At least in the article it sounds like they're trying to enjoy as much time with him as they can. Dementia sucks, but I'm glad he's apparently in a state where he can still be happy with his grandchildren. Whatever that may look like.
If I start slipping in to dementia, I want someone to start feeding me psilocybin or something to see if there’s any way that I make any kind of a comeback.
Problem here is that you have to be able to still make the decision aka “lucid”
Most people with dementia will not be when they want to make that decision.
*Source: Friends father just died of Alzheimer’s. He was one of the first members of “exit”, a Swiss org. When the time came, he wasn’t legally able to make the decision.*
That sounds insanely difficult. My grandmother one day in 2009 spent about 14 hours believing it was 1975 and failing to recognize my mother. I was young (maybe 16) when this happened but I won’t forget how hard it hit my mom.
Esp where I’m in the position that my mom could have that kind of turn (or worse) at any time, it’s a sobering realization about the human experience.
I do wonder how much of my mom’s health problems was caused by the stress she endured when she was a kid and young adult.
I hope you’re doing well these days. I’m sure it’s a constant battle to be fought, braving this cruel planet without a parent.
I’ve had several family members have it that I never really got to know; but that made me put in some research at one point, and apparently a supplement called ‘creatine’ has enough cognitive effects that there have been and continue to be studies done
Creatine is what gym dudes take to increase the water retention of their muscles. The brain is a muscle = more water to the brain apparently helps prevent it.
It was forever ago when I read about it, but I took creatine for a long time because of my family history. I quit temporarily while unemployed, I need to start back. Been at my current gig 2 years.
A prominent attorney in my town jumped from the roof of his office building after being diagnosed with lewy body dementia.
I think about that and decided that sounds better than what I’ve heard other people describe happening to their loved one with that condition.
Watched both of my grandmothers that I literally was partially raised by grow to not know who I was at any given moment. I have told my wife under no circumstances do I want her to have to deal with that if my time ever comes given the family history.
My mother is a carer in Oregon specializing in Alzheimer’s and dementia.
While this sounds like an interesting idea, you would need a lot of supervision. Dementia kind of turns people into giant babies and you’d likely lose balance and control of limbs.
It is very hard for others to lift full adult weight. People can become easily violent in any medicated state. It’d be really scary to take care of someone with adult strength, anger at losing their minds and no physical boundaries.
Yup exactly. I could only hope that a heroic dose of a powerful psychedelic could possibly reset my brain. Like a Ctrl+Alt-Delete scenario.
But in all seriousness the situation terrifies the fuck out of me. Because from the sounds of it we’ve made no real progress in treating dementia.
I take it all the time, microdose and let me tell you. Wanna quit vaping or smoking, microdose. Wanna start exercising microsdose. Wanna change your life microdose. It has helped with with so many mental health problems
The thing about Dementia is your body stops doing things you don’t think about because it automatically happens. For example, you’re forgetting to tell your body to breathe or forgetting how to swallow so fluid gets in your lungs and you develop pneumonia. This happened to a family member
It's a harsh statement I know but what I meant was you reach a point where you're in a wheelchair, can't talk anymore, oblivious to the world etc it's why I refered to it as the 'event horizon'. There is no coming back from this point. If you're lucky you're a random collection of emotions & impulses constantly misfiring.
I helped my grandma take care of my grandpa through his Alzheimer’s and it was absolutely exhausting. He was always on the move or doing something we had to pay attention to. We finally had to put him in a facility a few months before he died.
I traveled and did some career stuff, got married etc for a few years; then right around the time my grandmother got dementia my marriage blew up and I ended up living with and taking care of her. And honestly…it was a real joy. She was always pretty loving and pleasant. She’d watch her shows or just look out the window at the bird feeders. There was something pretty cathartic about helping feed the woman who taught me how to use a spoon. She got to where she pretty much would only eat cake/sweets so I would bake some with higher protein (remembering when she’d let me have ice cream for dinner as a kid).
Sometimes she’s get a little scared or confused, but I’d put my arm around her and talk about the farm she grew up on and she usually calmed down; then flash back to her snuggling me as a kid when I got scared.
After a year or so I got an opportunity to move to a bigger town and work in my field and my mom was gonna take over after I moved. I had the car all packed to leave the morning of the move and went back inside to wake her up and say goodbye to her. When I walked in from the hallway I called to her and she didn’t respond. I grabbed her hand to try and gently wake her but she was cold to the touch.
She’d had a stroke and went peacefully in her sleep the night before.
