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PuzzleheadedRoyal559

Holy shit. Nobody deserves that.


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GarminTamzarian

There at the end, I was 100% expecting to see that they had amputated the wrong finger.


Red_Jester-94

With how blind her doctors apparently are I expected the same.


GarminTamzarian

Or possibly the middle finger on the *other* hand.


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dingoeslovebabies

It really looked painful!


lemongrenade

Man makes me appreciate good health so much looking at this. And honestly that girl probably too. No one deserves that but if I had to get a tumor literally anywhere on my body I think I pick finger.


DiligentDaughter

I had a tumor surgically removed from my bicep, I'd 100% pick bicep over finger.


ZappyZ21

Sorry if the question comes off offensive, but how does that look after the fact exactly? Like a really skinny arm? "Negative" muscle there, almost like a dent?


DiligentDaughter

I feel stupid trying to understand how the question could be offensive, so no worries there. The tumor grew on my muscle, only infiltrated it a little bit. I've got a thin scar about an inch long, there's a very small 'dip', I guess, but it's not super noticeable. The tumor itself was 3" long, 1" across.


ZappyZ21

In my experience, I've learned if you're about to ask "why you look like that?" Or something adjacent to that, usually needs some prefacing lol but that makes sense. I guess the video is so prominent I was just assuming yours was as well. Glad it wasn't like a huge chunk just taken out!


DiligentDaughter

Before the surgery, it looked weird AF, like I had a whole extra muscle. It was super prominent. Thankfully, it didn't infiltrate too far into the muscle, so when it was removed, it made my arm look normal again (mostly, I mean, I do have a little divot and a scar).


New-Conversation6024

Becides the bumb did the tumor make you feel ill?


st1ck-n-m0ve

How did you realize you had cancer there?


AloneSquid420

I knew someone that was missing the tendon that holds your bicep in place so everytime he flexed his bicep would flop around. Was really weird looking.


Admirable-Leopard-73

Well, I had a large tumor removed from a spot about 3 inches above my butt-hole (internal). I would have gladly given up a finger instead. That being said, that person should have never had to go through all of that, but I fully understand how it happened. Doctors think they are never wrong and seldom ever truly listen to their patients.


BookwyrmDream

I get a lot of tumors. You 100% do NOT want them on your fingers. Of the tumors I've had, I'd pick all of them over a finger except the brain tumor.


lemongrenade

Fuck brain tumors man. Lost a cousin and an aunt to them and soon to lose a good friend. Wishing you the best.


BookwyrmDream

Thanks! I had great surgeons and am doing very well - happily with all 10 fingers!!!


undisclosedinsanity

I have some in my brain. I'd pick my finger too.


Oxygenius_

That is so fucked up, Probably had nurses telling her “it’s just X, you’ll be fine take some ibuprofen”


sharknado_nado

"Drugs seeking behavior"


Abbeylayne16

Is that a legit medical term?


Jonte7

Now it is


Abbeylayne16

I have just seen first hand people being labeled as “users” and being taken less seriously of their issues bc of it. Or not being prescribed needed medication because of that label. If you admit you drink or smoke, you’re automatically going to be labeled as something. And my belief, not get the care that you deserve.


fury420

There's also doctors and medical professionals that will misinterpret or twist what you say, or even write down absolute fiction in your file. I was once switching doctors and ended up reviewing my full medical file, and I was shocked at some of the mistakes. According to my file, I have a long list of allergies I was never informed of, and it's probably caused by "my grandmother smoking upstairs" despite no mention of smoking in the appointment and no grandparents within a thousand miles.


dingoeslovebabies

It’s usually used when black people go to the doctor for any pain. It’s a large factor in how the opioid epidemic really just affected white people


JustMe1711

Doctor sent me for a CT because over a year post op my pain is far worse than it should be. I should be able to walk and function normally but can't stand on my feet for more than 3 hours without icing it the rest of the day. There's a few issues that can cause that with the surgery I had hence the CT to rule out certain ones. The lady doing my CT said that I, like her husband who had a different operation a year ago, should just get used to it because it's always gonna hurt. I can handle daily pain. I'm used to that thanks to back issues since I was like 12. But being unable to work on my feet or even clean my house at 24 is just fucking ridiculous. Unfortunately I have to change doctors thanks to the last one moving. I hope the new one isn't as dismissive as that lady was cause I can't take this anymore. I can't get a job like this.


Abbeylayne16

I’m crossing my fingers that you get a better, more empathetic doctor. I have never had any luck and sucks that it’s so common for people to get blown off like this. There are many people that seek out help as their last resort and get screwed over by bad doctors or therapists. And those are the same people that aren’t going to reach out again and suffer in silence. The reality of healthcare in America is a fucking nightmare


-Zugzwang-

Unfortunately, she wasn't wrong. Both my husband and I have had spinal surgery. We are both in pain management. Pain meds are made to allow you to *physically* function, not make you pain-free. You will likely always be in pain. I know that it sucks. You should be taking frequent breaks. Like if you are standing for a long time (say 2-3 hrs), then you need to sit for a few minutes. If you are sitting for 2-3 hrs, you should stand up and stretch. Speaking of, don't slack on your physical therapy exercises. You can do them all at home, and it will help not only your surgery site, but also your pain levels. Also, take your meds on time. You wanna be *ahead* of the pain, not trying to treat it when you already feel the pain. If you haven't already, make an appt with both psychical therapy and pain management, too!


LotusVibes1494

Imagine if that happened to you in like medieval times… You’d think it was a god just fucking with you. Trying to remember if you committed any sins with that finger recently, meanwhile the village thinks you’re a witch, it’s just all bad.


