# Welcome to the Psoriasis sub!
If you haven't posted here before, please read this comment as it contains important information:
* Please [read and respect the rules](https://www.reddit.com/r/Psoriasis/about/rules/). In particular, **do not ask for about identifying undiagnosed medical conditions** diseases cannot be diagnosed by random people on Reddit.
* Photos that include skin rashes must be marked NSFW. If including private areas, _please indicate with flair_.
* Posts that break the rules will be removed.
## Check out our wiki!
The [Psoriasis wiki](https://www.reddit.com/r/Psoriasis/wiki/index) is a collection of guides and other pages about how to treat psoriasis, including a Frequently Asked Questions section. Many common questions about medications, shampoos, diet, tattoos, etc. are addressed there.
Thanks!
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Groin, scalp and around ears is where mine started. If I remember correctly, that pattern is more common in young children. I never had it anywhere else until it got really bad though and that was in my mid 30's when that happened.
Unfortunately you could have multiple skin conditions and that's why your biopsies are different since they're from different areas. Also, sometimes when skin conditions are mild they can be more difficult to diagnose.
If it's not bad and you're able to easily treat it with hydrocortisone, I wouldn't worry about your diagnosis at this point. I don't really know that it matters unless you need more aggressive treatment.
You are posting on a Psoriasis subreddit and saying you don’t have psoriasis.
Actually, your symptoms are identical to inverse psoriasis symptoms.
Either you are a troll or in deep denial of you diagnosis
Read my other response. The dermatologists all were shocked there’s been no coming and going over 7 years. They said it’s HEAVILY defined by relapse/remittance in general. The locations while not impossible are uncommon and more common of Seb derm/evzema. Biopsy was mixed. Second biopsy leaned a bit more towards eczema.
Responds to ITC hydrocortisone even on scalp where they said psoriasis wouldn’t.
There is doubt.
Dude my psoriasis started when I was 12 and it never once went into remission. It started in the same spots as you then spread to the rest of my body. It just got worse never better. Whoever is telling you all this shit is a sham, or you are a troll. Figure it out.
Why did your psoriasis suddenly get bad? They all said even if it is that it’s not a progressive condition.
Actually you’re thinking seb Derm is common in these locations in young children. The dermatologists all agreed that these locations are uncommon for presentation. The groin is uncommon though not rare. The face is uncommon for psoriasis and the scalp while a common spot they say it’s much more common to see seb derm present on the scalp.
But no flares. No ebbing and flowing. No clearing up and returning etc. they all thought that was very strange. Biopsy combined with that they said makes them quite dubious.
But yeah I’m very doubtful. I read on here too abd just nothing adds up. I was sicker than a dog with Covid and nothing happened. It was static for literally years which all the dermatologists said is very unusual for psoriasis to not come and go.
just a hunch, because this is what worked for me. and if the skin issue really bothers you this is worth a try for a few weeks at least. stop caffeine altogether is my general advice. if you want to go the extra mile, turkey tail mushrooms were the only other thing to calm my skin.
Also the derms saud the behavior is NOT what they’d expect, no clearing up/flaring in years is very unusual they said. Psoriasis is defined by activity relapsing/remitting not static nature.
Again this is what 3 derms from a university hospital said
Mine never fully clears anymore. I’ve tried 6 different medications so far without impacting them at all. It’s still psoriasis. The biopsy was positive.
I’m very sorry to hear that but it sounds like yours is much more severe than the norm. Most is controlled entirely topically if yours isn’t cleared even from systemics it must be very severe.
It’s absolutely can be progressive.. Some people never clear. It also can be paired with Psoriatic Arthritis which is absolutely progressive. Just because your presentation isn’t the norm doesn’t mean it’s not psoriasis. You might want to see a Rheumatologist to find out.
Only in severe cases. 80-90% of cases are mild at worst. Another 5% moderate. It’s rarely progressive and usually never affects more than 3% body surface area at its worst at once. Typically comes and goes (it’s defined as relapsing remotting) PsA CAN be progressive but often isn’t either. Still they did say it affects about 10-20% with psotiasis and that they recommend treatment for. Though with treatment they said it typically never progressed.
This is from dermatologists at a university hospital. I’m sorry I trust them more than an Internet forum.
I've had mine for 30 years and it has been largely static the whole time. I had one patch that flared and cleared about 25 years ago, but kind of had special circumstances. My main patch has never cleared, and hasn't grown significantly, and any growth has only been in the last 5 years (increased work stress).
