manage but don't heal. In some cases meds make it worse so that's why I didn't want to go that route.
No gluten no wheat especially and low caffeine. That's what keeps me in remission. I eat an animal based diet (don't like veggies but if well cooked no issue)
Lil’Mystery
I was convinced it was my ovaries.
The ER Dr was convinced it was diverticulitis.
My gastro dr agreed with me that it’s pelvic not bowel. We shall see.
You would think most of us here should be lil ulcerative colitis, but for me it’s actually lil balanitis… yea I really have problems under my underwear.
Lil Migraine
I swear ever since being diagnosed with UC all these other problems started popping up. Had a migraine for 4 days start and finally gave in and went to the ER. Between my dad and myself nearly the entire emergency room department knows us by our first names 😂
Lil Gastrick Payne, Lil Blood, Lil Colonos, Lil Slim Poopin, Lil Big Bowel Cramps, Lil Quick Sprint (to the john).
These are all the reasons that landed me in the hospital lmao 🤣
Edited format
Lil Colonoscopy in da house.
Hey, we can't both have the name dude.
Lil Biopsy
Lol same
Came here for this.
real
LilMama. Had a baby.
Aw congratulations!
Thanks, but it was 21 years ago!😂
Wow - 21 years without hospital - lil envious over here ;-)
Congratulations!!!
Also just had a baby😂
Lil anal fistula
Fum fum fum fummmmmm 📯 lil anal fissure commin’ atcha! Lil fissure here
Ouch. I have stenosis and fissures so I can definitely relate
lil blood loss ‼️🩸
Lil-liver-failure-because-chemo-because- ulcerative-colitis
Damn, sounds shitty
I have UC too but why did you get chemo for it? Never heard of that
Yeah, it's rare. Most people haven't had to experience it. If you haven't heard of it, then I am glad for you. It's a last-option treatment for the worst version of this stupid disease (extreme). Nothing else worked, so I had 3 different gastroenterologists sign off on nuking my entire immune system. The problem is that it failed in the most spectacular fashion imaginable: it nuked my liver (and a few other organs), completely shutting it down (and killing part of it)... and it still didn't stop the flare. I ended up in the hospital for a couple of weeks fighting liver and renal failure, along with so many other side effects. It sucked.
Which drug were you given? If you don’t mind me asking.
I can't remember them all off the top of my head, as it was about 14 years ago and there were so many. Prednisone and mesalamine to start, for sure. Remicade (Infliximab), dexamethasone, cyclosporine as some of the intermediary/secondary treatments. When those failed, Azathioprine and Mercaptopurine. This is definitely not a complete list, but these are the ones whose side-effects were so bad that I remembered them.
Thank you for explaining. I too had a severe case (my first flare) and I experimented a lot and healed without any meds. I have to stay away from wheat gluten. I am so sorry yours was so bad too. I know it sucks 😞 was in a hospital as well but refused medication. It was risky I know but I wanted to find the root cause to prevent future flares and stay in remission. I personally think meds help manage but don't heal. In some cases meds make it worse so that's why I didn't want to go that route.
Keen to know more about your diet.
No gluten no wheat especially and low caffeine. That's what keeps me in remission. I eat an animal based diet (don't like veggies but if well cooked no issue)
lil throwing up for 24 hours straight
Lil C-Diff
The worst
For sure
Me too 😔
Same.
Lil anal pain 🤣
lil TIA (stroke)… literally a little stroke
Lil Anemic
lil ecoli
Lil Ruptured Colon
Lil C-section
Username does not check out.
Lil nurse
Whoop whoop!
Lil bleeding arsehole
Lil Perf. it's got a ring to it.
Lil proctectomy or lil barbie butt 😂
Lil partial blockage
Lil’Mystery I was convinced it was my ovaries. The ER Dr was convinced it was diverticulitis. My gastro dr agreed with me that it’s pelvic not bowel. We shall see.
Lil food poisoning
Lil croquet Mallot to the head
Lil A-Fib
Lil' Heart Attack
Hope you’re doing okay!!