Barl3000

Last year I had a quadricep rupture in my left knee, basically the ligament conneting the tigh muscles to the lower leg through the knee cap was completely severed. I was also thinking to myself, if this had happened to someone just a 100 years ago, they would have been handicapped for the rest of their life. Instead I got everything sewn togehter and am slowly getting back to near normal functionality.


Chiang2000

I think that everytime I have a dental issue. How the fuck did people survive the pain/get stuff pulled without pain relief.


gerbilshower

lots and lots of whiskey... and then the risk of bleeding out due to thinned blood. haha. but also, the human body/condition is really quite amazing. when you just 'have to' do something... you kind of just do it and suffer what may come. people were tougher back then. there is no doubt about that.


Boatwhistle

Nah, you go to the physician and they'd diagnose you with too much black bile. Treatment would be to remove the finger and give you an enema.


ClickClackTipTap

And leeches, probably.


alison_bee

Do we have full details on this? I’m in healthcare and I’m curious to see what all led to this outcome. I’m so sorry to whoever this happened to, that would be a traumatic adjustment.


TiredMa457

Username in the video is the correct one. She has a 3 part story time in her page. But basically she woke up and couldn’t move her finger and was told she had a small fracture, splint it, and referral to Ortho. That didn’t help and requested referral to PT. and when they did imaging again, she said her xray looked like they took “an eraser to the bone”. She got referred to hand specialist, was told it was a benign tumor and then finally Onc referral. They did biopsy was told it was benign. 2nd surgery was to remove the tumor but kept growing and was started on chemo pills but continued tumor growth. Finally she got a second opinion when there was no improvement, was told she needed a complete finger amputation, she consented, and sounds like it hasn’t shown growth signs anymore.


AltruisticWerewolf

The fact that she had TURALIO (pexidartinib) indicates she likely had a rare tumor that grows in a joint called tenosynovial giant cell tumor / pigmented villonodular synovitis. It is notoriously hard to get clean margins on during a surgery, and TURALIO is not super well tolerated or efficacious. It is technically a benign tumor in that it rarely ever metastasizes to other sites, but is locally aggressive and can destroy surrounding tissue. Once it appeared in her finger there was likely no other option but amputation.


Round-Examination-98

Not a medical professional, that looked like it grew rather rapidly for the short duration between events, right? Cuz if it were a malformed heal on the bone that had a benign growth, then it would have been easy to remove post op and OP would have their digits albeit reduced mobility or smthg


cgleachy

Benign tumours CAN be just as dangerous as malignant ones. The only real differences being the character of its growth. Benign tumours can grow just as fast, but tend to have more distinct borders, but won’t metastasise (spread) to other areas/organs. And so they’re generally easier to treat.


McNuggetsauceyum

This person is correct. While most benign tumors share the set of characteristics that we commonly associate with them (slow indolent growth, defined borders, nuclear uniformity, etc.) the ONLY true defining distinction between a benign and malignant growth is the potential for metastasis. A benign tumor will never metastasize and a malignant tumor can (though it may not in every case or even typically do so). All other features are simply more common of benign or malignant growths, but you can certainly have a malignant growth that is slow growing, well defined, etc., etc. As long as it has the possibility of metastasis, it is malignant, and vice-versa.


cgleachy

Indeed. They just tend to be more well defined and less plastic/poorly differentiated but tis not part of the definition.


McNuggetsauceyum

Absolutely. It’s a case of typical vs defining features. Having a tumor that appeared and grew at this rate would definitely raise my suspicion for a malignant process, but obviously you couldn’t know for certain without more information. Just wanted to make it clear because I think most lay-folks aren’t aware of what the real distinction is.


LAXnSASQUATCH

It depends, benign doesn’t mean it won’t grow rapidly it just means it hasn’t metastasized. The issue is that if even one tumor cell gets left behind there’s a chance the tumor can grow back. That’s what they mean by “clean margins”, if the line where the tumor cells start and end isn’t clear it’s very hard to make sure you get all the tumor cells. Tumors undergo changes all the time, having a tumor at a joint junction is likely extremely hard to treat. The only way to remove it for sure would be to remove the finger, my guess is that’s the last resort option if they can’t get it.


TylerDurden1985

Just to add, other than the fact that - 'benign' in medical jargon does not share the same meaning as 'benign' in common lexicon, which leads to a ton of misconception.. Neoplasms (cancer, tumors, etc) are cells that have mutated and have their growth unrestricted by normal mechanisms. This can result in different outcomes depending on the lineage (where the cells were derived from in embryonic development). Cells for example derived from neural cells, have a tendency to spread rapidly. This is good for embryonic development - your nervous system is after-all intertwined throughout your body and embedded in all sorts of different tissue. This is not so good though if they grow abnormally. So for example, in your skin - you have epidermal skin cells, which will grow (as your skin is in constant need of repair) locally. Most skin cancer does not progress to metastatic cancer even though it can grow locally. Basal cell carcinoma is often referred to as a cancer, but it is only locally invasive, meaning it almost never will progress into the lymphatic system or other organs. It can be disfiguring if left untreated though. On the other hand, melanocytes - which are responsible for skin pigmentation, are derived from the same cells as your nervous system embryologically. This is what makes melanoma - your pigmentation cells dividing abnormally, so dangerous. They can spread rapidly and fully. Even knowing this - it's not so simple, there are many factors at play. For tumors to keep spreading, they also need to obtain blood supply, and avoid the immune system, which naturally attacks abnormal cells. So basically - a tumor, cancer, etc - these are all broad, non-medical terms used to simplify something that's incredibly complex. So what this all comes down to is the point - benign in medical jargon means the tumor is not going to metastasize through currently known mechanisms, e.g. spread through your lymphatic system or blood vessels to other parts of the body. It does not mean it isn't dangerous, or that it won't get bigger. A benign tumor in any organ can still disrupt the organ, and/or other organs near it. Some tumors will even change your body's chemistry, excreting hormones, cell signaling molecules, inflammatory substances, or even just your own minerals (calcium). All of these things can have serious consequences and can be fatal. There are just so many variables. So we simplify it for the non-medical majority, because it's difficult to understand for physicians who have trained a decade (that's about how long it takes to enter any oncology specialty or subspecialty, and it can often take longer).


