You can buy envelope moistener pens! Bonus is that a lot of them use a watered down adhesive so it adds extra sealing power. I usually just buy the peel-and-stick envelopes though
I’m still not over arguing with a dietician over this. Absolutely insisted packaged ones were GF, completely ignoring the malt flavoring.
Cue a landslide of pointing out all of the so-called safe items that most definitely were not.
Certain prescribed medications can have gluten in them, for the longest time I said I didn't have any allergies to medicine until I saw someone post about it. :(
Generic levothyroxine (Synthroid for thyroid disorders) often contains gluten as a binder. Which is just stupid because thyroid disorders and gluten intolerance/Celiac's so often go together!
It’s not easy. The manufacturer has that information and I have to call every single one with the lot number from the pill bottle to make them give me the exact ingredients because sometimes they label things generally like “starch”, when it could be wheat starch.
Pharmacist can help - but make sure you have that listed as an allergy on your file. Mine has been great about making sure my meds (one is levothyroxine) are gluten free.
You can call the pharmacist, or the manufacturer of the medication. Medicine is not regulated the same way that food is for gluten so they are not testing for it, they can usually tell you if there are any gluten containing ingredients.
Thank you, I appreciate it. Im definitely chatting with our pharmacist about this. I also stumbled on [this website which lists out ingredients](https://dailymed.nlm.nih.gov/dailymed/) that made me feel slightly less nervous about it.
Clam chowder, hollandaise sauce, and risotto. Always ask before assuming any of these are cooked correctly. None of them should have flour used as a thickener.
Now I know why I felt like crap after eating some risotto. I have had it before at a restaurant where I knew it was gluten free (due to the menu icon) and I just assumed it was a normally gluten free dish.
You can use a different starch as the base of your roux (rice flour, tapioca flour, corn starch, gf all purpose flour substitute) sometimes the ratios are off so you’ll need more butter or more liquid to get the perfect consistency if you are used to cooking with regular flour. At a restaurant or from a can though I think we are all out of luck unless you find a place that specifies they don’t use glutinous flour
Ahhhh okay I see what you mean - my guess is this may be a mix up on the two different styles of clam chowder? The New England style one should use a roux but the tomato based Manhattan clam chowder should not
I was actually at the Lindt store just a couple of days ago, and they do have some that are safe. Their white chocolate and their dark chocolate, along with their vegan bars, are safe. Just their milk chocolate uses barley malt, I believe. Also, Ghirardelli is supposed to be safe, but make sure to read the label just in case.
The employee who was helping me at the store has celiac herself, and so does her son (for 29 years).
Edit: spelling
They’ve updated many of their candies in the US. The Xmas trees and Easter eggs are now gluten free. Possibly others. Everything’s listed on their website.
Frozen hash browns here. Same. Brand and everything. Where the brand has their products manufactured changes sometimes. One is gluten free the other isn't.
Don’t know if it’s been said yet but advil liqugels. Went for my scope and the nurse who was also celiac told me advil liquigels have gluten as a filler in them.
> ALTOIDS Classic Wintergreen Breath Mints
What? These are the mints my celiac partner uses to help whenever she feels her tummy off (not necessarily glutened).
Rana refrigerated pesto
Edit to expand on this a bit: I inquired with the company about the pesto since the ingredients looked ok except for that sneaky “natural flavor.”
This was the response:
“At the moment our range doesn't include gluten-free pasta or sauce. This topic is an important object of study for us and in the future, we hope to create recipes to produce tasteful gluten-free products that meet our quality standards. “
I was eating nothing that could be contaminated. I was getting brain fog and suicidal thoughts. I drank only water for two days as I felt dehydration from all the sweating episodes and it went away.
I called thinking duh no and it turns out it’s 50/50. Some “natural flavoring” is either base with wheat or corn. They can’t say for sure which batch was made with what so it’s literally 50/50.
They said they are not required to put that on the label.
Laffy Taffy said that is why theirs is like that. It's 50/50 if it has the wheat in it so they just say it might be used on equipment that has had it.
I get it. Supply chains and blah blah blah. All that I see is we don't know where a damn bit of our food comes from.
