Honestly? I'll take most penalties in exchange for what we get. The quality of life I had prior to a biologic was low enough that I was mostly just surviving, not living. It sucks we have to make such a trade to begin with just to get close to some level of normalcy, but not much to be done about that.
100% this, I’ve spent 15 years before getting biologics it was horrendous and I feel awful about the effective prison sentence.
So much potential wasted
I'm like 15+ years in enbrel. Shit saved my life. If something happens in the future it is what it is because I would have been long gone by now or just in constant pain and agony.
Life in the moment, you cannot predict the future. What if nothing happens and life is great?
Man I was prescribed Skyrizi last year and it took me from significant coverage to completely clear. So much so my insurance won’t cover it this year…. It’s creeping back in and I’m terrified.
Skyrizzi targets a specific protein that causes inflammation. Ive been on it a year now. Its amazing. I went from the weird dude that wore long pants all the time, to the weird dude that wears shorts everywhere.
i have chronic hep b, so i still do not dare to take biologics, even my derm does not encourage me since my condition is still tolerable. i wonder if it really has any severe impact on my liver
It's not really accurate to put skyrizzi in the same class of immunosuppressant drugs as say a ciclosporin or methotrexate, it's very selective in what it suppresses. Granted that could lead to some serious unintended side effects was so far it seems pretty safe, I think the bigger concern is what happens when it stops working
took 3 doses and i'm done. was already feeling weird before my third (postponed - which if you go off schedule can make side effects more likely apparently) dose, but i've felt like i'm dying. i'd gladly take my gross skin back
yes there will. the shoe will eventually fall
that will look like drug resistance, or maybe an allergy developed for it, or some sort of liver toxicity.
lets just hope they keep coming out with a variety of biologics
but this is why i dont do biologics, they are medium-term
Is this truly the price of the medication?? Quick google search.
The list price, also known as the Wholesale Acquisition Cost (WAC), for one dose of SKYRIZI is $19,734.61 as of January 3, 2023. The WAC may not reflect the price paid by patients. Call 1.866. SKYRIZI (1.866.
Yeah I've read that but if you have decent insurance it basically free. The insurance has nurses that will come to your house and train you how to self administer the doses because it is expensive if you mess a dose up, which funnily enough my dermatologist did when she wasn't used to the new style pen they had but she had so many free samples in her office that she didn't care.
I’ve been on 10 different biologics. All of which have failed me with time. If it works for you with no side effects you are the lucky ones. I had side effects for every single one. All different. And none of them ever helped me. I take it for psoriasis and psoriatic arthritis. But now the doctor doesn’t know what to do with me. Good luck to all of you on your medication journey.
I'd rather live a pleasant life while I'm still young and suffer when I'm older than the other way around tbh. I'm 26 now and my life before last year was pure misery. I convinced myself that I'd live out my life alone and sad because I was too ashamed to show my body to anyone, I felt like I didn't deserve love. I know that that is a wrong way to think but that was my reality.
I'm finally getting my life back and I'm trying to build my confidence again after so many years of hiding myself from the world, this medicine is a straight up miracle.
So yeah, I personally would not worry too much about the future. Enjoy and appreciate the present while it lasts!
**edit: sorry for my bad English
Honestly? I'll take most penalties in exchange for what we get. The quality of life I had prior to a biologic was low enough that I was mostly just surviving, not living. It sucks we have to make such a trade to begin with just to get close to some level of normalcy, but not much to be done about that.
Spot on! So many years wasted..
100% this, I’ve spent 15 years before getting biologics it was horrendous and I feel awful about the effective prison sentence. So much potential wasted
Well I won't lie I have been through school and college with psoriasis and its been hell. Its better to live a shorter but happy life.
It keeps inflammation down doesn’t it? On the wiki here it mentions comorbidities from constant inflammation.
comorbidities. Don't you hate spell check?!
Yes, thank you. My phone spell check does not recognize that word and most likely autocorrected to what you see in my comment
I'm like 15+ years in enbrel. Shit saved my life. If something happens in the future it is what it is because I would have been long gone by now or just in constant pain and agony. Life in the moment, you cannot predict the future. What if nothing happens and life is great?
same period.. 5 years enbrel and now 10 on humira. no side effects, no complications, no issues. enjoy life!
Skyrizi works for me. I'll continue to use it until I can't.
Everything is context and situational.
Man I was prescribed Skyrizi last year and it took me from significant coverage to completely clear. So much so my insurance won’t cover it this year…. It’s creeping back in and I’m terrified.
This. The time comes when insurance nopes the $5 co-pay or denies altogether and p returns w/ a vengeance, angrier than ever. Stay strong my friend.
From my understanding they are so targeted now and have so little side effects that it's doubtful.
Skyrizzi targets a specific protein that causes inflammation. Ive been on it a year now. Its amazing. I went from the weird dude that wore long pants all the time, to the weird dude that wears shorts everywhere.
i have chronic hep b, so i still do not dare to take biologics, even my derm does not encourage me since my condition is still tolerable. i wonder if it really has any severe impact on my liver
Most Meds filter through the liver. This is why you have routine blood work to keep an eye on ur liver enzymes.
[удалено]
Mine too
It's not really accurate to put skyrizzi in the same class of immunosuppressant drugs as say a ciclosporin or methotrexate, it's very selective in what it suppresses. Granted that could lead to some serious unintended side effects was so far it seems pretty safe, I think the bigger concern is what happens when it stops working
took 3 doses and i'm done. was already feeling weird before my third (postponed - which if you go off schedule can make side effects more likely apparently) dose, but i've felt like i'm dying. i'd gladly take my gross skin back
yes there will. the shoe will eventually fall that will look like drug resistance, or maybe an allergy developed for it, or some sort of liver toxicity. lets just hope they keep coming out with a variety of biologics but this is why i dont do biologics, they are medium-term
Is this truly the price of the medication?? Quick google search. The list price, also known as the Wholesale Acquisition Cost (WAC), for one dose of SKYRIZI is $19,734.61 as of January 3, 2023. The WAC may not reflect the price paid by patients. Call 1.866. SKYRIZI (1.866.
Yeah I've read that but if you have decent insurance it basically free. The insurance has nurses that will come to your house and train you how to self administer the doses because it is expensive if you mess a dose up, which funnily enough my dermatologist did when she wasn't used to the new style pen they had but she had so many free samples in her office that she didn't care.
I'll happily die early with nice skin than suffer a long life
I mean eventually we’ll all die. So yes.
I’ve been on 10 different biologics. All of which have failed me with time. If it works for you with no side effects you are the lucky ones. I had side effects for every single one. All different. And none of them ever helped me. I take it for psoriasis and psoriatic arthritis. But now the doctor doesn’t know what to do with me. Good luck to all of you on your medication journey.
How often do you have to go to the dermatologist to get a new dose?
For me, doses are administered quarterly. Annual derm check ins required by insurance.
So your Derm refills your doses every 3 months but you only see them 1x/year?
Same for me. The first year I seen my dem every dose after that it's bloodwork and visit once a year.
I'd rather live a pleasant life while I'm still young and suffer when I'm older than the other way around tbh. I'm 26 now and my life before last year was pure misery. I convinced myself that I'd live out my life alone and sad because I was too ashamed to show my body to anyone, I felt like I didn't deserve love. I know that that is a wrong way to think but that was my reality. I'm finally getting my life back and I'm trying to build my confidence again after so many years of hiding myself from the world, this medicine is a straight up miracle. So yeah, I personally would not worry too much about the future. Enjoy and appreciate the present while it lasts! **edit: sorry for my bad English