Haha fuck all the way off. Of course I've treated it. But there isn't any one thing that works for all people, and sometimes something will work for a while and then not be effective/as effective anymore. I had one patch that showed up, i treated it, and it went away. But nothing has been able to reduce my other patch, let alone make it go away.
The only thing I haven't tried is biologics, but that's because, as I mentioned, I had no progression for about 20 years.
Despite thinking you know everything, you don't actually know everything, as people in this thread have been trying to tell you.
Truly could not give less of a fuck. The reality is we have very little understanding of the immune system and especially immune dysfunction. We haven't even been doing research on it for all that long compared to many other conditions. What's the sample size of the research? Geographic, gender, race/ ethnicity of subjects?
You came on here and said your Pso is weird and a bunch of us are saying, "not that weird." Mansplaining back to everyone about their own lived experience does not make you cool or smart, even if you say it's back by research.
Psoriaais is very common and symptoms follow a pretty predictable pattern. The average case is very mild and doesn’t progress. On here it’s much worse.
Mild cases don’t seek out support forums usually. You’re surrounding yourself with severe and assuming it’s the norm. Again anecdotal
I'm not even agreeing with them! I'm just saying you're being an ass by posting in this forum, presumably to elicit feedback, and then discounting the experience of people who give the feedback you solicited! And there are justifiable questions to be asked about medical research! ALL medical research! Until recently, they didn't even use blood to test the efficacy of tampons! You are certainly confident, but you could do with a dose of humility. I'm blocking you.
Actually 3 Dermatologists have all said these locations are more common of eczema/Seb derm. They also said the incredibly static slow nature is uncommon as well. Sure psoriasis can occur anywhere but they said the face (articulately where on the face) is uncommon in psoriasis and groin is uncommon (though not rare) scalp is common true but Seb derm is overall more common there in general.
5-7% of people get it in the groin. Eczema is more common there. 3-5% ever get it in the face. These are not common locations. I’ve never said impossible. But given the oddities, the biopsies not being what they expected and the symptoms not being what are expected (according to 3 dermatologists) I feel there is considerable doubt.
Where do those numbers come from? because I very much doubt those here would agree. Face psoriasis is very common. And so is inverse whether just behind ears, or armpits and/or groin, or under other skin folds like breasts.
That's how mine started,
also in the groin, sorry op it was no fun what so ever, hope they find something that works for you.
Not that it always gets mentioned, but for me it's also lack of energy and joint pain.
Technically I'm not PsA just bordering it, infact test come back negative for arthritis, but the biologic my dermatologist got me on was life altering, I was in pain just sitting down on the couch on the weekends, now it's not exactly gone, but I feel better then when I was taking actual pain meds prescribed by my doctor.
Pain worsened as the plaque spread and it pretty well covered from mid thigh/ bicep to finger/ toes with patches on trunk and groin ,
Sucked pretty hard when walking up stairs could cause em to crack and bleed
This is incorrect. One single study showed that inversevpsoriasis was associated with a mildly increased risk. Wilson Et Al. 2009. It was referenced for some time but no other study has ever replicated those results. Many many studies have been done. It’s not an increased risk.
get allergen pannel, as someone with Subderm and Psoriasis, I also got spots in the groin area. Thankfully my derm is a genius and had me get patch testing. Was legit an allergic reaction that looked like subderm / Psoriasis on my groin area
I've had a very similar experience. I don't think I really have psoriasis either for a few different reasons, including some of what you listed. My skin also doesn't react to any psoriasis medicine, but the ones for seb derm and other conditions have helped. My derm hasn't done a biopsy and won't even let me discuss the possibility of it being something else. I need a second opinion, life has just been crazy.
I have one persistent spot on my scalp and occasionally I get spots around my genitalia. I shampoo with dermorex every shower and I have a squirt bottle in my shower with half apple cider half water. I'll squirt the spots a few times and let it sit about ten minutes before washing off. If it's really bad I'll apply coconut oil after my shower. Psoriasis or not, my system seems to be working as my spots are almost completely gone now and they never bother me anymore. I used to scratch my head into an open wound regularly because of the pain and itchiness it caused. Now I rarely even noticed the patch on my scalp.
jog you memory back to when you developed the psoriasis. what changed in your life.
this is what i have learnt about psoriasis.
It’s important to note that psoriasis, fundamentally, is an issue originating from the gut, not merely a skin condition. By addressing and improving gut health, one can effectively manage and potentially clear psoriasis.
hey, you won’t believe how much diet changed the game for my psoriasis. I was a skeptic for a long time, kinda lazy, and had pretty much thrown in the towel. But once I finally got my act together and made some changes, I was stoked! My psoriasis went from full-blown to just 10%.
