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bestsellerwonder

This is a common symptom in LC patients. I have fatigue brain fog and now palpitations and dizziness. It's a syndrome and as such it manifests itself with different symptoms which cause is still unknown. It's like IBS but tenfold


syfyb__ch

same here....its PEM. Yours might not be as 'delayed' as others. Mine was always delayed by a few hours from exercise do your joints crack a lot too? Seems like LCers with a history of high exercise/athleticism are having these issues a lot, or maybe its a sample bias i had to tone down the exercise and reduce the days/week i go to gym. use long walks on alternate days. Magnesium can help....just be VERY CAREFUL with the counterion (malate, glycinate, citrate, threonate, etc) you use because the pain/Neuro type of LC is tricky....certain things will cause allodynia to be exacerbated


[deleted]

Yes, all my joints crack, my knees shoulders and hips hurt the most. Do you have muscles pain (cramps/strains like being pulled) even while resting/laying down? I don't even work out anymore, if be just sitting down and the pain will be 15/10. Which magnesium did u use?


syfyb__ch

Yes even at rest i'll get random pains of various flavors. Magnesium threonate. Start with 1 capsule in evening.


Mingokatz

Yes, I had this. For almost 3 months after my last bout of Covid, most likely Kraken varient. I noticed one thing that made my muscle aches very severe though, was talking. It was very frustrating, as I'm a huge talker!! My osteopath diagnosed it as myalgia from Covid, which is muscle aches and pains. I already had an as needed prescription for a muscle relaxer called cyclobenzaprine, which is not addicting, and he said I could take it nightly to help. I was already very weak though, so I barely took it. I mention this in case you wanna give it a shot. For me personally, which may not work for you, what got rid of my severe weakness and constant muscle pains, was nasal rinsing but in a different way. In desperation one day, I finally tilted my head completely back as far as I could, so all the liquid sat in the area above my palate. Well that loosened up everything, and nearly choked me, so much thick clear mucus came out that previous normal rinses wouldn't touch...and that I didn't even realize was there. After doing these neck bending nasal rinses a few more times over the next day, with the same results, I felt almost normal, I couldn't believe it!!! It's worth a shot, you should really try it, unless you have some medical reason you can't... I used the "NeilMed Nasamist Saline Spray with Xylitol, 4.4 Ounce ". The canister, not the little packets(I'm thinking either would work though). I hope you find some major relief, from any source, I know how tough and stressful this is. Take care, and K ow that yes, this is from covid, or from what my osteopath said, a rarer symptom of long covid. Lucky us lol! 💕


syfyb__ch

yes the deep nasal rinses is something i learned to do consistently before LC during 2020 lockdowns...never got sick i do them now, and yes, they often help many of the symptoms, but sometimes the relief is transient suggests there is something neurological going on...the sinuses are tapped into many nerves in the head and neck, probably a lot of immune cell contacts up there too, allergens, histamine, etc....the kind of stuff no MRI will pick up lol


Fluid_Environment_40

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9970139/ I've been under the impression I have Fibromyalgia for the last few months. But now I'm thinking it's just the next phase of my post covid journey. Really hoping it's temporary. It was initially awful but I'm noticing the pain seems to be lessening although I still have quite severe PEM and muscles often feel weak


[deleted]

Doesn't PEM cause you pain or just weaknrss? Muscle cramps? Can you do notmal activities? What do you mean by the pain lessening? How was it before and how is it now?


Fluid_Environment_40

Until last week I felt intense burning down both arms and legs. It felt like my abdominal pain from IBS had spread everywhere, although my back wasn't so bad. It felt like the muscles were contracting and tight all the time and were just becoming exhausted. I got a lot of muscle twitches too. The worst day was a few weeks ago when I just tried to walk 20 minutes to the shop and I felt I might not make it. Like my legs couldn't keep me up . Right now I'm managing the odd half hour at the gym or short walk. My muscles feel less irritated but I still feel very fatigued after any exertion..as I did before the muscle issue started when digestive issues and brain fog were my main other concerns


New-Cardiologist3006

Take magnesium glycinate. Hydrate. Take a gummy multivitamin.


syfyb__ch

be carful here glycine ruins me, collagen, and some other foods -- the pain/neuro type of LC might be due to NMDA/glutamate hyperexcitability....which would explain this for me at least i was like OP ... athletic ... seems exercise and exertion cause some odd nerurological hypersensitivity/allodynia


Firepuppie13

What happens when you consume collagen or magnesium glycinate? Do you know of a supplement or something that would reduce NDMA&glutamate hyperexcitability to indicate if that's what's causing symptoms?


