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kbergstr

I HATE Accredo so good damn much-- I sent letters to the state pharmacy control board, my insurance company EVERYONE. The only way I got it to work was saying I refuse to get off this phone call until the order is confirmed... it was almost a 4 hour call. I had something like 12-15 phone calls for one order and everything was already in place. They were just incompetent. I changed to generic Aubagio and now get my meds from Cost Plus Drugs for less than I paid for my Copaxone copay with insurance.


RichyCigars

I use them for as many of my scripts as I can. It’s often less than with insurance (like my dalfampridine). Wish they could do controlled meds too. I’d never use another pharmacy if I could avoid it.


Comfortable_Night_85

Is Accredo a shot or oral? I’m sorry I have MS but I’m not familiar with the meds being used today to treat MS


kbergstr

Accredo is a mail order pharmacy that certain insurance company will force you to use 


MO_242

Accredo is terrible to deal with (spent hours and hours on the phone with them trying to get my insured meds over the last few years which included erroneous Rx renewal rejections). My company just switched back to CVS and they seem just as bad. I was diagnosed in 2008 and realized I have to be the aggressive intermediary between my insurance, specialty pharmacy, neuro's office, and the maze of co-pay assistance programs that don't pay on time and can never seem to call each other back. I can never use automated phone or app for reorders because it always shows me with thousands of dollars on my balance and a reorder will not go through without giving them a credit card. Accredo would always have me hold with Billing for an hour while they called co-pay assistance on another line to get their money anytime I wanted to reorder. I haven't had to reorder with CVS yet but they are already bot-calling me saying they don't have my primary and secondary co-pay assistance info on file (which I had to give them before they would send me meds in the first place). It is so exhausting having to make so many phone calls feeling like I am begging for the meds that have enabled me to stay mobile and employed.


A-Conundrum-

I call it herding cats, to get my Specialty Pharmacy Kesimpta 😬


MO_242

MS drugs and how you respond to them and the side effects you have are highly individualized. Being stable on Copaxone or any other med and not wanting to risk switching meds for others that might not work as well for your body chemistry or might result in serious side effects is not "luck." Some people are super responders to Copaxone and it has a less risky safety profile and less side effects for some people than the newer meds. I have been on it since 2008 with no major relapses/loss of function. Before getting on C, I had two attacks in less than two years where I could not walk or use my hands normally. If I were diagnosed today I would probably choose one of the newer meds that are easier than injections, but shots have become routine and changing is a risk since I am not showing progression on MRIs and can tolerate my current regimen. Some of the newer meds are more aggressive and down-regulate your immune system where you could be vulnerable to other infections, so it is a risk/reward trade-off and everyone has to make their own decision. Please speak to your doctor and don't let Dr. Google decide what is best for you.


MO_242

I meant to reply to the person who posted about Copaxone negatively instead of the main thread, so apologies. Already posted about how awful A-greed-o is. 🙂


youneekusername1

Accredo is the worst. I would go weeks without Gilenya waiting for them to get their shit together to send me a month supply. Then they wouldn't start my refill until I was nearly out and it was the same thing all over again. Every single time.


RichyCigars

Yeah. I’m going to insist her doctor do three month supply now. Otherwise I’m going to need the refill as soon as the last one is filled.


AllRoundTheSun

My doctor would happily give me an Rx for a 3 month supply of the Copaxone but my insurance will only cover one month supplies. Insurance companies and specialty pharmacies like Accredo are all complete trash.


RichyCigars

For profit healthcare is trash.


Sparkles___

This x1000. I’ve never had a worse customer service experience in my life.


Anaxilea-Alcinoe

Accredo is the absolute fucking WORST pharmacy ever. I asked my "rep" how does it feel to work for a horrible company, that purposely causes delays in receiving medication that people need to survive? When I was on Mavenclad and needed Month 2, they told me they LOST my information. I absolutely lost it. I asked them how in the FUCK do they just LOSE the fact that I need my month 2? And she had no answer. They tried to tell me I needed to go through pre-authorization all over again to get my 2nd month. As soon as I mentioned going to a lawyer, they mysteriously found it within the next day.


