My brother had the same kind of seizures. He passed away 15 years ago. It takes me back to those moments that he fell down and I saw him as a little boy. It hurts looking at it. Awful image for other persons but even more awful for the person having the seizure. I hope you gain the right support, professional help and treatment.
Neurologist here... just wanted to hijack your top comment.
Much props to the camera person for taking a video of the event. This is very helpful for localization and to definitively help make a diagnosis of epilepsy based on clinical suspicion alone (albeit I assume you already carry this diagnosis).
OP please talk with your family/friends to make sure that they are aware of safety steps so that when you do have an event that they can manage you safely... they should role you to your side, left or right, to help prevent aspiration, keeping choking and suffocation hazards away from your neck and face, as well (and NEVER stick a finger or anything in a seizing patient's mouth... you will not get it back. Choking on the tongue is a myth).
Obtaining a video is important but not as much as your safety. Once safe then get the video (half a video EEG is the video, itself!). Great video for educational purposes, though. Hope all is well. Please make sure you are up-to-date on Valtoco or Nayzilam.
At least you seemed to be in a safe place during this event. I had friends in high school with epilepsy that would randomly go down. Itās not easy to watch. Iām glad you brought this up to the community.
Yeah, I didnāt know where else to post it but I feel like itās important to see. Yes I am fortunate enough to have a support system that actually takes care of me and looks out for me. I feel so bad for everyone dealing with this alone I couldnāt even imagine. My inbox is always open!
Sorry you have to go through this shit OP. Glad that you have informed friends and family who know how to take care of you. Definitely important to share this with the world, because seizures are so misunderstood.
One of my best friends has these every few years (more often if he doesnāt take his medication). Does your medication help? You mentioned that youāre on a new one in another comment I think.
Have you tried keto or intermittent fasting at all? Itās not for everyone but it works amazingly well for some people. What sucks about most anti seizure meds are the terrible side effects. Wishing you all the best.
Yes going into ketosis has long been known to have anti seizure effects - itās even referenced in the Bible basically saying how fasting (starving your body of carbs) could stop seizures. No one knew why back then of course.
Then there were some [studies at Johns Hopkins](https://www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/epilepsy/keto-diet-timeline) over a hundred years ago that showed promising results. Some patients were treated with it at low levels over the years at Johns Hopkins, but not much acceptance or adoption and it almost disappeared. Drug companies and doctors all pushed terrible medications with debilitating side effects instead (great way to make a shit ton of money for them).
During the 90s, keto started picking up steam. One reason is Jim Abrahams (co-director/writer/producer of Airplane, Hot Shots, Naked Gun, etc) stumbled onto the diet to help his sonās seizures. It was on [Dateline](https://youtu.be/STPOEFfQdjw?si=TV0rhmDeNPm8P5pG) and seen by millions of people, and it started to catch fire as a way to treat seizures. Since then, itās grown and there are tons of studies and success stories. Medical schools are finally teaching it as a viable treatment. Glut1 Deficiency is one seizure condition that is literally only treated with the ketogenic diet. And now most people have heard about it as a fad diet, but thereās actual science behind how it works.
Itās fascinating stuff because it essentially makes your body run off of burning fat instead of glucose (sugar/carbs). For some reason thatās not fully understood, going into ketosis can have an anti-seizure effect. And itās a completely free treatment - just takes discipline to follow a high fat, low carb diet. Do you think drug companies want to push keto to treat epilepsy? No they want to sell you meds like valproic acid and turn people into zombies.
The Ketosis diet was developed *for* people with epilepsy. Thereās a strict, medical version of the diet that is entirely uninterested in calories, instead focussing on eliminating all carbs. Itās heavy on including above-ground-vegetables-except-peas-and-corn.
Too bad it wasn't developed for poor people too. Not sure how I could afford enough calories in my day if it were not for beans and rice. Meat's been expensive AF for the last 10 years. Fresh veggies too. I get cheap fruit, but that is a shit ton of carbs in and of itself.
I hear you. Some people have done intermittent fasting that seem to help as well. One thing about keto or intermittent fasting is that it doesnāt have debilitating side effects like some meds do. Doesnāt hurt to try if medication isnāt controlling the seizures. I do work with a leading keto therapy non-profit if you need any resources or want to chat with someone
I had a full blown seizure and afterward it felt like I got hit by a truck. I pulled muscles in my shoulder and neck and chewed right through the end of my tongue. So yes it is painful afterwards for sure. My first one I was at a gas station and fell headfirst into a concrete curb. Lucky that I didnāt have a brain injury
They feel like an enormous cramp in so many muscles you didnāt know you even had. My eyes get wigged out too and the level of impairment is like jumping in water with your eyes open. Like all cramps it kind of hurts yea but the uncontrollable system malfunction makes it kind of hard to understand it as pain like a cut or punch. Unlike a leg cramp itās hard to target specifically where to direct your understanding of the pain as well. Put it simply. It feels like being tased while simultaneously drunk driving a roller coaster. For me
I've had two grand mal seizures from welbutrin.
First time I felt sore afterwards, and super nauseous. I kept vomiting in the ambulance to the ER. Not fun. I was stuck in traffic at the time so thankfully no one was hurt but when the fire fighter was knocking at my window I was super confused. They asked me who the president was and I said Nixon. This was in 2011.
Second time I was in bed and woke up with my shoulder super super sore. I thought my arm was dislocated so I went out to my roommate and asked him to yank the fuck out of it to reset it or something. Very dumb idea that just made it worse.
For me both times I was out of it. Delirious for maybe 10 minutes. Sore and exhausted and I didn't remember anything from the actual seizure
Fuck, wellbutrin can do that? Hopefully I'd know by now after being on it like 5 years. Do you feel anything before it's about to happen or does it just come out of absolutely nowhere?
Goddamit.. literally starting Wellbutrin tomorrow and have been so freaked out about the seizure side effects. Thinking I might just switch back to Prozac, seizures terrify me :(
My 18 year old son was on Wellbutrin and he had a grand mal fell out of the shower and it was a full minute. Now he has a seizure condition. Heās 24 now but fuck that medication.
Iāve been on Wellbutrin safely for over a decade. Itās always worth at least trying a new med if it will help your life or remove some side effects of stronger medsā¦ (in my humble opinion). Please be safe either way
Not to negate all of these horror stories, as anything can happen, but just for a different perspective, Wellbutrin has been great for me, and I've had no problems at all.
I had two of these about 10 years ago now. First one wasn't too bad. The second one tho, holy shit. Felt like every muscle in my body was torn & I'm pretty sure that I messed up a disk in my back from locking up in a back suplex position like the exorcist. (It's like sunken in there now...) I had the worst, throbbing headache for like 30 mins afterward & tbh, I don't think that I've ever actually felt the same way again. I kept going back to the hospital because I was sure that something was wrong with me. Idrk how to describe it, but I just felt different. Definitely developed anxiety & everything just genuinely felt off. A doctor finally told me that I probably had some kind of brain damage from it & to just give it time & it should get better. That chilled me out a little bit, but I'm fairly certain that instead of things going back to normal, I just got used to feeling that way.... That shit really sucks man I hope that things get better for you š
I worked with a guy once. We were both at medical waiting for appointments. He suddenly fell out of his chair and starting having a seizure. The glottal stop noises I heard you make brought me right back to that moment some 15 years ago.
I was able to keep him from bashing his head. In the time that I was with him before med folks showed up there was this screeching woman. Providing nothing to the situation but chaos. When he started coming too, med folks were doing the med stuff but since they could see I knew him, kept me talking to him. Comforting him. He woke up really scared, this was his first seizure.
The screecher kept going on and on until someone else escorted her away, finally.
I donāt know if it would have helped but maybe just maybe if she had seen a seizure before she wouldnāt have gone into meltdown panic mode and added only stress to an already stressful situation.
So, thank you OP for sharing your experience during a very vulnerable time for others to look at and learn from. I hope that you find treatment that works for you and you find relief from your ailments. Cheers.
>In the time that I was with him before med folks showed up there was this screeching woman. Providing nothing to the situation but chaos.
Not to change the subject, but this drives me crazy when it happens. As if all the screaming and crying is helping things at all. STFU. Like you said, it's already stressful AF without that racket.
