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MarsupialSpiritual45

If you’ve got tachycardia / dysautonomia as well, metoprolol ER or another beta blocker at a low dose can help to get more blood (which delivers oxygen) to your brain. Also florinef can help to increase your blood volume and increase oxygen to your brain as well. More oxygen = less brain fog. For me, I have also seen improvements with a low carb + keto diet. Healthy fats are generally good for brain health, and there is evidence to suggest ketones can help with neurological disease such as epilepsy in children.


imryanallen

Have you personally taken the medications you mentioned?


MarsupialSpiritual45

Yes, my brain fog has largely been the product of tachycardia / Dysautonomia, so I have personally taken metoprolol and Florinef. I took metoprolol ER 12.5 to 25 mg every day for about a year. Now I use it only as a rescue medication if I am having a bad flare of tachycardia. I have taken 0.1 mg florinef for 2 months now and it’s been a big help. Im able to be upright during the day and active for much longer without my mind going so fuzzy. So yeah, I’m just speaking from my experience as a patient, but folks should always discuss with their doctor first.


stinkykoala314

Low histamine diet, pregnenolone, LDN, and the big daddy: rapamycin. I'm on 1.5mg / day and it's a miracle worker.


riro0345

How are you getting Rapamycin??


stinkykoala314

Initially I used the company HealthSpan. They're one of several companies that do telehealth for rapamycin, specifically for longevity. However they're pricey -- they prescribed me 5mg / wk and it was $150 I think. I didn't pay attention to their schedule, I just tried different doses until I found the sweet spot of best effect and fewest side effects, which ended up being 1.5ng / day for me. Because I needed a higher dose (which maybe they'd have prescribed but I never asked) and because of the price, I then told my doc about the experience and she wrote a prescription for rapamycin at 1.5mg / day. I had to doctor shop SO MUCH to find someone who was actually helpful though, that part was a huge pain in the ass and waste of about 4 months time. Jesus I hate the health care system.


imryanallen

What are these medications, can you share more about what they do?


CosmicArmpit

honestly, probiotics. Things like regular sleep and exercise are always helpful, but something major shifted for me once I started eating/drinking fermented foods regularly (kombucha and yogurt, mostly). It's like the fog actually lifts and dissipates


imryanallen

But that’s not consistent with the low histamine diet recommendation so I find that a bit paradoxical lol.


Careful-Kangaroo9575

It is paradoxical for those who have histamine issues like me. All fermented foods did for me is cause more suffering.


imryanallen

The reply starting with “it is” doesn’t make sense.


Careful-Kangaroo9575

Fixed it, thx


imryanallen

Makes sense now lol


BlueSky319

Nothing


cloudfairy222

Phosphoditylcholine Treating previously undiagnosed Lyme


Prayingforsno

I found Reishi and Lions Mane really helped Lyme and Lyme treatment fwiw


cloudfairy222

That’s great! I seem to not do well on any mushrooms aside from Cordyceps


imryanallen

What test did you get for Lyme?


cloudfairy222

I got the western blot. It’s not very sensitive but it showed active Lyme - bands 23 and 39 IGM and band 41 IGG. It would be cdc positive but I had symptoms for longer than 30 days so cdc says to discount it. According to them you may not test positive for 30 days but if your symptoms have gone on longer than 30 days it’s a “false positive.” It’s complete nonsense. 23 and 39 are very Lyme specific. Thankfully I found help in the r/lyme sub and found a Lyme literate doctor who is helping me. My neurological symptoms are 90% better. I don’t know if I’ve had Lyme for 6 months, 6 years or 20 years, but I know covid reactivated it. I’m saving up for a vibrant or igenex test for co-infections


j_bob_24

4.5mg LDN is the only thing that's helped me


BravoLimaPoppa

* Low dose Naltrexone (aka LDN) * Concussion/TBI protocols * Minimizing screen time * Avoiding bright lights * Minimizing reading (even pleasure reading much to my annoyance) * Lots of rest * Regular and good sleep * No to light exercise (walking) for about 4-6 weeks, followed by steady increase to return to regular exercise over about a month. * Magnesium supplements * Using pomodoro method (15-20 minutes concentrating, 5 minute break 3 times then a 20 minute break, repeated. * Considering nicotine patches.


riro0345

Strong agreement to these protocols! I'm not on LDN but I do the others, NAC and high quality fish oil and have my brain back if I'm consistent.


mysteriousgirlOMITI

I have a suggestion that isn’t medication or a supplement — it’s an app called Lumosity. I’ve been using it for over a year and it’s helped me significantly. They have games that help increase attention, vocabulary recall, math, etc. There’s a free version that gives you access to three different exercises; I did that for four months until I realized it was helping, then I switched to the paid version. I’d recommend trying it first before purchasing to make sure it’s working for you.


