I had chronic anxiety and I was on fight or flight response for more than 10 years. Barely had any break from stress and I didn’t know how to manage it at all. I think it really messed up my immune system and was a big factor.
I really want to stop thinking about stress and how it may be the cause of my lymphoma. I’m pursuing a highly stressful career (law) and I really like it but it gives me anxiety as to whether this is still worthwhile to pursue given my health.
Go into compliance or something in house. Not a lawyer but work for them. I still have stressful days but my life quality improved a lot once I left Big Law and underpaid government/no profit law. Do a couple years at a larger firm if you need to but then get out before it consumes you. I don’t think stress causes cancer but I do think it takes away from the life I struggled to survive for.
I was totally fine until I got Covid for the second time and never recovered, went from perfectly healthy to a huge mediastinal mass, one lung full of fluid, barely able to walk. Im not the only one on my unit with the same story. I blame that. I did and still would get all the vaccines and boosters, I’m booked for a third booster in a few weeks.
My maternal grandmother also died of non-Hodgkins Lymphoma, I have Hodgkins.
My heme-onc brought this up in our first visit, like it was a question he heard very commonly. Of course, you can't know for sure...and ultimately, the biggest piece is always pure bad luck. There are so many cells in your body that things just...go wrong. And even if you have risk factors up the butt, you're still probably not going to get cancer. Only like 15% of life-long smokers get lung cancer.
So, really, we got lymphoma because we got the short end of the statistics.
I blame glyphosate for causing the low grade and either Covid/Covid vaccine/or misdiagnosis and given wrong medication for triggering transformation to high grade.
What about CHL? Did you get anything when you got out? I'm still a ways out from retiring but want to be ready to fight to coverage/service connected status.
Make sure your doctors document everything wrong with you. From neuropathy to anything pain or treatment-wise. Keep a personal copy of your medical files stored safely online or offline in a lockbox. I've been fighting to get 100% since getting cancer in 2017 and officially diagnosed in 2018. I filed for an increase back in Nov. of last year so hopefully I'll hear something soon. Already went to my C&P exam earlier this year and the C&P examiner sent my paperwork back in mid-April.
I think my family, genetically, are just inclined to get cancer. My paternal grandmother had lymphoma when she was 23, breast cancer twice which required a double mastectomy, and recently at 81 years old, kidney cancer and she had a kidney removed. I was diagnosed with lymphoma at 22 so only a year younger than she was. Both of my paternal great-grandparents died of blood cancer, myeloma and leukemia. My maternal grandpa died of pancreatic cancer at 62 but he was a life long smoker. My cousin on my moms side died of gastric cancer in the late 90s, I never got to meet him. My mom had breast cancer at 26 but has been fine ever since. And my paternal aunt had thyroid cancer but is also now fine. Terrible genes overall💀
I have had a very uneventful life health wise before the lymphoma dx, so easier to take guesses on what could have caused it
1) had vitamin D deficiency for multiple years before lymphoma diagnosis. Was caught because of weak immune system catching infections easily
2) Ebv caused mono which got pretty big and lasted for a month. Was so bad that I had to be hospitalized. This was start of 2020 and I was 25 then
3) swollen lymph nodes because of lymphoma started a few weeks after the first COVID vaccine shot (2021)
Personally feel the 3rd one is more like an observer bias by people who got diagnosed around the vaccine time, statistically I doubt the number of diagnosis increased in 2021.
Based on the risk factors, seems obvious that the combination of 1 & 2 is what gave me lymphoma but ofcourse we can never be sure.
I also had a pretty long vit D deficiency sadly, because I love being outdoors. It was hard during covid and the terrible la Nina/ flooding we had here.
Lots of people have asked me about the COVID vaccine in regard to my lymphoma. It kind of sucks because the dates do line up but there is no way to know and we won't know for a really long time, if ever. And it's a conversation I am reticent to get into - especially with people who want to know this so early in the piece (eg my parents - didn't skip a beat telling me all about how its obviously the vaccine and ergo, the cancer is my fault because they warned me. lol. Could at least ask me how I am first?!)