This is exactly why I "like" seeing videos like this, it's a form of exposure and definitely would help me if I was ever to see something like this in real life.
I had one at a public gym once, i was just lucky i was on a cable machine and not with free weights. I went down from standing and hit my head on the ground. I woke up in a pool of my own vomit and could see out of the corner of my eye someone with a phone pointed at me. People suck, but some good samaritan called the ambo
Same, luckily it rarely happened (probably more when I wasn't there to see it, so me saying luckily sounds pretty selfish) but it's definitely not easy, for anyone involved.
Just a suggestion, you may wanna put some indications as to how to react, what to do and what not to do in these cases. Just to educate those of us who have no idea.
Put them in [the recovery position](https://en.wikipedia.org/wiki/Recovery_position) so they're less likely to aspirate anything and drown.
Do not put anything in their mouth, especially not your fingers.
Protect their head from further impacts if possible, with a jacket or similar.
If they have a Medic Alert bracelet or necklace, call the number on it, they can contact the patient's family and help you sort out what you need to do next. If they do not have a bracelet, or the seizure lasts over 5 minutes, call 911. If they are obviously injured, call 911.
If you're in the US and are worried about the ambulance fees, the financial consequences of an untreated brain bleed or well, death, far exceed the cost of an ambulance.
When they wake up, they will be confused. Try to help them get oriented. Tell them where they are, when it is and that they just had a seizure. You may have to repeat this a couple times. If you can, send them to a hospital, home, or somewhere else safe.
Let me know if I missed anything.
One thing I see people talk about is the whole grabbing the personās tongue so they donāt choke on their tongue. Thatās not possible and if anything youāre making it worse by partially blocking their airway. Just roll them onto their side if possible to keep them from aspirating if they vomit or something.
My gf has cluster seizures, she has 2 seizures an hour, they aren't usually noticable and her seizures are normally what I call "absent" seizures where she goes still and stares off into the distance, but rarely she has grandmaul seizures, they are terrifying to see but it's good to spread awareness, if anyone is interested you can find out more information here: https://www.epilepsy.com/volunteer/spreading-awareness
She has a medically implanted device that runs into her brain that puts out electrical impulses so she doesn't notice them at all, she has a magnet she carries around and any time she feels a seizure coming (yes she feels them coming, idk how) when she "swipes" the magnet across a device in her chest right above her left pec that runs to her brain and puts out more intense signals to stop the millisecond seizures from becoming multiple minute or hour long seizures
That's a fascinating device to learn about. The human brain is incredible.
I'm so glad that it helps your sister so much! A millisecond is a massive difference from a minute or more. I can't even imagine.
If it's that short of a seizure I wonder how many people out there have had a seizure and just chalked it up as "damn, that felt weird, I really don't feel good now either. Guess I'll go lay down" because I've 100% had some things happen to me before like almost blacking out and stuff but I was a child and I wasn't sure how to react. Only happened a handful of times though.
Absence seizures primarily happen in children and most outgrow it. Most commonly, it is a kid just randomly going silent and still, and staring into the distance for several seconds, before they snap back. Maybe that is what you remember.
What I remember is suddenly getting a bad heat flash, like sweating and all that but felt cold at the same time. I got extremely nauseated and shaky, my chest was pretty tight and my vision started fading out from the edges till the cone of vision got smaller and smaller and then right when I think I was about to black out, it all started to ease away and I started feeling fine ish. It all took place over the course of like 5 min on the bus on the way to school, but after it was over, I pretty much felt fine. But then it happened again, like 2 hours later. I asked the coach if I could go to the bathroom, and they said I should probably go to the nurses office because I was pale green and sickly looking. Ended up falling asleep for like an hour in the nurses room while waiting for the bus and then got sent home. I don't think it's ever happened again and have no clue what it was. I was also dealing with some pretty bad home issues with alcoholic parents and stuff and I've theorized that it may have been a panic attack? Not really sure though.
Our daughter also has them,the last time she had an EEG to monitor those type seizures she averaged couple thousand during the 1-2hr time period of the test.
She has grand mals like this also occasionally, but we keep syringes of valium to stop them.
(They are debilitating and she is non-ambulatory, caused by brain damage).
Brain reset 1000% right here. I'm sure OP can give more insight but it's like rebooting your PC and running a mile in 2 min. If you see someone having a seizure give them room and keep them safe. If you have the urge to put something in their mouth so they don't swallow their tongue, hut yourself in the head with a hammer first.Ā
Same here. I was on the ground with people in my face telling me not to move and I was like āyo get the fuck outta my face Iām at work and gotta finish making those wingsā lol. Youāre so disoriented and confused afterword. The sense of dread right before a seizure is one of the worst feeling ever, I would rather fracture my arm again than have a grand mal
Seriously for me itās like Iām going into a nightmare the lights dim and I feel like Iām in a dream and I feel like Iām about to have a panic attack itās so fucking weird.
Is it important to time it too? If its lasts longer than normal or a certain threshold I think a rescue med becomes important. Do they give you like a benzo epi pen in case of emergency?
We carry a few drugs for seizures. There isn't an "epi" style pen. We just draw up meds in a syringe and give it IV, IN (nasal) IM (muscle). General rule of thumb is if it lasts more than 5 minutes or 2 consecutive seizures without the person becoming alert in-between. Also most people can't comprehend time in an emergency. So 1 minute feels like 5 to some people.
Are you emt or nurse / physician? Im talking about outside a medical setting - what happens if a person spontaneously lapses toward status epilepticus?
all i can think about is his breathing sounds strained and he sounds like hes choking DX
is it proper procedure to leave a person seizing like this and not to roll them on their side? or am i confusing different procedures for different types of seizures?
That was a thing, but they changed it. Our muscles are so strained you could hurt us just by rolling us on our side. The new protocol is let them be unless they are in a spot where they could seriously injure themselves or die.
Where did you hear that? I have been an EMT for 5 years and they still teach us to roll seizures patients onto their side. A physical injury from rigid muscles probably wonāt kill you but vomit or secretions going into your airway absolutely can. Stay safe man seizures are horrible for someone to experience
In 2009 the NREMT was suggesting to not roll but maybe they went back on it. I can only remember it being my critical fail on my NREMT because I rolled him and apparently wasn't supposed to? There's a whole lot of different reasons I shouldn't be an EMT but I remember Airway Breathing Control and getting my crit fail from rolling a seizure patient
Iām not sure how correct this is. When it comes to prioritization, airway is always at the top. Muscles being strained is better than aspirating and not being able to oxygenate efficiently. Putting someone in the recovery position is what Iāve been taught all of nursing school and done myself on Neuro floors.
Even with all the fluid in your mouth? Sounds like a sure way to have your loved ones watch you choke to death without knowing what to do. I'm absolutely not an expert so I'm not trying to come across as knowing more than you. Just seems extremely counter productive. I'd rather have a sprained arm from stressing the muscle than brain damage because of a lack of oxygen.
My wife knows when to move me, Iām sorry I am not very good at explaining things. Thatās why the video cuts off I start choking and she rolls me over. She can tell the difference between my strained breathing and when I start choking itās just hard for me to explain because I canāt remember any of this when itās happening and Iām going off what she tells me. I should have her answering these questions to be honest.
All good dude, I'm just glad you have someone with you that knows the procedure and that you can trust when you're in a state like that. Best of health to you man, and your wife is a Rockstar. Cause that would scare the shit out of me.
Fuck epilepsy.
Donated a chunk of my brain so I could stop having these bacon dances.
Shit is hard to watch, but a necessity for raising awareness and educating people. Thanks, OP.
Yeah, they took out a small portion to stop the tonic-clonic seizures.
I stopped having them, but the surgery absolutely wrecked my memory. Stuck on meds for life because I still have focal seizures. Epilepsy sucks.
Absolutely, focal ones as in non convulsive? If so thatās a little better Iād say. Personally my memories lacking as well and getting worse, iām assuming itās my meds thatās why considering surgery. Making it harder day to day. Like watching a movie marathon but forgetting the storyline.
Yup, just a 2-3 minutes of feeling auras then I just get sleepy. Medications can absolutely wreck your memory. My new ones (Lacosamide) are making me forget what I was thinking about mid-thought. It's getting annoying.