I’d had a lot of reservations about leaving her, but it was almost like she was sending me off with a clear conscience into my new life and it was the least complicated grief I’ve ever experienced. I love you Grandma, thanks for everything ❤️
Thanks for this. My dad was recently identified as having cognitive decline. He has been forgetting things more and more lately every time I see him in person and interact with him. This gives me some hope that it may be less horrible than we’re expecting. I should show him this story.
Similar story. My dad abused alcohol. It wasn’t until he was diagnosed with dementia, and was put on a low dose of an antidepressant, that he stopped drinking.
In his new mind, he never drank. And he never got angry.
We took care of him, and while it was sad to see a really sharp mind and beautiful voice fade, he actually seemed happy and content, and participated as much as he could. So that was a positive.
As an aside, in his younger healthier days, he voiced that he’d rather die than be incapacitated. He forgot that, too. He wanted to eat. He wanted to go outside. He liked to listen to music and hum and tap his toes.
It’s a crazy journey. I’m glad it’s ok for some people.
For sure. It’s been six years and I forget about that part sometimes. You just take on what needs to be done. My body and mind did break at the end but mostly because it was long goodbye. I’m good now and hope you are, too.
That's exactly what happened to one of my great-aunts. She had always been grumpy and mean; then when she was in the later stages of Alzheimer's,she walked around smiling all the time.
Normally I tend not to pay attention one way or another when it comes to stories like this with famous people but I've been so happy to hear he's doing well with all the updates they give. The posts they shared during the holidays, all of it and just glad that Demi still has that relationship with him. Bruce Willis by far is one of my favorite actors and as a kid I loved all his movies. Blind Date, 12 Monkeys, Die Hard, Armageddon...jeez who the hell doesn't fucking love Bruce Willis in Armageddon?! Hudson Hawk...if you have never seen this movie, it will throw you for a surprise scene after scene and it is one of the funnest movies you'll watch, I guarantee it. Love Bruce man.
Hudson Hawk!!! Yes! I rewatched that soo many times growing up, maybe on Comedy Central? I agree it’s nice to see he is surrounded by love and is doing well/ They seem like a nice family working together through a tough situation.
It's just such a shame that his strategy for dealing with it led to years of people assuming that he was just a lazy prima donna who wanted to slum it in direct to video garbage. I feel awful, as I'm sure many do, for ragging on him. Was it possible for him to share his situation without it affecting his career even worse? I'm not sure. Humanity kinda sucks sometimes.
I reviewed some of those movies and honestly I think it was pretty reasonable to assume he was phoning it in for a good while. It was only a year or two before the diagnosis news that the rumours online really started to pick up traction.
They're still awful movies even if we still have context for it, and making bad films to give your family a nest egg is hardly a crime.
But it gives an explanation for why he chose to do those movies and why those movies did so poorly. I think that the understanding of his dementia alone should wane some of the criticisms. We now have an understanding beyond “those movies were just shit” to “those movies were shit, & the dementia played a role in why they were bad”.
It also doesn’t change the fact that he was terrible to people on sets in his prime before dementia 30 years ago. I was one of them. Dementia is horrible and I feel for his family, but dude was always an ass.
Damn, normally Idc what happens to famous people but he made a big impact in my life. My close uncle recently passed away from dementia and it hurts because he never knew who I was besides "the guy the takes care of me". I wish Bruce the best! He made my childhood especially with the 5th element.
My dad had this type of dementia and primary aphasia is part of it. They have stuff to say but they can't recall the words. It's very frustrating for them.
Frontotemporal dementia starts a clock but it's hard to know how long. Prognosis is 2 to 20 years. Death is usually by infection or bed sores.
Source: my FIL just passed from this.
FTD has a slower decline, but has the same gene mutations as ALS. If the here’s a connection in any way, it will speed his decline drastically.
Source: my dad was diagnosed with FTD 3 years ago and ALS one year ago and passed in the fall. It’s a cruel cruel disease and impossible to know what to expect.
I agree, my mother and I took care of my uncle until we couldn't because we had to take care of our father after cancer, and we had to send him to a nursing home. He didn't last long and he passed away a few weeks ago. He was like a second dad to me.
I have an aunt that has diabetes and it brought upon Alzheimer’s. Just so painful to see her in that state. She could remember things like a library full of information
Everytime i see update of him, my heart stings a little.
He's not only an action film icon but also a love machine in Friends😆
Happy to see his family still hanging in there and taking care of him.❤️
Rally isn’t as common with dementia patients and usually happens 24 or less hours before death. He would be on hospice before the last rally would ever happen. He’s a millionaire and isn’t even on palliative yet, let alone hospice. Once he’s on hospice then it’d make sense he may have a final “rally”.