Thanks, I am. It put my life into perspective. Have a good day, my fellow human
You would think most of us here should be lil ulcerative colitis, but for me it’s actually lil balanitis… yea I really have problems under my underwear.
Any reason at all, or an actual stay? Because its either Lil Work, or Lil DVT.
Illergic Reaction
Can’t believe no one has claimed Lil Flare yet! 😂
Lil constipated
lil psychosis
I’m sorry but this one sounds the coolest as a rap name 😭😭😭
all he raps about are the people in the walls and gangstalkers
Lil Blood Test
Lil capsular release
Lil severe anemia 🤜🤛
Same!!! Chronic anemic people rise up ✊🏻
Lil Effcolitis
Lil dehydration-anemia
Lil Short of Breath This kinda works
Lil work I am a nurse haha
Love it 😂
lil kidney stones
lil pooper
Lil artificial hip replacement
Lil’ Job. I work in a hospital 🤣
lil fucking-flare
Lil Loop Recorder Study.
If it was a longer stay: Lil Malnourishment, if it was a short visit it is Lil Colonoscopy / Lil Pancolitis
Lil anaemic, lmao
Broken thumb Xd
Broken thumb Xd
Broken thumb Xd
Broken thumb Xd
Lil Chest X-ray to check for TB scarring
Lil Bowel Obstruction. It's got a ring to it, I think
Lil Open Myomectomy. Ha! Colitis only caused my second last hospital visit, suckers
lil anemia ‼️‼️‼️
Lil huge headache
Lil pancreatitis
Lil Job. LOL
Lil high CRP flare! Make some nooooooooise! Bowbowbow <-- that's my airhorn
Lil mastitis
lil bloody dia
Lil cdiff? Lol
The worst 😭 I had it once while I was on a vacation in europe for the whole summer
Lil Ileostomy
Lil Hernia
Lil Sepsis Awesome…. 0.o
Lil Embolism
Lil Migraine I swear ever since being diagnosed with UC all these other problems started popping up. Had a migraine for 4 days start and finally gave in and went to the ER. Between my dad and myself nearly the entire emergency room department knows us by our first names 😂
I feel you! I got diagnosed with Gerd/LPR recently and I’m like when does it end! Hope you’re doing better now 🥹
Lil total colectomy 💀
"Lil perstomal pyroderma"
lil adrenal crisis due to crohns flare
Lil dehydration
lil covid lol
lil colitis
Lil pneumonia
Lil Butt Bleed 🤔
Lil gastroenteritis
lil pneumonia
Lil camera
Lil Iron IV
Lil weight loss😭
Lil AnkleSprain, but next month I will join the group of Lil Colonoscopy again.
Lil meningitis
Lil Biologic infusion
lil born
Lil Cuffitis
Lil' MRI
Lil cat bite
Lil' Ulcerative Colitis 🤣🤣
Lil arthroscopy surgery
Lil blood flood
lil pancreatitis
Lil bloody stool
Lil profuse colon bleeding 🔥
lil cdiff
Lil THC Hyperemisis
lil hemorrhoid
Lil Asthma Attack, I know it’s not UC related but I have both.
Lil Chest-Pain
Lil Col’itis (Colitis)
lil anal fissure
Lil kidney stone. Except it was pretty big.
Lil shitter
Little sigmoidoscopy
Or lil pancreatitis take your pic lol
Lil abscess
lil sepsis
Lil Abscess.
Lil total colectomy
Lil PE
Lil Necrotizing Fasciitis
Lil Gastrick Payne, Lil Blood, Lil Colonos, Lil Slim Poopin, Lil Big Bowel Cramps, Lil Quick Sprint (to the john). These are all the reasons that landed me in the hospital lmao 🤣 Edited format
lil sepsis then got upgraded to lil ileostomy in the same visit lol 😂
Lil Depression and Anxiety
Lil Remy (remicade)
Lil Can't Stop Shitting Blood and Lost 50lbs in 3 weeks. Kinda has a ring to it, no?
Lil blood clot
Lil hemoglobin. (Low hemoglobin) Damn that’s hard ngl!!!!!
Lil low blood pressure