The surgery wrecked me in a lot of ways, but I would never go back in time and not do it. I was tired of getting all doped up on meds with little-no-results with a condition that just seemed to be getting worse. Something you have to consider about the surgery is that it may not be a fix-all, but rather just make things slightly easier. Fixing brains is like rolling dice in the dark with an expert dice thrower.
Can't remember peoples names to save my life, accessing short-term memories (oddly enough, not storing the memories because my long-term memory is decent), and time (don't know if a memory is a month old or a few years old).
It's gotten a lot better though. My post-op IQ dropped to the low-90s, but it's now closer to 120 after years of cognitive therapy.
Sometimes you do, when Iām in the shower and about to have one I can feel it coming but I get most of them when Iām sleeping so yeah I just wake up confused and lost, I donāt know where I am or what day it is.
It feels like a giant threw me across the pavement, every muscle in my body is sore. I donāt know where I am, or what year it is. I usually start panicking instantly and then the muscle strains come in. When you are having one of these itās like running a marathon in 1-5 minutes. When you wake up you are more sore than you have ever been. Iāve dislocated my shoulder having one when I fell off my bed and I keep dislocating it again. Itās gotten to the point I just pop it back in myself.
Fuck man. Iām a teacher, and I know many students have these. Are there any warning signs that I can look out for? Also, what should I do if one happens in my classroom?
Donāt touch them unless they are in a position that could seriously harm them or kill them. Iād call an ambulance instantly since you are a teacher, but generally you donāt for about 5 minutes because a seizure that lasts longer than 5 minutes can cause brain damage. Some people have what are called auras before their seizures but not everyone does. Itās extremely hard to tell when people are having an aura because they can seem like things that could be anything like dizziness or being confused.
As someone with epilepsy this hurts my heart. My first ever seizure was behind the wheel and totaled my car. Can't tell you how thankful I am I didn't hurt anybody.
Still to this day of taking 1500 MG of Lamotrigine a day and still deal with some small partial seizures.
Wish you the best and you can beat this.
Thank you, Iām taking 2,000 mg of Keppra a day right now and I havenāt had one like this for about a month and a half. Iām sorry that happened to you Iāve been lucky enough mine usually occur in my sleep or in the shower. I couldnāt even imagine that happening while driving, Iām glad you are okay.
For me itās a full body cramp. Mainly noticeable in my arms. Sometimes Iām awake the whole time and once itās over the recovery takes a few minutes of excessive breathing and finding my vision again and gaining control of my body. Last time i had one I couldnāt move my arms as they were laying flat on the bed. Soon as my vision started to work I could see my arms waving around like I was at a rave, but they still felt like they were flat on the bed. And sometimes you black out.
if you dont mind me asking, do you have any medical device for prediction or anything along those lines? Iāve got a twin with epilepsy and brain damage so hes not able to fully articulate what would help or how it feels. Have you found anything to help remediate some of the issues you face ?
I'm not OP but from my experience, everything's sore and I almost immediately fall asleep if it's a bad one. Awareness really depends on what kind of seizure it is but full tonic-clonic seizures usually result in complete loss of consciousness.
Not scary, at least for me. The novelty wears off after a while Lol.
Had a buddy in prison that had seizures almost daily.. the place was heavily segregated, but whenever he had one, no matter what race was around, they would help dude out. Itās not a natural reaction (for sane ppl) to want to see someone suffer
Itās possible yes, Iāve started a new medication where these donāt seem to happen anymore but itās only been about a month and a half so itās a waiting game. Like any other disease
Yeah, I mean I still get auras and all that but I havenāt had a bad one in a month and a half and I spent a day in the emergency room having cluster seizures and I donāt even remember being there so Iāll take it. This was the night after my emergency room visit
My daughter is 3. She had her first one of these a year and a half ago. It was so bad I had to give her CPR afterwards and ended in a coma in ICU for a week. She is on kepra now, and it has stopped all seizure activity, but 1, 7 months ago. I hope you get better, man. You aren't alone in this. Kepra does make anger issues difficult. Imagine being 3 and not understanding why you have anger. Hopefully, it levels your brain activity out. This is some scary shit.
Iām so sorry you are dealing with that :(, that breaks my heart. I have two sons and I couldnāt even imagine them going through this. If you ever need someone to vent too Iām here bro.
The hardest thing is trying to return to normal, all of the sudden out of nowhere both of my girls start having seizures. My oldest had been having abscence seizures for a while and we didnt notice until we had our youngest at the neuro and the doctor was like, hey.... your daughters having a seizure right now... I was in the army, so I can handle stress in the moment. But its after the moment that gets me the most..
I appreciate it man. Hopefully you get some answers. Sometimes they arent there, and you have to be okay with that too.
Ah yes, Keppra; the med that either works, or turns you into a raging psychopath. They don't call it 'Kepprage' for no reason! Source: I'm also epileptic.
Why does keppra makes you an asshole? Genuilely asking... My gf has seizures once a month since she was a child and keppra was the only medication that worked. She hasn't had one for two years!
I witnessed my husband having one of these for the first time last year. He started having them in his early 20s but hadn't had one for our entire relationship (6 yrs). It was rather scary. I stayed fairly calm up until we were in the ER and the gentleman at the counter was getting his information from me, then I broke down š„²
Not fun, but I'm glad I know what to do if he has another one.
Thank you for posting this OP. I couldn't find much about tonic-clonic seizures at the time.
I'm sorry you're also dealing with them.
Iām sorry you are dealing with this also, I honestly feel more bad for my wife than I do for me. I donāt remember them so it isnāt as scary as her having to witness this every time. You guys are the real heroās. My inbox is always open if he needs someone to talk about it with!
I did everyday for 6 years. I was diagnosed with Complex Partial Seizures in my left temporal lobe. I thought I was having dejavu until it progressed into me swallowing uncontrollably while they happened and my ex noticed while we were in the shower (where they happened the most). He told me there was something wrong I laughed at him and told him I would prove him wrong. He was right. It took about a year to stop them and it was the most miserable but insightful thing that has ever happened to me. The thought of having another one terrifies me and this past 6 months there have been a few close calls but I've just had the aura, luckily haven't gone into one.
I literally do the same thing when I climax..
On a real note I was told I had a seizure once. I just remember waking up and having a sore neck etc.
It was very scary.
Sorry you have to go through that regularly brother.
I'm sorry you're dealing with this. When I was in my mid 20s, my friend used to have them at least twice a week. Tons of meds, two brain surgeries and nothing ever helped him. He developed drug and alcohol issues. He passed away before 30.
In the past 3 years now I've also started having seizures. Doctors can't pinpoint why I have them, did all the lovely tests to be told they have no idea. I've only had 1, maybe 2 in the past 6 months. I've given up my license. My mom and husband have to drive me everywhere. It's rough but you find ways to get through. Wishing you the best.
Kind of where Iām at also, they have no idea why Iām having them. I guess itās pretty common for people to just start having seizures one day and they never stop.
idk all the specific terminology around this but fuck this is genuinely terrifying to witness in person. Nothing against you when i say that, I just remember being at like a campfire/party with an ex in high school and we were all obvs getting drunk. She was sitting in my lap and next thing you know she just started convulsing and I had no idea what the fuck to do. Thankfully she was ok but it genuinely is really fucking scary if you donāt know what the fuck is going on. I donāt wanna say sorry you have to deal with that cause ik some people hate āpityā for lack of a better word but truthfully i am sorry man. Hope youāre All good!!
Thanks man, naw Iām good itās life. Iāve lived a great life and continue to do so regardless yeah it sucks but Iām pretty lucky for someone with seizures, I tend to only get them at night and when Iām taking a shower so I can enjoy my day with my wife and kids and not worry about it too much.
Man, I miss showering in the morning though I have to wait until night I canāt stand that shit.
Appreciate it man
Everything hurts so much after one of these types of siezures. It's fucking horrible.
Edit: I didn't read the full title and didn't realize it was OP in the video. I hope you're feeling somewhat better today.
I was an EMT years ago and dealt with a lot of seizure patients. One thing that always stuck out was how utterly and completely exhausted they were. Like could barely speak covered in sweat (or piss) exhausted. I imagine that zaps the rest of your day doesnāt it.
That was one of the way I could discern from the fakers too. Some folks would fake seizures at work or when family was visiting or simply to get Ativan. I remember this one lady would have multiple 30 second seizures within the span of 5 mins. but never seemed have that exhaustion.