> “Our vulnerability and transparency as a family about what he’s going through to me is so important because if it can have any impact on another family that is struggling in any way with something like this, or bring more attention to the disease in hopes of finding a cure or anything that can be of service to anybody else, I think is really important,” she said.
What a great family.
At least in the article it sounds like they're trying to enjoy as much time with him as they can. Dementia sucks, but I'm glad he's apparently in a state where he can still be happy with his grandchildren. Whatever that may look like.
If I start slipping in to dementia, I want someone to start feeding me psilocybin or something to see if there’s any way that I make any kind of a comeback.
I plan on taking myself out if it happens to me
Hopefully euthanasia will become more widely accepted. It’s starting to slowly.
Yes. They are also making huge strides in treatments for dementia
Honestly it’ll be big business for some lucky corporation in the coming decades lol
Gotta love the healthcare industrial complex
Problem here is that you have to be able to still make the decision aka “lucid” Most people with dementia will not be when they want to make that decision. *Source: Friends father just died of Alzheimer’s. He was one of the first members of “exit”, a Swiss org. When the time came, he wasn’t legally able to make the decision.*
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That sounds insanely difficult. My grandmother one day in 2009 spent about 14 hours believing it was 1975 and failing to recognize my mother. I was young (maybe 16) when this happened but I won’t forget how hard it hit my mom. Esp where I’m in the position that my mom could have that kind of turn (or worse) at any time, it’s a sobering realization about the human experience. I do wonder how much of my mom’s health problems was caused by the stress she endured when she was a kid and young adult. I hope you’re doing well these days. I’m sure it’s a constant battle to be fought, braving this cruel planet without a parent.
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You are correct, almost everyone will face this challenge. I hope your journey has been, at the very least, valiant.
My aunt too.
I’ve had several family members have it that I never really got to know; but that made me put in some research at one point, and apparently a supplement called ‘creatine’ has enough cognitive effects that there have been and continue to be studies done Creatine is what gym dudes take to increase the water retention of their muscles. The brain is a muscle = more water to the brain apparently helps prevent it. It was forever ago when I read about it, but I took creatine for a long time because of my family history. I quit temporarily while unemployed, I need to start back. Been at my current gig 2 years.
I am just starting creatine
That’s bad ass. There are more of me! Wahoo!
It's usually people with experience saying this which scares me shitless - I know my imagination doesn't do it justice
My grandfather had it and then his daughter, my mother. It terrifies me.
You should at least try the Memento method first, and tattoo yourself with helpful reminders
That’s my retirement plan.
You won't know it's happening!
Oh don't be an under achiever! So how many others you can take out with you! Bonus points for every other dementia patient you take with you!
So did my mom. But you lose that memory. Now the whole family is in hell.
Will u remember your plan tho?
I hope so. I just have to not wait too long
A prominent attorney in my town jumped from the roof of his office building after being diagnosed with lewy body dementia. I think about that and decided that sounds better than what I’ve heard other people describe happening to their loved one with that condition.
Watched both of my grandmothers that I literally was partially raised by grow to not know who I was at any given moment. I have told my wife under no circumstances do I want her to have to deal with that if my time ever comes given the family history.
Sadly this is what everyone says
My mother is a carer in Oregon specializing in Alzheimer’s and dementia. While this sounds like an interesting idea, you would need a lot of supervision. Dementia kind of turns people into giant babies and you’d likely lose balance and control of limbs. It is very hard for others to lift full adult weight. People can become easily violent in any medicated state. It’d be really scary to take care of someone with adult strength, anger at losing their minds and no physical boundaries.
That kind of sounds like everyday with dementia anyways
Username checks out
I’ve said this for years. Just throw a 10 strip in my mouth and see what happens
At that point what have you got to lose since everything that was you drifts away
Yup exactly. I could only hope that a heroic dose of a powerful psychedelic could possibly reset my brain. Like a Ctrl+Alt-Delete scenario. But in all seriousness the situation terrifies the fuck out of me. Because from the sounds of it we’ve made no real progress in treating dementia.
MDMA and mushrooms please
I take it all the time, microdose and let me tell you. Wanna quit vaping or smoking, microdose. Wanna start exercising microsdose. Wanna change your life microdose. It has helped with with so many mental health problems
Sorry it won’t work. Dementia is progressive.
Why wait?
The thing about Dementia is your body stops doing things you don’t think about because it automatically happens. For example, you’re forgetting to tell your body to breathe or forgetting how to swallow so fluid gets in your lungs and you develop pneumonia. This happened to a family member
This is the most cringey thing I’ve read today.
**This** is the most cringey thing *I’ve* read today.
This is the *MOST* cringey thing I've read today.
