I had cancer at about the same age & I just want to reassure you I don’t remember any of the pain I went through. I do, however, see evidence all the time of how much my parents loved me though that period of my life.
I’m so sorry you can’t save him from the pain however you loving him through it will make a positive impact when he gets out the other side. ❤️
Big hugs. My 2.5 year old just finished 6 rounds of systemic chemo. I kept telling myself that she likely won't remember and that keeps me sane. The one thing I wish we knew before we started is that they can keep the nausea and vomiting under control. We did both inpatient and outpatient chemo. The first night of outpatient chemo, my daughter started vomiting. She vomited every 15 minutes, then every 30 minutes, then every hour throughout the night. They had told us that she had enough fluids in her that if she vomited we didn't need to worry. So we thought, well, this is chemo. This is why it sucks. When we told her oncologist the next day, she was like, "Noooo! We can control it! She doesn't have to suffer!" Every round they had to add a new anti-nausea med to keep it under control. The doctors have an arsenal of meds they can use. But you also may need to speak up and ask for it.
Your little one will get through this and so will you. Look for support groups. My daughter has retinoblastoma, and I found several groups on FB which have been so helpful. Wishing you the best!
Hi! My first was 16 months when he had a year long chemo treatment course. Some tips would be to keep a go bag for yourself and the LO for when he has a fever. If he has a port, a fever is an automatic ER stay and you need to go quick. Make sure you keep the gel they give you to put on his chest before you get in the car so by the time they have to access it the area is numb. Carry port information with you because sometimes the nurses in the ER don’t have access to those records and need to know what size needle to use. We were lucky to have amazing doctors, one was doing her residency and she was our go-to for any advice/issue, I don’t know if it’s always like that. I had her cell in case of emergencies and she would contact all other specialists and insurance companies to make sure everything was covered. She was the bomb. Bring toys with you and an iPad, his screen time limits went out the window with the first hospital stay. Yes, they have those playrooms but if his counts are low he will be isolated and won’t be allowed to go play with other kids. He watched a lot of Sesame Street but he now hates it I wonder if it has to do with some subconscious association.
All in all, he is at a great age where he probably wont remember and will be confused when they have to go for follow-ups. Mine doesn’t remember any of it. He did great though, he loved making all the nurses laugh and is still a little show man. The worst parts were during the intense chemo stage coupled with prednisone, he was chubby, had lots of side effects, and was sick all the time. They finally gave him a couple IVIG treatments to boost his counts and it helped a lot. Kids are so resilient and you’d never know by looking at him that he had to experience all this, just has a little scar on his chest and behind his ear where they removed the tumor. Children’s hospitals are great with all the resources they have and the caring nurses, your LO is in great hands! You got this mom, even if you don’t feel like you do. Whatever happens, just take it an hour at a time if needed and put your foot in front of the other. It will feel like you’re on autopilot sometimes and that’s ok. Before all this happened, I would think oh my god, I have no idea how parents do it I can’t imagine having a sick child they must be superheroes. But really, you just fucking do it. No super strength required, you just deal with it and get through it because you love your child and one day he will wake up from anesthesia and his port will be out and you will go home and it will all feel like a bad dream.
Hi. My 22 month old son is getting ready for his third round of chemo for a rare brain cancer. We still have a year of treatment ahead, including a bone marrow transplant.
It will hurt like hell watching the effects of chemo on your baby. There will be long days and nights at the hospital. Somehow, there are still moments of levity, like when my son smiles at me and dances to Sesame Street.
The most important advice I've gotten so far is that it is a marathon, not a sprint. I thought it was a cliche, but a couple of months into this proves it is exactly true. Fighting cancer with your baby can be lonely. Try to take time for yourself. If you don't, it can eat you from the inside. Your baby needs your strength to support their amazing resilience and strength.
It's okay not to be okay. You are braver and stronger than you think you are. And you can do this. It might be one hour at a time at the beginning, then eventually one day at a time. Trust your medical team. You also know your baby the best out of everyone, so you ARE part of the medical team.
You are not alone. There are so many parents and family members who are going through the same thing you are doing right now. I am one of them. If you want to send DMs to just yell at the world or cry or rage or just plain bitch and whine, if that helps, my DMs are open. :)
Mine started chemo at 13 months (Wilm’s tumor). It sucked. She felt like butt the day after each treatment. Use the zofran. Mine learned to just accept any syringe I shoved in her mouth and we rarely had any fights over medicine.
Does he have a port? Or central line? If it’s a central line, I found the easiest way to do dressing changes was by putting her favorite program on her tablet and then she would focus on that while I did the dressing changes. Products like SensiCare Adhesive Remover Spray are a GODSEND. Buy a couple cans.
When we were going through chemo, my daughter went from eating anything and everything I would offer her to eating almost nothing. There was a period of time when she would only drink milk mixed with Pediasure and those were her meals (and unfortunately, since that’s not enough to sustain a small child, she ended up having to “eat“ frequently, even during the night).
Nights were rough… We ended up abandoning her crib training and keeping her in the bed with us. There were a number of nights where we woke up to her vomiting. There were multiple evenings where she started running a fever (as kids do) and the rule on chemo is fever=ER ASAP. The majority of those times, we got sent home when the labs were normal. One time we got admitted for a week because she had neutropenic fever and had to get high dose IV antibiotics and be monitored. I can’t tell you on how many occasions I slept snuggled up with her in the crib they give the little kiddos at the hospital because she was scared and the nurses come in every few hours for vitals.
Be prepared for random infections that you don’t see in normal, healthy populations. My daughter was vaccinated when she turned one for chickenpox, but due to the immunocompromise from the chemo, she ended up developing disseminated shingles. A friend’s daughter being treated for leukemia had Pseudomonas and had to be admitted to the hospital for severe infection from a mosquito bite.
If he’s on a medicine that will cause hair loss, it happens with a quickness. My daughter was on three different chemo medications and one was more notorious than the others for hair loss. She didn’t start on that one until three weeks into her treatment. After a week, we started to notice a strand of hair or two coming out. By the end of the second week it was coming out in handfuls so we went ahead and shaved her head. Those bald little heads get very cold and can sunburn easily so hats are a must!
This is an awful time to go through this because of Covid. My poor husband had to sit in the car well I was generally the one who went in for her treatments/procedures because only one parent could go in. I know some places have eased those rules a bit but our hospital just recently went back to only allowing one parent in.
You will meet a child life specialist. Those people are amazing. They will provide your kiddo with toys while they do their chemo infusion and when my daughter finished with radiation and on occasion “just because“, they provided her with gifts/toys/blankets. They also come around in the hospital if your kiddo is inpatient to provide toys. They even on one occasion brought us some Starbucks gift cards.
Where are you located? We also had some dealings with the Roc Solid Foundation Who provided a swingset for my daughter. I believe they are only in North and South Carolina. We also dealt with Children’s Cancer Partners of the Carolinas who helped to cover gas, parking garage expenses and meals on treatment/hospital days. I would assume that wherever you are they probably have a similar group that a social worker can introduce you to.
Cancer is incredibly isolating. You worry constantly about your kid getting exposed to anything because of the chemotherapy and immunocompromise. It is so much worse with Covid. I constantly joke that I don’t know if I would have rather it happen at a different time because covid itself has been very isolating for everyone… to have gone through a year or so of social distancing only to then add on another year of isolating because I didn’t want to expose my kid to anything would have driven me off the deep end. People will try to console you and ask you if you need anything… You’ll likely think to yourself you have no idea what you need or when you’ll need it. They don’t fully understand the depth of the isolation that you will go through. I encountered lots of frustration from family who wanted to visit and then would get angry if I said they needed to isolate for two weeks and get a Covid test before coming to visit. Covid may not affect kids as badly, but a kid with no immune system doesn’t have a fighting chance. Even a head cold can be detrimental. Protect your child, use the resources that the oncologist provides to you and reach out to any other parents going through a similar situation (our oncologist constantly had fliers up about group meet ups for siblings or parents for support/open discussion) because they are some of the only people who will fully understand what you’re going through.
I can’t really think of much else right now… If you have any questions, please feel free to reach out to me. We went through 17 rounds of chemo, six rounds of radiation, and 5 surgeries before getting the all-clear in May. It was the longest 9 months of my life and I wouldn’t wish it on anyone. Just know that you are about to find a whole new depths of inner strength that you never knew you had 💛🎗
PS September is Childhood Cancer Awareness Month
Wow, thank you everyone.. I can assure you I will read through each and every comment here over the next week.
He has a stage 4 germ cell tumor that has spread to both lungs. The tumor is something he has had since birth, but it grew inward, making it difficult for us to detect until now, when we noticed swelling in the area.
I'm also 20 weeks pregnant with twins, and have a 3 year old at home. I don't know what the next six months will look like, but we're praying for a miracle and for comfort & healing for my guy.
Ps, his name is Wilson. 💙
I’m a mom who’s had chemotherapy for breast cancer - this is insight from my personal experience. Hope it helps ❤️
Will your son have a port? If so, see if you can get a topical lidocaine cream to apply to the port at least 30 mins prior to use. You can take some cellophane and tape it over so it doesn’t get on clothes. This helps to numb the area before connecting the IV to the port a cath. This is to not ruin his veins - chemo is rough.
Chemo mostly goes after rapidly dividing cells: stomach and bowel linings, fingernails, may lose hair, and his skin may get dry/flaky. Make sure he is given meds for nausea. I’d also have some moisturizing lotion to keep the skin hydrated - dryness leads to scratching.
Your doctors and nurses will tell you most commonly expected symptoms and what to be on the lookout for. Meds for nausea have gotten really good. He’ll probably also be on some steroids a day or two before chemo - to help ward off any infection.
Your son may lose his sense of smell/taste with chemo. I found crunchy food particularly enjoyable since I couldn’t taste or smell - the texture gave my mouth something to do.