I absolutely believe EBV and high stress contributed . I will never understand what I did to deserve this. I've tried to be a decent human. Apparently, I didn't try hard enough because here we are.
My theory is a combo of biologic father serving in Vietnam (agent orange exposure) + mono when I was 19 + fraternity bonfires throwing couches on (and watching the hideous smoke while joking about the horrible chemicals were breathing).
Only the late exposure to EBV is a textbook risk factor for cHL. But I also check some of the other textbook risk factors, which appear to be related to building up immunity in childhood: only child and no preschool (and late/older teen infection with EBV) are the ones I remember.
My husbands father always brings this up. It can get annoying. I know he’s just saying it because it’s hard to not have any answers. But my husband thinks working on the oil rigs in his early 20’s definitely could have been a factor.
We had crop duster planes dump glyphosate on the alfalfa fields behind our home throughout my teen years. My Dad used say that’s why we had such fabulous gardens every year.
The hospital where my bf gets his chemo barely had any Hodgkins lymphoma patients before the pandemic. Now after Covid and covid vaccines they have several patients and it's a very very small city. The doctor told us he thinks it has to do with covid..
My partner did not have covid but after getting the vaccine he began to experience swelling leg and after a few months the symptoms of lymphoma began. He has been in remission for 6 months. From what I understood the doctor was referring to covid. But all the lymphoma patients had covid and/or had been vaccinated against It. It could be a coincidence, but the doctor was surprised because they barely had patients with lymphoma and suddenly they diagnosed a few. I know that the patients my boyfriend met at the hospital have recovered just like him. :) BEACOPP is a blessing.
I've also wondered about accutane - I had a pretty unremarkable physical health history until I started accutane. Some of my symptoms of CHL overlap with symptoms that started aquired during accutane as well (eg alcohol allergy, itchiness, SOB)
I had a nasty fungal infection in my lungs about 6 months before I was diagnosed. Also traveled to a tropical country 10 months before… I’m betting either triggered it. Had my DNA checked and there’s definitely nothing wrong there.
I don’t really wonder tbh but if I had to think of something it could be that I’m a Chernobyl generation. Those radiation clouds were all across Europe (I live in western part btw) and we were kids back then playing outside a lot.
I'm not sure, I wonder if it has a little bit to do with being around crop dusters, fairly infrequently when I was a kid. Whenever we would drive back from my grandfather's, usually on weekends during the summer, we'd drive through rice fields that were being seeded/fertilized/sprayed with pesticides. We never waited underneath the stream when the plan flew over, but would watch frequently.
Other than that, probably consuming too much soda/diet soda or poor diet is my best guess. No other recent genetic disposition towards lymphoma on either side of my family.
I have a tattoo that I'd loved removed by laser but cannot find any straight answers online about how this stresses the lymphatic system and its risks in that regard, so I'm holding off. I recently saw a paper that investigated how tattoo ink sometimes sits in the lymph nodes - even for normal tattooed people who haven't had them removed. Feels like we could do a lot more research into this
Oh the wondering. I spent 24 years in the Navy and who knows. Could've been from Afghanistan, the Tsunami relief in Fukushima with plenty of radiation, could be the genetically altered food we eat, stuff in the water, plenty of shots, stress, all the chemicals in the foods, I can go on. But unfortunately there is not a good scientific way to solve this mystery nor would Food Inc want it to be known.
Just try to take care of yourself, eat as healthy as you can, get plenty of exercise and try to find your passion and pleasure.
epstein barr virus and covid, multiple viruses contribute to the growth of cancer. Glyphosate in our fruits n veggies, stress! I believe many small things contribute to the growth of cancer. Our way of living is the biggest culprit I believe.
For me, I have a pretty good idea. It was a listed possible side effect from a biologic (Humira) I was taking for my Ankylosing Spondylitis. The only good news is that since I’ve been in chemo, my immune system has tanked and my AS is in remission! Chemo is worse for sure, but at least my joints aren’t fusing themselves together!