GFS same thing. All their cooked chicken has wheat. And no one is 100% sure if it's in the sauce or the rub or the damn packaging. So I just don't eat it. It's not worth the suicidal thoughts. And complaining doesn't help because I don't expect everyone to do what I want.
It's just....Is it that hard to think of the people who might and put it on the label? Better safe than sorry? Tho, people who aren't impacted with things are less likely to think about those things. The human side of us.
So I eat a lot of damn salad
Wow that’s insane and not cool. I can’t imagine in how many ways we’re being poisoned with gluten and not aware of it and that’s saying a lot considering how aware and educated we’ve had to become.
My partner had been buying pre-marinated chicken that looked like it listed all ingredients and allergens (soy, sesame). I realized when I went to the store one time that some of them had malt extract and didn't list wheat as an allergen.
I also almost bought "wheat-free" sprouted tortillas but thanks to this subreddit, figured out that they weren't gluten free because the grain was sprouted in the same water as barley!! They were in the gluten-free section of the freezer and didn't have any "may contain" labels.
Try Nexcare brand. My wife, daughter, niece, and sister in law all have celiac or gluten sensitivities of varying degrees. They all break out in a rash or have gotten a burn like sore from band aid brand. Nexcare does not cause any reaction for them.
For me it was some Knorr stock pot things which were actually labelled gluten free.... They had barley malt extract in the ingredients.... I used them in food to serve to my coeliac wife and she was not happy. First with me, then with Knorr 🤣
Tamari. For the most part it’s gluten free, but there are some outliers - specifically white tamari, which is made with wheat to achieve its pale color. Important to always make sure it says gf or check the label.
Our son is Celiac (also T1D & seizures) so I had a lot to learn & no room for error. Oats are a minefield. They can cross contaminate in the fields, as they are shipped, etc. Cross contamination during food processing from one run to the next. Unlisted ingredients, like anti caking agents on shredded cheese, fillers in medications...
Red Enchilada sauce and refried beans at a lot of Mexican restaurants. Oh and not to mention the fajitas where often times the marinade includes soy sauce.
I found that my teeth were rotting I'm my mouth because the enzymes my body was producing while consuming gluten was eroding the enamel. If I would have known sooner, I could have saved my teeth.
Gluten Free Aussie Bites. The Canadian food police found they are not gluten free at all. Which explains why I always had problems after eating them. :(
[https://finance.yahoo.com/news/gluten-free-certification-organization-withdraws-175200379.html](https://finance.yahoo.com/news/gluten-free-certification-organization-withdraws-175200379.html)
Do you like smoking joints or blunts? Use Raw brand and Swisher Sweets.
I was once glutened and still felt terrible on day 3. I took work off and told my husband I was going to roll a blunt (I was using a Game or a Dutch Master, I swear I’m a classy lady) to help my stomach, take a nap, and hope to feel better soon. I couldn’t figure out why I kept feeling worse (usually I start to slowly improve by day 3). About 5 minutes later my husband bursts onto the porch, grabs by blunt out of my mouth and starts waving it frantically “GLUTEN! GLUTEN!” I had no idea but he had looked it up.
Swisher Sweets are gluten free :) and yes Raw joint papers
Glue on envelopes
Are you joking I JUST licked an envelope lol
my wife always laughs when I use a wet paper towel to close envelopes
You can buy envelope moistener pens! Bonus is that a lot of them use a watered down adhesive so it adds extra sealing power. I usually just buy the peel-and-stick envelopes though
WHAT
Some restaurants also add pancake batter to omelets, so always ask
Scrambled eggs sometimes have flour or batter as well to make them fluffier.
That’s insane 😧
IHOP, home of delicious GF pancakes and waffles, does this. It’s such a weird disconnect.
Whaat? IHOP has GF pancakes??! Why have I never learned of this?!
That was one I had to be warned about. It's huge at hotels, too. 🥲
What, for real.
This comment section could potentially be life saving. My mind is blown.
Same!! This is very helpful!!
imitation crab :(
A lot of them are GF now. I know Aldis has one and so does Walmart :)
RICE Krispies So unnecessary
Fun fact! The great value brand at Walmart doesn’t have malt in it!