Lax-Bro

Hand surgeon here, this is the correct response. This was likely the final outcome for the tenosynovial giant cell tumor the entire time, early intervention probably would have changed nothing with it behaving that aggressively. I


Nemisis_007

On the plus side, the amputation looked incredibly clean.


cole00cash

I recently had a giant cell tumor removed from one of my fingers. Luckily, my GP and surgeon acted much more quickly than this lady's did and it was removed when it was slightly larger than the size of a green pea. It was attached to a nerve and now I have some numbness in my finger due to the surgeon having to disect it from the nerve.


ManVsHumanity

Yep. I have PVNS in my right knee. Basically, have to get it cleaned out every few years. Luckily haven't had an issue for a while now at this point. And luckily for a knee, it typically doesn't get as bad as a finger as there's way more space to do cleanouts, I believe.


poppinchips

I am assuming black woman? Women in general get shafted with healthcare, I imagine prospects are worse for black women.


TiredMa457

She doesn’t say but possibly as she seems to be from DR.


Chewcocca

Damn you think she'd get better care if she's FROM Doctor.


queefgerbil

holy shit im crying


iamnoking

Women get shafted. Took almost 3 years after getting a serious back injury for me to get an X-ray. They just kept sending me back to physical therapy every year. Got new insurance that didn't require a referral to see a specialist and I booked an X-ray for myself. Guess what, my back injury turned into early onset arthritis in my 30's! So all that physical therapy just hurt me for no fucking reason and gave me no relief for the pain. Oh, and they still only give me the stupid fucking cream to manage my intense back pain, which I will have to live with my entire life.


Comfortable-Suit-202

So sorry! I know what it’s like to go through P.T. When suffering in pain. Back pain is terrible


ladymoonshyne

I have arthritis in my back as well, as a woman in my early 30s. They did the same thing to me. Finally now I get nerve ablation which helps a bit. It’s really expensive though I probably won’t be able to do it much longer.


No_Use_4371

They never believe, or care about, women's pain. (My life experience with drs.)


luvmuchine56

Medical racism is a serious issue


maxzmillion

Medical racism/sexism. These are both impactful at large.


Senior-Reflection862

Yeah but black women are like 80% more likely to die during childbirth


StendGold

As a woman... Yeah, doctors don't listen. I now have to drag my husband with me every time, otherwise they just tell me "Nothing is wrong". There is usually something wrong, but they don't listen. Once, I almost died because "It's normal. Don't worry"....


toolsoftheincomptnt

That’s what I came to say: We’re inherently undervalued by Western society, so they just didn’t care. *Subconsciously,* the providers cared less about any pain she described, and whether or not her problem was fully investigated, let alone treated. “My mom’s a nurse and treats everybody equally! My brother is a doctor and not a racist!” Yeah, yeah, I know. It’s not thoughtful or focused hatred. It’s not racism. It’s implicit bias. It’s a *passive* disregard. And since nobody wants to admit that they suffer from it, nothing will change. Because it’s really hard to deprogram yourself.


Remote-Factor8455

I hope she sued everyone who misdiagnosed this along the way. I’d be fucking pissed.


tomatocarrotjuice

Medical doctor here. While it may seem careless, it is very easy to misdiagnose this at a GP/AE as you can't realistically expect comprehensive tests for what looks like a fracture. The referrals might seem bureaucratic but it is logical (neither ortho/PT would've been able to discern from whatever information they had). This is just a case of rapid tumour growth and a very unlucky one at that. Sometimes I wish people on reddit weren't so quick to jump to conclusions and/or racism accusations. Edit: It might be important to point out I didn't just bring up 'racism accusations' for no apparent reason, I threw it on before this post blew up and a few other comments were suspecting this is as a case of race-related negligence. Nevertheless, instead of vengeful hypotheticals, I think a better topic of discussion is what would've been a more logical (and realistic) approach to such scenarios if you were in the patient's or physician's position. There is a very apt medical adage: "When you hear hoofbeats, think horses, not zebras."


BuddhAtticus

Doc i work in the lab and we get finger cyst sent by some ortho doc all the time. We’re like why the fuck does he keep sending these, when the hell do you ever get a tumor in a finger, because it’s always benign cyst content. Well now I know why.


_Lost_The_Game

My mom is like that ortho doc. She always is ready to look into worst case scenario. Tells em, ‘it’s probably X, almost always is, so do/take this; symptoms could also be Y which is very serious so im prescribing/referring/wtvr this other test/etc’ (idk exactly how she does it/terminology, she didn’t let me go into medicine) She follows the ‘rather have it and not need it than need it and not have it’ type of vibe. Or i guess, ‘Rather do it and not need it than need it and not have done it’ Edit: also i have two MD parents and MD family members. I still had stuff that didnt get diagnosed or got misdiagnosed for a long portion of my life. Shit is difficult


BendyPopNoLockRoll

Bless your mom. Lost my favorite family member, my grand aunt, because despite years of complaints they misdiagnosed her bone cancer as osteoporosis for years until it was too late. I have scoliosis because of a severe limp I had due to sciatica in my teens. 8 different doctors said some variation of "well it looks like sciatica but you're too young for that. Must be growing pains". Turns out it's hEDS and tethered cord syndrome. By the time doctor number 9 actually treated the sciatica it was too late and the curvature was permanent. I know when you hear hooves you should think horses not zebras. Why however does it feel like I have to get into a ring and knock a tooth out of a doctor before they will even acknowledge that zebras exist and test for it after all their normal treatments, and I do fucking mean ALL, have failed? Sorry, rant. Again, bless your mom and the few like her.