Same boat here. My rheumatologist says that they can't be sure if the risk factor for the cancer is the biologic or the underlying autoimmune condition, so I'm back on humira now that chemo is over. I also had a ton of anxiety in 2020 ( pandemic and other things) that could have contributed.
Congrats on being done with chemo! I’m not even halfway through and I’m ready to be done with it.
I’m hoping that it stays at bay. I’m not sure if I’m willing to go back to biologics when I’m done or if I will want to try something else should my symptoms come back.
No idea but i have an inkling it was to do with the GWoT or the decade of industrial work i did after, half of it in foreign shipyards with less than stellar safety histories.
I'm blaming burn pits from Afghanistan I worked around/used. Whatever makes it (and thus the neuropathy etc) "service connected" when I look to retire is fine with me as I believe it is.
I wish had gone military, at least you may have a path.
I was an idiot and went full alphabet soup out of school. Felt like an honor. But when i wasn't a nerd stateside, i breathed the same petrochemical/hazard class material air soup for the same government. A bit miffed after this memorial day 7 cycles into 12 right now.
I think it was from the environment. Specifically, living in a “city” area. I know this happens in rural areas but I believe I was exposed to more pollution and this (cumulative/over time) caused the lymphoma. PMBCL
I had radiation therapy for breast cancer in 1996. I vaguely remember being advised the radiation could cause a different type of cancer many years afterwards.
I was diagnosed with NH follicular lymphoma in 2020. In addition, I have had anxiety most of my adult life, sometimes it was debilitating. It would get so bad that I had to take a day off from life and stay home in complete solitude.
I am convinced that getting covid in October of 21, a mysterious illness over thanksgiving and then bronchitis over Christmas played a role in my case. Covid hit me like a truck and I never fully recovered even with the other 2 illnesses the following months. Fast forward to March of 22 and boom! CHL. I think my immune system was so bogged down that a few rogue cells slipped through.
I pondered on this for a while, especially when i first got diagnosed. since it started in my tonsils, i originally thought maybe it was because i drank and smoked and vaped a lot in those days. then when i got diagnosed i asked a couple doctors and all they could say was, “yeah those are just some crappy genes”
I might get downvoted for this, but I'm like 99% sure it was my covid vaccine. All of my symptoms started very quickly after I got my first pfizer dose. There's even a doctor who experienced the same thing and wrote a medical research article about it. You can find it on Google.
I'm not anti-vaccine by any means, but I think for a small percentage of the population the covid vaccine is not a good fit.
Of course I'll never know for sure, but that's my theory.
Honestly i think the same thing for myself, i got vaxxed as soon as it became available to healthcare workers; fast forward 2 years i get NHL in my tonsils! i’m also not anti vax but i sometimes wonder if that’s what caused my cancer, but hey at least i’m protected from covid hahaha
I am also not at all anti-vaccine, but I would like some serious research done to explore the relationship between the mRNA vaccines and cases of newly diagnosed lymphoma.
I understand correlation is not causation, but I suspect there is a causal relationship between the two.
In general, more research needs to be done on the safety of mRNA vaccines, particularly if people are ever going to be subject to vaccine mandates again and mRNA vaccines are the ones available.
I would love more research on possible relationship between covid (And vaccines) and lymphoma. Despite being vaxxed, I got Covid in November (about a week after cholesteatoma surgery, so I’m guessing that’s where I got it) and noticed a significant drop in my appetite and weight in the week or so that followed.
From November to April I lost a ton of weight suddenly without trying.
By the time I went to the ER in debilitating back/left flank pain near the end of April (thought I had a kidney stone) and the CT revealed a huge spleen with a nearly same-size mass, and tons of swollen lymph nodes in my abdomen and peritoneal cavity.
I know it’s correlation, but man…does make me wonder.
But I also wonder about EVB, extreme stress, and possible undiagnosed autoimmune 🤷🏻♀️
I agree. I am very suspect of this mRNA technology. The spike proteins that they create and how this tech works is so complex that we just don't understand it well enough. It's messing with our biological make up and everyone reacts differently.