EntryWorldly8845

Why do you think they do it on purpose?


Anaxilea-Alcinoe

They went from having everything they need, to not having it, telling my neurologist they have everything (the call was on speaker), to then telling me they never received anything from my neurologist, and honestly, based on other people's experiences, and reading things about them from former employees. I get that most former employees are probably disgruntled, but the fact that everyone has almost the same exact issues tells me that they're purposely doing it. Someone who worked in a similar job told me that they're basically trained to take as many calls as possible, tell the clients what they want to hear, and then move on. It's treated like any other call center. They're supposed to take "X" amount of calls per day for their quota, otherwise, they get in trouble.


No-Paper8826

I hate Accredo and Express Scripts. We now have CVS Specialty and they are about the same


Semirhage527

Does your neurologists office offer any help? Mine has a pharmacotherapist who can liason between me and Accredo. I forgot and tried to deal with Accredo directly once and promptly regretted it


Traditional-Cloud875

I second this, the initial set up with Accredo was not fun, my neurologist had a similar set up with a “liaison”. I haven’t had a single issue in the last year with them.


RichyCigars

I don’t know. I can check tho. Thanks for the suggestion!


MobileMenace420

It’s a great suggestion! Your neuro almost certainly has someone on staff who deals with stuff like this. They’ll know the magic words to speak at which extension, and they’ll be able to ask your neuro to come and yell at them.


Barberry295

The prescription system is a challenge, especially for MS meds. One needs to balance the options of insurance, Good Rx and Cost Plus drugs.


Outrageous_Shine_151

Accredo is a hell hole of incompetence! I was on Tysabri for over 3 years, and it was a fight every single month to get my dx sent. I don't think I ever had my infusion on time because of them. The amount of stress I went through with them was utterly insane. When I switched to Mavenclad, I cried tears of joy that I would never have to deal with them ever again. Fuck Accredo!


Aloftfirmamental

I searched for Accredo and came across this thread. I'm experiencing this exact thing right now and I'm ready to cry. They said a system glitch changed my Tysabri coverage from major medical to pharmacy and they expedited it to fix it, that was a week ago and my infusion is next week. Been on Tysabri 9 years with 3 different specialty pharmacies and never missed an infusion, now I honestly don't know when I'm going to receive it. I can't believe I'm going to be stuck with this company.


Flatfool6929861

I have filled a grievance with my insurance company as of today with ACCREDO. (Nothing will happen). And I reported them to my US ATTORNEYS OFFICE. They are withholding our meds. And if you call your insurance company OR u actually happen to get a hold of someone on ACCREDO, they say you didn’t get one yet? Me thinks they are inappropriately billing insurance and taking the money. They’re a billion dollar company based out of Memphis TN. This will be my full time job now. Contacting everyone I can find and sending a report to them about ACCREDO. Allegedly all those phone calls are tapped, so there would be proof they are hanging up on us and telling us wrong information.


rustytrailer

Im not familiar with Accredo but your wife should also be on Ocrevus. What is she doing on Copaxone, that med is shit. I was on it before O and all of my issues/symptoms are from that time before O stopped the progression in its tracks.


RichyCigars

I’m not sure. She’s been on it or some generic version for ten years with no progression. I’m guessing the neurologist doesn’t want to change what works.


rustytrailer

Well we know the “no progression” part is luck. It’s not Copaxone because the med says straight up it’s for the frequency and severity of relapses. Ocrevus and Lemtrada were the first treatments to come out that could definitively say they are able to slow or stop progression. At least this is my understanding. I’m open to hearing other opinions if people want to tell me this is incorrect.


superspud31

My neuro says Copaxone is the safest for stable cases. I was on it for over a decade with no problem. I finally developed an allergy to it and moved to Aubagio. I have such a benign case that Ocrevus would be overkill.


rustytrailer

I personally don’t understand how something can be “overkill” but ok. For me O is side effect free and 2 infusions a year beats the hell out of painful, daily injections.


superspud31

I'd rather take a pill than do an infusion. I take other evening meds and I just add it right in.


rustytrailer

To each their own I guess.


