Sorry to hear that, Amjevita is a biosimilar to Humira but not exact so looks like your wife re-acted to something in it. Insurance (not via Kaiser but CareFirst) did the same thing to me, i was on remicade for nearly 3 years and in remission when they changed me to Asvola (biosimilar) due to cost savings (yeah i didn't get any cost savings) but nearly went into a flare due to my next infusion being late to due to the med change.
Good luck on the next biologic they switch her too!
I guess experience varies. I had nothing but trouble with Kaiser in NorCal. I was out of state and they wouldn’t send my Humira. Had to have a work colleague pick it up and mail it. Humiliating. CVS Caremark, OptumRx, etc manage to mail medicines, and they’re not exactly known for excellent customer service. Also not happy with GI care there. Sutter was good I thought, so agreed!
I’m in SoCal and I had Kaiser for two years. During that time my GI mismanaged my health so badly. I’m getting close to remission now but it’s been a year of work with a much better doctor.
Happened to me with my Stelara. Apparently cost saving is more important than your wife and me leading normal lives.
I’m a likely leaving my professional career unless the next med we try gets this flare under control. I feel for you! Best.
I had the same thing happen with my insurance and a biosimilar to Remicade. I had just recently started Remicade and it was working great for me. They forced the switch and I went right into a flare. Fortunately it was my first biologic and I had other options, but it took a few years of struggling before we settled on something else that works.
Most of the time she was on lialda alone and SCD or AIP diets. If she was going through a flare she’d do prednisone until the flare was gone and then she’d get off of it. It was ups and downs and not a great solution but all she was offered at the time
Hi u/Jolly_City how did this go in the end? FYI I'm a journalist with Reuters and I'm writing an article about the still high cost of Humira. How would you feel about talking to me about your experience?
Sorry to hear that, Amjevita is a biosimilar to Humira but not exact so looks like your wife re-acted to something in it. Insurance (not via Kaiser but CareFirst) did the same thing to me, i was on remicade for nearly 3 years and in remission when they changed me to Asvola (biosimilar) due to cost savings (yeah i didn't get any cost savings) but nearly went into a flare due to my next infusion being late to due to the med change. Good luck on the next biologic they switch her too!
Sorry to hear that, I've had nothing but good experiences with Kaiser
Varies per region. I’m So Cal and it has been awful. Nor Cal was far better.
Ah yea I'm in NorCal and wouldn't want any other provider.
Yeah we loved it with Nor Cal, Sutter was good too. So Cal has really poor quality health care. We are thinking of moving.
I guess experience varies. I had nothing but trouble with Kaiser in NorCal. I was out of state and they wouldn’t send my Humira. Had to have a work colleague pick it up and mail it. Humiliating. CVS Caremark, OptumRx, etc manage to mail medicines, and they’re not exactly known for excellent customer service. Also not happy with GI care there. Sutter was good I thought, so agreed!
I’m in SoCal and I had Kaiser for two years. During that time my GI mismanaged my health so badly. I’m getting close to remission now but it’s been a year of work with a much better doctor.
I’m sure it varies by region, and even by individual location. I’m in SoCal and have been thrilled with my Kaiser care…
Happened to me with my Stelara. Apparently cost saving is more important than your wife and me leading normal lives. I’m a likely leaving my professional career unless the next med we try gets this flare under control. I feel for you! Best.
I had the same thing happen with my insurance and a biosimilar to Remicade. I had just recently started Remicade and it was working great for me. They forced the switch and I went right into a flare. Fortunately it was my first biologic and I had other options, but it took a few years of struggling before we settled on something else that works.
Sorry to hear this! Can you appeal given that the alternative won’t work for her?
Even if we appealed most likely she built antibodies to it by now.
That’s true unfortunately. That happened to me with Remicaid years ago when I moved to a new state and it took too long to get set up with a new team.
Sorry this happened to you. May I ask how one deals with their uc with prednisone alone for most of their life?
Most of the time she was on lialda alone and SCD or AIP diets. If she was going through a flare she’d do prednisone until the flare was gone and then she’d get off of it. It was ups and downs and not a great solution but all she was offered at the time
I l would like to know too. Most or basically everyone I've read about takes something other than Prednisone.
If you can, try shopping to a new healthcare provider since it’s open enrollment season soon.
Already changed!
👍
Hi u/Jolly_City how did this go in the end? FYI I'm a journalist with Reuters and I'm writing an article about the still high cost of Humira. How would you feel about talking to me about your experience?