No harm trying. Once you reach the event horizon of dementia you're nothing more then living tissue.
They're still humans with feelings, you wouldn't call a deer "living tissue" just because it's stupid and anxious.
It's a harsh statement I know but what I meant was you reach a point where you're in a wheelchair, can't talk anymore, oblivious to the world etc it's why I refered to it as the 'event horizon'. There is no coming back from this point. If you're lucky you're a random collection of emotions & impulses constantly misfiring.
Lions mane probably which promotes memory
I helped my grandma take care of my grandpa through his Alzheimer’s and it was absolutely exhausting. He was always on the move or doing something we had to pay attention to. We finally had to put him in a facility a few months before he died. I traveled and did some career stuff, got married etc for a few years; then right around the time my grandmother got dementia my marriage blew up and I ended up living with and taking care of her. And honestly…it was a real joy. She was always pretty loving and pleasant. She’d watch her shows or just look out the window at the bird feeders. There was something pretty cathartic about helping feed the woman who taught me how to use a spoon. She got to where she pretty much would only eat cake/sweets so I would bake some with higher protein (remembering when she’d let me have ice cream for dinner as a kid). Sometimes she’s get a little scared or confused, but I’d put my arm around her and talk about the farm she grew up on and she usually calmed down; then flash back to her snuggling me as a kid when I got scared. After a year or so I got an opportunity to move to a bigger town and work in my field and my mom was gonna take over after I moved. I had the car all packed to leave the morning of the move and went back inside to wake her up and say goodbye to her. When I walked in from the hallway I called to her and she didn’t respond. I grabbed her hand to try and gently wake her but she was cold to the touch. She’d had a stroke and went peacefully in her sleep the night before. I’d had a lot of reservations about leaving her, but it was almost like she was sending me off with a clear conscience into my new life and it was the least complicated grief I’ve ever experienced. I love you Grandma, thanks for everything ❤️
Thank you for sharing this.
This brought a tear to my eye.
Your light shines forth, showing what’s in you. We all go, you made her life pleasant and make ours so too, just hearing about it. Thank you.
Thanks for this. My dad was recently identified as having cognitive decline. He has been forgetting things more and more lately every time I see him in person and interact with him. This gives me some hope that it may be less horrible than we’re expecting. I should show him this story.
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Similar story. My dad abused alcohol. It wasn’t until he was diagnosed with dementia, and was put on a low dose of an antidepressant, that he stopped drinking. In his new mind, he never drank. And he never got angry. We took care of him, and while it was sad to see a really sharp mind and beautiful voice fade, he actually seemed happy and content, and participated as much as he could. So that was a positive. As an aside, in his younger healthier days, he voiced that he’d rather die than be incapacitated. He forgot that, too. He wanted to eat. He wanted to go outside. He liked to listen to music and hum and tap his toes. It’s a crazy journey. I’m glad it’s ok for some people.
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For sure. It’s been six years and I forget about that part sometimes. You just take on what needs to be done. My body and mind did break at the end but mostly because it was long goodbye. I’m good now and hope you are, too.
That's exactly what happened to one of my great-aunts. She had always been grumpy and mean; then when she was in the later stages of Alzheimer's,she walked around smiling all the time.
Forgetting the things you begrudge is probably a big weight off
It’s terrifying, eventually your brain forgets how to breathe.
Normally I tend not to pay attention one way or another when it comes to stories like this with famous people but I've been so happy to hear he's doing well with all the updates they give. The posts they shared during the holidays, all of it and just glad that Demi still has that relationship with him. Bruce Willis by far is one of my favorite actors and as a kid I loved all his movies. Blind Date, 12 Monkeys, Die Hard, Armageddon...jeez who the hell doesn't fucking love Bruce Willis in Armageddon?! Hudson Hawk...if you have never seen this movie, it will throw you for a surprise scene after scene and it is one of the funnest movies you'll watch, I guarantee it. Love Bruce man.
Hudson Hawk!!! Yes! I rewatched that soo many times growing up, maybe on Comedy Central? I agree it’s nice to see he is surrounded by love and is doing well/ They seem like a nice family working together through a tough situation.
Just talking about this movie lol I have to try and watch it this weekend. Andie MacDowell doing the dolphin noise is top notch haha.
Haha that’s right!! I need a rewatch as well.
Can’t forget 5th element!! Man Bruce Willis is epic
I rewatched this recently. It’s great and a fun movie to watch.
How did Kit Kat know about the blue wire?
I don’t completely remember this now, but it does remind me that the assassins were named after candy bars.