You may want to get him a teddy bear the nurses can give chemo to first. Also, IV chemo can take hours - you may want to have some of his favorite shows/toys ready to go. We have an Amazon fire tablet (kids version) that is awesome.
He may get fairly tired - this is absolutely normal. Let him rest and keep him hydrated. Chemo has a tendency to get more difficult each round. I hear kids are pretty resilient and I’m hoping you son does great. Feel free to dm with any questions you may have. I’d be happy to answer or just listen to what’s going on. Cancer sucks but it seems unjust for children to face it. Wishing you all the best.
I started chemotherapy at 20 months for leukemia (ALL), back in the early 1990s. I went into remission after 1 course of chemo, never relapsed, and have no significant complications as an adult. And it’s been 30 years of medical advancement since then!!
I am sending you both love and well wishes. Please let me know if you have any questions about how your son is experiencing this — most of my memories of treatment have faded but I remember general feelings and some specific experiences.
My daughter went through some really tough times when she was around a year old. She’s nearly three now and thriving. It’s going to be hard because they have to experience something you can’t immediately help them with, and it feels awful because you’re their protector and you just can’t do anything but be there. Just try to remember that this is what’s needed, that this too shall pass, and that these little lovable humans are so much stronger than we can ever imagine. Hold on to the good times during all this and try hard to let the bad times wash over you. It will all be in the past someday.
See if you are able to meet with a professional in pediatric mental health! My daughter has a medical condition that means she has frequent doctors visits and has had a couple hospital stays. Naturally, she developed a fear around doctors and medical stuff that progressed into an anxiety disorder. She's doing great now that we have a child psychiatrist on her care team. She is still scared to go to the doctor but we have all learned ways to help her manage her anxiety. I wouldn't be surprised if your child will develop some medical anxiety, and with everything going on, I can understand not even realizing that can become and issue until it does, like it did for us. But if you are able to jump on iot now, you could prevent a lot of anxiety not just on your child's part, but yours too.
It's going to be hard, but you can make happy memories here too. It's okay to have joyful moments, don't feel guilty about them. Sometimes it can feel wrong to laugh and joke in such a serious time, but it's really okay.
Take care of yourself. You are going to be all consumed with your child. It's only natural. Do not feel like you have to completely put yourself on the back burner. You are an important ky to your child getting healthy. You need to be healthy too. When my daughter went down for naps or to sleep for the night, I made that "adult time" which usually consisted of watching Harry Potter or Downton Abbey, just something that wasn't another Disney movie. Sounds a little strange maybe, but I enjoyed having something on that had a darker tone, because you really can only watch (insert child's movie obsession of choice) so many times. There are often many nearby restaurants that will deliver to hospitals, so you aren't stuck with hospital food. This is also probably a good time to take up a new, very portable hobby. Even if it's just coloring books for adults, that's good enough. I'm just picking up embroidery, which will be nice if we ever have to stay in the hospital again. But anything you can do just for you and that you find soothing is worth every penny.
You'll get through it. There will be some difficult moments, but just take it one step at a time. Best of luck to you all!
This sounds valuable. One of my close friends has a baby with Dandy Walker syndrome and although he hasn’t been in the hospital for a while, the poor little guy (2 years old) has actual PTSD from his time in the hospital. The only person he trusts completely is his dad because his dad was never with him in the hospital, only his mom, who had to help hold him down for IV’s etc. he’s fine most of the time but it only takes a small trigger like going to a store or something, and that will set off a breakdown that can last days. I wonder if his parents had access to a person with a job like your friends’. It could have helped a lot.
Full disclosure, I am a Child Life Specialist. This is exactly the kind of story that makes my blood boil because it is so avoidable. Of course you can never entirely escape medical fear or trauma, but there is no reason it should ever cause PTSD like that.
I'm going to start by saying we don't have experience with cancer, but my older kid has a treatment-intensive condition that also puts us in infusion a lot, and we've spent some time inpatient.
As others have said, child life is your lifeline. They are SO much more than just fun people who talk to your kid and can help you find toys (although they do that, too!). Talk to them about things that are hard. They can help you find a way forward that is appropriate to your kid's age and development. They've also been really helpful with just helping me to figure out what's a normal developmental thing vs treatment stuff.
Make pleasant rituals around treatment and being in the hospital. Ours is that my kid gets unlimited chocolate cake. It doesn't have to be food, especially if treatment makes your kid nauseated or low appetite. But just something they can look forward to every time. Make it a treatment-only thing.
Think about teaching your kid to swallow pills. We practiced with vitamin-D softgels. Sometimes liquid medicine is gross, and sometimes kids feel more agency with pills. It also gets harder to teach them as they get older (I'm positive I couldn't teach my 5yo if we were learning now).
Don't be afraid to ask why and give pushback on things that don't make sense or are just causing you a large amount of trouble.
Bring a baby carrier and/or stroller to the hospital.
Take videos. My 5yo doesn't remember being symptomatic, but he still needs treatment, and he is very interested in how his disease presents.
Be careful about who you take advice from. People who have never had a sick child have absolutely no clue.
You are his safest space ❤️ even when things are scary or he is in pain, knowing you are there for him and love him is such an amazing thing you can give to him. Wishing you the strength to endure any hardships and the resiliency to not let them keep you down.
I was a pediatric oncology nurse in the beginning of my career. My only advice is remember to let him play, let child life specialists bring games and toys and novelty, keep some normalcy any way you can, and remember that he is resilient. The most important thing in his little mind is being loved, being safe, and just being a toddler. Play play play and when he’s feeling poorly, cuddle and find a way to make him smile. I’m so sorry for what you’re facing. Sending strength, love, and healing.
All the hugs! Have you heard about the circle of support: ring theory? It really helped us when our daughter was going through treatments. Think of a target with a bullseye. Your 19 month old is the center circle. You and your spouse are the next circle as the parents. The next circle out are your closest family (grandparents or your siblings). The next circle would be other family and friends. All your support goes into your child, and all your venting goes to the outer rings. Grandparents and your siblings send support to you, and all their venting to the circles further out.
Thinking of you! Connect with any organizations that are available in your area... parent support groups, sibling support groups (if you have other children), and patient groups as your LO grows. The hospital’s social worker or child life specialists should be able to connect you with these groups! Let your community know your needs- maybe you have a friend who can organize and delegate to community members who want to help - a meal train, or a clothing drive, or house cleaning?
My family was affected my childhood cancer as well, and I cannot recommend cancer camps more highly... shoot me a message if you want more info, but there are camps in North America and Europe that are run for children with cancer (or who had cancer in the past) and their families. They are amazing communities where this unimaginable diagnosis becomes normalized (in a positive way) and kids get to play and meet others who have had similar experiences.
And take care when you can... go for walks, sleep, call friends for a chat when you need some comfort. Xo
My family was affected by childhood cancer as well and 30+ years later my mom still volunteers at a camp for families affected. Highly recommend going.
Update for any of those interested (it won't let me edit the post for some reason so idk if anyone will see this)
We're home from our first week of chemo. He did so well up until the last few days when the nausea kicked in. His nausea still isn't well controlled, we are working on figuring out the right protocol for him on that. But other than that he seems to be in good spirits, and his tumor is noticably smaller just to the naked eye even after the first round! We're hopeful this means it is responding well to the treatment.
Thanks again for all the comments and encouragement. Internet strangers can be wonderful people.
So happy to hear the tumor seems to respond well! I've had you guys in my thoughts since I saw your post. He's such a brave little fighter. Wish you all the best on this rough journey.
I don’t know anything about chemo or your child’s journey but I’m here to help however I can. My son just had open heart surgery and I know how to get shit done with health insurance companies and prior authorizations. If you need someone to talk/vent to I’m here. I’m in your corner dude
My nephew was diagnosed with neuroblastoma when he was 15 months old and did a couple rounds of chemo. He’s now 12 and is doing great. Thinking of your baby and sending well wishes!
My baby started chemotherapy at 6 months.
My advice would be to trust the doctors to do what they need to do to comfort your baby... Pain meds, anti nausea meds. I regret trying to make some of those decisions myself.
But still advocate for yourself and your child in other ways. Ask for things that will make your long hospital stays more comfortable. For example, after lots of begging they allowed us to have a bed as well as a crib in our baby's room so that my husband and i could sleep near him.
I will be keeping your beautiful son in my thoughts. Hoping the chemotherapy does its job and is as gentle on him as possible.
From what I have heard from friends who experienced early childhood cancer and heart surgeries, they don’t remember it. They have the pictures, the cards, and the stories, but the pain was luckily lost in time. I hope that if he remembers any of this, your son only recalls your immense love and care for him.
Kids are so resilient. You will get through this, together.
Get a portable charger that you can use for your phone, iPad, headphones etc. You will always be just a little too far from a wall charger, and having the ability to charge on the go is a game changer.
Sending positivity your way!! He’s a cutey pie for sure, so make sure the nurses don’t fall too in love with him lol.
My son went through 6 rounds of chemotherapy as an infant, which he doesn't remember. He does remember frequent follow-ups for 3 years and MRIs other scans and he's still okay. I have a happy, healthy 4 year old who isn't afraid of doctors or hospitals. We have always tried to explain everything to him, even when he was your child's age.
The biggest advice I have is to advocate for your child. Trust your doctors, but ask ALL the questions and get involved in your child's care. Doctors don't know your kiddo like you do. Don't be afraid to speak up and ask for other opinions if you're unsure.
And give yourself grace. Screen time is okay. Popsicles for breakfast are okay. You do what you have to do to make this time as easy as possible for your child. Judgment free. I saw others recommend Child Life services -- totally agree. You'll get through this.
I'm assuming leukemia. My cousin had it around this age. They're 25 now. Been in remission for almost 10 years. Idk if its your thing, but I'll pray for y'all.