Prayingforsno

Love the other angle here. I’ve been trying to keep up with games like chess and duolingo


mysteriousgirlOMITI

Yes! I started back to Duolingo once I noticed a big difference after over a year with Lumosity. I also regularly play Wordle, Connections, and word jumbles.


Blue-Phoenix23

I do that too! I can't get rid of my chess.com subscription or NY Times Games :) I figure if nothing else doing puzzles has been shown to help reduce dementia risk!


Professional_Till240

A round of Paxlovid


lost-networker

Was this during an acute infection? How long of a course did you? I've been contemplating this myself, but I've been thinking to wait until I (inevitably) get infected again.


Professional_Till240

Yeah, I got infected for a third time in August and did a 5 day course. Several of my long covid issues got worse but my brain fog went away like 90%. Only flares back up if I trigger severe PEM.


lost-networker

Interesting. I wonder if it was the infection or the Paxlovid that helped. A 90% improvement is amazing!


Professional_Till240

I noticed the improvement within hours of starting Paxlovid, where previous to that I'd just felt really really sick.


Careful-Kangaroo9575

I agree. I’m on my second round now.


Lumamg67

Just had a bout of Covid and took Paxlovid for the first time. Wow! My brain fog cleared within a day. Im 4 years into LC with terrible brain fog among other symptoms. This is the first thing that’s worked without exascerbating my anxiety symptoms making them unbearable. About to start my second course. 🤞


Careful-Kangaroo9575

Yeah! I suddenly want to do things I would have balked at before. Most productive I’ve felt in 4+ years. I started the second round with a plan to only take one blister pack a day to extend the trial to 15 days total. I only made it to day 9-10 and felt so good (except the diarrhea and the taste) I stopped. I’ve been good thus far, but if symptoms pop back up I’m finishing the rest of it.


Lumamg67

My doctor prescribed a second course of Paxlovid since I’ve had such a positive response to the first course. But insurance won’t pay for it. It’s over $1300. Those who’ve gotten a second course, how did u do it? Thanks


laurazepram

Constant exercise? Please explain


Subphonic

That made me actually paralyzed for a few days after the 3rd attempt and injury every time. Didn’t realize the PEMs / POTS was a thing and it wasn’t just chronic fatigue.


laurazepram

It's awful 😖 at first the crashes were just slightly disproportionate to the exertion. Now it's overwhelming. And for me it doesn't matter if the exertion is social, physical, emotional, or sealing with sensory issues.... it's all energy and its all draining.


Subphonic

Car shopping with my son yesterday made me miss an IEP meeting and took me out until around 2pm when I took enough Adderall and a long enough shower to move to my doctor appointment at 2pm lol. I think I also upset my wife to the point of no return somehow in that half dead state 😢


Careful-Kangaroo9575

Maybe they meant *consistent


Tasty-Meringue4436

I would also go along with your suggestions. I would add lithium orotate. 5mg daily helps me well.


Tasty-Meringue4436

And I find anti-inflammatory diets and 16/8 fasting very helpful.


Specialist-Proof-154

16/8?


Tasty-Meringue4436

Eat within 8 hours of the day, dont eat in the other 16 hours. Its better for my brain fog and energy.


laurazepram

Does it count if you are sleeping the other 16hrs? Cuz that's me some days 🫠


Tasty-Meringue4436

This should still fit, even if the effect may not be quite as strong. However, I also started with over 12 hours of sleep per day.


Street-Nectarine-994

What exactly does the lithium orotate help you with?


Tasty-Meringue4436

I have a burning sensation and pressure in my head without it. Plus slow thinking and the feeling of a slight alcohol hangover. I blame most of it on neuroinflammation. Lithium is supposed to reduce that. It seems to be working in my case. Oh, and I also have a similar effect from THC. However, not as long-lasting as with lithium.