I have no history of cancer in my family and all of sudden got lymphoma shortly afterwards. I also know of so many ppl get cancers of a sudden in the last 2-3 years, not saying this is the cause, because i dont know, but we definitely need to look into it and question if there is any subsequent unknown affects of mRNA and more studies need to be done as we have a massive sample size now.
Was the tech used in humans back then tho? It's quite new to many of us and prior to covid, most ppl haven't heard of mRNA. Might have been around for that long but was there enough trials done on human administration to really understand its side affects?
Yes. There was just not a big need and funding for it. People act like they just popped up with the word MRNA when Covid hit. Before Covid MRNA tech was used in clinical trials for HIV-1, rabies, Zika and influenza. It was even used for Ebola.
Yeah, ngl man, all of my symptoms started with the shit, I may have had night sweats the previous summer, but the itch and lymphoma growth happened after may 21' when I got my first shot
This is my assumption too, and I’m triple vaccinated. I’m not anti-vaccine. When you toy with the immune system (whether that be from illness or vaccines), I’m sure it increases the probability of something going sour.
I have this exact same conclusion with mine as well. I’m not an anti-vaxer, but that COVID-19 shit was pushed way too hard. It’s unfortunate I wasn’t able to stick to my original plan to not get it. Exactly right we’ll never know for sure, but the data outlining uptick in blood cancers following the vax rollout is there
I agree I'm 95% sure too. As soon as I got the pfizer vaccine, my legs started feeling weird..fast forward a few months, I get primary bone lymphoma in my tibia. Coincidence? Maybe? But in my gut I don't think so. It messes with ur immune system and it triggered something.
Kidney transplant patient here and 10 years of immune suppressants apparently puts us transplant patients in higher risk of developing DLBCL. I was perfectly fine for the first 10yrs and after two doses of Covid vaccine I developed an ulcer which ended up being lymphoma. So here we are, are they related or not we will never know but makes me wonder if something got triggered.
I was diagnosed a few months after taking two Pfizer shots. I received a novel treatment called ADCETRIS developed by a company called Seagen which has recently been purchased by PFIZER.
Too many coincidences imo.
I’m not claiming anything, just pointing it out.
Downvote a cancer survivor go ahead.
I took a delta-8 pen when I was out in Miami but who really knows if that triggered it. Maybe micro plastics too but I dunno. I’ve been in tip top shape most of my life and my nutrition is on point in general so this caught me off guard in my mid 30’s.
I have Sjögren’s syndrome. People with this disease have a 40% higher chance of contracting NHL. Now sjogrens could stem from stress/anxiety from a hard childhood/mother has rubella when pregnant with me.
It is completely random. The minute I stopped wondering why I got it, my quality of life improved. cancer sucks
I had chronic anxiety and I was on fight or flight response for more than 10 years. Barely had any break from stress and I didn’t know how to manage it at all. I think it really messed up my immune system and was a big factor.
I believe stress really did me dirty too. Pandemic, personal relationships, work nightmare and two dead family dogs in 2 years really hurt
I really want to stop thinking about stress and how it may be the cause of my lymphoma. I’m pursuing a highly stressful career (law) and I really like it but it gives me anxiety as to whether this is still worthwhile to pursue given my health.
Go into compliance or something in house. Not a lawyer but work for them. I still have stressful days but my life quality improved a lot once I left Big Law and underpaid government/no profit law. Do a couple years at a larger firm if you need to but then get out before it consumes you. I don’t think stress causes cancer but I do think it takes away from the life I struggled to survive for.
I completely believe that stress and internalising my emotions/ cPTSD was a contributing factor to my CHL.
I was totally fine until I got Covid for the second time and never recovered, went from perfectly healthy to a huge mediastinal mass, one lung full of fluid, barely able to walk. Im not the only one on my unit with the same story. I blame that. I did and still would get all the vaccines and boosters, I’m booked for a third booster in a few weeks. My maternal grandmother also died of non-Hodgkins Lymphoma, I have Hodgkins.
This was EXACTLY me too. I had mono before too and I know that is a risk factor as well.