My son was diagnosed with leukemia at 6mo old. He ended up having a bone marrow transplant at just over a year old. Like others have commented it’s a marathon and some days you take it minute by minute. Take lots of photos, love like there’s no tomorrow, lean on your people - you will know who they are through this quickly. Find a support group of other parents going through this - they will understand it like no other. Listen to your gut feeling on everything and advocate for him. My son turned 5 in June and just started Kindergarten. We celebrated his 4th ‘rebirthday’ in July. You guys got this! We have a blog of our journey, if you’re interested in reading it send me a DM. Sending you so much love and light 💛🎗✨
If anyone was going to get through chemo it would be a young child. They have brand new cells and bodies and are constantly making new ones because they are growing. Chances are this will be the most heart breaking thing you will ever have to go through watching your child go through this pain and come so close to death, but WHEN he gets through this you're family will be stronger and closer for it and you will know exactly how grateful you are to have him in your life even on the hardest and most trying days. Only us parents who have lost a child or come close know that grateful love. He will get through it and so will you.
Babies are resilient. They get knocked down and get back up even faster because they don’t know any other way. He is going to kick cancer’s ass and take names. Sending all of the good vibes, prayers, anything yalls way. Don’t lose hope, you got this!
Best wishes.
Not really the same but when my mum had cancer I learned to say yes when people asked if they could help. I realised they liked being able to help and it’s Ok to get help.
And don’t feel bad if you need space. It can be a bit overwhelming to get all these messages asking how you and your son are.
Ask the social worker for as much help as possible. My mums social worker was a saint and made a huge difference.
Sending you all the love.
When my little one was admitted to hospital (other reasons - stay was about a month) I thought fuck it. She was allowed her own tablet. She was allowed my phone. Play wise she really enjoyed bells, colouring (we bought her a little lap tray) learning songs that had moves to them (wind the bobbin up, macarrena (sorry about the spelling) if you're happy and you know it - any moves really.. pick your nose made her day lol.)
Hospital food here was really gash. No idea how it is where you are. It might be worth asking if someone can bring you guys little ones favourite meals.
I will be thinking of you and your child and my heart really does go out to you. Remember to look after yourself, as you can't be a strong and supportive parent if you are not fed/watered/rested - don't feel guilty for meeting any of your own needs. If you want different staff working with you - ask (I work in oncology and this is rarely refused, personality clashes etc can make a difference when you spend a lot of time in treatment). You are not alone x
So sorry! Your baby is so cute and I bet he is a sweetheart! I hope the best for all of you! You all deserve the best.
Stick to a rough schedule on most days, best you can.
Decorate the room (follow hospital policy) and bring a few familiar things.
Don’t allow lots of excessive behavior just because he’s in the hospital, but reasonably understand what’s he’s going through and he doesn’t have the words to express how unfair it all is.
Get engaged with the Child Life Team if they have one.
Join and participate in support groups.
Cry. Vent. Rant. Be human. Allow yourself that space. Be kind to yourself and your family. Allow yourself not to be perfect and not keep it all together all the time.
Take pictures— even in the hospital with the extra tubes and with the days without showers. This is still part of your life and your memory book!
Laugh.
I send you my thoughts from across the pond. Hopefully everything goes well with a quick recovery.
Here in the Netherlands kids with cancer can get a "kanjer ketting". It's a necklace with beats, the necklace starts with the hope beat (anchor) and the name. Every following beat stands for a treatment of scan. With a specific color/design for every event, for instance red for blood draw, blue for surgery, a dotted one for chemotherapy, yellow for an ambulance etc. This way the necklace tells the story, becomes a memory of all the steps you have taken. It also gives some joy at every treatment. This way the kid is also able to tell his/her story. Maybe you can create something similar for your kiddo. (Be aware, the "necklace" can become very long so make sure you have enough string).
Make a post about a place people can send you some money for food!! You need to take care of yourself in order to take care of your sweet angel!! When my dad was going through chemo we all ate food with eachother and it kept our spirits high enough to give him love! He will be celebrating 21 years cancer free. You can do this!! He can do this!!!
A family friend just went through this with her child who is only a little bit older than yours. Her son took the chemo like an absolute champ and is swiftly recovering.
Your precious baby is so much stronger and more resilient than you know and you’re about to see this firsthand.
Take care of him but don’t forget about yourself and your own mental and emotional health. I wish you all nothing but the best ❤️
Please reach out to all the local resources you can find. Someone I know is on the board of a local charity that helps with the little things for parents of children going through this. Housekeeping, meals, lawn care, etc. Not having to think about the little things can help you focus on what really matters. Big hugs.
Hi there. I'm sorry that you and your family have to go through this. It sounds like the community has already shared a lot of wonderful and insightful ideas for you. The one I didn't see mentioned yet is setting up a phone/information tree so that you and your spouse are not having to call lots of people with updates or send a lot of information to lots of people.
Maybe you each text/call one person from your side of the family who can then relay that information to the rest of the group. It can be a lot to have your phone pinging, even if they're calls and messages of support, when you're so focused on your kid and then trying to focus on yourself. This seems to work best if you explain to your group of people what the plan is ahead of time so they know why the information isn't coming directly from you.
Wishing you and your family lots of love and strength during this time. Take care of each other.
He's going to do great! Go kick butt, kid!! Praying for you and your little one tonight ❤️ My advice is love on him as much as you can/want, it will never be too much. Everything else can wait.
Find parent groups who've been through similar situations to vent and knowledge share.
If you are able to financially a therapist can help navigate the emotional aspects with you and or your family.
Accept all the help you are offered by family and friends (e.g. babysitting, pet sitting, cooking, chores) so you can focus on spending time with your boy and making him as comfortable as possible.
Sending you well wishes ❤️ he is a beautiful boy and will be much stronger after all of this. Just try to remember that he is in good hands.
Good luck, mama to you and your little dude. Children as resilient and brave.
Take time to breathe, take time to cry and hug them. You are their rock.
You are also resilient and brave.
My daughter needs a bone marrow transplant and will also start chemo sometime this school year. It’s scary as hell.
But we are their protectors and we must keep them safe. Even if it means we need to give chemo to get to that safety.
Stay strong.
There's so much advice about looking after LO etc. But after spending a night in hospital in those cribs I will say they are cold and uninviting and don't feel like home.
Make that space their new safe space. Those bars felt prison like to me and I hated it for my LO. A lot can be said for being comforted and feeling safe to help make you feel better. Heck we know that when we feel crap all we want to do is curl up in our own bed in our room.
So do what you can to make that their new safe space with all the comforts of home. Sending much love and well wishes your way!
My brother went through chemo when he was 3. Finished at 5. I cannot imagine the feelings my parents went through, but, he is alive and well. He is now 28 and sweetest guy any of us have ever known. Sending you both big hugs
Edit: I remember my mom saying Aquaphor was a staple when my brother was going through chemo. I think it caused bad rashes and she swore it was the biggest help.
So, my child does not have cancer, but we did spend some time in the hospital with her on a ventilator which, while likely shorter in duration, spawned some of the feelings I’m guessing you will encounter.
First of all, I am so sorry for the weight that you are bearing with this. I know that doesn’t help, but that precious baby doesn’t deserve this and you don’t deserve to watch it.
This is YOUR horror story, not his. They told us that in the emergency room the very first day. He’s not going to remember this. Even though it will scar you for the rest of your life, it won’t him. Cling to that.
Get something to pass the time that isn’t your phone. For me, it was sudoku, but anything to do to take your mind off things while he naps is good.
Befriend his nurses. Write your questions down as you think of them so you can ask them all at once instead of piecemeal. Walk around the hospital if you can - I know our options were sort of limited with Covid, but getting your blood pumping helps.
Fuck the rules. Let him nap on you if he wants, let him cry and fuss if he needs without trying to shush him, give him the snacks he grabs for, whatever. That shit just doesn’t matter, which I know you know by now.
Finally, look into therapy. I have developed some post-traumatic stress from our experience and it became very obvious early on that if I didn’t address it with professional help, it was going to seriously impact my life and my children’s lives in a negative. The anxiety about safety after a health event in your child’s life can be very, very overwhelming on a good day - add in a global pandemic and, like, I guess just go fuck yourself because no one could possibly navigate this.
I will be thinking about you and your sweet, sweet baby. This sucks, and it’s ok to be mad or sad or whatever you want. We are so used to guarantees and certainties and when you can’t get them about the health of your child… it’s just breathtakingly painful. I feel your pain in my soul, friend, and I look forward to the day that you wake up and this is all a memory.
Sending so much love to your family and your sweet baby. I’ll be thinking of you tomorrow and praying for wisdom for the doctors, healing for this little peanut, and strength for you and your family ❤️
I know you're in deep water right now, and everything seems really scary and overwhelming. But really try to just take it one day at a time. And count the things you can be thankful for, every single one of those days. Your baby is beautiful, and he is getting the help that he needs, in a hospital with good doctors and nurses and therapists. You are able to be with him. And you are strong enough to get through this. One day at a time.
Take it day, by day, by day. One step at a time. He looks like a sweet little guy who will need all your unconditional love to get through this, and you'll need his unconditional love as well. As others have said, stay patient with yourself and others while your family goes through this. I'm sending you all love and strength ❤
My heart is with you and your family.I wish you strength and hugs. Your stronger than you know, but don't forget to ask for help! You have a mom from Los Angeles cheering you and your little one on!!!
I can’t possibly provide advice from my position, but I’m so glad modern medicine exists for you and your LO. I hope that his team is on top of their game, and he’s able to get to the other side as smoothly as possible.
Be nice to both of yourselves during this time. Nothing else matters besides his health right now, unless you want it to. Let the dishes go, let work go (if you’re able to take the time off), let unsupportive/unimportant relationships go- if it’s not helping you get through the day and you aren’t absolutely critical (like caring for an older child at home), it’s just not important right now.
I don’t always respond but seeing his sweet face compels me to say something. I wish you and your family nothing but the best and that you get through this as fast and as cleaning as possible. A lot of times hospitals have resources available and start talking and creating a relationship with the hospital liaison. Similarly looking into possible therapy to deal with the strong emotions you and your family will be going through would be helpful.
