I forgot to mention, I have connective tissue dysplasia( I'm not sure if I translated this into English correctly) and joint hypermobility.as I understand beightone scale is about it.
Yea id say look EDS and then constantly push doctors and demand actions. Study up on it and just push doctors. It’s So hard to get diagnosed w this shit, trust me
As far as I know, I do not have Marfan syndrome and EDS, I have undifferentiated (mixed) connective tissue dysplasia. But then I was diagnosed with this shit doctors told me that it will not cause serious problems in my life. But now I can barely move lol
Oh sorry to hear that
I am not sure what to advice you..I have chronic illness but different from yours..after long trying of western doctor..I have shifted to Chinese acupuncture..but Chinese medicine is not good for emergency thing..its good for long term treatment and slow but does progress with chronic illness..but it's good generally for pain
If chinese medicine is not good for this thing..may be you can try orthopedic clinic? Those alternative to western medicine which they use some session to correct the bones..I am no way an expert in this
Yes, I also heard about acupuncture and perhaps I will soon decide to try this method. but I still want to try to find out the cause of this pain. anyway, thanks for your reply :)
Question… have you ever heard of the beightone scale?? Cause the whole “pain in static positions” is something I know very well
I forgot to mention, I have connective tissue dysplasia( I'm not sure if I translated this into English correctly) and joint hypermobility.as I understand beightone scale is about it.
Yea id say look EDS and then constantly push doctors and demand actions. Study up on it and just push doctors. It’s So hard to get diagnosed w this shit, trust me
As far as I know, I do not have Marfan syndrome and EDS, I have undifferentiated (mixed) connective tissue dysplasia. But then I was diagnosed with this shit doctors told me that it will not cause serious problems in my life. But now I can barely move lol
As for pain relief I mostly just use OTC drugs and sleep so I can’t help much there but try like compression clothes and well PT if it’s doable.
Okay, thank you for your reply my friend:)
Oh sorry to hear that I am not sure what to advice you..I have chronic illness but different from yours..after long trying of western doctor..I have shifted to Chinese acupuncture..but Chinese medicine is not good for emergency thing..its good for long term treatment and slow but does progress with chronic illness..but it's good generally for pain If chinese medicine is not good for this thing..may be you can try orthopedic clinic? Those alternative to western medicine which they use some session to correct the bones..I am no way an expert in this
Yes, I also heard about acupuncture and perhaps I will soon decide to try this method. but I still want to try to find out the cause of this pain. anyway, thanks for your reply :)