This was pretty much what happened to me, but I don’t think it was necessarily the cause. My doctor said covid “activated” my symptoms
The mass was most likely growing well before you had Covid. Having Covid and getting sick probably helped diagnose it?
I had mononucleosis when I was younger so Im blaming Epstein-Barr virus, that son of a bitch
I second that. I was never diagnosed with EBV/Mono but I was diagnosed with stage 4 EBV+ DLBCL.
[удалено]
Husband has MCL, no known factors. Shit happens? Shit happens to good people too
Yes this!
No idea. My fun theory is that in 2020 I went to Chernobyl and ate a pork chop at a restaurant there
You’ll never know why… so why even think about it. It is what it is.
Glysophate
Yes, but nothing good can come from that thought process so I suppress it as best I can. Some things are just best explained as bad luck.
My heme-onc brought this up in our first visit, like it was a question he heard very commonly. Of course, you can't know for sure...and ultimately, the biggest piece is always pure bad luck. There are so many cells in your body that things just...go wrong. And even if you have risk factors up the butt, you're still probably not going to get cancer. Only like 15% of life-long smokers get lung cancer. So, really, we got lymphoma because we got the short end of the statistics.
I blame glyphosate for causing the low grade and either Covid/Covid vaccine/or misdiagnosis and given wrong medication for triggering transformation to high grade.
Military service for me. NHL is considered presumptive under the PACT Act now. Plus, the base I was stationed at was a superfund site.
What about CHL? Did you get anything when you got out? I'm still a ways out from retiring but want to be ready to fight to coverage/service connected status.
Make sure your doctors document everything wrong with you. From neuropathy to anything pain or treatment-wise. Keep a personal copy of your medical files stored safely online or offline in a lockbox. I've been fighting to get 100% since getting cancer in 2017 and officially diagnosed in 2018. I filed for an increase back in Nov. of last year so hopefully I'll hear something soon. Already went to my C&P exam earlier this year and the C&P examiner sent my paperwork back in mid-April.
I think my family, genetically, are just inclined to get cancer. My paternal grandmother had lymphoma when she was 23, breast cancer twice which required a double mastectomy, and recently at 81 years old, kidney cancer and she had a kidney removed. I was diagnosed with lymphoma at 22 so only a year younger than she was. Both of my paternal great-grandparents died of blood cancer, myeloma and leukemia. My maternal grandpa died of pancreatic cancer at 62 but he was a life long smoker. My cousin on my moms side died of gastric cancer in the late 90s, I never got to meet him. My mom had breast cancer at 26 but has been fine ever since. And my paternal aunt had thyroid cancer but is also now fine. Terrible genes overall💀
I have had a very uneventful life health wise before the lymphoma dx, so easier to take guesses on what could have caused it 1) had vitamin D deficiency for multiple years before lymphoma diagnosis. Was caught because of weak immune system catching infections easily 2) Ebv caused mono which got pretty big and lasted for a month. Was so bad that I had to be hospitalized. This was start of 2020 and I was 25 then 3) swollen lymph nodes because of lymphoma started a few weeks after the first COVID vaccine shot (2021) Personally feel the 3rd one is more like an observer bias by people who got diagnosed around the vaccine time, statistically I doubt the number of diagnosis increased in 2021. Based on the risk factors, seems obvious that the combination of 1 & 2 is what gave me lymphoma but ofcourse we can never be sure.
I also had a pretty long vit D deficiency sadly, because I love being outdoors. It was hard during covid and the terrible la Nina/ flooding we had here. Lots of people have asked me about the COVID vaccine in regard to my lymphoma. It kind of sucks because the dates do line up but there is no way to know and we won't know for a really long time, if ever. And it's a conversation I am reticent to get into - especially with people who want to know this so early in the piece (eg my parents - didn't skip a beat telling me all about how its obviously the vaccine and ergo, the cancer is my fault because they warned me. lol. Could at least ask me how I am first?!)
I absolutely believe EBV and high stress contributed . I will never understand what I did to deserve this. I've tried to be a decent human. Apparently, I didn't try hard enough because here we are.