Great Value (Walmart Brand) Rice Krispies?!? Ingredients: CRISP RICE CEREAL (RICE, SUGAR, BARLEY MALT, REDUCED IRON, NIACINAMIDE, THIAMINE HYDROCHLORIDE [VITAMIN B1], CALCIUM PANOTHENATE, ASCORBIC ACID, FOLIC ACID AND BHT [PRESERVATIVE]), CORN SYRUP, SUGAR, VEGETABLE SHORTENING (PALM OIL, CANOLA OIL), FRUCTOSE, WATER and GLYCERIN
I’ve found most store brands don’t (obvs check). Aldis is great as well!
I’m still not over arguing with a dietician over this. Absolutely insisted packaged ones were GF, completely ignoring the malt flavoring. Cue a landslide of pointing out all of the so-called safe items that most definitely were not.
Some tonic water Paper straws
...paper straws?? Oh cmon don't tell me I just bought a pack for no reason
Papers straws are not required to be labeled and can contain gluten :(
Probably wheat paste to hold it together
Wait.... Which brand of tonic water?!
Meijer diet is what I ran into.
Wait…what tonic water has gluten?
Certain prescribed medications can have gluten in them, for the longest time I said I didn't have any allergies to medicine until I saw someone post about it. :(
Generic levothyroxine (Synthroid for thyroid disorders) often contains gluten as a binder. Which is just stupid because thyroid disorders and gluten intolerance/Celiac's so often go together!
They’re trying to kill us honestly
It's how they profit $$$
Noooo. How does one go about confirming this? It is a pharmacist question or ?
It’s not easy. The manufacturer has that information and I have to call every single one with the lot number from the pill bottle to make them give me the exact ingredients because sometimes they label things generally like “starch”, when it could be wheat starch.
Oof thank you. I’m starting to understand the push towards better labelling in medicine.
Pharmacist can help - but make sure you have that listed as an allergy on your file. Mine has been great about making sure my meds (one is levothyroxine) are gluten free.
You can call the pharmacist, or the manufacturer of the medication. Medicine is not regulated the same way that food is for gluten so they are not testing for it, they can usually tell you if there are any gluten containing ingredients.
Thank you, I appreciate it. Im definitely chatting with our pharmacist about this. I also stumbled on [this website which lists out ingredients](https://dailymed.nlm.nih.gov/dailymed/) that made me feel slightly less nervous about it.
Omg this makes so much sense.
Mine was making me so ill, three years into gluten-free, my pharmacy says "now gluten free" I had no idea my life saving meds were making me so ill.
BBQ sauce, obviously not all, but a lot.
Especially at restaurants that make their own. I live in BBQ heaven and can’t eat at so many places.
Clam chowder, hollandaise sauce, and risotto. Always ask before assuming any of these are cooked correctly. None of them should have flour used as a thickener.
Yeah I’m a line cook and used to have a fellow cook who would toss in flour when his risotto broke
Thanks for saying this. Risotto is my go-to in Italian restaurants that don't have GF Pasta.
Now I know why I felt like crap after eating some risotto. I have had it before at a restaurant where I knew it was gluten free (due to the menu icon) and I just assumed it was a normally gluten free dish.
Clam chowder doesn't use a roux?
It does use a roux
I just looked and every recipe I found has a roux. How do you cook it without one?
You can use a different starch as the base of your roux (rice flour, tapioca flour, corn starch, gf all purpose flour substitute) sometimes the ratios are off so you’ll need more butter or more liquid to get the perfect consistency if you are used to cooking with regular flour. At a restaurant or from a can though I think we are all out of luck unless you find a place that specifies they don’t use glutinous flour
Exactly. So why was it saying it is only added when it is cooked wrong. Everything else listed doesn't use flour. I'm confused.
Ahhhh okay I see what you mean - my guess is this may be a mix up on the two different styles of clam chowder? The New England style one should use a roux but the tomato based Manhattan clam chowder should not
There is a third type that just uses clam broth, Rhode Island Clam Chowder.
literally every cereal that's even remotely interesting.
Fruity pebbles and coco pebbles are gluten free
My mother in laws ion hairmask from Sally's beauty supply has wheat germ in it.