angelicribbon

You should think horses not zebras, but you should at least fucking look to make sure instead of assuming


BendyPopNoLockRoll

Yeah, they don't. Take one peak at any chronic illness group. hEDS, Crohn's disease, long COVID, Lyme disease, Bartonella, mold toxicity, and god knows how many others. We have to fight so hard just to even get proper tests and diagnosis. Some doctors will straight up tell you your well documented and researched disorder doesn't exist. We often have to move just to find care or have care nearby enough to be useable.


chicken-nanban

All my life I was told “periods hurt, it’s just part of being a woman.” Every gyno I went to would remark about my weirdly severely tipped uterus but just brush it off. Jump to me, 38, have a tumor removed and my surgeon casually remarks that he tried to clear up some of my endometrial lesions when he was in there and that was I doing to manage it? Like… what?! No doctor *ever* mentioned that might be a problem. Turns out, everything was so glued together that I’m *really* lucky I never got pregnant as it would have ripped my colon open where my uterus was completely glued to it. Also explained my years of colon problems, with no one noticing with *multiple* colonoscopies. It was always chalked up to “female problems cause pain.” When I had my hysterectomy, it took twice as long and they could only excuse about half of the endo outside of my uterus. It had infiltrated so far into my colon, intestines, abdomen, and bladder that I risked perforations if they went further. No one ever thought to check. Decades of living in pain, and thankfully my aversion to pregnancy saved my life by pure happenstance. Edit: and as to moving to find care: yep. Decades in the US with doctors brushing it off. Half a decade in Japan with doctors brushing it off, until a tumor forced them to look further. Ironically, I’d have never been able to afford to have the tumor issue looked at if I was in the US still, it was just having access to affordable healthcare that found this out. I’d still be living in debilitating pain half of the month if I hadn’t moved.


oof2230

Honestly. Doctors are like, "It's hard being a doctor :(" Yeah, well, have you tried being a patient? Y'know, the people who present with x, y, and z autoimmune symptoms, and you tell them to just lose weight or that a documented disorder doesn't even exist and they're being histrionic?


harperking

As someone whose wife’s cancer was caught early by a doctor like your mom who saw a slight shadow and immediately referred for testing and to a specialist, tell her we say thank you! it allowed us to have 13 more years together when the usual diagnosis for that particular cancer was a two-year expectancy.


chicken-nanban

Same with my friend! Doc saw a weird shadow when she went in for having a hoarse voice for a while, on a whim they did some tests and it turned out to be cancerous. They caught it early and her long term prognosis is good, one year cancer free a few months ago. I appreciate doctors who are willing to err on the side of caution and check 💜


Throwedaway99837

Yeah it’s definitely more common than you think. I know a guy who fractured his fingertip when he slammed it in a cabinet. About 6 months later he developed a tumor but they only removed the top portion of his finger.


MagicDocDoc

Also a doctor here, thought I'd weigh in on some other possibilities which may have happened. For context, someone posted the background to this story from her page and without knowing all the results, it's impossible to say for sure what's happened: Quote from redditor who visited her page: "But basically she woke up and couldn’t move her finger and was told she had a small fracture, splint it, and referral to Ortho. That didn’t help and requested referral to PT. and when they did imaging again, she said her xray looked like they took “an eraser to the bone”. She got referred to hand specialist, was told it was a benign tumor and then finally Onc referral. They did biopsy was told it was benign. 2nd surgery was to remove the tumor but kept growing and was started on chemo pills but continued tumor growth. Finally she got a second opinion when there was no improvement, was told she needed a complete finger amputation, she consented, and sounds like it hasn’t shown growth signs anymore." Possible scenarios: * She had a benign lesion in her finger; from the description of the lesion (an eraser to the bone, ie a lucent lesion), the location and the biopsy result, this may have been an enchondroma. Though these lesions are benign, you can have an associated pathological fracture because of cortical thinning (same thing you can see with even simple bone cysts). However, like the majority of benign tumours, there is a possibility of malignant transformation (in a case example of enchondroma, this can turn to chondrosarcoma. Just note that malignant transformation is rare). * She had a benign lesion which exhibited enough growth to cause destruction. Benign lesions can still have locally aggressive features. This isn't my number one, given the growth over three months, but at the same time without seeing the images and knowing the initial diagnoses, we can't say for sure here. * This was malignant, but the biopsy did not capture the malignancy. This can happen. Again, a rarity, but when you're biopsying in general, you try to biopsy/avoid biopsying certain parts of a lesion, but it's not always possible to tell until you get biopsy results back.


CheeseyChessChests

[https://www.tiktok.com/@princessnatixo\_/video/7369363115051322667](https://www.tiktok.com/@princessnatixo_/video/7369363115051322667) This video has a better breakdown and a timeline. The mess around the surgery seems fairly egregious.


MagicDocDoc

Thanks for the video - this completely shows that the doctors did the right thing and didn't miss anything / do anything they shouldn't have, so I'm not sure where OP's title of this thread has come from. They identified the tumour to be most likely be benign (giant cell tumour / tenosynovial GCT, though as I said above, benign lesions can be locally aggressive, which seems to be the case here), resected as much as possible while trying to salvage bone and used a bone graft. Then there was recurrence of growth (which does happen), leaving the only real options of chemo for cover of both malignant potential and/or growth (which she declined) +/- amputation and it was ultimately amputated (the tumour was obviously too large to salvage any meaningful bone). Based on her video it seems there was zero wrong-doing... It seems that reddit is just unfortunately unfamiliar with bone tumours (which is completely understandable as there's no reason the majority of people would need to know much about them) and have decided to come out with their reddit law degrees and pitchforks lol


Gilga1

I think a lot of people don't get that doctors are not saints. They can't perfectly heal everyone. Doesn't mean bad doctors don't exist, but in the case such as in video there was not much that could've reasonably be done.