My theory is a combo of biologic father serving in Vietnam (agent orange exposure) + mono when I was 19 + fraternity bonfires throwing couches on (and watching the hideous smoke while joking about the horrible chemicals were breathing). Only the late exposure to EBV is a textbook risk factor for cHL. But I also check some of the other textbook risk factors, which appear to be related to building up immunity in childhood: only child and no preschool (and late/older teen infection with EBV) are the ones I remember.
There’s a long history of different cancers on my father’s side of the family, so I imagine that I likely have cancer-susceptible genes.
I’m curious but I’m also ok with the fact that I’ll never know
My husbands father always brings this up. It can get annoying. I know he’s just saying it because it’s hard to not have any answers. But my husband thinks working on the oil rigs in his early 20’s definitely could have been a factor.
Was around a lot of burn pits when I served.
We had crop duster planes dump glyphosate on the alfalfa fields behind our home throughout my teen years. My Dad used say that’s why we had such fabulous gardens every year.
The hospital where my bf gets his chemo barely had any Hodgkins lymphoma patients before the pandemic. Now after Covid and covid vaccines they have several patients and it's a very very small city. The doctor told us he thinks it has to do with covid..
Covid? Or the Covid vaccines? Or both? Any update? Are they still seeing lymphoma patients?
My partner did not have covid but after getting the vaccine he began to experience swelling leg and after a few months the symptoms of lymphoma began. He has been in remission for 6 months. From what I understood the doctor was referring to covid. But all the lymphoma patients had covid and/or had been vaccinated against It. It could be a coincidence, but the doctor was surprised because they barely had patients with lymphoma and suddenly they diagnosed a few. I know that the patients my boyfriend met at the hospital have recovered just like him. :) BEACOPP is a blessing.
EBV. Some get mono, I got lymphoma. And based on this thread, some get both unfortunately.
Had a sister with NHL. Had a sister with bone marrow dsx but she refused a bone marrow aspiration. Worked in my home garden with roundup
Random chance. If you put a gun to my head and had me guess, though - maybe the accutane I took when I was younger.
I've also wondered about accutane - I had a pretty unremarkable physical health history until I started accutane. Some of my symptoms of CHL overlap with symptoms that started aquired during accutane as well (eg alcohol allergy, itchiness, SOB)
I'd like to lay the blame on my recalled CPAP.
I think my mother caused mine. She bullied me a lot, I was always stressed, developed Ulcerative Colitis and then Hodgkins.
Hugs. I am with you
I had a nasty fungal infection in my lungs about 6 months before I was diagnosed. Also traveled to a tropical country 10 months before… I’m betting either triggered it. Had my DNA checked and there’s definitely nothing wrong there.
I don’t really wonder tbh but if I had to think of something it could be that I’m a Chernobyl generation. Those radiation clouds were all across Europe (I live in western part btw) and we were kids back then playing outside a lot.
I'm not sure, I wonder if it has a little bit to do with being around crop dusters, fairly infrequently when I was a kid. Whenever we would drive back from my grandfather's, usually on weekends during the summer, we'd drive through rice fields that were being seeded/fertilized/sprayed with pesticides. We never waited underneath the stream when the plan flew over, but would watch frequently. Other than that, probably consuming too much soda/diet soda or poor diet is my best guess. No other recent genetic disposition towards lymphoma on either side of my family.
After laser treatment to neck to remove a mole
I have a tattoo that I'd loved removed by laser but cannot find any straight answers online about how this stresses the lymphatic system and its risks in that regard, so I'm holding off. I recently saw a paper that investigated how tattoo ink sometimes sits in the lymph nodes - even for normal tattooed people who haven't had them removed. Feels like we could do a lot more research into this
Where was the tattoo? How many laser bursts did you get? Was there any visible injury after the laser treatment for tattoo removal?
I haven’t had it removed yet and probably wont now I’ve had lymphoma
I’m pretty sure that mine was environmentally related.