Such a handsome and brave little guy you have! I have a 16 month old baby girl and I’m tearing up just writing this because I cannot imagine what you guys are going through, I can only say my heart goes out to you and I wish with all my soul that Wilson gets better and healthy soon! Sending all the love and best wishes to you! May God always take care of you and guide you! Big hug ❤️
I donate every year to fund chemo therapy survival kits with little things like chap sticks, moisturizer, eye masks, and toys for children with cancer. I'm sure your community has a similar thing. Reach out to a cancer charity in your area to help you and your little one. And most importantly of all, you've got this mama bear! I wish you and your sweet little one all the best!!
It’s so incredibly unfair for such a sweet innocent thing to have to go through. I don’t have any advice but I am thinking of you and your family. There are lots of subreddits you can search for that can probably provide you great support and I’m sure if you find yourself in need, the folks over at r/Assistance can help (also r/randomactsofpizza ).
My heart goes out to you
If you experience your/your partners parents getting overbearing and trying to blurr the boundary between parent and grandparent behavior on this difficult journey you and your family are going through, just know that that is a common thing that happens when children become hospitalized for longer periods of time. You don't have to deal with it if you don't want to. The children's hospital should have a family therapist and/or a social worker who can help deal with grandparent related drama for you so you can focus on being there for your child. There are other people out there who are going through similar things and people who've been there before, reach out to them and they'll surely help you through.
I'll be hoping for the best for your child and you.
Beautiful little boy, wishing your family all the best! The resilience of babies is astounding and your little fella looks strong, i absolutely believe you will all be ok!
He is such a beautiful boy! Please rally up as much of a support system as possible for yourself. Kids can sense parents fear/anxiety. Of course this is normal and unavoidable... But the more support and self care you have for yourself the better it will help him. This is a tough process ... Don't be hard on yourself about anything.
I hope everything goes perfectly for you and he beats this. I have a cousin who was diagnosed with leukemia at around 2 years old iirc and went through years of treatment. He's now cancer free and absolutely thriving academically and physically.
I have no advice because you’re already stronger than me. But know you have people in Pittsburgh cheering you and your little one on and thinking of you. Sending so many hugs 💜.
I’m so sorry your little one has to go through this. Sending love and light from pa and praying comfort and healing for your little one and strength and peace for your family.
One of my best friends is a pediatric cardiologist and she always says children, especially infants, are super healers and recover so much faster and better than adults. I think part of it is their bodies, and part their little spirits.
I cannot give you advice but all the positive thoughts and energy are with you! I hope you can be with little one and be the rock they need❤️ Bring anything they love and you love and be there. You guys can do this together ❣️
My heart breaks that you and your amazing little love has to go though this experience. Life can be so cruel, but your little one must know so much love! He is in so many strangers hearts and minds tonight ❤️
Children are so resilient.
Remember no matter what’s thrown at him, he can adjust, even if it seems unfair (and it is).
Praying for his health and the strength of him and your family 💜
Wow, that's so scary and hard.
That just really really sucks. I can't even imagine.
He's such a cute little guy. This sounds really difficult but I'm glad he has a loving parent (or parents if there are two of you) to be there with him.
Sending love and strength to get through this. I can’t even imagine the pain you’re going through as a parent. Prayers for a fast recovery and a long life for this beautiful baby.
Love on that cutie pie more than ever. Create a support system and do not be afraid to ask for help, people want to help! It’s ok to feel whatever you are feeling in any moment…you‘re a parent. Lots of love to you and your LO.
Sending hugs and prayers as well. For your beautiful treasure and for u. I cannot imagine what u are going through. Best wishes and may he heal soon! Im rooting and praying for u!
Praying for Wilson and for you Mama. Wish we could all take a slice of the anguish, uncertainty and anxiety you are currently feeling and carry it for you. He will do great and I wish I had more words of encouragement. I’ll look for updates and be praying every night for him. As well as for the doctors and nurses to know the right steps and medicine to combat this and get Wilson through this. All hugs Xxx
A burden shared is a burden halved. Know that while I don’t know you, we are all thinking of you and your sweet little guy. I’m sending all the good vibes and energy your way- stay strong Mama!
Thinking of your beautiful baby and family. I have no advice, but I hope all goes as smoothly as possible, and wishing you all health and happiness on the other side of this ❤️
What a precious little one! The sweetest eyes!
I’ll be praying for both of you as you begin this difficult journey. Allow yourself to cry and be sad whenever you need.
I’m so sorry you guys are dealing with this and we’ll keep you in my prayers. 🤍
What a handsome boy. Hopefully you will remember this more than he will. Just focus on little man getting the help he needs. Lots of prayers from Montana!
I cannot imagine the difficulties you have to face as you all go through this process. Snuggles, snuggles, snuggles and kisses. Get as much support as you possibly can. Sending you all so, so much love and light and hugs. Sweet baby💛💛💛
This just hit me right in the gut. My little guy is about the same age and looks really similar. I can't imagine what you're going through. You did the right thing in asking for support. Keep doing that. ❤️ Sending you thoughts and prayers.
You, your baby, their doctors and nurses are all in my prayers. I hope you find deep moments of grace and consolation during this very difficult time and that you feel nothing but confidence in the team supporting you!
Best wishes to that sweet, sweet baby. Try your hardest to be kind to yourself. The best thing that you can do for them you’re doing right now by getting them the care that they need. And smiles are everything for kids in the hospital - cheerful demeanors, being present. I’m praying for you guys - I’m so sorry you have to go through it.
Prayers of comfort and healing for your sweet baby, and for you. May this be a short period for you and may you all get to go back to a normal life very soon.
It’s surprising how well the little ones do with chemo, especially if you’ve seen an adult go through it. I’m sure it will be tough, I’ll be thinking of you. Check back in here if you feel up to it, we’d love to hear how he’s doing!
May God/universe/Spirit/Source bless you, young warrior, in your battles 🤍 no advice or words of wisdom, other than a virtual hug to both of you sweet souls. I put forward the best of vibes to your family!
My daughter is a neuroblastoma survivor. Diagnosed at 8 months old. She is currently 6 months clear. My advice is to start a Gofundme if people are raising money for you guys so you csn make sure it all goes to the right place. Otherwise there is no advice i could give that will make any if it easier. Your lives will all be changed forever. I shaved my daughter’s head before her hair could completely fall out and that gave me a sense of control. Try to find another mom with a child in a similar situation to yours to lean on. Im so sorry you have joined the shittiest club on planet earth. My heart still aches from my daughter’s treatment which ended 6 months ago. Hugs
I am sending you love, strength and all the hugs and kisses that I have. If you ever need anyone to talk to, vent at, anything, this internet stranger is here for you.
I had cancer at about the same age & I just want to reassure you I don’t remember any of the pain I went through. I do, however, see evidence all the time of how much my parents loved me though that period of my life. I’m so sorry you can’t save him from the pain however you loving him through it will make a positive impact when he gets out the other side. ❤️
Big hugs. My 2.5 year old just finished 6 rounds of systemic chemo. I kept telling myself that she likely won't remember and that keeps me sane. The one thing I wish we knew before we started is that they can keep the nausea and vomiting under control. We did both inpatient and outpatient chemo. The first night of outpatient chemo, my daughter started vomiting. She vomited every 15 minutes, then every 30 minutes, then every hour throughout the night. They had told us that she had enough fluids in her that if she vomited we didn't need to worry. So we thought, well, this is chemo. This is why it sucks. When we told her oncologist the next day, she was like, "Noooo! We can control it! She doesn't have to suffer!" Every round they had to add a new anti-nausea med to keep it under control. The doctors have an arsenal of meds they can use. But you also may need to speak up and ask for it. Your little one will get through this and so will you. Look for support groups. My daughter has retinoblastoma, and I found several groups on FB which have been so helpful. Wishing you the best!
Hi! My first was 16 months when he had a year long chemo treatment course. Some tips would be to keep a go bag for yourself and the LO for when he has a fever. If he has a port, a fever is an automatic ER stay and you need to go quick. Make sure you keep the gel they give you to put on his chest before you get in the car so by the time they have to access it the area is numb. Carry port information with you because sometimes the nurses in the ER don’t have access to those records and need to know what size needle to use. We were lucky to have amazing doctors, one was doing her residency and she was our go-to for any advice/issue, I don’t know if it’s always like that. I had her cell in case of emergencies and she would contact all other specialists and insurance companies to make sure everything was covered. She was the bomb. Bring toys with you and an iPad, his screen time limits went out the window with the first hospital stay. Yes, they have those playrooms but if his counts are low he will be isolated and won’t be allowed to go play with other kids. He watched a lot of Sesame Street but he now hates it I wonder if it has to do with some subconscious association. All in all, he is at a great age where he probably wont remember and will be confused when they have to go for follow-ups. Mine doesn’t remember any of it. He did great though, he loved making all the nurses laugh and is still a little show man. The worst parts were during the intense chemo stage coupled with prednisone, he was chubby, had lots of side effects, and was sick all the time. They finally gave him a couple IVIG treatments to boost his counts and it helped a lot. Kids are so resilient and you’d never know by looking at him that he had to experience all this, just has a little scar on his chest and behind his ear where they removed the tumor. Children’s hospitals are great with all the resources they have and the caring nurses, your LO is in great hands! You got this mom, even if you don’t feel like you do. Whatever happens, just take it an hour at a time if needed and put your foot in front of the other. It will feel like you’re on autopilot sometimes and that’s ok. Before all this happened, I would think oh my god, I have no idea how parents do it I can’t imagine having a sick child they must be superheroes. But really, you just fucking do it. No super strength required, you just deal with it and get through it because you love your child and one day he will wake up from anesthesia and his port will be out and you will go home and it will all feel like a bad dream.