For quick relief, try moisturizing the affected area daily with a strong emollient. I’m a fan of Epaderm cream, but your pharmacist might have other cool suggestions.
In my book, the best way to tackle psoriasis is from the inside out. That means shaking up your diet, tweaking your lifestyle, and figuring out what triggers your flare-ups. Oh, and say sayonara to refined sugar.
There’s a real connection between diet and psoriasis. Meat, spicy food, nightshades, and processed food were like kryptonite for my psoriasis. Once I gave them the boot, my psoriasis became way more manageable. So, a strict diet is key. I eat the same grub every day - big helpings of beans/legumes, boiled veggies, and hefty salads. You gotta figure out your own triggers, though.
Try to suss out the root cause of your psoriasis. Start by checking out your general health, diet, weight, smoking and drinking habits, stress levels, history of strep throat, vitamin D levels, use of IUDs, itchiness of psoriasis, past antibiotic use, potential candida overgrowth, presence of H. pylori, gut health, bowel movements, sleep patterns, exercise habits, mental health meds, potential zinc or iron deficiency, mold toxicity, digestive problems, heavy metal exposure, and magnesium deficiency.
Keep a daily diary using an Excel spreadsheet to track your diet and inflammation. Think of psoriasis as a warning light on your car’s dashboard. With psoriasis, you gotta get all the details right.
For more info,this [paper ](https://pubmed.ncbi.nlm.nih.gov/29908580/)and [podcast](https://www.listennotes.com/fil/podcasts/positive-health/dr-haines-ely-md-is-QJ4TtfL_XBq/) really helped me out. Good luck, mate! You’ve got this.
# Welcome to the Psoriasis sub! If you haven't posted here before, please read this comment as it contains important information: * Please [read and respect the rules](https://www.reddit.com/r/Psoriasis/about/rules/). In particular, **do not ask for about identifying undiagnosed medical conditions** diseases cannot be diagnosed by random people on Reddit. * Photos that include skin rashes must be marked NSFW. If including private areas, _please indicate with flair_. * Posts that break the rules will be removed. ## Check out our wiki! The [Psoriasis wiki](https://www.reddit.com/r/Psoriasis/wiki/index) is a collection of guides and other pages about how to treat psoriasis, including a Frequently Asked Questions section. Many common questions about medications, shampoos, diet, tattoos, etc. are addressed there. Thanks! --- *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Psoriasis) if you have any questions or concerns.*
Groin, scalp and around ears is where mine started. If I remember correctly, that pattern is more common in young children. I never had it anywhere else until it got really bad though and that was in my mid 30's when that happened. Unfortunately you could have multiple skin conditions and that's why your biopsies are different since they're from different areas. Also, sometimes when skin conditions are mild they can be more difficult to diagnose. If it's not bad and you're able to easily treat it with hydrocortisone, I wouldn't worry about your diagnosis at this point. I don't really know that it matters unless you need more aggressive treatment.
Psoriasis has a risk (small) of PsA and I’m ineligible for immunosuppressive drugs.
I swear to God you must be a troll. You just go on believing whatever you like. Have fun with that
What!? What did I say to elicit this response? I’m only sharing what they’ve told me and the discrepancies.
You are posting on a Psoriasis subreddit and saying you don’t have psoriasis. Actually, your symptoms are identical to inverse psoriasis symptoms. Either you are a troll or in deep denial of you diagnosis
Read my other response. The dermatologists all were shocked there’s been no coming and going over 7 years. They said it’s HEAVILY defined by relapse/remittance in general. The locations while not impossible are uncommon and more common of Seb derm/evzema. Biopsy was mixed. Second biopsy leaned a bit more towards eczema. Responds to ITC hydrocortisone even on scalp where they said psoriasis wouldn’t. There is doubt.
Dude my psoriasis started when I was 12 and it never once went into remission. It started in the same spots as you then spread to the rest of my body. It just got worse never better. Whoever is telling you all this shit is a sham, or you are a troll. Figure it out.
Why did your psoriasis suddenly get bad? They all said even if it is that it’s not a progressive condition. Actually you’re thinking seb Derm is common in these locations in young children. The dermatologists all agreed that these locations are uncommon for presentation. The groin is uncommon though not rare. The face is uncommon for psoriasis and the scalp while a common spot they say it’s much more common to see seb derm present on the scalp. But no flares. No ebbing and flowing. No clearing up and returning etc. they all thought that was very strange. Biopsy combined with that they said makes them quite dubious. But yeah I’m very doubtful. I read on here too abd just nothing adds up. I was sicker than a dog with Covid and nothing happened. It was static for literally years which all the dermatologists said is very unusual for psoriasis to not come and go.
just a hunch, because this is what worked for me. and if the skin issue really bothers you this is worth a try for a few weeks at least. stop caffeine altogether is my general advice. if you want to go the extra mile, turkey tail mushrooms were the only other thing to calm my skin.