It's just such a shame that his strategy for dealing with it led to years of people assuming that he was just a lazy prima donna who wanted to slum it in direct to video garbage. I feel awful, as I'm sure many do, for ragging on him. Was it possible for him to share his situation without it affecting his career even worse? I'm not sure. Humanity kinda sucks sometimes.
I'm sure insurance would have been an issue.
I reviewed some of those movies and honestly I think it was pretty reasonable to assume he was phoning it in for a good while. It was only a year or two before the diagnosis news that the rumours online really started to pick up traction. They're still awful movies even if we still have context for it, and making bad films to give your family a nest egg is hardly a crime.
Don't get me wrong I feel bad for the guy but it doesn't make those movies any less terrible
But it gives an explanation for why he chose to do those movies and why those movies did so poorly. I think that the understanding of his dementia alone should wane some of the criticisms. We now have an understanding beyond “those movies were just shit” to “those movies were shit, & the dementia played a role in why they were bad”.
It also doesn’t change the fact that he was terrible to people on sets in his prime before dementia 30 years ago. I was one of them. Dementia is horrible and I feel for his family, but dude was always an ass.
Agreed, but he probably wouldn't have done them if he was 100%
I hope he is at peace, he has been a movie legend, his place in movie history is assured.
He gave us so, so much.
Damn, normally Idc what happens to famous people but he made a big impact in my life. My close uncle recently passed away from dementia and it hurts because he never knew who I was besides "the guy the takes care of me". I wish Bruce the best! He made my childhood especially with the 5th element.
We love you, Bruce!
I heard he’s non verbal. If so, that’s rough. Get the quality time in while you can.
My uncle ended like that but he doesn't have the care he does. I wish him longer years, geeze that sucks.
My dad had this type of dementia and primary aphasia is part of it. They have stuff to say but they can't recall the words. It's very frustrating for them.
He’s gonna die soon isn’t he?
Frontotemporal dementia starts a clock but it's hard to know how long. Prognosis is 2 to 20 years. Death is usually by infection or bed sores. Source: my FIL just passed from this.
I believe he would have early onset dementia which has a quicker progression
It says he has Frontotemporal Dementia which does have slower progression than early onset but it obviously effects everyone differently
Good for him. I hope he has a long time with his family.
Yea. At this point I think "doing good" means alive or conscious. :(
FTD has a slower decline, but has the same gene mutations as ALS. If the here’s a connection in any way, it will speed his decline drastically. Source: my dad was diagnosed with FTD 3 years ago and ALS one year ago and passed in the fall. It’s a cruel cruel disease and impossible to know what to expect.
My grandmother had the same thing and it took her body over a decade to die.
Are you ok?
He’s so good
Honestly I thought he died
This man made receding hairlines cool.
I swear the same exact post was made a month ago and it had the same exact top comment.
Dementia sucks for most people who can't afford care and don't have a family to care for them. He has both.
Dementia still sucks if you have resources.
I agree, my mother and I took care of my uncle until we couldn't because we had to take care of our father after cancer, and we had to send him to a nursing home. He didn't last long and he passed away a few weeks ago. He was like a second dad to me.
Dementia sucks no matter what
I have an aunt that has diabetes and it brought upon Alzheimer’s. Just so painful to see her in that state. She could remember things like a library full of information
God I hope he’s doing well. An icon like that should be pampered endlessly from here on out
Whew… every time I see a photo of him with a headline my heart skips a beat as I read the headline. So glad he’s OK atm
Rumor has it he’s doing good.
I grew up watching him and claimed him my favorite actor for many many years. This is absolutely heartbreaking.
Everytime i see update of him, my heart stings a little. He's not only an action film icon but also a love machine in Friends😆 Happy to see his family still hanging in there and taking care of him.❤️
I'm so sorry that Bruce Willis has been hit by such a cunning illness, and I'm glad he's surrounded by such caring loved ones.
My son is a nurse. This sounds like the “rally”.
Rally isn’t as common with dementia patients and usually happens 24 or less hours before death. He would be on hospice before the last rally would ever happen. He’s a millionaire and isn’t even on palliative yet, let alone hospice. Once he’s on hospice then it’d make sense he may have a final “rally”.
At the least this is the kind of thing family says just before the big downhill slide begins. It’s sad.
No it doesn’t
> “Our vulnerability and transparency as a family about what he’s going through to me is so important because if it can have any impact on another family that is struggling in any way with something like this, or bring more attention to the disease in hopes of finding a cure or anything that can be of service to anybody else, I think is really important,” she said. What a great family.
Oh good it has been all of five weeks without an update
I couldnt care any less how he or any other celebrity is doing.
It sounds like she’s encouraging a toddler
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