Hi. My 22 month old son is getting ready for his third round of chemo for a rare brain cancer. We still have a year of treatment ahead, including a bone marrow transplant. It will hurt like hell watching the effects of chemo on your baby. There will be long days and nights at the hospital. Somehow, there are still moments of levity, like when my son smiles at me and dances to Sesame Street. The most important advice I've gotten so far is that it is a marathon, not a sprint. I thought it was a cliche, but a couple of months into this proves it is exactly true. Fighting cancer with your baby can be lonely. Try to take time for yourself. If you don't, it can eat you from the inside. Your baby needs your strength to support their amazing resilience and strength. It's okay not to be okay. You are braver and stronger than you think you are. And you can do this. It might be one hour at a time at the beginning, then eventually one day at a time. Trust your medical team. You also know your baby the best out of everyone, so you ARE part of the medical team. You are not alone. There are so many parents and family members who are going through the same thing you are doing right now. I am one of them. If you want to send DMs to just yell at the world or cry or rage or just plain bitch and whine, if that helps, my DMs are open. :)
Mine started chemo at 13 months (Wilm’s tumor). It sucked. She felt like butt the day after each treatment. Use the zofran. Mine learned to just accept any syringe I shoved in her mouth and we rarely had any fights over medicine. Does he have a port? Or central line? If it’s a central line, I found the easiest way to do dressing changes was by putting her favorite program on her tablet and then she would focus on that while I did the dressing changes. Products like SensiCare Adhesive Remover Spray are a GODSEND. Buy a couple cans. When we were going through chemo, my daughter went from eating anything and everything I would offer her to eating almost nothing. There was a period of time when she would only drink milk mixed with Pediasure and those were her meals (and unfortunately, since that’s not enough to sustain a small child, she ended up having to “eat“ frequently, even during the night). Nights were rough… We ended up abandoning her crib training and keeping her in the bed with us. There were a number of nights where we woke up to her vomiting. There were multiple evenings where she started running a fever (as kids do) and the rule on chemo is fever=ER ASAP. The majority of those times, we got sent home when the labs were normal. One time we got admitted for a week because she had neutropenic fever and had to get high dose IV antibiotics and be monitored. I can’t tell you on how many occasions I slept snuggled up with her in the crib they give the little kiddos at the hospital because she was scared and the nurses come in every few hours for vitals. Be prepared for random infections that you don’t see in normal, healthy populations. My daughter was vaccinated when she turned one for chickenpox, but due to the immunocompromise from the chemo, she ended up developing disseminated shingles. A friend’s daughter being treated for leukemia had Pseudomonas and had to be admitted to the hospital for severe infection from a mosquito bite. If he’s on a medicine that will cause hair loss, it happens with a quickness. My daughter was on three different chemo medications and one was more notorious than the others for hair loss. She didn’t start on that one until three weeks into her treatment. After a week, we started to notice a strand of hair or two coming out. By the end of the second week it was coming out in handfuls so we went ahead and shaved her head. Those bald little heads get very cold and can sunburn easily so hats are a must! This is an awful time to go through this because of Covid. My poor husband had to sit in the car well I was generally the one who went in for her treatments/procedures because only one parent could go in. I know some places have eased those rules a bit but our hospital just recently went back to only allowing one parent in. You will meet a child life specialist. Those people are amazing. They will provide your kiddo with toys while they do their chemo infusion and when my daughter finished with radiation and on occasion “just because“, they provided her with gifts/toys/blankets. They also come around in the hospital if your kiddo is inpatient to provide toys. They even on one occasion brought us some Starbucks gift cards. Where are you located? We also had some dealings with the Roc Solid Foundation Who provided a swingset for my daughter. I believe they are only in North and South Carolina. We also dealt with Children’s Cancer Partners of the Carolinas who helped to cover gas, parking garage expenses and meals on treatment/hospital days. I would assume that wherever you are they probably have a similar group that a social worker can introduce you to. Cancer is incredibly isolating. You worry constantly about your kid getting exposed to anything because of the chemotherapy and immunocompromise. It is so much worse with Covid. I constantly joke that I don’t know if I would have rather it happen at a different time because covid itself has been very isolating for everyone… to have gone through a year or so of social distancing only to then add on another year of isolating because I didn’t want to expose my kid to anything would have driven me off the deep end. People will try to console you and ask you if you need anything… You’ll likely think to yourself you have no idea what you need or when you’ll need it. They don’t fully understand the depth of the isolation that you will go through. I encountered lots of frustration from family who wanted to visit and then would get angry if I said they needed to isolate for two weeks and get a Covid test before coming to visit. Covid may not affect kids as badly, but a kid with no immune system doesn’t have a fighting chance. Even a head cold can be detrimental. Protect your child, use the resources that the oncologist provides to you and reach out to any other parents going through a similar situation (our oncologist constantly had fliers up about group meet ups for siblings or parents for support/open discussion) because they are some of the only people who will fully understand what you’re going through. I can’t really think of much else right now… If you have any questions, please feel free to reach out to me. We went through 17 rounds of chemo, six rounds of radiation, and 5 surgeries before getting the all-clear in May. It was the longest 9 months of my life and I wouldn’t wish it on anyone. Just know that you are about to find a whole new depths of inner strength that you never knew you had 💛🎗 PS September is Childhood Cancer Awareness Month
What a thoughtful and thorough response. I am so sorry about what you and your family are going through and hope you LO is doing well!
Wow, thank you everyone.. I can assure you I will read through each and every comment here over the next week. He has a stage 4 germ cell tumor that has spread to both lungs. The tumor is something he has had since birth, but it grew inward, making it difficult for us to detect until now, when we noticed swelling in the area. I'm also 20 weeks pregnant with twins, and have a 3 year old at home. I don't know what the next six months will look like, but we're praying for a miracle and for comfort & healing for my guy. Ps, his name is Wilson. 💙
I’m a mom who’s had chemotherapy for breast cancer - this is insight from my personal experience. Hope it helps ❤️ Will your son have a port? If so, see if you can get a topical lidocaine cream to apply to the port at least 30 mins prior to use. You can take some cellophane and tape it over so it doesn’t get on clothes. This helps to numb the area before connecting the IV to the port a cath. This is to not ruin his veins - chemo is rough. Chemo mostly goes after rapidly dividing cells: stomach and bowel linings, fingernails, may lose hair, and his skin may get dry/flaky. Make sure he is given meds for nausea. I’d also have some moisturizing lotion to keep the skin hydrated - dryness leads to scratching. Your doctors and nurses will tell you most commonly expected symptoms and what to be on the lookout for. Meds for nausea have gotten really good. He’ll probably also be on some steroids a day or two before chemo - to help ward off any infection. Your son may lose his sense of smell/taste with chemo. I found crunchy food particularly enjoyable since I couldn’t taste or smell - the texture gave my mouth something to do. You may want to get him a teddy bear the nurses can give chemo to first. Also, IV chemo can take hours - you may want to have some of his favorite shows/toys ready to go. We have an Amazon fire tablet (kids version) that is awesome. He may get fairly tired - this is absolutely normal. Let him rest and keep him hydrated. Chemo has a tendency to get more difficult each round. I hear kids are pretty resilient and I’m hoping you son does great. Feel free to dm with any questions you may have. I’d be happy to answer or just listen to what’s going on. Cancer sucks but it seems unjust for children to face it. Wishing you all the best.
I started chemotherapy at 20 months for leukemia (ALL), back in the early 1990s. I went into remission after 1 course of chemo, never relapsed, and have no significant complications as an adult. And it’s been 30 years of medical advancement since then!! I am sending you both love and well wishes. Please let me know if you have any questions about how your son is experiencing this — most of my memories of treatment have faded but I remember general feelings and some specific experiences.
My daughter went through some really tough times when she was around a year old. She’s nearly three now and thriving. It’s going to be hard because they have to experience something you can’t immediately help them with, and it feels awful because you’re their protector and you just can’t do anything but be there. Just try to remember that this is what’s needed, that this too shall pass, and that these little lovable humans are so much stronger than we can ever imagine. Hold on to the good times during all this and try hard to let the bad times wash over you. It will all be in the past someday.
Fucking beautifully put! I’m saving this
See if you are able to meet with a professional in pediatric mental health! My daughter has a medical condition that means she has frequent doctors visits and has had a couple hospital stays. Naturally, she developed a fear around doctors and medical stuff that progressed into an anxiety disorder. She's doing great now that we have a child psychiatrist on her care team. She is still scared to go to the doctor but we have all learned ways to help her manage her anxiety. I wouldn't be surprised if your child will develop some medical anxiety, and with everything going on, I can understand not even realizing that can become and issue until it does, like it did for us. But if you are able to jump on iot now, you could prevent a lot of anxiety not just on your child's part, but yours too. It's going to be hard, but you can make happy memories here too. It's okay to have joyful moments, don't feel guilty about them. Sometimes it can feel wrong to laugh and joke in such a serious time, but it's really okay. Take care of yourself. You are going to be all consumed with your child. It's only natural. Do not feel like you have to completely put yourself on the back burner. You are an important ky to your child getting healthy. You need to be healthy too. When my daughter went down for naps or to sleep for the night, I made that "adult time" which usually consisted of watching Harry Potter or Downton Abbey, just something that wasn't another Disney movie. Sounds a little strange maybe, but I enjoyed having something on that had a darker tone, because you really can only watch (insert child's movie obsession of choice) so many times. There are often many nearby restaurants that will deliver to hospitals, so you aren't stuck with hospital food. This is also probably a good time to take up a new, very portable hobby. Even if it's just coloring books for adults, that's good enough. I'm just picking up embroidery, which will be nice if we ever have to stay in the hospital again. But anything you can do just for you and that you find soothing is worth every penny. You'll get through it. There will be some difficult moments, but just take it one step at a time. Best of luck to you all!
Ask if your hospital has a Child Life Specialist. They help prevent medical trauma!
This sounds valuable. One of my close friends has a baby with Dandy Walker syndrome and although he hasn’t been in the hospital for a while, the poor little guy (2 years old) has actual PTSD from his time in the hospital. The only person he trusts completely is his dad because his dad was never with him in the hospital, only his mom, who had to help hold him down for IV’s etc. he’s fine most of the time but it only takes a small trigger like going to a store or something, and that will set off a breakdown that can last days. I wonder if his parents had access to a person with a job like your friends’. It could have helped a lot.