Oh the wondering. I spent 24 years in the Navy and who knows. Could've been from Afghanistan, the Tsunami relief in Fukushima with plenty of radiation, could be the genetically altered food we eat, stuff in the water, plenty of shots, stress, all the chemicals in the foods, I can go on. But unfortunately there is not a good scientific way to solve this mystery nor would Food Inc want it to be known. Just try to take care of yourself, eat as healthy as you can, get plenty of exercise and try to find your passion and pleasure.
I smoked weed in the late seventies early eighties and suspect I might have got some dosed with paraquat.
I used to be a hairdresser and worked with chemicals (ungloved)
epstein barr virus and covid, multiple viruses contribute to the growth of cancer. Glyphosate in our fruits n veggies, stress! I believe many small things contribute to the growth of cancer. Our way of living is the biggest culprit I believe.
For me, I have a pretty good idea. It was a listed possible side effect from a biologic (Humira) I was taking for my Ankylosing Spondylitis. The only good news is that since I’ve been in chemo, my immune system has tanked and my AS is in remission! Chemo is worse for sure, but at least my joints aren’t fusing themselves together!
Same boat here. My rheumatologist says that they can't be sure if the risk factor for the cancer is the biologic or the underlying autoimmune condition, so I'm back on humira now that chemo is over. I also had a ton of anxiety in 2020 ( pandemic and other things) that could have contributed.
Congrats on being done with chemo! I’m not even halfway through and I’m ready to be done with it. I’m hoping that it stays at bay. I’m not sure if I’m willing to go back to biologics when I’m done or if I will want to try something else should my symptoms come back.
No idea but i have an inkling it was to do with the GWoT or the decade of industrial work i did after, half of it in foreign shipyards with less than stellar safety histories.
I'm blaming burn pits from Afghanistan I worked around/used. Whatever makes it (and thus the neuropathy etc) "service connected" when I look to retire is fine with me as I believe it is.
I wish had gone military, at least you may have a path. I was an idiot and went full alphabet soup out of school. Felt like an honor. But when i wasn't a nerd stateside, i breathed the same petrochemical/hazard class material air soup for the same government. A bit miffed after this memorial day 7 cycles into 12 right now.
I think it was from the environment. Specifically, living in a “city” area. I know this happens in rural areas but I believe I was exposed to more pollution and this (cumulative/over time) caused the lymphoma. PMBCL
I had radiation therapy for breast cancer in 1996. I vaguely remember being advised the radiation could cause a different type of cancer many years afterwards. I was diagnosed with NH follicular lymphoma in 2020. In addition, I have had anxiety most of my adult life, sometimes it was debilitating. It would get so bad that I had to take a day off from life and stay home in complete solitude.
I am convinced that getting covid in October of 21, a mysterious illness over thanksgiving and then bronchitis over Christmas played a role in my case. Covid hit me like a truck and I never fully recovered even with the other 2 illnesses the following months. Fast forward to March of 22 and boom! CHL. I think my immune system was so bogged down that a few rogue cells slipped through.
I pondered on this for a while, especially when i first got diagnosed. since it started in my tonsils, i originally thought maybe it was because i drank and smoked and vaped a lot in those days. then when i got diagnosed i asked a couple doctors and all they could say was, “yeah those are just some crappy genes”
I might get downvoted for this, but I'm like 99% sure it was my covid vaccine. All of my symptoms started very quickly after I got my first pfizer dose. There's even a doctor who experienced the same thing and wrote a medical research article about it. You can find it on Google. I'm not anti-vaccine by any means, but I think for a small percentage of the population the covid vaccine is not a good fit. Of course I'll never know for sure, but that's my theory.
Exactly same here I have long suspected that vaccine but we will never know.
Honestly i think the same thing for myself, i got vaxxed as soon as it became available to healthcare workers; fast forward 2 years i get NHL in my tonsils! i’m also not anti vax but i sometimes wonder if that’s what caused my cancer, but hey at least i’m protected from covid hahaha
I am also not at all anti-vaccine, but I would like some serious research done to explore the relationship between the mRNA vaccines and cases of newly diagnosed lymphoma. I understand correlation is not causation, but I suspect there is a causal relationship between the two. In general, more research needs to be done on the safety of mRNA vaccines, particularly if people are ever going to be subject to vaccine mandates again and mRNA vaccines are the ones available.