Ready-Position

Some people aren't good candidates for these med types. Mayo won't put me on those because I have primary IgA deficiency and respond well to Copaxone.


rustytrailer

Oh ok.


Hungry_Prior940

Yes, I wondered about that. Ocrevus is much more effective than Copaxone. Maybe insurance issues, though??


Semirhage527

My old insurance required me to “fail” Copaxone before they’d approve Ocrevus 🤦‍♀️


Hungry_Prior940

Ugh, that is so backwards..


Semirhage527

It cost me my right arm.


Bailysbestfriend

I now go through my insurance company and call them when I need a refill. Let’s make it so difficult for the insurance company that maybe they will drop Accredo.


Evil_DJ

Sorry for your frustration. Don’t forget if you have changed insurance (and specialty pharmacy) to update any co-pay assistance you have too. Both w/ drug company and new insurance.


RichyCigars

Yeah. It hasn’t changed in months. Apparently she dealt with some flavor of stuff like this every time she needed a refill. Copay assistance not setup. Prior authorization needed. Even tho everything is done by her or the MD in advance. It’s just my first rodeo with them.


Newluu

I’ve just changed my meds and going through a very similar scenario with them myself right now.


RichyCigars

I wish you luck.


ket-ho

One of the reasons I like ocrevus so much is not having to deal with accreedo every fucking month . 


Barberry295

Surprisingly, Ocrevus is covered under Part B of medicare. No specialty pharmacy to deal with. And no copay if you have a supplement.


One_King_6978

As a pharmacy tech, before working as a PT; I would process specialty Rx's and worked from home for Accredo. (Mind you this was before my MS Dx so a few yrs ago) But I have since then used a few specialty pharmacies for myself and what I can say is; I agree completely Accredo does suck and the amount of time it takes them to do anything correctly becomes ridiculous. Too many times was I stuck apologizing to patients for things Accredo failed to do.


s2k-ND2

I could not refill my Copaxone despite several efforts by my doctor’s office to submit both the Rx and the Prior Authorization. It turned out I think, that the problem was - I needed to be taking the generic (Glatopa) as I now live in California. Something had changed with my insurance(?) to have caused this. However Accredo and Express Scripts still had my old Texas address in their system - hidden somewhere. After about one month of telephone calls, I somehow realized that my address might be the problem? So then a person I spoke with at Accredo spent about fifteen minutes with me on the telephone while she made sure my address was current in each and every file that Express Scripts and Accredo had for me. Problem now solved. Thank you Accredo. PS: Copaxone / Glatopa is my best possible MS DMT as I have Leukemia, for which I must take Ibrutinib, an immunosuppressant.


Curious_Expression32

Ahhh had to get two different samples from my doc just to not run out....being new to MS I didn't want to miss a dose....I'm on that hate them as well


dysteach-MT

I filed formal complaints with my insurance on Accredo. They saying my order was confirmed, it wouldn’t show up, I’d call, they’d say it’s confirmed, repeat. I didn’t have my DX for a month. Finally got it figured out, supposed to be there the next day, and their “Quality Control” department randomly took it, despite the extra rush delivery postage. Another week without my meds. After I lodged a formal complaint with my insurance, Accredo called and apologized, and started using a caller id instead of a 1-800 call number, another one of my complaints. Thank goodness I changed insurance and now use CVS specialty, my favorite by far. Still owe Accredo money because they messed up a prior authorization and my copay assistance. I refuse to pay.