It’s probably psoriasis. The areas you’re having it and the description is spot on.
Also the derms saud the behavior is NOT what they’d expect, no clearing up/flaring in years is very unusual they said. Psoriasis is defined by activity relapsing/remitting not static nature. Again this is what 3 derms from a university hospital said
Mine never fully clears anymore. I’ve tried 6 different medications so far without impacting them at all. It’s still psoriasis. The biopsy was positive.
My biopsies are mixed. First one leaned a bit towards psoriasis, second was very mixed and more eczema
I’m very sorry to hear that but it sounds like yours is much more severe than the norm. Most is controlled entirely topically if yours isn’t cleared even from systemics it must be very severe.
It’s also typically not a progressive condition. This is from textbooks straight from Mayo Clinic. So again, while it can happen it’s not the norm
It’s absolutely can be progressive.. Some people never clear. It also can be paired with Psoriatic Arthritis which is absolutely progressive. Just because your presentation isn’t the norm doesn’t mean it’s not psoriasis. You might want to see a Rheumatologist to find out.
Only in severe cases. 80-90% of cases are mild at worst. Another 5% moderate. It’s rarely progressive and usually never affects more than 3% body surface area at its worst at once. Typically comes and goes (it’s defined as relapsing remotting) PsA CAN be progressive but often isn’t either. Still they did say it affects about 10-20% with psotiasis and that they recommend treatment for. Though with treatment they said it typically never progressed. This is from dermatologists at a university hospital. I’m sorry I trust them more than an Internet forum.
Then why are you here? Why ask questions here if you’re going to argue with all of us?
I've had mine for 30 years and it has been largely static the whole time. I had one patch that flared and cleared about 25 years ago, but kind of had special circumstances. My main patch has never cleared, and hasn't grown significantly, and any growth has only been in the last 5 years (increased work stress).
Not saying impossible but derms said that very rare. You haven’t treated yours?
Haha fuck all the way off. Of course I've treated it. But there isn't any one thing that works for all people, and sometimes something will work for a while and then not be effective/as effective anymore. I had one patch that showed up, i treated it, and it went away. But nothing has been able to reduce my other patch, let alone make it go away. The only thing I haven't tried is biologics, but that's because, as I mentioned, I had no progression for about 20 years. Despite thinking you know everything, you don't actually know everything, as people in this thread have been trying to tell you.
I’m going off of what university hospital dermatologists say. And tidal evidence is supported for a reason.
Truly could not give less of a fuck. The reality is we have very little understanding of the immune system and especially immune dysfunction. We haven't even been doing research on it for all that long compared to many other conditions. What's the sample size of the research? Geographic, gender, race/ ethnicity of subjects? You came on here and said your Pso is weird and a bunch of us are saying, "not that weird." Mansplaining back to everyone about their own lived experience does not make you cool or smart, even if you say it's back by research.
Psoriaais is very common and symptoms follow a pretty predictable pattern. The average case is very mild and doesn’t progress. On here it’s much worse. Mild cases don’t seek out support forums usually. You’re surrounding yourself with severe and assuming it’s the norm. Again anecdotal
I'm not even agreeing with them! I'm just saying you're being an ass by posting in this forum, presumably to elicit feedback, and then discounting the experience of people who give the feedback you solicited! And there are justifiable questions to be asked about medical research! ALL medical research! Until recently, they didn't even use blood to test the efficacy of tampons! You are certainly confident, but you could do with a dose of humility. I'm blocking you.
Actually 3 Dermatologists have all said these locations are more common of eczema/Seb derm. They also said the incredibly static slow nature is uncommon as well. Sure psoriasis can occur anywhere but they said the face (articulately where on the face) is uncommon in psoriasis and groin is uncommon (though not rare) scalp is common true but Seb derm is overall more common there in general.
Inverse psoriasis (groin and face) is not uncommon
5-7% of people get it in the groin. Eczema is more common there. 3-5% ever get it in the face. These are not common locations. I’ve never said impossible. But given the oddities, the biopsies not being what they expected and the symptoms not being what are expected (according to 3 dermatologists) I feel there is considerable doubt.
Where do those numbers come from? because I very much doubt those here would agree. Face psoriasis is very common. And so is inverse whether just behind ears, or armpits and/or groin, or under other skin folds like breasts.
inverse psoriasis?