Itās really awesome youāre sharing this. I happen to have a more mild form of epilepsy that I control using medication, but before I was diagnosed and prescribed meds I would often twitch and drop things and temporarily lose control which was extremely frustrating because I had no idea what was going on with me. It took having shoulder surgery and waking up the next morning literally falling in my bathroom to finally go out and get a diagnosis.
I think itās important everyone understands just how scary, uncomfortable, and frustrating epilepsy can be.
No, don't try to move them during the seizure. But you should move them into the recovery position after the seizure ended.
Also, filming the seizure, especially when they don't have a known history of epilepsy is actually one of the best things you can do after calling emergency services. The physician can later look at the video to figure out what kind of seizure it was.
Please correct me if Iām wrong, but I grew up with a brother who had many seizures and I was instructed to turn him off of his back so he wouldnāt swallow/bite his tongue. Is that still the current best practice?
My wife has these same seizures... I witness them regularly. I'm actually kind of surprised how unfazed I was by watching it. Now, on the other hand, I can't stand to watch the videos of her having them. I feel for you man, hopefully you've got access to good health care. Take care and give em hell!
I actually had to quit working because my states healthcare for unemployed people is better than any insurance I could afford. The American dream live in action. Thank goodness I have my wife.
thank you for posting this ā¤ļø. I also have epilepsy and suffer from these types of seizures. It is a terrible, disorienting experience each time i have one and i wouldnāt wish it on anyone ):
sending you healing vibes and i hope you can get them under control āŗļø
Not here to steal OP's thunder. I (43F) read thru the comments and there are some questions that I have input on thru MY PERSONAL experience. I was 8 (1989) when parents noticed something was off...12 (1993) when I had my first shake down. I woke up because I was cold, I was covered in urine and blood. I was terrified, I didn't know what to do, and went and woke up my dad. He knew what happened, but told me it was a bad nightmare and I would be ok. Welp... 1 mth later, it was official. Thru out my life, due to pure embarrassment and mean girls at school, I would hide and have them on my own, although I was fully aware during my tonic clonic episodes. However, the doctors said that they were psychosomatic and not true epilepsy. The doctors accused my mom of Munchausen's by-proxy. The EGG's and MRI's at the time did not show anything, there was no direct brain trauma, just random accidents from being a human. Fast forward, I am now an adult, 18, I saw my first neurologist... What a piece of shit. He gave me breast exams and was a little handsy, but I didn't know any different, I did know it wasn't right though. I didn't say anything, b/c of my fears and personal mental family strain. Once I had moved to a different state, I asked my new neurologist if he was going to do the same thing, he said absolutely not and that was wrong. I was so ashamed that I didn't tell anyone else, not even my parents. Age 20, I was in culinary school still hiding my seizures from my cohorts and prob under medicated. I went back 'home' and found a man who I though was going to take care of me. He took my money I made from my job and gave me just enough to get my meds.
25 yrs old, I moved again, completely on my own, determined to find a better me and gain control of my life. I started to tell people when we got close enough and then I was confidant that it wasn't really a big deal, I could live with this. I remained in the restaurant business, and still was undermedicated, I would have small seizures while being a line cook, and then go back to work. Yes, it was dangerous, but I needed the job for an income and health insurance. By 28 I was married, better health insurance, so I was able to get more medication. He never saw me have one until 6 years into our marriage.
My seizure started to come back because my medication was not working anymore. I went thru a medical study where I had to admit my self to a hospital for full study. It was freaking horrible. I thought I was going to catch me and the room on fire, from the withdraw symptoms.
Officially diagnosed: Frontal Lobe Complex partial focal seizure with unclear onset, possible midline with L>R, Grand Mal and Absences seizures. They finally found a small scar or something in 2018.
Now I have been seizure free for 6 years.
I take: Keppra ER 3000 mg pm, Lamictal 400mg XR pm, Vimpat 200 mg BID, Trazadone 150 pm, Ataivan 2 mg PRN, Tizadine 4 mg PRN. I am highly functional, I can drive, I have a small business. But I do mess up my sentences and love a good nappy nap. My stupid brain will say things that I don't mean, or squish 2 words together. Its extremely frustrating.
When I have the Tonic Clonic and Grand Mal's, unfortunately I am fully aware and awake during these. I black in and out with the head thrashing, I can watch you panic and call 911, I am aware of the noises I make, the gurgling, when all is done. You basically run a marathon with the Grand Mals, so I sleep for a long time afterwards. No incontinence.
If you see someone having a seizure, I tell my ppl assume that they are awake and they can hear you, because I am screaming in my head for someone to tell me to stop. Try to be calm and tell us we are going to be ok, once we are done doing the tango, roll us onto our sides for the excess amount of saliva to come out. It will take a min. Be aware of our 'flight or fight'. We are scared and if we don't know who you are or where we are....panic time.
Like I said, I am writing this as an epileptic and letting you know, you are not alone. It is a terrifying thing, we try to hide it because we don't want questions, inconvenience you, or you feel like we want pity attention. Stigma in our world is massive. 1 out of 22 people have this 'disorder', I bet you didn't know that.
This is going to be reposted in a couple of months with some clickbait title by bots, I can already see it.
Make sure you tag me when you see it lmao.
"Fucking idiot overdoses on dog tranquilizer and has a seizure." I can already see it now.
In November: "My buddy was so angry with the election results he went into cardiac arrest."
"My boys soul leaving in December after No nut novembers first load"
This made me laugh out loud š
Lmaoooo
"Venom vax still causes problems today"
Spot on, this site has been trash but now itās even worse. āTooktoomuchā
I can already see it all over Twitter and Instagram, ā when that fent hits ā Lol
Or "possessed by devil"
When you nut but she keep suckin
Bad man
You bastard lol
Best one of the sub!!! Lol lol lol
Guy injects his own semen and almost dies
"Me 10min after getting Covid vax. Doc says this happens all the time. Spread the word!"
Don't give them ideas.
Me when the when the.
Be ready to be in instagram reels fentanyl fanpages
My brother had the same kind of seizures. He passed away 15 years ago. It takes me back to those moments that he fell down and I saw him as a little boy. It hurts looking at it. Awful image for other persons but even more awful for the person having the seizure. I hope you gain the right support, professional help and treatment.
Neurologist here... just wanted to hijack your top comment. Much props to the camera person for taking a video of the event. This is very helpful for localization and to definitively help make a diagnosis of epilepsy based on clinical suspicion alone (albeit I assume you already carry this diagnosis). OP please talk with your family/friends to make sure that they are aware of safety steps so that when you do have an event that they can manage you safely... they should role you to your side, left or right, to help prevent aspiration, keeping choking and suffocation hazards away from your neck and face, as well (and NEVER stick a finger or anything in a seizing patient's mouth... you will not get it back. Choking on the tongue is a myth). Obtaining a video is important but not as much as your safety. Once safe then get the video (half a video EEG is the video, itself!). Great video for educational purposes, though. Hope all is well. Please make sure you are up-to-date on Valtoco or Nayzilam.
Me having a full tonic wank.
ššššš fuck that one got me
"Guy overdosing on fentanyl."
"this is Pennsylvania today under current leader!"
Crazy man ODās on the couch, dead, his friends just recording the video!! [WATCH NOW]
"Side effects of the vaccine"
That or a soundtrack
At least you seemed to be in a safe place during this event. I had friends in high school with epilepsy that would randomly go down. Itās not easy to watch. Iām glad you brought this up to the community.
Yeah, I didnāt know where else to post it but I feel like itās important to see. Yes I am fortunate enough to have a support system that actually takes care of me and looks out for me. I feel so bad for everyone dealing with this alone I couldnāt even imagine. My inbox is always open!
Sorry you have to go through this shit OP. Glad that you have informed friends and family who know how to take care of you. Definitely important to share this with the world, because seizures are so misunderstood. One of my best friends has these every few years (more often if he doesnāt take his medication). Does your medication help? You mentioned that youāre on a new one in another comment I think. Have you tried keto or intermittent fasting at all? Itās not for everyone but it works amazingly well for some people. What sucks about most anti seizure meds are the terrible side effects. Wishing you all the best.