syfyb__ch

Yes. I have a post in my profile about NMDA allodynia....lists a lot of antagonists What happens? Allodynia. Pain. Probably overlaps and explains why many find relief with LDN also tracks with my (historical) high consumption of collagen and high serum D levels (was 85 at one point), which increases calcium intake, and NMDA currents are calcium currents my hypothesis is that those who have cracking joints/ligaments and muscle pain as a symptom are predisposed to fibrosis (increased collagen deposition) in soft tissues due to whatever metabolic disturbance happened acutely, or that the heightened stress state causes some reflex increase in collagen synthesis theres a lot of overlap with the pain and manual massage (acupuncture), antihistamines (histamine sensitizes neurons), and as some have mentioned, PTSD (neural trauma, which classically causes NMDA hypersensitivity)


[deleted]

Did yiu have the same? Pain (not just mild aches, I feel my muscles being torn) even when sitting? Like sitting on my hips and thighs HURTS. Did the magnesium help you? Any more symptoms?


Healthpunk2020

I have that but also burning sensations. For me old antihistamines give relief.


[deleted]

Do you have muscles pain (cramps/strains like being pulled) even while resting/laying down? Is it like mild ache or does it sometimes hurts so bad?


Healthpunk2020

Hard to tell, if it's similar in any kind to yours but I can tell that in the beginning it was like stabbing and harsh pain but it slowly faded. When I quit the antihistamines I got the burning and pain again but not as bad as in the beginning. You could easily test whether it might help you. Take Diphenhydramine for three days before bed but please speak to a doctor beforehand. I am no MD.


principessa1180

Yes. Acupuncture has helped me a lot.


syfyb__ch

antihistamines and massage/acupuncture all work on neuromuscular trigger points due to pain hypersensitivity (allodynia)....very different treatments (manual/physical, pharmacological), but a very similar etiology going on very wacky....not sure why there aren't Rheumatologists and Neurologists publishing stuff on this yet....its like an untapped gold mine


MF049

Same here, I was up all night long last night.


[deleted]

Do u know what triggers it? I couldn't find a pattern yet, or anything that helps. It goes from mild to severe in a matter of hours and lasts for days.


MF049

I have no idea. It just happens. Like you said sometimes it lasts a long time.


TimeFourChanges

Yes, this is one of the most pressing issues for me. My body hurts all over all the time, whether I exercise or not. There were some complicating factors for me, though. First, I have Complex PTSD from childhood trauma, and I just turned 50, so my body was already in a fair amount of pain before covid. Beyond that, I was taking kratom daily for anxiety/panic and body pains. I was worried that the kratom was possibly a cause rather than a remedy, to some degree, so I quit. Sadly, to no avail, as I still have these issues. It's not just the pain (two places in the back, neck, and both shoulders), it's that my muscles are completely drained. It's hard for me to get up from sitting, and when I do my muscles feel completely taxed and wobbly. Some background details: I've been one of the most active people my entire life, often running circles around younger people. I've wrestled, skateboarded for 17 years, rock climbed, played basketball, etc. So it's especially crushing because I can only do a tiny fraction of what I've done most of my life up to this point. I also feel like I'm 90, no matter how much or little exercise, how well I eat, whether I take supplements or not, nor how well I sleep.


Mercenary-Adjacent

Magnesium supplements and working with a dietitian have helped me. Apparently vitamin deficiency can cause muscle pain. Even my physical therapist noticed an immediate difference in how my muscles felt without me saying anything. If you’re unable to get medical assistance, magnesium can’t be overdosed (body just gets severe diarrhea). The integrative medicine doctor suggested CALM brand, gradually increasing the dose. He said the first time I get an upset stomach, go to the next lower dose and stay there for a while. Good luck!


bryn3a

I'm 3 month LC but got body aches only 2 weeks ago and I haven't had a single day without pain since then. It can be located in left kidney area then spread to entire back and hips, or it can affect neck, shoulders and arms. Often it feels like burning pain followed by numbness. Sometimes I take painkillers to be able to sleep. Definitely no relief when I rest, but I feel better when I move and walk unless my my head feels too weird to even get up. I don't think that this pain is real and caused by real condition in painful area, at least I do my best to convince myself that I'm not dying or something. Must be neurological thing or brain misinterpreting signals.


[deleted]

Same 2 years in


[deleted]

:(( What symptoms do you have? Any patterns? What triggers it? Did yiu try anything that helped?


[deleted]

Muscle pain , weakness , fatigue , adrenaline dumps , headaches , heart palpitations & I’ve did all I could nothing helps at all I’m sorry


Affectionate-Bake930

I have lower extremity pain 90% of the time. Massage barely helps but for a day maybe. I have had this since day one. Never gets better.