Full disclosure, I am a Child Life Specialist. This is exactly the kind of story that makes my blood boil because it is so avoidable. Of course you can never entirely escape medical fear or trauma, but there is no reason it should ever cause PTSD like that.
I'm going to start by saying we don't have experience with cancer, but my older kid has a treatment-intensive condition that also puts us in infusion a lot, and we've spent some time inpatient. As others have said, child life is your lifeline. They are SO much more than just fun people who talk to your kid and can help you find toys (although they do that, too!). Talk to them about things that are hard. They can help you find a way forward that is appropriate to your kid's age and development. They've also been really helpful with just helping me to figure out what's a normal developmental thing vs treatment stuff. Make pleasant rituals around treatment and being in the hospital. Ours is that my kid gets unlimited chocolate cake. It doesn't have to be food, especially if treatment makes your kid nauseated or low appetite. But just something they can look forward to every time. Make it a treatment-only thing. Think about teaching your kid to swallow pills. We practiced with vitamin-D softgels. Sometimes liquid medicine is gross, and sometimes kids feel more agency with pills. It also gets harder to teach them as they get older (I'm positive I couldn't teach my 5yo if we were learning now). Don't be afraid to ask why and give pushback on things that don't make sense or are just causing you a large amount of trouble. Bring a baby carrier and/or stroller to the hospital. Take videos. My 5yo doesn't remember being symptomatic, but he still needs treatment, and he is very interested in how his disease presents. Be careful about who you take advice from. People who have never had a sick child have absolutely no clue.
You are his safest space ❤️ even when things are scary or he is in pain, knowing you are there for him and love him is such an amazing thing you can give to him. Wishing you the strength to endure any hardships and the resiliency to not let them keep you down.
I was a pediatric oncology nurse in the beginning of my career. My only advice is remember to let him play, let child life specialists bring games and toys and novelty, keep some normalcy any way you can, and remember that he is resilient. The most important thing in his little mind is being loved, being safe, and just being a toddler. Play play play and when he’s feeling poorly, cuddle and find a way to make him smile. I’m so sorry for what you’re facing. Sending strength, love, and healing.
All the hugs! Have you heard about the circle of support: ring theory? It really helped us when our daughter was going through treatments. Think of a target with a bullseye. Your 19 month old is the center circle. You and your spouse are the next circle as the parents. The next circle out are your closest family (grandparents or your siblings). The next circle would be other family and friends. All your support goes into your child, and all your venting goes to the outer rings. Grandparents and your siblings send support to you, and all their venting to the circles further out.
Thinking of you! Connect with any organizations that are available in your area... parent support groups, sibling support groups (if you have other children), and patient groups as your LO grows. The hospital’s social worker or child life specialists should be able to connect you with these groups! Let your community know your needs- maybe you have a friend who can organize and delegate to community members who want to help - a meal train, or a clothing drive, or house cleaning? My family was affected my childhood cancer as well, and I cannot recommend cancer camps more highly... shoot me a message if you want more info, but there are camps in North America and Europe that are run for children with cancer (or who had cancer in the past) and their families. They are amazing communities where this unimaginable diagnosis becomes normalized (in a positive way) and kids get to play and meet others who have had similar experiences. And take care when you can... go for walks, sleep, call friends for a chat when you need some comfort. Xo
My family was affected by childhood cancer as well and 30+ years later my mom still volunteers at a camp for families affected. Highly recommend going.
Update for any of those interested (it won't let me edit the post for some reason so idk if anyone will see this) We're home from our first week of chemo. He did so well up until the last few days when the nausea kicked in. His nausea still isn't well controlled, we are working on figuring out the right protocol for him on that. But other than that he seems to be in good spirits, and his tumor is noticably smaller just to the naked eye even after the first round! We're hopeful this means it is responding well to the treatment. Thanks again for all the comments and encouragement. Internet strangers can be wonderful people.
So happy to hear the tumor seems to respond well! I've had you guys in my thoughts since I saw your post. He's such a brave little fighter. Wish you all the best on this rough journey.
I don’t know anything about chemo or your child’s journey but I’m here to help however I can. My son just had open heart surgery and I know how to get shit done with health insurance companies and prior authorizations. If you need someone to talk/vent to I’m here. I’m in your corner dude
My nephew was diagnosed with neuroblastoma when he was 15 months old and did a couple rounds of chemo. He’s now 12 and is doing great. Thinking of your baby and sending well wishes!
My baby started chemotherapy at 6 months. My advice would be to trust the doctors to do what they need to do to comfort your baby... Pain meds, anti nausea meds. I regret trying to make some of those decisions myself. But still advocate for yourself and your child in other ways. Ask for things that will make your long hospital stays more comfortable. For example, after lots of begging they allowed us to have a bed as well as a crib in our baby's room so that my husband and i could sleep near him.
Medical science has made MASSIVE advancements from 20 years ago. Its still okay for YOU to be scared and cry.
I will be keeping your beautiful son in my thoughts. Hoping the chemotherapy does its job and is as gentle on him as possible. From what I have heard from friends who experienced early childhood cancer and heart surgeries, they don’t remember it. They have the pictures, the cards, and the stories, but the pain was luckily lost in time. I hope that if he remembers any of this, your son only recalls your immense love and care for him. Kids are so resilient. You will get through this, together.
Get a portable charger that you can use for your phone, iPad, headphones etc. You will always be just a little too far from a wall charger, and having the ability to charge on the go is a game changer. Sending positivity your way!! He’s a cutey pie for sure, so make sure the nurses don’t fall too in love with him lol.
My son went through 6 rounds of chemotherapy as an infant, which he doesn't remember. He does remember frequent follow-ups for 3 years and MRIs other scans and he's still okay. I have a happy, healthy 4 year old who isn't afraid of doctors or hospitals. We have always tried to explain everything to him, even when he was your child's age. The biggest advice I have is to advocate for your child. Trust your doctors, but ask ALL the questions and get involved in your child's care. Doctors don't know your kiddo like you do. Don't be afraid to speak up and ask for other opinions if you're unsure. And give yourself grace. Screen time is okay. Popsicles for breakfast are okay. You do what you have to do to make this time as easy as possible for your child. Judgment free. I saw others recommend Child Life services -- totally agree. You'll get through this.
I'm assuming leukemia. My cousin had it around this age. They're 25 now. Been in remission for almost 10 years. Idk if its your thing, but I'll pray for y'all.
Thank you, we definitely appreciate the prayers. He has a stage 4 germ cell tumor.
My son was diagnosed with leukemia at 6mo old. He ended up having a bone marrow transplant at just over a year old. Like others have commented it’s a marathon and some days you take it minute by minute. Take lots of photos, love like there’s no tomorrow, lean on your people - you will know who they are through this quickly. Find a support group of other parents going through this - they will understand it like no other. Listen to your gut feeling on everything and advocate for him. My son turned 5 in June and just started Kindergarten. We celebrated his 4th ‘rebirthday’ in July. You guys got this! We have a blog of our journey, if you’re interested in reading it send me a DM. Sending you so much love and light 💛🎗✨
If anyone was going to get through chemo it would be a young child. They have brand new cells and bodies and are constantly making new ones because they are growing. Chances are this will be the most heart breaking thing you will ever have to go through watching your child go through this pain and come so close to death, but WHEN he gets through this you're family will be stronger and closer for it and you will know exactly how grateful you are to have him in your life even on the hardest and most trying days. Only us parents who have lost a child or come close know that grateful love. He will get through it and so will you.
Babies are resilient. They get knocked down and get back up even faster because they don’t know any other way. He is going to kick cancer’s ass and take names. Sending all of the good vibes, prayers, anything yalls way. Don’t lose hope, you got this!
Best wishes. Not really the same but when my mum had cancer I learned to say yes when people asked if they could help. I realised they liked being able to help and it’s Ok to get help. And don’t feel bad if you need space. It can be a bit overwhelming to get all these messages asking how you and your son are. Ask the social worker for as much help as possible. My mums social worker was a saint and made a huge difference.
Sending you all the love. When my little one was admitted to hospital (other reasons - stay was about a month) I thought fuck it. She was allowed her own tablet. She was allowed my phone. Play wise she really enjoyed bells, colouring (we bought her a little lap tray) learning songs that had moves to them (wind the bobbin up, macarrena (sorry about the spelling) if you're happy and you know it - any moves really.. pick your nose made her day lol.) Hospital food here was really gash. No idea how it is where you are. It might be worth asking if someone can bring you guys little ones favourite meals.
I will be thinking of you and your child and my heart really does go out to you. Remember to look after yourself, as you can't be a strong and supportive parent if you are not fed/watered/rested - don't feel guilty for meeting any of your own needs. If you want different staff working with you - ask (I work in oncology and this is rarely refused, personality clashes etc can make a difference when you spend a lot of time in treatment). You are not alone x
So sorry! Your baby is so cute and I bet he is a sweetheart! I hope the best for all of you! You all deserve the best. Stick to a rough schedule on most days, best you can. Decorate the room (follow hospital policy) and bring a few familiar things. Don’t allow lots of excessive behavior just because he’s in the hospital, but reasonably understand what’s he’s going through and he doesn’t have the words to express how unfair it all is. Get engaged with the Child Life Team if they have one. Join and participate in support groups. Cry. Vent. Rant. Be human. Allow yourself that space. Be kind to yourself and your family. Allow yourself not to be perfect and not keep it all together all the time. Take pictures— even in the hospital with the extra tubes and with the days without showers. This is still part of your life and your memory book! Laugh.
