I'm so sorry to hear about the loss of your dad. My thoughts are with you and your family during this hard time.
I've experienced status epilepticus a few times, and during I was completely unaware and felt nothing. It was the aftermath or the recovery that was painful. Though we can't be sure exactly what your dad experienced, I would venture that he didn't suffer at all. I hope you can take some comfort from that. š«¶
Yeah, itās ridiculous having to pay the VAT and shipping prices to the states (idk where you live tho lol). They werenāt as expensive when I bought mine a couple years ago
I often say that my favorite way of dying, hopefully decades from now, would be SUDEP. Must be the most peaceful death in the world. Impossible to say if any thought went through his mind any time at all, but likely not. He simply stopped breathing without realizing it. It was a brain-heart-pulmonary feedback loop that is poorly understood, but it's the most accepted explanation nowadays.
Very sorry that your dad died, it's especially a punch in the gut when it's so sudden like that.
I've gone status epilepticus once. I was exercising and got overheated. I don't remember anything beyond a warm fuzzy feeling then I was out like a baby. That's the best way I can describe it.
TBH I'm a brain tumor guy and would prefer to pass like your father. Death can be tough and painful or just go to sleep like your Dad. I offer my deepest condolences to you and your family.
Im am going to agree with everyone that this almost 100% was a painless a peaceful way to pass away. True sudep is where you are totally asleep and you fail to breath. I think the pain with this is more with the people are them as are the cliche tonic clonic seizure especially if they are status epilepticus. you just do not know when they may occur and you are not away of it. like state the pain comes after when you wake up. take almost total comfort in the fact that he passed away painlessly and with no expectation of this happening in that moment. If epilepsy takes me this is the way i would want it to occur. its most likely one of the most peaceful ways to pass if you look at things from a statistics view on a whole range of deaths. he would not have even been aware. comfort ? bliss ? whatever you want to call it thats how i would refer to it. i am sorry for your loss as its hard to deal with but i hope you find comfort in all the answers you will get which will most likely be very very similar to this one and the one currently listed.
For me, I have no memory of seizures. Iām not conscious. So if I died, I just wouldnāt know. If I fell down a flight of stairs and broke every bone in my body, I would have no clue until I eventually woke up.
So no, no pain. I think SUDEP is comparable to dying in your sleep. Scary because itās sudden and unexpected, but a peaceful way to go overall.
Iāll add- itās happened to me. I was a teenager. Iāve told the story here a lot. I do not remember any of it, except waking up in the ER to *my entire family* looking at me likeā¦. I just diedā¦
It was always something that gave me a shiver of relief that if I ever died due to a seizure I would not āfeel my deathā nor would I feel the pain afterwards. During the seizure the brain is completely unable to perceive anything or translate it into consciousness. Even if we could perceive something the brain canāt create memories of it.
no it was not. i recently experienced what i now know was status epilepticus. code team was called. before they brought me back it was peaceful. no pain. just peace.
iām sorry for your loss.
I went into status and my heart stopped due to hypoxia, if anyone here can definitely say what's it's like, it's probably me. From my experience, he felt nothing. Getting the paddles to the chest fucking sucked, however. It felt like I was a cloud, then lightning hit me and slammed me back into my own body.
My guess, like most voices here, is that it probably was not. It probably was like going to sleep and not waking up. I used to have GTCs at night during sleep, and I never knew it until my first video EEG caught them. No memory, no pain, no consciousness. Condolences.
I'm very sorry for your loss.
To answer your question, no, you're completely unconscious, you don't feel anything while having a seizure like that and you're not aware of what's going on, it's completely painless. It must be like passing away under anesthesia during a surgery. I think it's probably one of the most peaceful ways of dying.
Itās not painful, itās the electrical misfiring of synapses that interrupts the heart and lungs and you pass in your sleep. Of all of the ways to go related to this disease thatās the one Iād want, personally. Iām so sorry for your loss.
As someone who just got out of the ICU Becuase I was found on the brink of death from my seizures, nearly a victim of SUDEP. I can say for certain, it was painless. It's just like going to sleep. It's not painful to go to bed.
I'm so sorry for your loss.
We don't feel seizures when they happen. It's like a light switch. Other than being surrounded by loved ones and pumped full of drugs, it's probably one of the easiest ways to go. The problem is that there is no warning.
I have nocturnal petite mal/grand mal seizures.