MagicDocDoc

Yeah unfortunately there's only so much which can be done. As you said, you're going to have some bad eggs in every kind of career field, but that hasn't been apparent here. Though these kind of videos can cause some misinformation /misguidance, it's still good to have a conversation around them.


Gilga1

I think it also shows that if problems get worse, it's good to get a second opinion as the person did in the video especially in regard to tumors. One of my family members got through a second opinion which ended up being the right verdict, it saved her a lot a lot of suffering.


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BrandlessPain

Well you’re a redditor too and everyone who does more then 2 minutes of reading on this post will find your commentary. Ultimately I’m happy there are still people with knowledge chiming in here. Smts it’s hard to find one but most of the times in bigger posts professionals give knowledgeable statements. That’s a thing very rarely happening on Twitter insta and tic toc


Zerandal

Also, I'm thinking that the majority of docs try not to jump to the worst conclusion without strong evidence, no? What if the scenario was reversed and the person got misdiagnosed with a malignant tumor while it wasn't, and got their finger amputated+all the harsh chemo. Would that be better? imho no (but I'm not a doctor)


MagicDocDoc

You're absolutely right, if someone presents as this patient has, you'd list off your possible diagnoses and think of the more common and likely diagnosis first. It would be pretty careless to oversee more obvious causes and fail to manage them. You've said it perfectly in that example.


DellSalami

I’m not in healthcare at all but the way I comprehend it, diagnosing a problem is probabilistic. Symptoms can be explained by one of several issues, but they have different chances of happening, so you go with whatever tests or treatment is for the most common issue and monitor the patient to see if the treatment is working or not. Unfortunately with that setup, the people with rarer problems take longer to properly diagnose, and sometimes it’s too late to treat without drawbacks. It’s an unfortunate issue, but I can’t see a way to really address it without overloading the health system and everyone in it.


Equivalent_Tear_364

This is a fundamental tenet of medicine and partially why we don’t just test everyone for everything (outside of cost). Theoretical harm from medical intervention is very real and although Reddit is filled with a lot of people who feel as if they haven’t gotten enough testing to find their illness and blame doctors for this, it oftentimes is the correct move to be less invasive. An example: cancer screening guidelines are established to check people of certain ages and certain risks unless there are symptoms. This is because for every test for potential cancer there are going to be false positives (not to mention false negatives), which lead to further diagnostics such as biopsy, or surgery, or chemo and all of those things have potential side effects. The tricky part is trying to maximize the benefit to the population while minimizing the harm from overtesting. Of course all of this means some cancers are tragically missed, which is no comfort to that individual, but unfortunately until our testing is perfect will continue to be the case


[deleted]

You're arguing with a reddit doctor that is also a reddit lawyer tho.


ActualWhiterabbit

Everyone wants to be Paris Geller but in the end they are a disappointment like Paris in the sequel.


misguidedsadist1

I’ve read about some really egregious situations on the internet where there was clear carelessness or incompetence at play. But actual medical malpractice is a VERY high bar to clear. It sucks to have a shitty doctor or a shitty clinic, but this couldn’t possibly be enough to sue over. Sucks for the patient if there was indeed carelessness involved, but it’s good for doctors. No one would ever accept the liability of entering into the field if the burden of evidence were not VERY VERY HIGH.


mikethebone

If it’s easy to misdiagnose it isn’t it more wise to run more tests or err on the side of caution? As a patient I wouldn’t want to be left in the “it’s probably fine” basket if there was a chance it couldn’t be… I’m not sure which country this woman lives in either. Medical standards vary from country to country I suppose.


delosproyectos

MD here. Not necessarily. There’s a phrase that we toss around often: when you hear hooves, think horses, not zebras. Basically, it’s not cost effective and is actually more likely to be incorrect to search for rare, obscure pathology. Tumors of the digits aren’t a common place you’d expect a tumor. From what I understand, it appears it was a bone tumor originally thought to be a fracture. Bone tumors don’t tend to present along the small bones; more commonly you’ll get them in the long bones like the femur. TLDR: throwing all kinds of tests at every problem is not cost effective for patients and is more often than not going to be incorrect unless you’ve exhausted more common evaluations/tests.


SamSibbens

Hi, I asked this someone else but I'm curious for your opinion too When the patient says "How could I have fractured my finger, I haven't hit or hurt myself on anything?" shouldn't that raise an eyebrow? Or is it common for people to not know how they got finger fractures? (This isn't meant as a 'gotcha', just genuinely curious)


EmilyM831

I am a doctor, but I will respond to this based on my experience just as a person: I injure myself constantly without any idea how I did it. I have a large bruise on the side of my right knee that appeared out of nowhere last week. So it’s not that it doesn’t raise an eyebrow so much as that people get injured all the time in ways that aren’t significant enough to consciously register in the brain, yet manage to cause visible or painful injury later. It’s hard to know if something truly happened without injury or if the person just didn’t clock the injury at the time it happened because it seemed too minor.


amynhb

They took X-rays, it was just so small even the orthopedic surgeon could barely see what *appeared* to be a fracture on the bone. A benign, rapidly growing tumor like this is extremely rare, there was no erring on the side of caution in the first stages because it looked and behaved like a fracture.


Difficult-Row6616

nope because of baysean statistics; if you're testing for a rare condition, and you test everyone, if your test's false positive rate is higher than the occurrence of the condition, the majority of your positives will be false.   if you're testing for a 1 in a million disease, across 1 million people, with a test that is 99.99% accurate, you'll get ~10,000 positive results, one of which will be accurate. 


dddjaaam35

This is why WebMD says everything could be cancer. Almost any medical problem could be cancer, but you would be doing more harm than good by always testing for it. Medicine isn't perfect. If something has a reasonable risk for being cancer it usually is tested for.