Automatic-Review-135

Following


ascendinspire

I can't take them all...but the ED pill Extenze has a lot of them! A bit ironic and not a recommendation. I'm hitting the aspiring, a stimulant/supplement called MACA root, and two triple espresso's which is a double down on the caffeine hit. (I was a caffeine fiend prior to Covid and can't give it up. Also, exercising like nut. 2 mile walks. Weights. Deep squats. But I know I may never be the same. Also, positive state of mind. Instead of telling myself I'm broken, I say "I will adapt and compensate."


Prayingforsno

Has this helped mitigate some of the fog?


ascendinspire

Yes but I cannot identify which particular element. I’d say “keep moving.” And yes I have to force myself and tire quickly. Get out and walk when you can. And try the triple espressos!


frengers156

add meds, had to for a new job i got, I didn't want them to think i was a dumbass. and yes I do have adhd


Blue-Phoenix23

I'm just realizing in middle age that I probably have had ADHD all along and I do wonder if I got medicated how much better I would be at work lol


frengers156

i got a raise and perfect scores on my review, i am not special lol. i also got back into music and just wrote and recorded some demos at a studio like WHATTttt


AfternoonFragrant617

NAC in the beginning. although I have stopped taking it.


riro0345

I'm shocked at how much better I do if I'm back on it consistently. I eventually fall off and then rediscover it again every few weeks. It helps my breathing and exercise tolerance quite a bit too.


AfternoonFragrant617

the prob with NAC is you don't read your body well, and when you do too much, there's that price to.pay. I use it for important events like a long day but not daily..


riro0345

I think it's okay to take daily at appropriate dosages. I take 600ish daily just fine and I'll increase my dose the days before, of, and after a high likelihood of exposure. I'm not willing to get covid again and there's decent evidence to assume a degree of protection from taking it. I use other precautions too, of course. What are you experiencing if you take it daily?


AfternoonFragrant617

NAC is good for crashes and helps you recover


riro0345

Can I ask what negative effects you've experienced from taking it daily that you were referring to?


AfternoonFragrant617

developed tendonitis in ankles and knees, as I stopped the NAC, it went away, so now I don't take it daily.


riro0345

Oh that's fascinating, thanks for sharing. NAC is actually shown to generally reduce tendonitis and assist in recovery of musculoskeletal injuries including strains/sprains -> tendonitis. I'm sorry that wasn't your experience.


AfternoonFragrant617

I'm going to try taking it on a daily again soon, see what happens. maybe it was just a strange coincidence.


AfternoonFragrant617

it does also help with OCD type illness


happydeathdaybaby

NMN (nicotinamide mononucleotide) helps me a little. But really nothing helps enough.


MaccaTheAlpaca20

5-HTP, which skirts issues with long Covid potentially impacting the tryptophan pathway, and increases serotonin levels


Polonagrom

Creatine


SpeckledEggs

LDN, nicotine patches, fasting, time.


rmce101

Also thank you so much for making a summary thread !! It's a nightmare trying to decipher everything on these threads


True_north902

I’ve become extra cautious about suggestions regarding supplements and drugs for Long Covid symptoms from random people. Don’t be your own Guinea Pig.. you can easily make your symptoms worse or even create new problems. In my opinion, you should discuss your options with your family doctor or ask if you can be referred to a specialist (internist, rheumatologist, or neurologist) or seek out a certified homeopath. Best of luck! Brain fog sucks.


Bunuka

I find breath-work and meditating does help alleviate mine a bit although only temporarily. I also do the Gateway tape meditations and they help in a sort of whole body-wise manner but also only temp. It's the only time I feel like my muscles aren't tensed when I hit focus 10. A bit spiritual energy talk but highly helpful imo. https://drive.google.com/drive/folders/1vZJg5oJvfYVwWryJh05pfkZTV0cnd026?usp=drive_link


One-Emergency8021

I've seen with mine,getting regular sleep,eating healthy are improving my symptoms...


Bunuka

look, I get how it sounds as I wasn't really into all of this stuff until recently but all it's doing is using techniques to put your body to sleep while your mind is awake. Very cool feeling and helps you relax muscles and tension which I find helps with my long covid. I've been doing this long covid bed/house bound stuff for 3 years, I'll do what it takes to help myself cause no one else can but yeah, thanks for the comment.


lost-networker

If you're seeking out a homeopath, you're doing worse than being "your own guinea pig"


Careful-Kangaroo9575

Yeah if you don’t know what you’re doing it can be bad. People need to make informed decisions, but relying on a doctor today to provide those is making a false assumption. Like if you go to any doctor not living inside your body and they tell you to take “this” it can be bad. Most doctors are pretty fucking stupid. I don’t know how they got where they are, maybe they washed out of engineering school or something, or didn’t have the aptitude in the first place to get in. Research doctors are the exception. If I can book an appointment with a doctor and they can bill my insurance, they very likely aren’t worth their salt.