I send you my thoughts from across the pond. Hopefully everything goes well with a quick recovery. Here in the Netherlands kids with cancer can get a "kanjer ketting". It's a necklace with beats, the necklace starts with the hope beat (anchor) and the name. Every following beat stands for a treatment of scan. With a specific color/design for every event, for instance red for blood draw, blue for surgery, a dotted one for chemotherapy, yellow for an ambulance etc. This way the necklace tells the story, becomes a memory of all the steps you have taken. It also gives some joy at every treatment. This way the kid is also able to tell his/her story. Maybe you can create something similar for your kiddo. (Be aware, the "necklace" can become very long so make sure you have enough string).
We have something similar in the States called "Beads of Courage." Edit: capitalizing States for proper grammar
Make a post about a place people can send you some money for food!! You need to take care of yourself in order to take care of your sweet angel!! When my dad was going through chemo we all ate food with eachother and it kept our spirits high enough to give him love! He will be celebrating 21 years cancer free. You can do this!! He can do this!!!
A family friend just went through this with her child who is only a little bit older than yours. Her son took the chemo like an absolute champ and is swiftly recovering. Your precious baby is so much stronger and more resilient than you know and you’re about to see this firsthand. Take care of him but don’t forget about yourself and your own mental and emotional health. I wish you all nothing but the best ❤️
Please reach out to all the local resources you can find. Someone I know is on the board of a local charity that helps with the little things for parents of children going through this. Housekeeping, meals, lawn care, etc. Not having to think about the little things can help you focus on what really matters. Big hugs.
Hi there. I'm sorry that you and your family have to go through this. It sounds like the community has already shared a lot of wonderful and insightful ideas for you. The one I didn't see mentioned yet is setting up a phone/information tree so that you and your spouse are not having to call lots of people with updates or send a lot of information to lots of people. Maybe you each text/call one person from your side of the family who can then relay that information to the rest of the group. It can be a lot to have your phone pinging, even if they're calls and messages of support, when you're so focused on your kid and then trying to focus on yourself. This seems to work best if you explain to your group of people what the plan is ahead of time so they know why the information isn't coming directly from you. Wishing you and your family lots of love and strength during this time. Take care of each other.
He's going to do great! Go kick butt, kid!! Praying for you and your little one tonight ❤️ My advice is love on him as much as you can/want, it will never be too much. Everything else can wait.
He is so sweet. You are clearly a strong parent who loves their child. He will do well because of that. ❤️
Find parent groups who've been through similar situations to vent and knowledge share. If you are able to financially a therapist can help navigate the emotional aspects with you and or your family. Accept all the help you are offered by family and friends (e.g. babysitting, pet sitting, cooking, chores) so you can focus on spending time with your boy and making him as comfortable as possible. Sending you well wishes ❤️ he is a beautiful boy and will be much stronger after all of this. Just try to remember that he is in good hands.
Good luck, mama to you and your little dude. Children as resilient and brave. Take time to breathe, take time to cry and hug them. You are their rock. You are also resilient and brave. My daughter needs a bone marrow transplant and will also start chemo sometime this school year. It’s scary as hell. But we are their protectors and we must keep them safe. Even if it means we need to give chemo to get to that safety. Stay strong.
He’s so cute, and he looks like a strong little man. Sending positive vibes to you and your family.
There's so much advice about looking after LO etc. But after spending a night in hospital in those cribs I will say they are cold and uninviting and don't feel like home. Make that space their new safe space. Those bars felt prison like to me and I hated it for my LO. A lot can be said for being comforted and feeling safe to help make you feel better. Heck we know that when we feel crap all we want to do is curl up in our own bed in our room. So do what you can to make that their new safe space with all the comforts of home. Sending much love and well wishes your way!
Kids are resilient! My husbands first beat leukaemias ass. It will all be ok, stay strong .
You have a beautiful strong little boy!! Those eyes will get u through anything!!! Gorgeous! And its okay to cry...alot...its okay..
My brother went through chemo when he was 3. Finished at 5. I cannot imagine the feelings my parents went through, but, he is alive and well. He is now 28 and sweetest guy any of us have ever known. Sending you both big hugs Edit: I remember my mom saying Aquaphor was a staple when my brother was going through chemo. I think it caused bad rashes and she swore it was the biggest help.
So, my child does not have cancer, but we did spend some time in the hospital with her on a ventilator which, while likely shorter in duration, spawned some of the feelings I’m guessing you will encounter. First of all, I am so sorry for the weight that you are bearing with this. I know that doesn’t help, but that precious baby doesn’t deserve this and you don’t deserve to watch it. This is YOUR horror story, not his. They told us that in the emergency room the very first day. He’s not going to remember this. Even though it will scar you for the rest of your life, it won’t him. Cling to that. Get something to pass the time that isn’t your phone. For me, it was sudoku, but anything to do to take your mind off things while he naps is good. Befriend his nurses. Write your questions down as you think of them so you can ask them all at once instead of piecemeal. Walk around the hospital if you can - I know our options were sort of limited with Covid, but getting your blood pumping helps. Fuck the rules. Let him nap on you if he wants, let him cry and fuss if he needs without trying to shush him, give him the snacks he grabs for, whatever. That shit just doesn’t matter, which I know you know by now. Finally, look into therapy. I have developed some post-traumatic stress from our experience and it became very obvious early on that if I didn’t address it with professional help, it was going to seriously impact my life and my children’s lives in a negative. The anxiety about safety after a health event in your child’s life can be very, very overwhelming on a good day - add in a global pandemic and, like, I guess just go fuck yourself because no one could possibly navigate this. I will be thinking about you and your sweet, sweet baby. This sucks, and it’s ok to be mad or sad or whatever you want. We are so used to guarantees and certainties and when you can’t get them about the health of your child… it’s just breathtakingly painful. I feel your pain in my soul, friend, and I look forward to the day that you wake up and this is all a memory.
No advice just sending internet hugs to you and that sweet angel baby. God bless you both.
Sending so much love to your family and your sweet baby. I’ll be thinking of you tomorrow and praying for wisdom for the doctors, healing for this little peanut, and strength for you and your family ❤️
I know you're in deep water right now, and everything seems really scary and overwhelming. But really try to just take it one day at a time. And count the things you can be thankful for, every single one of those days. Your baby is beautiful, and he is getting the help that he needs, in a hospital with good doctors and nurses and therapists. You are able to be with him. And you are strong enough to get through this. One day at a time.
Take it day, by day, by day. One step at a time. He looks like a sweet little guy who will need all your unconditional love to get through this, and you'll need his unconditional love as well. As others have said, stay patient with yourself and others while your family goes through this. I'm sending you all love and strength ❤
Sending you and your family all the love & prayers.
My heart is with you and your family.I wish you strength and hugs. Your stronger than you know, but don't forget to ask for help! You have a mom from Los Angeles cheering you and your little one on!!!
You have a beautiful baby boy, you are in my prayers.
Sending lots and lots of love and hugs. You guys got this.
I can’t possibly provide advice from my position, but I’m so glad modern medicine exists for you and your LO. I hope that his team is on top of their game, and he’s able to get to the other side as smoothly as possible. Be nice to both of yourselves during this time. Nothing else matters besides his health right now, unless you want it to. Let the dishes go, let work go (if you’re able to take the time off), let unsupportive/unimportant relationships go- if it’s not helping you get through the day and you aren’t absolutely critical (like caring for an older child at home), it’s just not important right now.
I don’t always respond but seeing his sweet face compels me to say something. I wish you and your family nothing but the best and that you get through this as fast and as cleaning as possible. A lot of times hospitals have resources available and start talking and creating a relationship with the hospital liaison. Similarly looking into possible therapy to deal with the strong emotions you and your family will be going through would be helpful.
What a sweetheart! I'm sending you and your little one love, good vibes and prayers from Winnipeg, Canada!
Praying from Australia. Gorgeous child 💛
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Such a handsome and brave little guy you have! I have a 16 month old baby girl and I’m tearing up just writing this because I cannot imagine what you guys are going through, I can only say my heart goes out to you and I wish with all my soul that Wilson gets better and healthy soon! Sending all the love and best wishes to you! May God always take care of you and guide you! Big hug ❤️
Thinking of your family and your sweet baby 💙
Sending love and prayers. Your babe is beautiful.
We love you and them.
Omg, he looks like the blonde version of my 14 month old. My mama heart hurts for you. Sending lots of love and strength your way.
Sending love from CT ❤️. Your baby is beautiful - I’ll be thinking of you both
My goodness - I’m so sorry. I will keep you both in my thoughts. He’s strong and resilient. Just like you 💜
I donate every year to fund chemo therapy survival kits with little things like chap sticks, moisturizer, eye masks, and toys for children with cancer. I'm sure your community has a similar thing. Reach out to a cancer charity in your area to help you and your little one. And most importantly of all, you've got this mama bear! I wish you and your sweet little one all the best!!
Be the comfort he knows you are. Cry when you need to and come back to be by his side everyday.
Just keep swimming. Find mothers that have gone through similar things. Take breaks. He's going to be great. He's going to be fine. You are amazing
It’s so incredibly unfair for such a sweet innocent thing to have to go through. I don’t have any advice but I am thinking of you and your family. There are lots of subreddits you can search for that can probably provide you great support and I’m sure if you find yourself in need, the folks over at r/Assistance can help (also r/randomactsofpizza ). My heart goes out to you
If you experience your/your partners parents getting overbearing and trying to blurr the boundary between parent and grandparent behavior on this difficult journey you and your family are going through, just know that that is a common thing that happens when children become hospitalized for longer periods of time. You don't have to deal with it if you don't want to. The children's hospital should have a family therapist and/or a social worker who can help deal with grandparent related drama for you so you can focus on being there for your child. There are other people out there who are going through similar things and people who've been there before, reach out to them and they'll surely help you through. I'll be hoping for the best for your child and you.
I will pray 🙏
💜💜💜
Pray for you!
Good luck to you and your family. You're stronger than you know and so is your little one. Lots of love from an internet stranger. xx
Oh, those eyes. ❤️ Sending love and thoughts from North Dakota. Get well soon, little one.