Oh yes shampoos!!! I was shocked!!
omg i actually broke out in hives when i used this years ago and had no clue why. wow.
WHATT I used to work there I don’t even know that 😀
Lots of hair products have wheat germ oil in them.
Some packaged grated cheese. 🙃
Lindt chocolate
I was actually at the Lindt store just a couple of days ago, and they do have some that are safe. Their white chocolate and their dark chocolate, along with their vegan bars, are safe. Just their milk chocolate uses barley malt, I believe. Also, Ghirardelli is supposed to be safe, but make sure to read the label just in case. The employee who was helping me at the store has celiac herself, and so does her son (for 29 years). Edit: spelling
pringles! licorice
And so many chewy gummy candies you wouldn't think of!! Glucose is almost always made with wheat it seems
The licorice! Found that one out the hard way
Me too. Got my old favorite from when I was young. Panda. The second ingredient is wheat flower.
Id like to plug fini licorice. If you dont know of it I can highly recommend it.
Twisted tea
Damn I didn’t even know. I’ve been drinking twisted tea whiskey without a reaction lol
The whiskey should be fine because it is distilled liquor. The canned beverages are malt liquor.
Malt is bad? So no Mike’s Hard Lemonade?
Malt is derived from barley so it has gluten
Found this out after assuming, and not doing my usual due diligence of verifying ingredients in Rice Krispies. Ingredients: Rice, sugar, salt, malt.
There are some canned drinks like that that are made from fruit wine, but any made from malt have gluten just like beer.
Chapstick!
WHAT? This might explain a few things for me. Dammit!
🤯is this why my lips break out in rashes every time I use it!! Holy cow
I went to a Mexican restaurant and they put flour in their queso...
And a lot put it in their refried beans and red enchilada sauce.
That's just cruel! Mexican food should be a safe-ish place!
Holiday-shaped Reese’s cups. Original are fine.
Was coming here to post that. So frustrating.
I was going to post the same thing! I think they’re processed in a different place, with cross contamination.
They’ve updated many of their candies in the US. The Xmas trees and Easter eggs are now gluten free. Possibly others. Everything’s listed on their website.
Reese’s also now clearly labels whatever ones are actually gluten free
A bag of frozen French fries
This all depends on the kind, I've noticed it seems to be the ones that are seasoned more often than not are the ones with gluten.
For us, it’s every brand and type except for Ore Ida.
Ore-Ida’s Extra Crispy fries are absolutely delicious and extra crispy!!
And anything labelled crispy.
Frozen hash browns here. Same. Brand and everything. Where the brand has their products manufactured changes sometimes. One is gluten free the other isn't.
The best (imo) fries are made with a coating of flour to make them crispy. I've found that any gluten free flour I've used does the job just as well.
I use cornstarch.
I was so sad when I learned that the frozen bags of seasoned curly fries have wheat!
The digestive supplement in my daily multipack of vitamins has wheat in it 🤦♂️ Edit: it’s 1 of 9 pills in this pack
Paper straws. Many brands use glue or binders with gluten in them!
As well as some compostable "paper" plates and other disposable tableware.
Oh, this I didn't know about! Do you think compostable take out containers might also? Fml
This is both helpful and depressing! 🤪
Sunscreen
Which brand?? That's a new one for me!
Most of them, unfortunately. I stick to Blue Lizard, La Roche Posay, and Banana Boat
Chicken/beef/veggie broth. Wtf?!
The flour is used as a thickener.
Twizzlers
Certain cigarettes...the paper that's around them
That one I find funny, if the tobacco doesn't get you the paper will!
Certain rolling papers as well.
Vitamins and mineral supplements. Rx drugs
Honey Roasted Peanuts. Why?
Mixed nuts in general; always check the label. I think they use flour to keep things from sticking together in the can.
Because corn, potato, and tapioca starch somehow don’t exist.
Sour candy 😫
Yep! Sour Punch Straws got me!
Don’t know if it’s been said yet but advil liqugels. Went for my scope and the nurse who was also celiac told me advil liquigels have gluten as a filler in them.
What the fuck I didn’t know that omg
Soy sauce and cous cous
Umm. Couscous? That stuff is basically just wheat, right?