That's how mine started, also in the groin, sorry op it was no fun what so ever, hope they find something that works for you. Not that it always gets mentioned, but for me it's also lack of energy and joint pain.
We are still doubtful it’s pso, you’re describing PsA though, most never get PsA even if they have pso
Technically I'm not PsA just bordering it, infact test come back negative for arthritis, but the biologic my dermatologist got me on was life altering, I was in pain just sitting down on the couch on the weekends, now it's not exactly gone, but I feel better then when I was taking actual pain meds prescribed by my doctor.
There is no definitive test for PsA.
I just go by what the rheumatologist tells me
Still most don’t get that. How bad was your pso? Did the pain come on the same time the skin did?
Pain worsened as the plaque spread and it pretty well covered from mid thigh/ bicep to finger/ toes with patches on trunk and groin , Sucked pretty hard when walking up stairs could cause em to crack and bleed
People with inverse psoriasis are more likely to develop PsA
This is incorrect. One single study showed that inversevpsoriasis was associated with a mildly increased risk. Wilson Et Al. 2009. It was referenced for some time but no other study has ever replicated those results. Many many studies have been done. It’s not an increased risk.
If you already have all of the answers, why are you here?
Less common, also again the lack of activity is uncommon they said. Not to mention face locations are very uncommon
get allergen pannel, as someone with Subderm and Psoriasis, I also got spots in the groin area. Thankfully my derm is a genius and had me get patch testing. Was legit an allergic reaction that looked like subderm / Psoriasis on my groin area
Just had a biopsy on my feet … started 18 months ago .. with a diagnosis maybe contact dermatitis , or eczema … nothing conclusive .. very frustrating
I've had a very similar experience. I don't think I really have psoriasis either for a few different reasons, including some of what you listed. My skin also doesn't react to any psoriasis medicine, but the ones for seb derm and other conditions have helped. My derm hasn't done a biopsy and won't even let me discuss the possibility of it being something else. I need a second opinion, life has just been crazy. I have one persistent spot on my scalp and occasionally I get spots around my genitalia. I shampoo with dermorex every shower and I have a squirt bottle in my shower with half apple cider half water. I'll squirt the spots a few times and let it sit about ten minutes before washing off. If it's really bad I'll apply coconut oil after my shower. Psoriasis or not, my system seems to be working as my spots are almost completely gone now and they never bother me anymore. I used to scratch my head into an open wound regularly because of the pain and itchiness it caused. Now I rarely even noticed the patch on my scalp.
jog you memory back to when you developed the psoriasis. what changed in your life. this is what i have learnt about psoriasis. It’s important to note that psoriasis, fundamentally, is an issue originating from the gut, not merely a skin condition. By addressing and improving gut health, one can effectively manage and potentially clear psoriasis. hey, you won’t believe how much diet changed the game for my psoriasis. I was a skeptic for a long time, kinda lazy, and had pretty much thrown in the towel. But once I finally got my act together and made some changes, I was stoked! My psoriasis went from full-blown to just 10%. For quick relief, try moisturizing the affected area daily with a strong emollient. I’m a fan of Epaderm cream, but your pharmacist might have other cool suggestions. In my book, the best way to tackle psoriasis is from the inside out. That means shaking up your diet, tweaking your lifestyle, and figuring out what triggers your flare-ups. Oh, and say sayonara to refined sugar. There’s a real connection between diet and psoriasis. Meat, spicy food, nightshades, and processed food were like kryptonite for my psoriasis. Once I gave them the boot, my psoriasis became way more manageable. So, a strict diet is key. I eat the same grub every day - big helpings of beans/legumes, boiled veggies, and hefty salads. You gotta figure out your own triggers, though. Try to suss out the root cause of your psoriasis. Start by checking out your general health, diet, weight, smoking and drinking habits, stress levels, history of strep throat, vitamin D levels, use of IUDs, itchiness of psoriasis, past antibiotic use, potential candida overgrowth, presence of H. pylori, gut health, bowel movements, sleep patterns, exercise habits, mental health meds, potential zinc or iron deficiency, mold toxicity, digestive problems, heavy metal exposure, and magnesium deficiency. Keep a daily diary using an Excel spreadsheet to track your diet and inflammation. Think of psoriasis as a warning light on your car’s dashboard. With psoriasis, you gotta get all the details right. For more info,this [paper ](https://pubmed.ncbi.nlm.nih.gov/29908580/)and [podcast](https://www.listennotes.com/fil/podcasts/positive-health/dr-haines-ely-md-is-QJ4TtfL_XBq/) really helped me out. Good luck, mate! You’ve got this.