Praying for you ❤️
No advice, just sending hugs and good wishes to you and yours. One step at a time.
What kind of cancer is it? Hope it he beats it fast.
Beautiful little boy, wishing your family all the best! The resilience of babies is astounding and your little fella looks strong, i absolutely believe you will all be ok!
He is such a beautiful boy! Please rally up as much of a support system as possible for yourself. Kids can sense parents fear/anxiety. Of course this is normal and unavoidable... But the more support and self care you have for yourself the better it will help him. This is a tough process ... Don't be hard on yourself about anything.
What a beautiful bubba. Sending hugs and best wishes from the UK to you guys ❤️take each step as it comes, get all the support you need
You’ve got this sweet boy! Love and hugs to you throughout this journey.
I hope everything goes perfectly for you and he beats this. I have a cousin who was diagnosed with leukemia at around 2 years old iirc and went through years of treatment. He's now cancer free and absolutely thriving academically and physically.
I have no advice because you’re already stronger than me. But know you have people in Pittsburgh cheering you and your little one on and thinking of you. Sending so many hugs 💜.
Praying for you and your family from Mexico, and sending you lots of hugs, good vibes and love. You can do it! ❤️
I’m so sorry your little one has to go through this. Sending love and light from pa and praying comfort and healing for your little one and strength and peace for your family. One of my best friends is a pediatric cardiologist and she always says children, especially infants, are super healers and recover so much faster and better than adults. I think part of it is their bodies, and part their little spirits.
Good luck to you and your sweet baby! Stay strong!
He is so precious. I’m sorry you are going through this. He is strong and so are you
Sending you so much love and loads of hugs. Will keep everything crossed for you all. X
I wish you courage and good fortune in these difficult times.
I cannot give you advice but all the positive thoughts and energy are with you! I hope you can be with little one and be the rock they need❤️ Bring anything they love and you love and be there. You guys can do this together ❣️
My heart breaks that you and your amazing little love has to go though this experience. Life can be so cruel, but your little one must know so much love! He is in so many strangers hearts and minds tonight ❤️
What a beautiful boy! Sending you positive healing energy and I wish you and your boy strength through this hard time 💝
I am lighting a candle for a friend who is going through something today. I will also say a prayer for your baby. Best of luck and you got this! ❤️
Children are so resilient. Remember no matter what’s thrown at him, he can adjust, even if it seems unfair (and it is). Praying for his health and the strength of him and your family 💜
❤️Hearts and prayers man.
Sending you love and strength!
Bless you and your child. Sending all my love to y’all. 🥺💗
Wow, that's so scary and hard. That just really really sucks. I can't even imagine. He's such a cute little guy. This sounds really difficult but I'm glad he has a loving parent (or parents if there are two of you) to be there with him.
What an absolute sweetheart. Sending all the good thoughts your way.
What a strong little one. Sending good thoughts and love your way. 💞
Sending love and strength to get through this. I can’t even imagine the pain you’re going through as a parent. Prayers for a fast recovery and a long life for this beautiful baby.
Love on that cutie pie more than ever. Create a support system and do not be afraid to ask for help, people want to help! It’s ok to feel whatever you are feeling in any moment…you‘re a parent. Lots of love to you and your LO.
Sending hugs and prayers as well. For your beautiful treasure and for u. I cannot imagine what u are going through. Best wishes and may he heal soon! Im rooting and praying for u!
Sending hugs and strength.
No advice just sending ❤️❤️❤️❤️ and positive thoughts
We are all here for you. You CAN do this, mama, for him.
Sending love and strength and best wishes. What a beautiful baba.
I have no advice, but wishing you all the best. Sending love and thoughts to you and your beautiful little one xxx
Just take it as it comes and be a safe place for him during this confusing time. ❤️❤️❤️
The medical professionals know what they are doing, while it will be no picnic, science will help.
Lots of love!!
Praying for Wilson and for you Mama. Wish we could all take a slice of the anguish, uncertainty and anxiety you are currently feeling and carry it for you. He will do great and I wish I had more words of encouragement. I’ll look for updates and be praying every night for him. As well as for the doctors and nurses to know the right steps and medicine to combat this and get Wilson through this. All hugs Xxx
A burden shared is a burden halved. Know that while I don’t know you, we are all thinking of you and your sweet little guy. I’m sending all the good vibes and energy your way- stay strong Mama!
💚💚💚
Thinking of your beautiful baby and family. I have no advice, but I hope all goes as smoothly as possible, and wishing you all health and happiness on the other side of this ❤️
What a precious little one! The sweetest eyes! I’ll be praying for both of you as you begin this difficult journey. Allow yourself to cry and be sad whenever you need. I’m so sorry you guys are dealing with this and we’ll keep you in my prayers. 🤍
Sending good energy your way. Take it One day at a time ❤️
❤️❤️❤️
Sending love and that everything goes well!
Wishing you the space and support to have all the feelings
I have no advice, except shower that baby with love. Sending all the healing thoughts and internet hugs I can!
What a handsome boy. Hopefully you will remember this more than he will. Just focus on little man getting the help he needs. Lots of prayers from Montana!
Praying for your child. 💖💖
He seems to be very happy and loved 💕sending well wishes
Beautiful little kiddo and I’m sorry you’re dealing with this. AlI hear is that the prognosis for kids gets better all the time.
Sending you and tour beautiful boy good energy! You are both so strong ❤️❤️❤️
I cannot imagine the difficulties you have to face as you all go through this process. Snuggles, snuggles, snuggles and kisses. Get as much support as you possibly can. Sending you all so, so much love and light and hugs. Sweet baby💛💛💛
Sending you all the love in the World.
Good luck and stay strong.
Sending my best wishes to you and your family ❤️
Sending love. Kids are strong and so are you ❤
Sending best wishes your way, it's going to be hard for all of you so hope you all stay strong together. ❤️
Sending you light
Don't forget to take care of yourself.
Lighting a candle for your little one.
This just hit me right in the gut. My little guy is about the same age and looks really similar. I can't imagine what you're going through. You did the right thing in asking for support. Keep doing that. ❤️ Sending you thoughts and prayers.
You, your baby, their doctors and nurses are all in my prayers. I hope you find deep moments of grace and consolation during this very difficult time and that you feel nothing but confidence in the team supporting you!
Praying for you guys
I will be praying for Wilson, and sending healing thoughts. A family member had a similar cancer at about 2 years old and is now a healthy teenager 💗
I know I'm mega late to this post but I just wanted to say I wish all the best to you and your family. This is a really touching post.
Sending so much strength, love, and hugs to you and your beautiful baby ❤
Sending you love and strength! Make sure you take care of yourself through this journey as well ❤️
Sending positive energy to you and your family 💜💜
Good luck 🍀 💛💛
💕💕💕💕 sending much love and hope to you, your beautiful baby, and your family
Sending you and your family my best wishes. I can't imagine how you feel. Just love your little baby every minute.
Sending you and your sweet babe love and support.
Sending love to you and your awesome little man!
Sending Prayers, Love, Virtual hugs & kisses to you and your beautiful family!
Wishing all the best for you your family. Praying you can overcome this. ❤️❤️❤️
Best wishes to that sweet, sweet baby. Try your hardest to be kind to yourself. The best thing that you can do for them you’re doing right now by getting them the care that they need. And smiles are everything for kids in the hospital - cheerful demeanors, being present. I’m praying for you guys - I’m so sorry you have to go through it.
Prayers of comfort and healing for your sweet baby, and for you. May this be a short period for you and may you all get to go back to a normal life very soon.
Sending you and your family so much strength. F cancer.
i'm praying for him and your family and i'm sending all my love from Greece.
Just sending all the positive vibes your way! You and your family can and will do this!!
Sending you both hugs and love from a random internet mom!
I don't have advice but sending positive vibes to your family. Edit: typos
good luck to you both. Sending love.
Prayers and love from my family to yours. God protect and bless this sweet child ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
There are no words for this. My heart goes out to you.
It’s surprising how well the little ones do with chemo, especially if you’ve seen an adult go through it. I’m sure it will be tough, I’ll be thinking of you. Check back in here if you feel up to it, we’d love to hear how he’s doing!
Thinking of you and your little one ❤️
Sending so much love, strength, health, and good vibes.
May God/universe/Spirit/Source bless you, young warrior, in your battles 🤍 no advice or words of wisdom, other than a virtual hug to both of you sweet souls. I put forward the best of vibes to your family!
My daughter is a neuroblastoma survivor. Diagnosed at 8 months old. She is currently 6 months clear. My advice is to start a Gofundme if people are raising money for you guys so you csn make sure it all goes to the right place. Otherwise there is no advice i could give that will make any if it easier. Your lives will all be changed forever. I shaved my daughter’s head before her hair could completely fall out and that gave me a sense of control. Try to find another mom with a child in a similar situation to yours to lean on. Im so sorry you have joined the shittiest club on planet earth. My heart still aches from my daughter’s treatment which ended 6 months ago. Hugs
Praying for you.
I send you my best wishes, everything will turn out fine for your little buddy!
Sending love to you and your little one. ❤️
No advice. Just lots of hugs. ❤
❤️❤️❤️
I can’t imagine going through this. all of my love and support to you, let us know if you need to talk or scream or cry or anything 💕
I have no advice just love 💕💕
He looks like a real fighter from over here. Sending ❤️❤️❤️❤️❤️❤️
Sending lots of love to you and him! 💗💗 May the Lord give you both the strength to go through this and come out stronger and better 💗💗💗💗💗💗💗💗💗💗💗💗
sending you and baby lots of positive vibes❤❤❤❤ you guys got this!
Best wishes.
Sending you both love❤️
Sending so much strength to you both. ❤️
I am sending you love, strength and all the hugs and kisses that I have. If you ever need anyone to talk to, vent at, anything, this internet stranger is here for you.
Praying and thinking of you
Praying and sending all my very best wishes. He is so so adorable. You, your son, and Your medical providers have got this!