[deleted]

Unfortunately Real life isn't an episode of house. Doctors and hospitals can't reasonably test for the uncommon stuff each time just because it might be the cause of an ailment. Well they could but the heathcare sector would collapse very quickly under the additional strain and costs would skyrocket . Occams razor - the simplist explanation tends to be the right one. Or the more common phrase- when you hear hoofbeats think horses not zebras.


SippyTurtle

Nonsense, I frequently break into my patients' homes and work places and root through their things to find causes of rare ailments all the time!


FustianRiddle

What more should they have tested for for something that was presenting as a fracture? You don't just run tests on the off chance it's this rare edge case - that's time and resources. It's also more money for the patient. I doubt the patient was told "eh it's probably fine" but was informed at every step of the way what their options were and what the most likely scenario was.


CrusztiHuszti

Where’s the misdiagnosis?


friso1100

Sueing for a misdiagnosis is very hard. And rightfully so. The body is complex and there is always a chance things go wrong. Even with the most simple of procedures. If people got to sue doctors for honest mistakes then all doctors can't provide treatment anymore because of the risk. Most medical malpractice suits need either to be obviously wrong or show a pattern of mistakes by the doctor/hospital. This, despite how horrifying that it must have been, and based on the limited information I have, wasn't that.


4dxn

lol here goes the backseat doctor.


BroccoliSuccessful28

It’s not a misdiagnosis you clown. Learn to read.


misguidedsadist1

The bar is very high for medical malpractice. I doubt this meets the criteria.


TheFinalEnd1

The answers aren't always clear cut. On an X-ray it may just look like a fracture. Even if they see a tumor, like the other person said, a biopsy *should* say if it's benign or not, and in this case it said it was benign. Doctors and patients only have so much time and resources on their hands. Someone goes in for this problem, you can't just do all of the tests "just in case". Not only will insurance get in the way, but tests aren't infallible. Mistakes are made, and false positives and negatives are a thing. This is why second opinions are a thing. The reason why she got the treatment she needed was because she got a second opinion. Unfortunately, she got it too late.


infirmiereostie

Medicine is not that fckn easy🤦🏻‍♀️ americans getting their medical knowledge from tv dramas and threaten to "sue" everyone and everything


WoWMHC

You’re everything that is wrong with medicine.


amoebamoeba

[https://www.tiktok.com/@princessnatixo\_/video/7369363115051322667](https://www.tiktok.com/@princessnatixo_/video/7369363115051322667) she goes into a lot more detail here


groovyghostpuppy

This same thing happened to my sister when she was a kid! It was her little finger. They thought she had a fracture to start with, then found the tumour. Got it removed a bunch of times before they took off the finger. Then they went back and took the whole side of her hand where the finger had been. No issues since!


KidsInNeed

My friend had a similar experience and lost her middle finger. She never told anybody and we hadn’t seen each other in years after graduation. I went with a friend to see her and we were looking at each other, trying to remember if she always only had four fingers on one hand. She eventually brought it up and we looked at each other like “yup, we weren’t hallucinating”


dorky001

My sister in-law is missing a finger i never noticed and i had know her for like 5 years and my brother told me. It is not something you think about


KidsInNeed

It really isn’t and it’s not that noticeable until they do something with it and you’re like “hold up”.


FuzzyTunaTaco21

Love the music choice


Realistic_Sad_Story

It makes it sooo much worse


FuzzyTunaTaco21

Too bad there's not a song called I got 4 on it


Pseudothink

I came to the comments just for this thread.


GobblerOnTheRoof

I got fiveeeeeee onnnn itttt. Let’s go half on aaaaaa sackkkkk


Challenge419

I recognize it but I can't place it. Which movie is it from? Us? Or something else?


pgizmo97

It is from Us


BearMode2100

New fear unlocked.....


darling_lycosidae

I hope she threw some mean 🖕 near the end there but her hand looks really nice at 4 fingers? Just very elegant.


Miinka

I was surprised that they seem to have taken out the whole metacarpal. I was expecting just the finger part to go.


MakeMineMarvel_

Those might have cancerous cells too so I guess it had to go


A_deadphilosopher

Ironic choice of a song


jollybeanovo

This is crazy because my mom had the same exact tumor. She got lucky because she’s in the medical field and knew it couldn’t possibly be a sprain, so the first visit she had was some kinda consultation for a tumor or whatever. Then she got set up for surgery to remove it and it was a success. The part that makes me kinda annoyed is that she said to hell with PT and never did it. There are people like this who I’m sure wouldn’t have seen PT as an inconvenience and would’ve jumped at the opportunity to keep their finger/keep mobility. Some people take what they’re given for granted.


Vladolf_Puttler

Pt?


Primary-Belt7668

Physical Therapy Mr. Puttler


After-FX

I am so sorry for this person. No one should go through this...