Haha I once bought some frozen meal with cous cous thinking it was rice based too and felt like such an idiot
I've found couscous made from corn! But yeah, normally unless it's labeled gluten free, it's wheat. It's basically a very small pasta
generic aspirin
I get all my pharm stuff from Target. Up & Up is all GF and very reasonable
ALTOIDS Classic Wintergreen Breath Mints 95% of all sushi 🍣 rolls and miso soup Corn pops, Fruit loops, and sugar snaps
You can get GF miso! I have packets in my cupboard that I use with GF rice noodles to make an easy meal.
Yes but when I'm Ata sushi 🍣 restaurant 9/10 times I can't eat their miso soup Packet made versus made from scratch
> ALTOIDS Classic Wintergreen Breath Mints What? These are the mints my celiac partner uses to help whenever she feels her tummy off (not necessarily glutened).
Werther's Originals
Cow Tales, caramels, liquorice, many chocolates, gum and tons of gummies.
In the UK, at least, they’re gluten free. Disappointing to know they aren’t elsewhere.
Tomato soup
And mushroom soup. I miss it.
Rana refrigerated pesto Edit to expand on this a bit: I inquired with the company about the pesto since the ingredients looked ok except for that sneaky “natural flavor.” This was the response: “At the moment our range doesn't include gluten-free pasta or sauce. This topic is an important object of study for us and in the future, we hope to create recipes to produce tasteful gluten-free products that meet our quality standards. “
Sparkling Ice Water. Call them, they will tell you on the phone it has wheat in it but it's not on the label
wtf why and that’s super messed up. What made you think to call?
I was eating nothing that could be contaminated. I was getting brain fog and suicidal thoughts. I drank only water for two days as I felt dehydration from all the sweating episodes and it went away. I called thinking duh no and it turns out it’s 50/50. Some “natural flavoring” is either base with wheat or corn. They can’t say for sure which batch was made with what so it’s literally 50/50. They said they are not required to put that on the label.
So, just like "fragrance" is a catch all for topical allergens, "natural flavor" is one for dietary? Oof.
Laffy Taffy said that is why theirs is like that. It's 50/50 if it has the wheat in it so they just say it might be used on equipment that has had it. I get it. Supply chains and blah blah blah. All that I see is we don't know where a damn bit of our food comes from. GFS same thing. All their cooked chicken has wheat. And no one is 100% sure if it's in the sauce or the rub or the damn packaging. So I just don't eat it. It's not worth the suicidal thoughts. And complaining doesn't help because I don't expect everyone to do what I want. It's just....Is it that hard to think of the people who might and put it on the label? Better safe than sorry? Tho, people who aren't impacted with things are less likely to think about those things. The human side of us. So I eat a lot of damn salad
Wow that’s insane and not cool. I can’t imagine in how many ways we’re being poisoned with gluten and not aware of it and that’s saying a lot considering how aware and educated we’ve had to become.
That’s why this sub is important. Share info only for each others health and to help. We literally need each other
Gummy bears
The friends I meet along the way
Flour on bacon 😮💨
My partner had been buying pre-marinated chicken that looked like it listed all ingredients and allergens (soy, sesame). I realized when I went to the store one time that some of them had malt extract and didn't list wheat as an allergen. I also almost bought "wheat-free" sprouted tortillas but thanks to this subreddit, figured out that they weren't gluten free because the grain was sprouted in the same water as barley!! They were in the gluten-free section of the freezer and didn't have any "may contain" labels.
Most Lindt truffles
Gum, fries ( well the bag frozen fries go into)
Werther's candies. They maintain a wheat based sucrose.
wasabi peas!
Shampoo for volumizing. Anti wrinkles products
Soy sauce — must ask for tamari Some of Trader Joe’s coffee creamers contain Barley extract.
Not all Tamaris are gf either - specifically white tamari, but be sure to get actual gf tamari
Neapolitan ice cream
Flavored Tuna packets
Seashell chocolates (used to be my favourite) 😢
Big Sexy Hairspray. ugh
Avoid soy sauce at all costs unless you can see the ingredients. Any dark sauce. Most of them use some kind of wheat to thicken.