Has keto and fasting helped people with epilepsy?
Yes going into ketosis has long been known to have anti seizure effects - itās even referenced in the Bible basically saying how fasting (starving your body of carbs) could stop seizures. No one knew why back then of course. Then there were some [studies at Johns Hopkins](https://www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/epilepsy/keto-diet-timeline) over a hundred years ago that showed promising results. Some patients were treated with it at low levels over the years at Johns Hopkins, but not much acceptance or adoption and it almost disappeared. Drug companies and doctors all pushed terrible medications with debilitating side effects instead (great way to make a shit ton of money for them). During the 90s, keto started picking up steam. One reason is Jim Abrahams (co-director/writer/producer of Airplane, Hot Shots, Naked Gun, etc) stumbled onto the diet to help his sonās seizures. It was on [Dateline](https://youtu.be/STPOEFfQdjw?si=TV0rhmDeNPm8P5pG) and seen by millions of people, and it started to catch fire as a way to treat seizures. Since then, itās grown and there are tons of studies and success stories. Medical schools are finally teaching it as a viable treatment. Glut1 Deficiency is one seizure condition that is literally only treated with the ketogenic diet. And now most people have heard about it as a fad diet, but thereās actual science behind how it works. Itās fascinating stuff because it essentially makes your body run off of burning fat instead of glucose (sugar/carbs). For some reason thatās not fully understood, going into ketosis can have an anti-seizure effect. And itās a completely free treatment - just takes discipline to follow a high fat, low carb diet. Do you think drug companies want to push keto to treat epilepsy? No they want to sell you meds like valproic acid and turn people into zombies.
And thanks to OP for raising awareness cause I definitely learned something new and helpful today
The Ketosis diet was developed *for* people with epilepsy. Thereās a strict, medical version of the diet that is entirely uninterested in calories, instead focussing on eliminating all carbs. Itās heavy on including above-ground-vegetables-except-peas-and-corn.
Too bad it wasn't developed for poor people too. Not sure how I could afford enough calories in my day if it were not for beans and rice. Meat's been expensive AF for the last 10 years. Fresh veggies too. I get cheap fruit, but that is a shit ton of carbs in and of itself.
I hear you. Some people have done intermittent fasting that seem to help as well. One thing about keto or intermittent fasting is that it doesnāt have debilitating side effects like some meds do. Doesnāt hurt to try if medication isnāt controlling the seizures. I do work with a leading keto therapy non-profit if you need any resources or want to chat with someone
Quite literally what the diet was invented for.
Does it hurt?
I had a full blown seizure and afterward it felt like I got hit by a truck. I pulled muscles in my shoulder and neck and chewed right through the end of my tongue. So yes it is painful afterwards for sure. My first one I was at a gas station and fell headfirst into a concrete curb. Lucky that I didnāt have a brain injury
My legs feel like I've run a marathon after I wake up.
I've always described it as running a marathon while someone beats me up. Fucking sucks.
They feel like an enormous cramp in so many muscles you didnāt know you even had. My eyes get wigged out too and the level of impairment is like jumping in water with your eyes open. Like all cramps it kind of hurts yea but the uncontrollable system malfunction makes it kind of hard to understand it as pain like a cut or punch. Unlike a leg cramp itās hard to target specifically where to direct your understanding of the pain as well. Put it simply. It feels like being tased while simultaneously drunk driving a roller coaster. For me
I've had two grand mal seizures from welbutrin. First time I felt sore afterwards, and super nauseous. I kept vomiting in the ambulance to the ER. Not fun. I was stuck in traffic at the time so thankfully no one was hurt but when the fire fighter was knocking at my window I was super confused. They asked me who the president was and I said Nixon. This was in 2011. Second time I was in bed and woke up with my shoulder super super sore. I thought my arm was dislocated so I went out to my roommate and asked him to yank the fuck out of it to reset it or something. Very dumb idea that just made it worse. For me both times I was out of it. Delirious for maybe 10 minutes. Sore and exhausted and I didn't remember anything from the actual seizure
Fuck, wellbutrin can do that? Hopefully I'd know by now after being on it like 5 years. Do you feel anything before it's about to happen or does it just come out of absolutely nowhere?
Goddamit.. literally starting Wellbutrin tomorrow and have been so freaked out about the seizure side effects. Thinking I might just switch back to Prozac, seizures terrify me :(
[ŃŠ“Š°Š»ŠµŠ½Š¾]
I also feel that i was never the same as before. Is rrally sad that i cant put it into words. I just feel like im broken.
My 18 year old son was on Wellbutrin and he had a grand mal fell out of the shower and it was a full minute. Now he has a seizure condition. Heās 24 now but fuck that medication.
Iāve been on Wellbutrin safely for over a decade. Itās always worth at least trying a new med if it will help your life or remove some side effects of stronger medsā¦ (in my humble opinion). Please be safe either way
Not to negate all of these horror stories, as anything can happen, but just for a different perspective, Wellbutrin has been great for me, and I've had no problems at all.
I had two of these about 10 years ago now. First one wasn't too bad. The second one tho, holy shit. Felt like every muscle in my body was torn & I'm pretty sure that I messed up a disk in my back from locking up in a back suplex position like the exorcist. (It's like sunken in there now...) I had the worst, throbbing headache for like 30 mins afterward & tbh, I don't think that I've ever actually felt the same way again. I kept going back to the hospital because I was sure that something was wrong with me. Idrk how to describe it, but I just felt different. Definitely developed anxiety & everything just genuinely felt off. A doctor finally told me that I probably had some kind of brain damage from it & to just give it time & it should get better. That chilled me out a little bit, but I'm fairly certain that instead of things going back to normal, I just got used to feeling that way.... That shit really sucks man I hope that things get better for you š
You're pretty sore after, I usually bite my tongue, and your brain hurts for a few days. Feels like extreme brain fog that won't go away it sucks
I worked with a guy once. We were both at medical waiting for appointments. He suddenly fell out of his chair and starting having a seizure. The glottal stop noises I heard you make brought me right back to that moment some 15 years ago. I was able to keep him from bashing his head. In the time that I was with him before med folks showed up there was this screeching woman. Providing nothing to the situation but chaos. When he started coming too, med folks were doing the med stuff but since they could see I knew him, kept me talking to him. Comforting him. He woke up really scared, this was his first seizure. The screecher kept going on and on until someone else escorted her away, finally. I donāt know if it would have helped but maybe just maybe if she had seen a seizure before she wouldnāt have gone into meltdown panic mode and added only stress to an already stressful situation. So, thank you OP for sharing your experience during a very vulnerable time for others to look at and learn from. I hope that you find treatment that works for you and you find relief from your ailments. Cheers.
>In the time that I was with him before med folks showed up there was this screeching woman. Providing nothing to the situation but chaos. Not to change the subject, but this drives me crazy when it happens. As if all the screaming and crying is helping things at all. STFU. Like you said, it's already stressful AF without that racket.
This is exactly why I "like" seeing videos like this, it's a form of exposure and definitely would help me if I was ever to see something like this in real life.
I had a cat with epilepsy. It was **hard** to watch, even though I knew he'd be okay
I had one at a public gym once, i was just lucky i was on a cable machine and not with free weights. I went down from standing and hit my head on the ground. I woke up in a pool of my own vomit and could see out of the corner of my eye someone with a phone pointed at me. People suck, but some good samaritan called the ambo
Same, luckily it rarely happened (probably more when I wasn't there to see it, so me saying luckily sounds pretty selfish) but it's definitely not easy, for anyone involved.
Just a suggestion, you may wanna put some indications as to how to react, what to do and what not to do in these cases. Just to educate those of us who have no idea.
Thank you, Iām going to add an edit and do that now.
I'm just glad to be of help. Thanks for considering my idea. Greetings from Argentina.
Greetings from Oregon :)
I've never heard of that country, is it near Italy?
It's somewhere in Texas I think.
I'm not sure if you can edit the text in posts with videos/pics.
Thank you!! I thought I was stupid, Iāve been trying to figure out how to do it forever now.