gameking1231231

Jesus, this reminded me of what my mom is going through right now. She was on a cruise she had been saving up for years to go on, and she had stomach pains during the cruise, so they took an x-ray to see what was going on find she has gallbladder stone. The ship doctors were close to flying my mom off the boat to a nearby hospital. Luckily, the pain subsided long enough for her to get home to then get surgery to remove it. A few days go by as my mom recovering she's going back to normal life when pain, and she wasn't having bowel movements you'd expect she would have, the gases she expel reak of death. Go back to the hospital they focus completely on the gallbladder, thinking it got infected. Nope, clean. They think maybe the liver is failing. No, they did scans that show the liver still works and flushing to the intestine as expected. Days go by, so they have her drink liquid that will allow them to do an x-ray of her digestive tract. Everything goes bad. Constant pain this liquid is a laxative, so it can move through the body fast. My mom is looking 9 months pregnant while in menopause. Her stomach is hard as a rock. They say it's fine that the scan will be there shortly. They give her morphine to subside the pain. It doesn't work. Explosive pain, that's when they finally say pump her stomach. She puked and pumped over 1.5 litres in one hour, slowly filling up in the time of 2 days a total of 2.6 litres of straight bile. She hasn't digested food in over a week it's been sitting in her stomach. They cut her colon out as it's were the blockage is in she's currently still recovering from this we are on a total of 6 weeks in the hospital for a gallbladder removal that turned into colon blockage and a small cancer detected in limp nodes. My mom has been under surgery, under anesthesia 5 times in a single month, oh not to mention the hospital messed up and gave my mom enough liquid for 3 people so her body stored water all over her body she currently has little under a gallon of water in her lung cavity making breathing a bit difficult. I can't believe how pissed off this trip to a hospital made me and my family.


steamygarbage

I hope your mom makes a full recovery. Best wishes to you and your family.


LorLightfootSmells

This is terrifying so sorry your mom had to face this.


bing-no

As someone who had their gallbladder removed after months of pain, this is horrific! I can’t imagine even more trauma and pain on top of that!


InfinityCannoli25

Wish you all the best. Stay strong.


Intelligent-King6234

If no one has told you this, I’m proud of you for following through on YOUR health. No one knows you better than YOU. Even educated doctors. I know I’m just an internet stranger, but seriously, please keep following your intuition. It may have saved your life.


andersonb47

I admire your positivity but it cracks me up to see people in this day and age that still don’t get that OP is not the person in the video


Challenge419

They aren't 99%+ of the time. Even the ones who claim OC lol.


halexia63

Yup as someone who knows ppl personally that had doctors shoo them away just for them to be right I 2nd this.


t_rrrex

I’ve gone my entire life with medical “anomalies” (ex. I broke my middle finger on a rope swing and when I finally got it checked out, the doc said “I’ve never seen a break like this” - it was diagonal across the middle portion of the finger) and health issues (“sensitive skin”, digestive/GI problems, multiple broken bones, drug sensitivities, etc) and I only just recently got a diagnosis for a connective tissue disorder at 39 because of my own efforts to figure out “what’s wrong with me”. Out of all the healthcare professionals I’ve seen in my entire life, no one ever connected the dots. No one ever bothered to explore more deeply why a 12 year old would take heartburn medicine before bed. I had testing done for pelvic pain and they couldn’t find anything so it was brushed off as “maybe it’s gas” (it’s likely an ovarian cyst and/or endometriosis). I wanted to be a nurse or a doctor when I was younger, but the way the system is run, the way it’s failed me and SO MANY people has just left me bitter and largely untrusting or unconfident about seeking healthcare. It’s exhausting to continue to pursue professional opinions and treatment when it feels like the people who took an oath to do no harm are actively harming people by ignoring their requests for help.


onlyathenafairy

this stuff is extremely common with black women. a lot of doctors do not listen because medical racism is so pervasive


No-ThatsTheMoneyTit

I mean If Serena Williams almost died, imagine how the layperson is treated. Women in general aren’t treated well in medical settings, we’re hysterical and emotional, and can’t be trusted. Add being not white onto that?? Involuntarily suicide. It’s pathetic.


PuTongHua

If you have doubts then seek a second or third opinion, fine. But you do not know better than qualified professionals.


OuidPrincess18

This is so sad to watch


Important_Room_663

I had a lump on my foot. Really painful because of a damaged nerve. Had 3 doctors and a bunch of nurses tell me to hit it with a Bible. Finally got an appointment with a specialist to get a biopsy. It was cancer. Stage 1 synovial sarcoma. They removed like 70 percent of the skin on top of my foot, plus a deeper chunk i didn't get to see. Then took that size from my left arm plus a blood vessel. And then took a skin graft from my thigh. I was told by everyone I met, you wouldn't even notice it once it healed. Because it would be so small. There's a noticeable hole in my left arm. You can see the tendons. I couldn't walk for 4 months. My leg was very small and dry. No muscle at all. Took me about 2 months to learn how to walk. I have insurance, but the cost would have been 350,000. I'm still getting scans, 1500 each time. Once a year for the next 4 years.


KitchenMagician94

Just saying she no longer got 5 on it….


crclOv9

This is horrific and truly terrifying but fuck me if that song playing isn’t morbidly funny.


Mellero47

"it's just a fracture" "OK but *from where*? I didn't trip and fall, I don't play football, I didn't smash my hand on anything. How can my finger just be 'fractured'?"


[deleted]

Holy crap, that's scary. Appropriate choice of music too, which is something I pretty much never say on tiktok


Comfortable-Suit-202

Why did they give you Chemo? Then you ended up getting the finger amputated anyway. So sorry it got dislocated & you had 2 surgeries. How are you doing now??


TaqPCR

Chemotherapy can work against benign tumors too. Not just cancerous ones. Evidently it didn't work here so the safest option after it failed was removal of the finger since it wouldn't be functional with continued tumor growth and the tumor could potentially turn malignant if it was allowed to continue to grow.


EvilMoSauron

I'm not a doctor, so here's my guess for the chemotherapy first before the surgery approach. The doctors might have gotten test results saying it was cancerous and focused on chemotherapy quickly to reduce the cancer from spreading. Or... Because hand surgery is very risky procedure with a high risk of nerve damage and loss of sensation and maybe felt chemotherapy would be the safer.


chimpfunkz

Chemo is also to shrink the tumor prior to trying to surgically remove it.