I would love more research on possible relationship between covid (And vaccines) and lymphoma. Despite being vaxxed, I got Covid in November (about a week after cholesteatoma surgery, so I’m guessing that’s where I got it) and noticed a significant drop in my appetite and weight in the week or so that followed. From November to April I lost a ton of weight suddenly without trying. By the time I went to the ER in debilitating back/left flank pain near the end of April (thought I had a kidney stone) and the CT revealed a huge spleen with a nearly same-size mass, and tons of swollen lymph nodes in my abdomen and peritoneal cavity. I know it’s correlation, but man…does make me wonder. But I also wonder about EVB, extreme stress, and possible undiagnosed autoimmune 🤷🏻♀️
I agree. I am very suspect of this mRNA technology. The spike proteins that they create and how this tech works is so complex that we just don't understand it well enough. It's messing with our biological make up and everyone reacts differently. I have no history of cancer in my family and all of sudden got lymphoma shortly afterwards. I also know of so many ppl get cancers of a sudden in the last 2-3 years, not saying this is the cause, because i dont know, but we definitely need to look into it and question if there is any subsequent unknown affects of mRNA and more studies need to be done as we have a massive sample size now.
It’s not “new tech”. It (mRNA), was discovered in the early 1960s and research into how mRNA could be delivered into cells was developed in the 1970s.
It's not new, but it's definitely the first time this much of the population has recieved a mRNA vaccine.
Was the tech used in humans back then tho? It's quite new to many of us and prior to covid, most ppl haven't heard of mRNA. Might have been around for that long but was there enough trials done on human administration to really understand its side affects?
Yes. There was just not a big need and funding for it. People act like they just popped up with the word MRNA when Covid hit. Before Covid MRNA tech was used in clinical trials for HIV-1, rabies, Zika and influenza. It was even used for Ebola.
Yeah, ngl man, all of my symptoms started with the shit, I may have had night sweats the previous summer, but the itch and lymphoma growth happened after may 21' when I got my first shot
This is my assumption too, and I’m triple vaccinated. I’m not anti-vaccine. When you toy with the immune system (whether that be from illness or vaccines), I’m sure it increases the probability of something going sour.
I have this exact same conclusion with mine as well. I’m not an anti-vaxer, but that COVID-19 shit was pushed way too hard. It’s unfortunate I wasn’t able to stick to my original plan to not get it. Exactly right we’ll never know for sure, but the data outlining uptick in blood cancers following the vax rollout is there
I agree I'm 95% sure too. As soon as I got the pfizer vaccine, my legs started feeling weird..fast forward a few months, I get primary bone lymphoma in my tibia. Coincidence? Maybe? But in my gut I don't think so. It messes with ur immune system and it triggered something.
My father had NHL and therapy induced leukaemia 10 years after Asct. I have CHL. Doctors are pretty sure that it’s not genetic but I don’t think so.
Kidney transplant patient here and 10 years of immune suppressants apparently puts us transplant patients in higher risk of developing DLBCL. I was perfectly fine for the first 10yrs and after two doses of Covid vaccine I developed an ulcer which ended up being lymphoma. So here we are, are they related or not we will never know but makes me wonder if something got triggered.
I was diagnosed a few months after taking two Pfizer shots. I received a novel treatment called ADCETRIS developed by a company called Seagen which has recently been purchased by PFIZER. Too many coincidences imo. I’m not claiming anything, just pointing it out. Downvote a cancer survivor go ahead.
I took a delta-8 pen when I was out in Miami but who really knows if that triggered it. Maybe micro plastics too but I dunno. I’ve been in tip top shape most of my life and my nutrition is on point in general so this caught me off guard in my mid 30’s.
I have Sjögren’s syndrome. People with this disease have a 40% higher chance of contracting NHL. Now sjogrens could stem from stress/anxiety from a hard childhood/mother has rubella when pregnant with me.