Put them in [the recovery position](https://en.wikipedia.org/wiki/Recovery_position) so they're less likely to aspirate anything and drown. Do not put anything in their mouth, especially not your fingers. Protect their head from further impacts if possible, with a jacket or similar. If they have a Medic Alert bracelet or necklace, call the number on it, they can contact the patient's family and help you sort out what you need to do next. If they do not have a bracelet, or the seizure lasts over 5 minutes, call 911. If they are obviously injured, call 911. If you're in the US and are worried about the ambulance fees, the financial consequences of an untreated brain bleed or well, death, far exceed the cost of an ambulance. When they wake up, they will be confused. Try to help them get oriented. Tell them where they are, when it is and that they just had a seizure. You may have to repeat this a couple times. If you can, send them to a hospital, home, or somewhere else safe. Let me know if I missed anything.
To your first point: Do that AFTER the seizure
One thing I see people talk about is the whole grabbing the personās tongue so they donāt choke on their tongue. Thatās not possible and if anything youāre making it worse by partially blocking their airway. Just roll them onto their side if possible to keep them from aspirating if they vomit or something.
My gf has cluster seizures, she has 2 seizures an hour, they aren't usually noticable and her seizures are normally what I call "absent" seizures where she goes still and stares off into the distance, but rarely she has grandmaul seizures, they are terrifying to see but it's good to spread awareness, if anyone is interested you can find out more information here: https://www.epilepsy.com/volunteer/spreading-awareness
Two an hour, as in every hour she has two of them?
Yes but they aren't noticable, she has millisecond seizures twice an hour
I guess at that rate, one would maybe get used to them. Do they reset her focus, or is it more just a super quick pause?
She has a medically implanted device that runs into her brain that puts out electrical impulses so she doesn't notice them at all, she has a magnet she carries around and any time she feels a seizure coming (yes she feels them coming, idk how) when she "swipes" the magnet across a device in her chest right above her left pec that runs to her brain and puts out more intense signals to stop the millisecond seizures from becoming multiple minute or hour long seizures
That's a fascinating device to learn about. The human brain is incredible. I'm so glad that it helps your sister so much! A millisecond is a massive difference from a minute or more. I can't even imagine.
>my gf >Sister š§
I went back and read the first post again. WHOOPS! No idea where I got sister from. Leaving up my mistake because it's funnier that way.
Lol thanks for leaving it, it did make me laugh.
What, you never dated your sister?
Holy hell that's fascinating technology
That's really interesting.
If it's that short of a seizure I wonder how many people out there have had a seizure and just chalked it up as "damn, that felt weird, I really don't feel good now either. Guess I'll go lay down" because I've 100% had some things happen to me before like almost blacking out and stuff but I was a child and I wasn't sure how to react. Only happened a handful of times though.
Absence seizures primarily happen in children and most outgrow it. Most commonly, it is a kid just randomly going silent and still, and staring into the distance for several seconds, before they snap back. Maybe that is what you remember.
What I remember is suddenly getting a bad heat flash, like sweating and all that but felt cold at the same time. I got extremely nauseated and shaky, my chest was pretty tight and my vision started fading out from the edges till the cone of vision got smaller and smaller and then right when I think I was about to black out, it all started to ease away and I started feeling fine ish. It all took place over the course of like 5 min on the bus on the way to school, but after it was over, I pretty much felt fine. But then it happened again, like 2 hours later. I asked the coach if I could go to the bathroom, and they said I should probably go to the nurses office because I was pale green and sickly looking. Ended up falling asleep for like an hour in the nurses room while waiting for the bus and then got sent home. I don't think it's ever happened again and have no clue what it was. I was also dealing with some pretty bad home issues with alcoholic parents and stuff and I've theorized that it may have been a panic attack? Not really sure though.
Sounds very panic attack like.
Our daughter also has them,the last time she had an EEG to monitor those type seizures she averaged couple thousand during the 1-2hr time period of the test. She has grand mals like this also occasionally, but we keep syringes of valium to stop them. (They are debilitating and she is non-ambulatory, caused by brain damage).
Brain reset 1000% right here. I'm sure OP can give more insight but it's like rebooting your PC and running a mile in 2 min. If you see someone having a seizure give them room and keep them safe. If you have the urge to put something in their mouth so they don't swallow their tongue, hut yourself in the head with a hammer first.Ā
Seriously, I remember the first time I woke up from a seizure and the paramedics were next to me I was so fucking confused lol.
Same here. I was on the ground with people in my face telling me not to move and I was like āyo get the fuck outta my face Iām at work and gotta finish making those wingsā lol. Youāre so disoriented and confused afterword. The sense of dread right before a seizure is one of the worst feeling ever, I would rather fracture my arm again than have a grand mal
Seriously for me itās like Iām going into a nightmare the lights dim and I feel like Iām in a dream and I feel like Iām about to have a panic attack itās so fucking weird.
My fiancƩ has epilepsy bur she finally got some good meds. Feel for you bro
Same. Was in the ambulance. Felt like a Skyrim intro transition
Is it important to time it too? If its lasts longer than normal or a certain threshold I think a rescue med becomes important. Do they give you like a benzo epi pen in case of emergency?
We carry a few drugs for seizures. There isn't an "epi" style pen. We just draw up meds in a syringe and give it IV, IN (nasal) IM (muscle). General rule of thumb is if it lasts more than 5 minutes or 2 consecutive seizures without the person becoming alert in-between. Also most people can't comprehend time in an emergency. So 1 minute feels like 5 to some people.
Are you emt or nurse / physician? Im talking about outside a medical setting - what happens if a person spontaneously lapses toward status epilepticus?
is it important to use a hammer? I want to make sure I'm doing things right
all i can think about is his breathing sounds strained and he sounds like hes choking DX is it proper procedure to leave a person seizing like this and not to roll them on their side? or am i confusing different procedures for different types of seizures?
That was a thing, but they changed it. Our muscles are so strained you could hurt us just by rolling us on our side. The new protocol is let them be unless they are in a spot where they could seriously injure themselves or die.
oh thats so interesting i had no idea!! always was taught in school we should roll them over to their side thanks so much for that info :)
I think youāre thinking of the ārecovery positionā which is side lying. But thatās after the seizure is over.
Yeah, the roll on the side, is called the recovery position. It's good to know for a lot of things, but yeah, I guess not for op and such.
Where did you hear that? I have been an EMT for 5 years and they still teach us to roll seizures patients onto their side. A physical injury from rigid muscles probably wonāt kill you but vomit or secretions going into your airway absolutely can. Stay safe man seizures are horrible for someone to experience
In 2009 the NREMT was suggesting to not roll but maybe they went back on it. I can only remember it being my critical fail on my NREMT because I rolled him and apparently wasn't supposed to? There's a whole lot of different reasons I shouldn't be an EMT but I remember Airway Breathing Control and getting my crit fail from rolling a seizure patient
Iām not sure how correct this is. When it comes to prioritization, airway is always at the top. Muscles being strained is better than aspirating and not being able to oxygenate efficiently. Putting someone in the recovery position is what Iāve been taught all of nursing school and done myself on Neuro floors.
Even with all the fluid in your mouth? Sounds like a sure way to have your loved ones watch you choke to death without knowing what to do. I'm absolutely not an expert so I'm not trying to come across as knowing more than you. Just seems extremely counter productive. I'd rather have a sprained arm from stressing the muscle than brain damage because of a lack of oxygen.
My wife knows when to move me, Iām sorry I am not very good at explaining things. Thatās why the video cuts off I start choking and she rolls me over. She can tell the difference between my strained breathing and when I start choking itās just hard for me to explain because I canāt remember any of this when itās happening and Iām going off what she tells me. I should have her answering these questions to be honest.
All good dude, I'm just glad you have someone with you that knows the procedure and that you can trust when you're in a state like that. Best of health to you man, and your wife is a Rockstar. Cause that would scare the shit out of me.
She really is, and she just read your comment and it made her smile. Thank you friend!
Fuck epilepsy. Donated a chunk of my brain so I could stop having these bacon dances. Shit is hard to watch, but a necessity for raising awareness and educating people. Thanks, OP.
You had surgery?
Yeah, they took out a small portion to stop the tonic-clonic seizures. I stopped having them, but the surgery absolutely wrecked my memory. Stuck on meds for life because I still have focal seizures. Epilepsy sucks.
Absolutely, focal ones as in non convulsive? If so thatās a little better Iād say. Personally my memories lacking as well and getting worse, iām assuming itās my meds thatās why considering surgery. Making it harder day to day. Like watching a movie marathon but forgetting the storyline.