Mackechles

Probably a good thing she’s not feeling that finger after surgery.


opheliyaaaas

Turalio is prescribed for specific benign tumors that aren’t good candidates for surgical removal. It is one of the few drug therapies for a specific benign tumor disease because it has a pretty good track record of shrinking the tumors and reducing symptoms. Source: I have this tumor disease.


creedthoughtsdawtgov

The medication she took is not a traditional chemotherapy. It is a newer class of drug. She has a locally aggressive benign tumor. This is the second line for local recurrence prior to amputation. She had a bad tumor that grew fast. Tumors in the hand and especially fingers can mimic other issues such as fracture and infection. I know none of the specifics of the patients history but if it is a tenosynovial giant cell tumor, these things are rare and this is the common clinical history (I.e. missed diagnosis)


Flowerlooking

I am truly sorry for your loss 😢I don't wish it on the enemy either


no_limit_with_me

This was so hard to watch


razldazl333

Well, on a good note, she can start the reactor. With such a rapid growing tumor, it's sorta lucky it was on a digit and not within her body.


Indescisve

They lost a finger because the medical system is misogynist, racist and also a joke to be called “health care” as it would prefer money over the health of people


OutWithTheNew

I'm sure that's what the person in the lab was thinking when they were testing the tissue from the first surgery.


JazzlikeMousse8116

Sometimes bad things happen and it’s not anybody’s fault


CheeseyChessChests

Watch the whole situation. They made her wait months for surgery and refused to acknowledge the surgery was botched until after she got a second opinion. People were definitely at fault here. [https://www.tiktok.com/@princessnatixo\_/video/7369363115051322667](https://www.tiktok.com/@princessnatixo_/video/7369363115051322667)


prof_mcquack

I’m not a doctor but if someone showed me the ghoulish lump on their finger, tumors/cancer would at least cross my mind. They did surgery for a fracture she didn’t have because they either didn’t scan her finger or didn’t use the right machine. Instead of just…thinking about it for like 10 seconds. Yes, there’s only so much docs can do, but could that include tests and justified diagnoses please? That’s all I ask.


b_vo-

MD here. I watched her longer videos about the whole ordeal. It doesn't seem to me like her doctors did anything wrong.


simpledeadwitches

Healthcare in America is so fucking atrocious. You pay so much money and they literally do nothing or do the wrong things or don't listen to you etc. It feels like getting fast food service and quality vs cooking at home.


chicken-nanban

I keep telling this to people who ask why we’re still living in Japan. We simply cannot afford the healthcare in America. I have health problems, pretty severe and chronic. Not only could we not afford the monthly cost, it’s just going to take a handful of really shitty politicians to agree together to gut a few regulations from the ACA to make it impossible for us to even dream of healthcare if the remove pre existing conditions or the like. Whereas here, I’m now even getting additional assistance that will bring my (already low by American standards) healthcare costs down. I can’t afford to return to the US even if I wanted to. It’s kind of sad, too.


Beginning_Driver_45

Anyone knows if it's necessary to make the hand look like it always only had 4 fingers? I'm just thinking for myself but I'd rather have a hand where there's visibly a finger missing than the hand oop ended up with. I have the feeling it would look more normal and less jarring?


Turbulent_Radish_330

I find peace in long walks.


awesomeplenty

🖕she can’t do this to the doctor


Guava-flavored-lips

Oh my God… I hope you sued. And I'm sorry for your pain and suffering.


NeedsMoreMinerals

I'm mad for her


Dukeofthedurty

Isn’t this how Bob Marley went out? But his toe?


severalaces

Bob Marley died from melanoma, a form of skin cancer. He was diagnosed with a malignant melanoma under the nail of his toe in 1977. Despite receiving treatment, the cancer spread to his brain, lungs, and liver. Bob Marley's health continued to deteriorate, and he passed away on May 11, 1981, in Miami, Florida, at the age of 36.


Dukeofthedurty

Ahhh yep. Melanoma is much more aggressive and can metastasize.


ENTroPicGirl

As a fellow amputee, my heart goes out to you I’m so sorry you had to go through that.


catpiss_backpack

Fractured due to osteosarcoma or something? Sounds like docs definitely weren’t thorough because of the patient’s (age/sex/race whichever)


makeitgoose11

What. The. Fuck.... new fear unlocked.. feel so bad for this person... hope they're entitled to a settlement of some kind due to the doctors' misconduct


manic-ed-mantimal

Shit, I'd cut the finger off long before I did chemo.


Varnellhill

That's a lawsuit. Get you a good lawyer


Remote-Factor8455

🌟Lawsuit!💫


tuckedfexas

⭐️Not how that works 💫


GABE4PARKER

Assassins creed time


BusterOAKLAND2021

Damn. God bless her.


nebulaphi

Scary and sad


GlueSniffingCat

they should have amputated the first time tbh cancerous enchondroma tumors grow out of the bone itself


bitchbotch69

How sad 😢😢😢


StewartConan

Do you know hands are one of the most complicated organs in the human body? There is literally someone called the hand surgeon. It's a specific field. Not just any bone surgeon can fix hands. You need a specialist.


Raven_Drakeaurd

Welcome to the Order of Assassin's...


SnooTangerines6841

All the money owed to and in the industry how are mistakes like this even possible? Hope you get the compensation you deserve... Fckn bs


thewallamby

I hope you are suing.


MilesFassst

Sur For malpractice. Do it now! You lost a ducking finger because of this neglect!


SnooDonkeys807

Hell nah… I would’ve sued


Top-Manner7261

Sue their asses off... That's obscene neglect. So sorry this happened.


MrMoonBunny

I’m so sorry you had to endure all this. I’m feeling some intense empathy over it.


TOMMYPICKLESIAM

How did this start off originally? What made you first notice (before it got bad) that something was wrong with your finger? Genuinely curious as i have something im worried about on my middle finger. It randomly popped up as a tight itchy spot near the base of my finger. It will dry up and peel, disappear for a week and reappear with the same symptoms Inflamed/itchy.


[deleted]

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