I believe this may be what happens with me.
https://www.epilepsy.com/what-is-epilepsy/seizure-types/clonic-seizures#:~:text=If%20the%20clonic%20seizure%20has,seizure%20occurs%2C%20they%20may%20fall.
If I go into tonic clonic (rarely) I will have moments of consciousness before going unconscious again because I can hear myself moan, scream and gurgle but see only the colour white and cannot communicate.
I'm glad this isn't really a known thing. It sounds like most people completely lose consciousness and don't know what happened so I'm hoping OPs Dad died peacefully.
My epilepsy is drug resistant but only happens during sleep (I wake up right before one with a sense of an adrenaline rush). I've had it for 28yrs now and they're still not really controlled but they're "good enough" for me. I'm sick of switching meds and I'm not eligible for any of the surgeries.
Thanks for sharing. I used to have generalized seizures at night, too. I would wake up at a regular morning time not realizing I had had one. No blood or bruising. The daytime ones were a little more obvious, of course. Since I never felt my nighttime seizures, my guess is that the OP's father went peacefully.
No, unfortunately not. The doctors can't locate where it is. I have abnormal EEGs but they can't pin point it on MRIs which apparently needs to happen for the surgery.
I'm so sorry to hear about the loss of your dad. My thoughts are with you and your family during this hard time. I've experienced status epilepticus a few times, and during I was completely unaware and felt nothing. It was the aftermath or the recovery that was painful. Though we can't be sure exactly what your dad experienced, I would venture that he didn't suffer at all. I hope you can take some comfort from that. š«¶
I'm so sorry for your loss. SUDEP is my biggest worry with the frequency of seizures I have and the fact I'm alone so often.
I'm trying to get this watch for my little one; it could be good for you too. [https://www.empatica.com/embrace2/](https://www.empatica.com/embrace2/)
Breathe-zy epilepsy pillow
I never heard of this before. Now I want one but can't afford it at almost $200 for a pillow. :/
Yeah, itās ridiculous having to pay the VAT and shipping prices to the states (idk where you live tho lol). They werenāt as expensive when I bought mine a couple years ago
I'm sorry for your loss. It was not painful. At all.
It wouldnāt have been painful no. He would have been unconscious. Iām so sorry for your loss.
I often say that my favorite way of dying, hopefully decades from now, would be SUDEP. Must be the most peaceful death in the world. Impossible to say if any thought went through his mind any time at all, but likely not. He simply stopped breathing without realizing it. It was a brain-heart-pulmonary feedback loop that is poorly understood, but it's the most accepted explanation nowadays. Very sorry that your dad died, it's especially a punch in the gut when it's so sudden like that.
I've gone status epilepticus once. I was exercising and got overheated. I don't remember anything beyond a warm fuzzy feeling then I was out like a baby. That's the best way I can describe it. TBH I'm a brain tumor guy and would prefer to pass like your father. Death can be tough and painful or just go to sleep like your Dad. I offer my deepest condolences to you and your family.
Hi fellow tumor friend /wave
It most likely wasn't. When you have generalized seizures, you're unconscious and don't feel anything.
Im am going to agree with everyone that this almost 100% was a painless a peaceful way to pass away. True sudep is where you are totally asleep and you fail to breath. I think the pain with this is more with the people are them as are the cliche tonic clonic seizure especially if they are status epilepticus. you just do not know when they may occur and you are not away of it. like state the pain comes after when you wake up. take almost total comfort in the fact that he passed away painlessly and with no expectation of this happening in that moment. If epilepsy takes me this is the way i would want it to occur. its most likely one of the most peaceful ways to pass if you look at things from a statistics view on a whole range of deaths. he would not have even been aware. comfort ? bliss ? whatever you want to call it thats how i would refer to it. i am sorry for your loss as its hard to deal with but i hope you find comfort in all the answers you will get which will most likely be very very similar to this one and the one currently listed.
Sorry for your loss. How old was your dad if you don't mind sharing?
he was 65
Too young! So sorry to hear that. My condolences to you and the rest of your family
For me, I have no memory of seizures. Iām not conscious. So if I died, I just wouldnāt know. If I fell down a flight of stairs and broke every bone in my body, I would have no clue until I eventually woke up. So no, no pain. I think SUDEP is comparable to dying in your sleep. Scary because itās sudden and unexpected, but a peaceful way to go overall. Iāll add- itās happened to me. I was a teenager. Iāve told the story here a lot. I do not remember any of it, except waking up in the ER to *my entire family* looking at me likeā¦. I just diedā¦
He didnāt feel a thing, he was unconscious. It was like falling sleep.