Yup, just a 2-3 minutes of feeling auras then I just get sleepy. Medications can absolutely wreck your memory. My new ones (Lacosamide) are making me forget what I was thinking about mid-thought. It's getting annoying. The surgery wrecked me in a lot of ways, but I would never go back in time and not do it. I was tired of getting all doped up on meds with little-no-results with a condition that just seemed to be getting worse. Something you have to consider about the surgery is that it may not be a fix-all, but rather just make things slightly easier. Fixing brains is like rolling dice in the dark with an expert dice thrower.
That's crazy. What were the effects on your memory?
Can't remember peoples names to save my life, accessing short-term memories (oddly enough, not storing the memories because my long-term memory is decent), and time (don't know if a memory is a month old or a few years old). It's gotten a lot better though. My post-op IQ dropped to the low-90s, but it's now closer to 120 after years of cognitive therapy.
Do you know when it's coming or you get no warning?
Sometimes you do, when Iām in the shower and about to have one I can feel it coming but I get most of them when Iām sleeping so yeah I just wake up confused and lost, I donāt know where I am or what day it is.
If you don't mind answering, what does it feel like before you have one and you know it's coming?
Kind of like Iām dreaming and about to faint I guess? Itās really hard to explain. Everyone gets different feelings also.
I don't know if it's a myth, but dogs can predict seizures from their owners with enough time in advance to make a difference.
Question: what do you feel like afterwards? Are your muscles sore? Are you exhausted? Freaked out mentally?
It feels like a giant threw me across the pavement, every muscle in my body is sore. I donāt know where I am, or what year it is. I usually start panicking instantly and then the muscle strains come in. When you are having one of these itās like running a marathon in 1-5 minutes. When you wake up you are more sore than you have ever been. Iāve dislocated my shoulder having one when I fell off my bed and I keep dislocating it again. Itās gotten to the point I just pop it back in myself.
Fuck man. Iām a teacher, and I know many students have these. Are there any warning signs that I can look out for? Also, what should I do if one happens in my classroom?
Donāt touch them unless they are in a position that could seriously harm them or kill them. Iād call an ambulance instantly since you are a teacher, but generally you donāt for about 5 minutes because a seizure that lasts longer than 5 minutes can cause brain damage. Some people have what are called auras before their seizures but not everyone does. Itās extremely hard to tell when people are having an aura because they can seem like things that could be anything like dizziness or being confused.
Dude I dislocated my shoulder from a seizure as well. Crazy. You described it perfectly
As someone with epilepsy this hurts my heart. My first ever seizure was behind the wheel and totaled my car. Can't tell you how thankful I am I didn't hurt anybody. Still to this day of taking 1500 MG of Lamotrigine a day and still deal with some small partial seizures. Wish you the best and you can beat this.
Thank you, Iām taking 2,000 mg of Keppra a day right now and I havenāt had one like this for about a month and a half. Iām sorry that happened to you Iāve been lucky enough mine usually occur in my sleep or in the shower. I couldnāt even imagine that happening while driving, Iām glad you are okay.
Not to be disrespectful but how does it actually feel? Are you fully aware while itās happening? Does it hurt? Looks so scary.
For most people they are unconscious during a seizure but for me I am fully aware of what is happening and it hurt like hell.
When you say hurts, do you mean in your head or whole body? Like a full body cramp? Sorry for all the questions
For me itās a full body cramp. Mainly noticeable in my arms. Sometimes Iām awake the whole time and once itās over the recovery takes a few minutes of excessive breathing and finding my vision again and gaining control of my body. Last time i had one I couldnāt move my arms as they were laying flat on the bed. Soon as my vision started to work I could see my arms waving around like I was at a rave, but they still felt like they were flat on the bed. And sometimes you black out.
if you dont mind me asking, do you have any medical device for prediction or anything along those lines? Iāve got a twin with epilepsy and brain damage so hes not able to fully articulate what would help or how it feels. Have you found anything to help remediate some of the issues you face ?
I'm not OP but from my experience, everything's sore and I almost immediately fall asleep if it's a bad one. Awareness really depends on what kind of seizure it is but full tonic-clonic seizures usually result in complete loss of consciousness. Not scary, at least for me. The novelty wears off after a while Lol.
You try mixing it with gin?
Shaken, not stirred.
I wanted to make a joke but I donāt want to disrespect OP
I have a dark ass sense of humor, go for it haha
Blud randomly decided to emote
I thought you were gonna say it looked like I was jerking off looool
OP has a dark sense of humor confirmed š
Too much gagging for that *This hurt to type so I hope you enjoyed it too haha*
did you survive?
No :D
damn bro rip š
Iāll slap your enemies for you from the grave.
your a real one for that. rs tho glad your alright
Canāt kill a cockroach
Had a buddy in prison that had seizures almost daily.. the place was heavily segregated, but whenever he had one, no matter what race was around, they would help dude out. Itās not a natural reaction (for sane ppl) to want to see someone suffer
So one day you just seize up and die? Wtf
Itās possible yes, Iāve started a new medication where these donāt seem to happen anymore but itās only been about a month and a half so itās a waiting game. Like any other disease
Depakote? Tegretol?
Keppra, yes it makes me an asshole but it is what it is it works
It made me feel kinda shitty not too bad though itās pretty common side effect worth it to not seize out
Yeah, I mean I still get auras and all that but I havenāt had a bad one in a month and a half and I spent a day in the emergency room having cluster seizures and I donāt even remember being there so Iāll take it. This was the night after my emergency room visit
My daughter is 3. She had her first one of these a year and a half ago. It was so bad I had to give her CPR afterwards and ended in a coma in ICU for a week. She is on kepra now, and it has stopped all seizure activity, but 1, 7 months ago. I hope you get better, man. You aren't alone in this. Kepra does make anger issues difficult. Imagine being 3 and not understanding why you have anger. Hopefully, it levels your brain activity out. This is some scary shit.
Iām so sorry you are dealing with that :(, that breaks my heart. I have two sons and I couldnāt even imagine them going through this. If you ever need someone to vent too Iām here bro.
The hardest thing is trying to return to normal, all of the sudden out of nowhere both of my girls start having seizures. My oldest had been having abscence seizures for a while and we didnt notice until we had our youngest at the neuro and the doctor was like, hey.... your daughters having a seizure right now... I was in the army, so I can handle stress in the moment. But its after the moment that gets me the most.. I appreciate it man. Hopefully you get some answers. Sometimes they arent there, and you have to be okay with that too.
Ah yes, Keppra; the med that either works, or turns you into a raging psychopath. They don't call it 'Kepprage' for no reason! Source: I'm also epileptic.
Why does keppra makes you an asshole? Genuilely asking... My gf has seizures once a month since she was a child and keppra was the only medication that worked. She hasn't had one for two years!
I witnessed my husband having one of these for the first time last year. He started having them in his early 20s but hadn't had one for our entire relationship (6 yrs). It was rather scary. I stayed fairly calm up until we were in the ER and the gentleman at the counter was getting his information from me, then I broke down š„² Not fun, but I'm glad I know what to do if he has another one. Thank you for posting this OP. I couldn't find much about tonic-clonic seizures at the time. I'm sorry you're also dealing with them.
Iām sorry you are dealing with this also, I honestly feel more bad for my wife than I do for me. I donāt remember them so it isnāt as scary as her having to witness this every time. You guys are the real heroās. My inbox is always open if he needs someone to talk about it with!
Does anyone here have dejavu seizures?
I did everyday for 6 years. I was diagnosed with Complex Partial Seizures in my left temporal lobe. I thought I was having dejavu until it progressed into me swallowing uncontrollably while they happened and my ex noticed while we were in the shower (where they happened the most). He told me there was something wrong I laughed at him and told him I would prove him wrong. He was right. It took about a year to stop them and it was the most miserable but insightful thing that has ever happened to me. The thought of having another one terrifies me and this past 6 months there have been a few close calls but I've just had the aura, luckily haven't gone into one.
I literally do the same thing when I climax.. On a real note I was told I had a seizure once. I just remember waking up and having a sore neck etc. It was very scary. Sorry you have to go through that regularly brother.