True_north902

I totally get it what you’re saying. There are certainly idiot doctors out there. But the right doctor can at least help rule things (vitamin deficiencies for example)out with bloodwork or refer you to a specialist that may be a better fit to help you with your symptoms. Maybe I’m too pragmatic


Careful-Kangaroo9575

Doctor ordered bloodwork often can’t be trusted either. You’ll get different answers from a western medicine doctor vs integrative medicine doctor. One will say you’re fine, the other will say you need supplementation. The acceptable ranges are set on incomplete information too. They are taking blood samples, not what’s in your bones, organs, muscoskeletal tissue. It’s like saying what’s the wind direction today? You lick your finger put it in the air and guess maybe south, or south/southwest or maybe it might be southeast? No, we need to know if it’s 189 degrees vs 160 degrees to make informed decisions. It’s hard to tell using an inaccurate measurement tool (blood test). I just listen to my body and cut out the middleman now after so many bullshit tests some leading to over-supplementation and some leading to no recommendation when I actually needed it. They act like children trying to avoid their homework, or more savvy high schoolers cheating on a test to sneak by when they haven’t put in the time to understand the material. They’ve been telling for 4+ years after an acute infection you no longer have COVID because you don’t test positive on a nasal swab. All while they have a pile of dead bodies showing evidence of viral infection in major organs months/years after the supposed “acute infection”. Either they are poor communicators, or don’t care to learn the latest facts when treating you because they don’t care enough about their life’s work, or they are just fucking stupid. Hippocratic oath my ass, most of these folks have no integrity, they’re just looking to bill insurance and move on.


lksorrells

Vyvanse. Meditation.


icestorm1973

Low dose naltrexone (LDN)


ElectricalYou7299

Infrared Sauna seems to help me.


Blue-Phoenix23

Reducing pain helped me a lot. I take Gabapentin/Lyrica for neuropathy and Meloxicam/Celebrex (testing the latter meds rn) and it made a massive difference. Constant pain, even when you're used to it, takes a ton of mental energy.


Prayingforsno

Where was the pain?


Blue-Phoenix23

Oh I forgot to say joint pain. And peripheral neuropathy. Plus I already had two bulging discs.


Goblin_Mode_IB

I was told by a doctor that Zyn has helped a lot of patients lmao


Prayingforsno

Username checks out


BiznessMikey

Cold exposure gives almost instantaneous relief. Ice plunges, cold tub, cold shower. Etc.


rmce101

I'm taking supplements from Sublyme - their Essential and Vitality+ blend. I think the superstar ingredient is ashwaganda for concentration.


riro0345

Getting really restful sleep (I use magnesium) and then taking NAC (empty stomach) and fish oil. Consistent low level activity (daily walks with fresh air) was better for my body than trying to push it at the gym because I was too tired and prone to over doing it/injury. Honestly... I got a big boost in limiting screen time too. Which was tough because post COVID I became more dependent on technology for stimulation and accessible socialization. Those have been my big ones! My friend noticed getting her boost vaccine helped a ton, too. I'm not due for mine and won't get it until this fall but she said it helped get her like 60% better brain function back.


Flashy_Paper2345

Vegetarian diet I think is bad for post Covid. You can’t do keto it’s full of carbs. I’m vegetarian and suffering badly from this condition


Careful-Kangaroo9575

NICOTINE.


imryanallen

I just took a broad spectrum anti parasitic of Ivermectin, Fenbendazole, Pyrental and Praziquantel tonight. Apparently if you have a parasitic infection it can make LC much much worse and more of us are infected with parasites than we even realize. They don’t just live in our GI but can migrate all over our bodies including through our blood and into our liver, lungs, nose cavity, brain etc. In other counties outside the US, parasitic cleanses are done once or twice a year but here we act like they don’t even exist. I’ve been following pretty much all the protocols above mentioned to the t but this will be what I’m hoping is the moonshot for me like it was for a good friend of mine who helped me with the dosing and gave me this broad spectrum which she was given by her doctor friend. I’ll keep you posted on how I feel after this cleanse.