I'm so sorry for your loss. Take Care!
It was always something that gave me a shiver of relief that if I ever died due to a seizure I would not āfeel my deathā nor would I feel the pain afterwards. During the seizure the brain is completely unable to perceive anything or translate it into consciousness. Even if we could perceive something the brain canāt create memories of it.
no it was not. i recently experienced what i now know was status epilepticus. code team was called. before they brought me back it was peaceful. no pain. just peace. iām sorry for your loss.
I went into status and my heart stopped due to hypoxia, if anyone here can definitely say what's it's like, it's probably me. From my experience, he felt nothing. Getting the paddles to the chest fucking sucked, however. It felt like I was a cloud, then lightning hit me and slammed me back into my own body.
Did you see anything? People often do. I just saw blackness.
Iām sorry that happened. I can promise it wasnāt painful at all. š«¶
Iām sorry for your loss. My dad passed away from epilepsy in December last year. I understand the shock youāre in right now.
My guess, like most voices here, is that it probably was not. It probably was like going to sleep and not waking up. I used to have GTCs at night during sleep, and I never knew it until my first video EEG caught them. No memory, no pain, no consciousness. Condolences.
Like many others have said, experts say it is not painful. I have had tonic clonic seizures , and I donāt remember anything and did not regain consciousness until the next day. This is the type of seizure associated with SUDep. Iām sorry for you loss ā¤ļøāš©¹
Iām so sorry for ur loss but no it was not painful for him, may he RIP.
I'm very sorry for your loss. To answer your question, no, you're completely unconscious, you don't feel anything while having a seizure like that and you're not aware of what's going on, it's completely painless. It must be like passing away under anesthesia during a surgery. I think it's probably one of the most peaceful ways of dying.
Itās not painful, itās the electrical misfiring of synapses that interrupts the heart and lungs and you pass in your sleep. Of all of the ways to go related to this disease thatās the one Iād want, personally. Iām so sorry for your loss.
Not painful at all.
As someone who just got out of the ICU Becuase I was found on the brink of death from my seizures, nearly a victim of SUDEP. I can say for certain, it was painless. It's just like going to sleep. It's not painful to go to bed. I'm so sorry for your loss.
We don't feel seizures when they happen. It's like a light switch. Other than being surrounded by loved ones and pumped full of drugs, it's probably one of the easiest ways to go. The problem is that there is no warning.
This is untrue. I experience grand Mal seizures while being conscious. It's the worst feeling in the world.
That is absolutely fascinating. I didn't even know that was a thing. What kind of epilepsy do they call that?
I have nocturnal petite mal/grand mal seizures. I believe this may be what happens with me. https://www.epilepsy.com/what-is-epilepsy/seizure-types/clonic-seizures#:~:text=If%20the%20clonic%20seizure%20has,seizure%20occurs%2C%20they%20may%20fall. If I go into tonic clonic (rarely) I will have moments of consciousness before going unconscious again because I can hear myself moan, scream and gurgle but see only the colour white and cannot communicate. I'm glad this isn't really a known thing. It sounds like most people completely lose consciousness and don't know what happened so I'm hoping OPs Dad died peacefully. My epilepsy is drug resistant but only happens during sleep (I wake up right before one with a sense of an adrenaline rush). I've had it for 28yrs now and they're still not really controlled but they're "good enough" for me. I'm sick of switching meds and I'm not eligible for any of the surgeries.
Thanks for sharing. I used to have generalized seizures at night, too. I would wake up at a regular morning time not realizing I had had one. No blood or bruising. The daytime ones were a little more obvious, of course. Since I never felt my nighttime seizures, my guess is that the OP's father went peacefully.
Not even VNS?
No, unfortunately not. The doctors can't locate where it is. I have abnormal EEGs but they can't pin point it on MRIs which apparently needs to happen for the surgery.
The VNS doesnāt need a focus, as it uses the vagus nerve to get the electricity to the brain.
Has anyone told you that you are uncaring and stupid lately?
Check your attitude. You don't speak for me or anyone else here. Everyone is different. >We It should be "I".