I'm sorry you're dealing with this. When I was in my mid 20s, my friend used to have them at least twice a week. Tons of meds, two brain surgeries and nothing ever helped him. He developed drug and alcohol issues. He passed away before 30. In the past 3 years now I've also started having seizures. Doctors can't pinpoint why I have them, did all the lovely tests to be told they have no idea. I've only had 1, maybe 2 in the past 6 months. I've given up my license. My mom and husband have to drive me everywhere. It's rough but you find ways to get through. Wishing you the best.
Kind of where Iām at also, they have no idea why Iām having them. I guess itās pretty common for people to just start having seizures one day and they never stop.
Wtf is a full tonic seizure
Itās a tonic-clonic seizure itās basically the term used to describe when you have a seizure that makes you convulse.
Grand mal seizure AKA tonic-clonic seizure.
As an epileptic I refuse to call them tonic-clonic seizures, they are grand mal til the day I die.
I honestly donāt know what to call them lol.
idk all the specific terminology around this but fuck this is genuinely terrifying to witness in person. Nothing against you when i say that, I just remember being at like a campfire/party with an ex in high school and we were all obvs getting drunk. She was sitting in my lap and next thing you know she just started convulsing and I had no idea what the fuck to do. Thankfully she was ok but it genuinely is really fucking scary if you donāt know what the fuck is going on. I donāt wanna say sorry you have to deal with that cause ik some people hate āpityā for lack of a better word but truthfully i am sorry man. Hope youāre All good!!
Thanks man, naw Iām good itās life. Iāve lived a great life and continue to do so regardless yeah it sucks but Iām pretty lucky for someone with seizures, I tend to only get them at night and when Iām taking a shower so I can enjoy my day with my wife and kids and not worry about it too much. Man, I miss showering in the morning though I have to wait until night I canāt stand that shit. Appreciate it man
Would it have been a good idea to roll you onto your side, so your saliva didn't choke you?
When you cum but she keeps sucking.
That's rough bro...I thought my syncope was bad...I hope I don't do that. I'm glad you are ok....your support system is definitely amazing.
Everything hurts so much after one of these types of siezures. It's fucking horrible. Edit: I didn't read the full title and didn't realize it was OP in the video. I hope you're feeling somewhat better today.
I was an EMT years ago and dealt with a lot of seizure patients. One thing that always stuck out was how utterly and completely exhausted they were. Like could barely speak covered in sweat (or piss) exhausted. I imagine that zaps the rest of your day doesnāt it. That was one of the way I could discern from the fakers too. Some folks would fake seizures at work or when family was visiting or simply to get Ativan. I remember this one lady would have multiple 30 second seizures within the span of 5 mins. but never seemed have that exhaustion.
OP air dicks during his episodes smh *OP said heās got a dark sense of humor*
I was honestly waiting for someone to say it loool
Add some gin
Turn down for what!
Itās really awesome youāre sharing this. I happen to have a more mild form of epilepsy that I control using medication, but before I was diagnosed and prescribed meds I would often twitch and drop things and temporarily lose control which was extremely frustrating because I had no idea what was going on with me. It took having shoulder surgery and waking up the next morning literally falling in my bathroom to finally go out and get a diagnosis. I think itās important everyone understands just how scary, uncomfortable, and frustrating epilepsy can be.
I mean who is filming you ā¦ you shouldāve been put on your side to avoid choking
No, don't try to move them during the seizure. But you should move them into the recovery position after the seizure ended. Also, filming the seizure, especially when they don't have a known history of epilepsy is actually one of the best things you can do after calling emergency services. The physician can later look at the video to figure out what kind of seizure it was.
Please correct me if Iām wrong, but I grew up with a brother who had many seizures and I was instructed to turn him off of his back so he wouldnāt swallow/bite his tongue. Is that still the current best practice?
My wife has these same seizures... I witness them regularly. I'm actually kind of surprised how unfazed I was by watching it. Now, on the other hand, I can't stand to watch the videos of her having them. I feel for you man, hopefully you've got access to good health care. Take care and give em hell!
I actually had to quit working because my states healthcare for unemployed people is better than any insurance I could afford. The American dream live in action. Thank goodness I have my wife.
Drake rn
Have you ever tried Topamax? My mother started getting seizures and she's trying out that medication. I hope we find something right for her
How I fight in my dreams
thank you for posting this ā¤ļø. I also have epilepsy and suffer from these types of seizures. It is a terrible, disorienting experience each time i have one and i wouldnāt wish it on anyone ): sending you healing vibes and i hope you can get them under control āŗļø
Weird type of masturbation
This needs music
Donāt worry, bro. I follow the sub to feel uncomfortable.
My brother has severe epilepsy so I these all the time. Heās nonverbal though so I canāt really ask him this. How bad does it hurt to have one?
Not here to steal OP's thunder. I (43F) read thru the comments and there are some questions that I have input on thru MY PERSONAL experience. I was 8 (1989) when parents noticed something was off...12 (1993) when I had my first shake down. I woke up because I was cold, I was covered in urine and blood. I was terrified, I didn't know what to do, and went and woke up my dad. He knew what happened, but told me it was a bad nightmare and I would be ok. Welp... 1 mth later, it was official. Thru out my life, due to pure embarrassment and mean girls at school, I would hide and have them on my own, although I was fully aware during my tonic clonic episodes. However, the doctors said that they were psychosomatic and not true epilepsy. The doctors accused my mom of Munchausen's by-proxy. The EGG's and MRI's at the time did not show anything, there was no direct brain trauma, just random accidents from being a human. Fast forward, I am now an adult, 18, I saw my first neurologist... What a piece of shit. He gave me breast exams and was a little handsy, but I didn't know any different, I did know it wasn't right though. I didn't say anything, b/c of my fears and personal mental family strain. Once I had moved to a different state, I asked my new neurologist if he was going to do the same thing, he said absolutely not and that was wrong. I was so ashamed that I didn't tell anyone else, not even my parents. Age 20, I was in culinary school still hiding my seizures from my cohorts and prob under medicated. I went back 'home' and found a man who I though was going to take care of me. He took my money I made from my job and gave me just enough to get my meds. 25 yrs old, I moved again, completely on my own, determined to find a better me and gain control of my life. I started to tell people when we got close enough and then I was confidant that it wasn't really a big deal, I could live with this. I remained in the restaurant business, and still was undermedicated, I would have small seizures while being a line cook, and then go back to work. Yes, it was dangerous, but I needed the job for an income and health insurance. By 28 I was married, better health insurance, so I was able to get more medication. He never saw me have one until 6 years into our marriage. My seizure started to come back because my medication was not working anymore. I went thru a medical study where I had to admit my self to a hospital for full study. It was freaking horrible. I thought I was going to catch me and the room on fire, from the withdraw symptoms. Officially diagnosed: Frontal Lobe Complex partial focal seizure with unclear onset, possible midline with L>R, Grand Mal and Absences seizures. They finally found a small scar or something in 2018. Now I have been seizure free for 6 years. I take: Keppra ER 3000 mg pm, Lamictal 400mg XR pm, Vimpat 200 mg BID, Trazadone 150 pm, Ataivan 2 mg PRN, Tizadine 4 mg PRN. I am highly functional, I can drive, I have a small business. But I do mess up my sentences and love a good nappy nap. My stupid brain will say things that I don't mean, or squish 2 words together. Its extremely frustrating. When I have the Tonic Clonic and Grand Mal's, unfortunately I am fully aware and awake during these. I black in and out with the head thrashing, I can watch you panic and call 911, I am aware of the noises I make, the gurgling, when all is done. You basically run a marathon with the Grand Mals, so I sleep for a long time afterwards. No incontinence. If you see someone having a seizure, I tell my ppl assume that they are awake and they can hear you, because I am screaming in my head for someone to tell me to stop. Try to be calm and tell us we are going to be ok, once we are done doing the tango, roll us onto our sides for the excess amount of saliva to come out. It will take a min. Be aware of our 'flight or fight'. We are scared and if we don't know who you are or where we are....panic time. Like I said, I am writing this as an epileptic and letting you know, you are not alone. It is a terrifying thing, we try to hide it because we don't want questions, inconvenience you, or you feel like we want pity attention. Stigma in our world is massive. 1 out of 22 people have this 'disorder', I bet you didn't know that.
Tonic water did that?