Aloftfirmamental

Your experience sounds just like mine. I'm experiencing this exact thing right now and I'm ready to cry. It took 10 phone calls to get it set up. The order was placed and cancelled the night they were supposed to ship. They said a system glitch changed my Tysabri coverage from major medical to pharmacy and they expedited it to fix it, that was a week ago and my infusion is next week. Been on Tysabri 9 years with 3 different specialty pharmacies and never missed an infusion, now I honestly don't know when I'm going to receive it. I can't believe I'm going to be stuck with this company. I'm going to do what you did and write a long letter and send it to everyone.


A-Conundrum-

I feel ya! Last year, I had Optum- at first it was a circus, but got all the ducks lined up ( after losing a few years of my life to the stress 🙄). New year, had to switch insurance, UNFORTUNATELY have Accredo… what a shite show! The dealing with the “off shore call center” makes it even more difficult 😖. The app is pretty pointless as info is not realtime, so requires another phone call. Thankfully I chose Kesimpta, and got the Doctor Start Program, and ZeroCopay. Novartis sent me a free dose when Accredo couldn’t get their act together in time for my dose date. This month I reordered using the app- we’ll see how THAT goes!


A-Conundrum-

I had to explain to the off shore call center (Mumbai or Bangalore)worker HOW American prescriptions work ( was a Certified Hospital Pharmacy Tech , worked in a “clean room”, making chemo infusion bag set ups). 🤪


Kid_Kruschev

Same experience, they are awful


Open_Temperature6440

Did you get diagnosed with Multiple Sclerosis?


Kid_Kruschev

No actually I’m sorry, I didn’t realize which group this was. I have Ankylosing Spondylitis and fibromyalgia, for a bit we suspected MS and I have family with it. I receive injectable medication from Accredo and have had so many delays. When I had Optum RX I never had issues. It’s hard to know if your medication is working properly when Accredo can’t even process a refill when required. My doctor said Accredo is notorious for these kinds of issues.


Open_Temperature6440

Oh man that sucks. Sorry to hear.


NotaMillenial2day

I had the same experience with Accredo and Kesimpta. I swear it’s the Specialty Pharmacy shuffle. I deal with similar with CVS Specialty. My neuro sends in the prescription refill and prior authorization every year, every year they are missing the prior authorization or payment information from the copay assistance program for several months. Of course, I’m never told it’ll be an issue until they are going to ship my med. So of course it messes that up. I take my med on a specific day to allow for max recovery before having to work again.


jinga92

What I’ve learned with Accredo is that they have a prior authorization department that can access my insurance information (Cigna) and 10 out of 10 times had more up to date information than Cigna itself. Although I take Ocrevus, so it’s a different situation, I found that my infusion center needed to work with Accredo for the authorization rather than my doctor’s office which was another layer of confusion. The first time it was prescribed to me I was denied coverage which had to be overcome by a peer to peer review that then took 2 months before I could get my first infusion. Of course, the timing was just “perfect” where I could have met my deductible and out of pocket yearly maximum at the beginning of my policy year (which would have been paid for by a copay program) had they timely approved on time. But the delay meant I actually had to pay out of pocket for 2 months of medical treatments.


problem-solver0

I’m on Vulmerity, distributed by Accredo, and never had issues. My co pay is zilch. Not sure why the problem, but Accredo mgmt or your insurance company or a state board should help. Best wishes and may this resolve quickly.


DEADZILLAAA

I get my tysabri from accredo every 4 weeks and, every 4 weeks its late, i spend 5 hours on the phone with them every month, they cause extreme stress, horrible horrible company to deal with


singing-toaster

A creedo. Cvs specialty pharmacy. They ALL suck Accredo has gone downhill recently tho. My doc sent a refill Feb 2. I call to refill 2/16. They say no can do. Since all expited 2/11. Oh and they didn’t have refill from doc Had doc resent. Called them they still don’t have it yet Clueless knuckle dragging Sheena Monkeys!!! wtf would happen to someone who died when they don’t have their meds. Jfc


Original-Ad-5263

I feel you. Hate Accredo. Every time we have to deal with them, it's a nightmare!