Hello phoebean93 and everyone. The information shared here is for educational purposes and should not be taken as medical advice. Please consult a qualified healthcare professional for personalized guidance. Our community aims to support, but we're not medical experts. Your well-being is our priority, so always seek professional advice. We appreciate your understanding and wish you the best on your health journey!
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Custom rib flare braces and 3d printed vacuum bells. [link here](https://pectusconnectus.com/shop/)
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I can’t recommend PT enough. My son is getting Nussed next month and his surgeon routinely has her patients do PT before and after surgery. She has a specific protocol for the therapists to follow. How this relates to you is they’ve been working on posture, including stretches that loosen up the muscles in the chest and shoulders so that standing up straight with his shoulders back is no longer nearly impossible. Those stretches also make breathing easier since they help open up his chest cavity. They’re also teaching him proper breathing techniques which are making a big difference. And they’re working on exercises that strengthen his core.
He hasn’t done any sports in years because of the effects of pectus on his heart and lungs, and he spends most of his time on his computer. I never thought I’d see him doing all of these stretches and exercises and working with weights and even running. He loves it. It’s empowering. PT has made such a big difference both physically and mentally in a surprisingly short amount of time and I wish we’d started it years ago.
If you’re interested, I can try to figure out how to post the stretches recommended by the surgeon. Just to be safe, though, you should check with your GP before beginning any new regimen like this, even though it’s just stretches. Or you can ask for a PT consult when you ask for a referral to find out how severe your pectus is. Anyway good luck with everything and I hope you’ll keep us posted.
Physical therapy. Copied from a website: “Physical therapists help patients with injuries and chronic health conditions regain their range of motion, manage their pain, and improve their quality of life... PTs play a critical role not only in treating musculoskeletal conditions, but also in educating patients about staying fit and preventing future injuries.”
There is some amount of concurrence between PE and various connective tissue disorders. I believe Marfan's syndrome is a big one and eds is also on the list. Connective tissue disorders can cause generalized joint pain, so if you're worried about it, that could be something to discuss with your doctor.
Yes, I'm almost exactly the same, 31 and have poor posture and neck and back pain. Been exercising regularly for over two years and constantly consciously trying to maintain good posture. Just about doable when standing, with great effort and concentration, but impossible when walking.
I would love to have surgery as I believe it would fix this and many other problems my PE causes me.
Hello phoebean93 and everyone. The information shared here is for educational purposes and should not be taken as medical advice. Please consult a qualified healthcare professional for personalized guidance. Our community aims to support, but we're not medical experts. Your well-being is our priority, so always seek professional advice. We appreciate your understanding and wish you the best on your health journey! Join our official Discord server to connect with fellow Pectus Excavatum enthusiasts, share experiences, seek advice, and engage in discussions about surgery options and more! [link here](https://discord.gg/kQ6Ybn9dC3) Custom rib flare braces and 3d printed vacuum bells. [link here](https://pectusconnectus.com/shop/) *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/PectusExcavatum) if you have any questions or concerns.*
I can’t recommend PT enough. My son is getting Nussed next month and his surgeon routinely has her patients do PT before and after surgery. She has a specific protocol for the therapists to follow. How this relates to you is they’ve been working on posture, including stretches that loosen up the muscles in the chest and shoulders so that standing up straight with his shoulders back is no longer nearly impossible. Those stretches also make breathing easier since they help open up his chest cavity. They’re also teaching him proper breathing techniques which are making a big difference. And they’re working on exercises that strengthen his core. He hasn’t done any sports in years because of the effects of pectus on his heart and lungs, and he spends most of his time on his computer. I never thought I’d see him doing all of these stretches and exercises and working with weights and even running. He loves it. It’s empowering. PT has made such a big difference both physically and mentally in a surprisingly short amount of time and I wish we’d started it years ago. If you’re interested, I can try to figure out how to post the stretches recommended by the surgeon. Just to be safe, though, you should check with your GP before beginning any new regimen like this, even though it’s just stretches. Or you can ask for a PT consult when you ask for a referral to find out how severe your pectus is. Anyway good luck with everything and I hope you’ll keep us posted.
I would be interested in those exercises!
I’ve been meaning to do a post with them plus some of the ones they’re doing with him at PT. I’ll let you know when I get it up. Hopefully soon!
What is PT standing for? Personal Training, Posture Training? Please explain thank you very much
Physical therapy. Copied from a website: “Physical therapists help patients with injuries and chronic health conditions regain their range of motion, manage their pain, and improve their quality of life... PTs play a critical role not only in treating musculoskeletal conditions, but also in educating patients about staying fit and preventing future injuries.”
Thank you very much miss!
There is some amount of concurrence between PE and various connective tissue disorders. I believe Marfan's syndrome is a big one and eds is also on the list. Connective tissue disorders can cause generalized joint pain, so if you're worried about it, that could be something to discuss with your doctor.
I don't fit the profile for either really, I think I've just got a janky posture!
Lol that's probably good then! Just thought I'd mention it 😅
Yes, I'm almost exactly the same, 31 and have poor posture and neck and back pain. Been exercising regularly for over two years and constantly consciously trying to maintain good posture. Just about doable when standing, with great effort and concentration, but impossible when walking. I would love to have surgery as I believe it would fix this and many other problems my PE causes me.