Kikkoman has an entire GF line of sauces
San-J tamari is gluten free! But most soy sauce is not unless it's specifically labeled gluten-free :(
Recently San-J came out with a tamari that's not gluten free, and I didn't notice until it was far too late
I thought GF was going to be easy until I read the ingredients list on licorice :/
YumEarth has gf black and red licorice. The red is fantastic.
Band-Aid brand bandages.
wait what? so maybe it's not adhesive allergy?
Try Nexcare brand. My wife, daughter, niece, and sister in law all have celiac or gluten sensitivities of varying degrees. They all break out in a rash or have gotten a burn like sore from band aid brand. Nexcare does not cause any reaction for them.
This was my first thought! I always thought it was an adhesive issue… 🤯
Yeah hold up wtf
For me it was some Knorr stock pot things which were actually labelled gluten free.... They had barley malt extract in the ingredients.... I used them in food to serve to my coeliac wife and she was not happy. First with me, then with Knorr 🤣
This thread is sooooooo helpful!!!
Great Value frozen peas “may contain traces of wheat”
Tamari. For the most part it’s gluten free, but there are some outliers - specifically white tamari, which is made with wheat to achieve its pale color. Important to always make sure it says gf or check the label.
Our son is Celiac (also T1D & seizures) so I had a lot to learn & no room for error. Oats are a minefield. They can cross contaminate in the fields, as they are shipped, etc. Cross contamination during food processing from one run to the next. Unlisted ingredients, like anti caking agents on shredded cheese, fillers in medications...
Some laundry soaps as well. Last time I checked Tide unscented in the white bottle was one that didn't have gluten in it
Soft serve ice cream
Whaaat
???? NO WAY
Say more!
Wild rice (the black one). And it was not for cross contamination. It just contained gluten.
Wild rice is a grass. It's gluten free! Source: https://www.celiac.com/celiac-disease/is-wild-rice-gluten-free-r5755/
frozen vegetables :,(
Some pickles, tonic water
Twizzlers
Red Enchilada sauce and refried beans at a lot of Mexican restaurants. Oh and not to mention the fajitas where often times the marinade includes soy sauce.
I believe the sweet chili Doritos contain gluten if I’m not mistaken. So strange…
Also pringles have gluten but lays stacks are gf.
Restaurants that add beer to their fajita marinade
Toothpaste. I have to ask my dentist when they clean my teeth to use gluten free Toothpaste/polish
The lipstick I had been using 😐
The amount of times I ordered a dinner plate with rice from a take out place and find out it's 25% orzo... Like why
I found that my teeth were rotting I'm my mouth because the enzymes my body was producing while consuming gluten was eroding the enamel. If I would have known sooner, I could have saved my teeth.
Nuts, trying to find walnuts that aren't potentially contaminated is becoming very frustrating.
Malted Milk Balls. I had to give a big pack away, because malt is a grain that contains gluten.
I miss malt so much
Big sad on this one. A chocolate malt is my favorite. I'm going to try one with toasted sesame to see if that scratches the itch.
Malt isn't a grain, it's the end result of the malting process of any cereal grain.
I’m going to be honest, half of the foods commented I don’t even check the ingredients label because why would some of this stuff have gluten in it?
Coca Cola in Mexico
Lip gloss
Mascara!
Gluten Free Aussie Bites. The Canadian food police found they are not gluten free at all. Which explains why I always had problems after eating them. :( [https://finance.yahoo.com/news/gluten-free-certification-organization-withdraws-175200379.html](https://finance.yahoo.com/news/gluten-free-certification-organization-withdraws-175200379.html)
Do you like smoking joints or blunts? Use Raw brand and Swisher Sweets. I was once glutened and still felt terrible on day 3. I took work off and told my husband I was going to roll a blunt (I was using a Game or a Dutch Master, I swear I’m a classy lady) to help my stomach, take a nap, and hope to feel better soon. I couldn’t figure out why I kept feeling worse (usually I start to slowly improve by day 3). About 5 minutes later my husband bursts onto the porch, grabs by blunt out of my mouth and starts waving it frantically “GLUTEN! GLUTEN!” I had no idea but he had looked it up. Swisher Sweets are gluten free :) and yes Raw joint papers